Joined: Apr 2009 Gender: Male Posts: 34 Location: Dumfries and Galloway
Re: Scotland « Reply #1 on Sept 5, 2009, 8:53am »
Hi
Yeah lets all rally! A year and a bit after you start this thread!
Seriously though I am soo dis-regulated.
What the heck is the deal with sign guidelines? What do we do!
I have done nothing in terms of writing to msp's and local health trusts. I am a bit unsure as to how to approach these fuddy-duddies. That has to change!
Is it time to get a Scottish petition going? What should I be doing to raise awareness?
As for the Scotland meeting, Glasgow is just too far away for me and I don't know it very well. Should I be setting up an interim meeting for southern Scotland? I'm thinking as far north as Lanark but then I'm being selfish because I know that town. Would anyone be interested in this?
I'm being so lazy while people with ADHD in Scotland are being disposed of. Though to be fair I have been struggling to get to grips with myself.
Thoughts, comments and suggestions welcome. Plus if anyone from Scotland could acknowledge this thread so we can get an idea of numbers.
I aint going to let up on this subject. I will start to talk to newspapers as well once I get another generic reply (im expecting it). I suggest you writer to your MSP also and start annoying the life out of them too. You can always utilise some of the text in my letters or the others flying around the site. They are good for using as a template and then just add in relevant stuff by yourself.
And I would come see you in Lanark Freewill but its probably best u set something up in Dumfries. I cant tell you that you will be any more successful than myself but its got to be better if we have them spread out a little. You are too far away friom Glasgow, so there will always be someone who is too far away from Lanark.
And as for the being lazy talk. No you are not. I struggled with getting mine started but done so through the help of people on this site. Its just who we are freewill. Everyone will help if they can and offer support when they can.
Joined: Jun 2008 Gender: Female Posts: 1,793 Location: Bristol
Re: Scotland « Reply #7 on Nov 6, 2009, 10:06pm »
Hi Guys,
I've heard via the grapevine that Dr Judith Burgess of NHS Fife is assessing and treating adults with ADHD. I'm afraid I don't have her contact details but here's a link to NHS Fife
Im sure it is the Fife region that Gordon Brown is associated with also. It seems to be that Fife is the only region who has any clinicains who know anything about ADHD. Unfortunately Gordon and the troops who are fighting our corner seem to be fighting a losing battle. I heard from one of the civilians on the "board" who revised the guideline and none of them were happy about this new guideline not including adults but apparantly there is nothing they can do due to lack of funding. As always, the short sighted only see what they are paying now, rather than looking at the savings made elsewhere (like on the police having to chase us).
Joined: Jun 2008 Gender: Female Posts: 1,793 Location: Bristol
Re: Scotland « Reply #9 on Nov 8, 2009, 12:52pm »
Quote:
Unfortunately Gordon and the troops who are fighting our corner seem to be fighting a losing battle
They actually can't lose because then NHS Scotland could potentially be in breach of the Disability Discrimination Act!!
If the fighting is become harder, then obviously a change of tactics is needed (e.g. more troops, combining guerrilla with conventional tactics, hitting the weakpoints instead of the strongholds etc.)
It's time to rally the troops and get imaginative!
1. All ADHD people in Scotland unite 2. Get service user reps onto each trust 3. Jointly go to local press in each area 4. Hammer each trust with formal complaints 5. Remind each trust of their legal Disability Equality Duties
AADD-UK will help with finding contact info, letter templates, & leaflets, and supporting information.
btw: It's amazing how quickly they can find funding when faced with the possibility of public exposure and embarrassment
Re: Scotland « Reply #11 on Nov 26, 2009, 3:42pm »
Hi guys I'm in Scotland and, despite the huge intervals between appointments, I'm being treated for ADHD. Just started, really. Diagnosed about 2 weeks ago and starting on medication. It took handing a package to my GP (skeptical about it at first, as I've got a PhD, job and stuff) containing : the results of a serious screening test (available on line), same test done by my wife (on me, of course), plus a letter saying how bad things are and a copy of a couple of good scientific papers on the prevalence of ADHD in adults. My GP wrote back the next week saying he had referred me to the clinic. About a month later, letter from the clinic with appointment date at the Andrew Duncan clinic, with Dr (Prem?)Shah. He seems to be on the ball. Had a first interview with him around 2 months ago, had some psychometric tests (some a bit odd) and another appointment, now with my wife, when we discussed this. There and then, after very well put remarks on the legal side of it and with lots of warnings, comme il faut, he put me on Concerta, starting with a (very) low dose. Now waiting to see how it goes. No effect as yet, but still at 27mg. Cheers
Joined: Apr 2009 Gender: Male Posts: 34 Location: Dumfries and Galloway
Re: Scotland « Reply #12 on Nov 26, 2009, 7:59pm »
Welcome Henry
Glad to see another Scot on the forum. I went to the Andrew Duncan clinic where I was diagnosed with major depressive disorder. The misdiagnosis and treatment really screwed me up and I had to move to dumfries with my parents. I'm glad to hear that this Dr is on the ball. Scotland has a really bad problem with ADHD awareness. The more people we can get on forums like this the better the credibility for the condition. I'm sure the other Scottish members will be keen to extend their regards.
Re: Scotland « Reply #13 on Nov 27, 2009, 7:07pm »
Hi henry. Sounds like you seem to have one of the few Psychiatrists that have a grasp of whats going on. My Psych hasnt a clue and basically just gave me meds because I was so insistent that I have ADHD. He hasnt conducted any tests and clearly oes not know enough about it to be treating people. I should have had some sort of background history done and other tests which would rule out other possibvilities with similar symptoms. Ive now decided that only 1 person is going to help me, ME. So I will continue taking the meds (which are helping incidentally) and try to find some sort of structure in my life.
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