tyke
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Post by tyke on Dec 9, 2016 22:28:44 GMT
Hi, well I'm going by the name of Tyke on here..... I work in healthcare and happened to hear an ADHD specialist give a lecture on adult ADHD and it was a bit of a moment of 'wow, I tick every box, I don't just do dumb shit cos I'm daft'. And that's despite having grown up with 2 brothers who had it badly. So I'm starting on a journey to figure out just how this ol' brain is wired and figure out how to stop doing dumb stuff....and learn how to study properly as I've reached the point I can't bounce through things any more.. Just started meds, I only lose my keys once a day now and a couple of days not at all
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Post by vagueandrandom on Dec 9, 2016 23:52:53 GMT
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RUBIK
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Posts: 6
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Post by RUBIK on Dec 21, 2016 18:39:26 GMT
Hello all. I've been a lurker around here for a couple of years, dropping in from time to time when I've been looking for some information or advice. I'm at a place now where I think it'd be beneficial to share my own experiences, or at the very least have somewhere to write them down in the hope that it'll help me reflect. I imagine I'll set up a diary post soon, but to summarise my journey so far: - High achiever at school, inattentiveness caused issues as I got older (teachers assumed I was gifted, but lazy).
- After a couple of bouts of depression (low self-esteem due to perceived "laziness") I realised it was ADHD, not me, that was the problem.
- Recently started treatment (medication only), things are going well so far but a long way to go.
The above is a very cut down version from what I originally typed (I've included that below if anybody is interested!). I know that I can get too carried away at the best of times, but I know that you bunch in particular would prefer succinctness so I'll try to keep that up! Thanks, and I hope to speak to you soon. (Extended introduction) - High achiever at school from a young age up until ~16 years. No concerns about mental health.
- 16-18 began to significantly underachieve during A-Levels. My inability to study outside the classroom suddenly became a serious issue.
- Managed to get into University via clearing at 18 (failed to be accepted at any of my previous choices due to bad grades). Previously unnoticed anxiety and depression kicked in.
- Dropped out of university within 6 months. Received treatment for depression, including counselling. Began work full time at my weekend job, with the intention of making a career out of it. Rebuilt relationships with family that were damaged by my failures.
- 3 years or so later, I was frustrated at my lack of progress at work (career opportunities were non-existent due to economic climate) and I wanted to do something intellectually stimulating again.
- Enrolled on a foundation degree course in my original uni subject with the intention of entering my dream career. Found employment in that field and have been supported well in that department ever since!
- Within the first year of the course, started having the same difficulties I had back in school. I wasn't happy to accept I was "just lazy" as I had been told before. Did some research. ADHD was clearly the problem, but I generally accepted that my difficulties were not something I could control.
- Saw my GP and explained my issues, mentioned ADHD. He was impressed with my research and conceded that it did fit the criteria, but he wasn't sure what I hoped to achieve. I told him if it was ADHD, at least I could get treatment and maybe improve. He put in a referral.
- 18 months later, I finally got to the front of the 6 month waiting list. Diagnosed as inattentive type in my first session.
- Started MPH (extended release in morning, immediate release in afternoon) and increased dose accordingly for first few months.
- Recently switched to atomoxetine due to diminishing returns with MPH. Starting this very soon!
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Post by vagueandrandom on Dec 22, 2016 16:56:37 GMT
Hi RUBIK . . .if you've been lurking, you'll know what we're about
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lemond
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Posts: 2
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Post by lemond on Feb 26, 2017 17:38:00 GMT
Hello I have not been diagnosed with any condition officially but I have found this site through hearing a number of lectures in work, reading a number of articles/documents in work(realizing scarily for me that I fit quite a lot of the symptoms) taking numerous online tests that have done as much to confuse me as to help me.
I work as a professional in a care environment and like a poster's comments i read before, I am sitting here typing this instead of doing work i have been trying to complete since10am (7hrs ago)
I meet all of the descriptions for lack of attention but in the hyperactivity etc areas, I meet less.
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jimmycash
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Posts: 2
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Post by jimmycash on May 21, 2017 21:33:11 GMT
Hello everybody! This is the first message on this board ever. If we need more boards we can set them up but for now we'll just have the one. Please remember that this board can come up on search engines, so we strongly suggest you register with a nickname and keep your e-mail address private. There are very few rules, but please try to respect others and hold back the urge to go on the attack (perhaps leave it 24 hours before replying to something annoying?). Please feel free to start conversations...
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Post by vagueandrandom on May 21, 2017 22:16:31 GMT
. . .or post private stuff on Lounge or Venting threads . .
