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Dec 15, 2009, 12:20am




www.aadd.org.uk message board :: Advocacy :: Write to Your PCT//LHB and MP :: AADD-UK Letter to NHS Trusts re ADHD
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marvelousmatt
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 Re: AADD-UK Letter to NHS Trusts re ADHD
« Reply #15 on Nov 4, 2009, 11:59am »
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hahaha, roland, how come you always get me and madscot confused!?! ;D

-well done with your exploits!... i bet the radio interview was scary!
it wasn't on BBC bristol by any chance was it?... i'd love to check out your awesome performance on iPlayer!

-matt
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roland
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 Re: AADD-UK Letter to NHS Trusts re ADHD
« Reply #16 on Nov 4, 2009, 2:01pm »
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;D I've got ADHD and didn't read the post properly ::)

Many apologies matt ;D

It was on the community radio and there might be a pod cast available soon. But now I've got an awful feeling that I made a complete ass of myself, and on the way home, I suddenly remembered all the things that I'd wanted to say, but completely forgot about while I was in the studio ::)



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Roland

Please sign our petition calling for dedicated NHS funds for adult ADHD services http://petitions.number10.gov.uk/adhdadults/

roland
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 Re: AADD-UK Letter to NHS Trusts re ADHD
« Reply #17 on Nov 4, 2009, 2:31pm »
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Here is a letter template for those primary care trusts that are not yet approving referrals to nearby clinics or specialists:

Dear Chief Executive,

As I expect you are aware, the National Institute for Clinical Excellence (NICE) published on 24 September 2008 the Clinical Guidelines 72 (CG72) “Attention deficit hyperactivity disorder: Diagnosis and management of ADHD in children, young people and adults.” CG72 is available online at www.nice.org.uk/Guidance/CG72.

These Guidelines, using the criteria of DSM-IV, estimate conservatively that 2% of adults are impacted by ADHD which means that since xxxxxxxxx currently has an estimated population of 177,872, of which approximately 96,305 are adults between 20 to 59 years of age, you can expect about 1,926 adults to be affected by ADHD. It should also be noted that the total population for xxxxxxxxxx is projected to increase.

Most adult sufferers of ADHD, however, are not properly diagnosed or treated. In addition, these sufferers will also have at least one co-morbid disorder such as depression, anxiety, personality disorders, or substance abuse. Undiagnosed and untreated adults with ADHD may underachieve academically, experience higher rates of employment problems, are at increased risk for substance abuse, spend more time in the penal system, have more accidents, and have higher rates of contact with mental health services (the latter results from misdiagnosis), all of which have associated cost implications. In other words, it will cost the Government and the NHS less to properly diagnose and treat adults with ADHD.

Since there is already an adult ADHD clinic in xxxx provided by xxxxxxx NHS Trust that provides assessments for adults with suspected ADHD, I would like to urge you to work with this clinic/specialist in your commissioning role to develop services for adults with ADHD that are in line with the recommendations in CG72 as well as with national priorities.

I have enclosed a brief listing of some of the recommendations from CG72 as well as a listing of relevant legislation. Could you please let me know how far you have progressed with implementing CG72 specifically with regard to assessing diagnosing and treating adults with ADHD.

I would be grateful if you could respond to me no later than
. . . .

Yours sincerely,

Enclosures

cc: Dr Medical Director or Dr Chairman of the Professional Executive Committee



I'll add additional attachments for enclosure with this letter in the following posts

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Roland

Please sign our petition calling for dedicated NHS funds for adult ADHD services http://petitions.number10.gov.uk/adhdadults/

roland
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 Re: AADD-UK Letter to NHS Trusts re ADHD
« Reply #18 on Nov 4, 2009, 2:33pm »
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You can also enclose this attachment with the letter.

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Roland

Please sign our petition calling for dedicated NHS funds for adult ADHD services http://petitions.number10.gov.uk/adhdadults/

planetdave
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 Re: AADD-UK Letter to NHS Trusts re ADHD
« Reply #19 on Nov 4, 2009, 5:16pm »
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Nov 4, 2009, 2:01pm, roland wrote:
;D I've got ADHD and didn't read the post properly ::)

Many apologies matt ;D

It was on the community radio and there might be a pod cast available soon. But now I've got an awful feeling that I made a complete ass of myself, and on the way home, I suddenly remembered all the things that I'd wanted to say, but completely forgot about while I was in the studio ::)







Ha!

I was on a Radio 4 ADHD special and made a complete balls-up of it. It started badly when I was introduced using my 'proper' name after I specifically requested that they didn't

and then I was asked an extremely long and complicated question

which I zoned out of right in the middle ::)



Cue planetdave waffling on desperately hoping to be in the right area.

And then some paedo psych gave me some REALLY patronising advice that wouldn't have helped anyone. Grrr.

Ooooof - that was embarrassing.
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 Re: AADD-UK Letter to NHS Trusts re ADHD
« Reply #20 on Nov 18, 2009, 6:19pm »
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Just thought you would like to know that although you have not received a reply from the Barnet, Enfield and Haringey Mental Health NHS Trust, there is an Adult ADHD clinic at Edgware Hospital.

They offer assessment (2 hour session), diagnosis, medication (if necessary) and regular follow up appointments. The psychiatrist who runs the clinic, Dr. R, is definitely very interested in his patients, patient, very kind and has a wonderful sense of humour.

Unfortunately no CBT is on offer.

I do not know what is available for children as my adult son and I have only been diagnosed recently.

CB



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lisaangelofmercy
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 Re: AADD-UK Letter to NHS Trusts re ADHD
« Reply #21 on Dec 6, 2009, 10:56am »
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oh this is fantastic well I'm meeting with my mp soon and i have written a letter just like the really good one up there to all medical directors i will put it on as it is what i am sending it goes on a bit but is just the start at the moment i am a adhd sufferer and mother of 2 ADHD children i am not having this and thanx to my ADHD will not stop till i pull Southampton in to this Ive got the support of lots of people and a lot of professionals i want an adult ADHD center in Southampton in forcing the NICE guidelines and wont stop until i achieve this wish me luck and i will let u no if i get a reply to my letter thanx Lisa x oh I'm sending it to nick yo and Hugh stone are these the right people to get something done in Hampshire ? I'm new at all this
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honeypot
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 Re: AADD-UK Letter to NHS Trusts re ADHD
« Reply #22 on Dec 8, 2009, 12:31pm »
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Hi Roland

Just to let you know that I have a meeting scheduled with the PCT Medical Directors for the CMHT and Prison Health Care in early January in which to discuss Adult ADHD Services.

We want to see an Adult ADHD Care Pathway and an Adult ADHD Strategy put into place.

The item of adult ADHD is hopefully back on the agenda of the Health Scrutiny Committee for January 2010 as the PCT continues to refer to those who have come from CAMHS into the CMHT but nothing with regards to how 'NEW' referrals can be made for those who have never been assessed/diagnosed as a child.

Will keep you posted.

Honey x
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