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Post by subs on Jun 15, 2017 16:45:17 GMT
Hi all,
I'm Subs and been a working for the Arriva - camera engineer for 5 years. Been suffering for the last 6 weeks. I have lapsed, had a good run 5 years plus!
You become so used to 'coping', whilst always struggling and anxious underneath.
How to stay positive? And healthy?
Thanks Subs
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subsybl1
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Posts: 2
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Post by subsybl1 on Jun 15, 2017 16:46:16 GMT
Hi all,
I'm Subs and been a working for the Arriva - camera engineer for 5 years. Been suffering for the last 6 weeks. I have lapsed, had a good run 5 years plus!
You become so used to 'coping', whilst always struggling and anxious underneath.
How to stay positive? And healthy?
Thanks Subs
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luladee
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Posts: 1
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Post by luladee on Jun 16, 2017 13:30:43 GMT
Hi there 😄 I'm 38 and just been diagnosed with ADHD combined type by the NHS. Having been misdiagnosed with other mental health issues for many years, it finally feels like they understand me. Hopefully starting medication within the month, all being well. I can't believe it's taken this long but I'm glad I finally know why I've found things so difficult for so long. It'll be all good from here on, I'm sure 😀 Xx
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einaqua
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Posts: 1
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Post by einaqua on Jun 21, 2017 20:59:22 GMT
Hello! I am totally new here. Basically I've been diagnosed with ADD three months ago (I am 30 years old). I am currently taking medication, and the psychiatrist that diagnosed me recommended me to start CBT therapy, but he said that I should have therapy first to get over some traumas. Today, on my fourth appointment, my counsellor said it would be a good idea for me to look into forums and communities related to ADHD, as I have a strong need to express what I feel and to communicate with people that can understand me. So here I am! Nice to meet you all
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tony808
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Posts: 1
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Post by tony808 on Sept 24, 2017 7:43:25 GMT
Hi , Having just been diagnosed with ADHD at 44 and on week 3 of my medication ( conserta xl ) . I do feel mentally a bit calmer however physically to sluggish for my liking so far . Where I do struggle however is looking back at the years of struggle and chaos endured by me and everyone around me . Looking forward to contributing to the forum ...cheers
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Post by spacecadet on Dec 20, 2017 22:10:00 GMT
*waves shyly* Hi there, I feel like I don't really "belong" here just now, as I've not had a diagnosis, but have been referred for an assessment via the NHS. What I'm hoping is that if there's anything useful during the process that I can share (within reason) here I will. I can relate to a LOT of the symptoms of ADHD, so although I don't "want" to have it, if it's a positive diagnosis I would be so relieved to know what is actually "wrong" with me, because there's definitely something not right! Does anyone else find their mind is always, always, jumping from one thing to the next? Is this an ADHD thing? I don't know how to describe it, but for example, I'll be walking down the street, see a green light, think of the song "Green Light" by Beyonce, then think of Destiny's Child, then the 90s, then high school, and so on and so on, and this will all happen in less than a minute! And my mind is like this all. the. time. Anyway, thank you admins for creating this forum, I've had a peek and it looks so useful and friendly.
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Post by vagueandrandom on Dec 21, 2017 12:24:23 GMT
Hi spacecadet Mind jumping around is pretty typical of ADHD and I don't think any of us *wants* to have it, but having a diagnosis was an incredible relief to me, as it explained years of struggles . . .have a read around the forum and ask questions
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Post by spacecadet on Dec 22, 2017 16:39:42 GMT
Hi spacecadet Mind jumping around is pretty typical of ADHD and I don't think any of us *wants* to have it, but having a diagnosis was an incredible relief to me, as it explained years of struggles . . .have a read around the forum and ask questions Thank you! Thats good to know, I want to have as much “evidence” as possible when I have my assessment. That’s exactly it, I would feel a huge sense of relief to have an answer, and then the tools to work with from there. Thank you, really am grateful this forum exists.
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missgreen
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Post by missgreen on Dec 31, 2017 8:32:47 GMT
Hi guys! I'm also new here. I am an Asian who moved to California recently. I'm so glad to be a part of this forum!
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Post by patchworkedman on Jan 11, 2018 15:52:01 GMT
Hey everybody, I got diagnosed with ADHD about two years ago at 26. Been dealing with the aftermath of that for a while now. And what that means at the moment is dealing with my social awkwardness.
So hopefully I'll be able to get over my innate shyness and have some cool conversations on here.
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Post by vagueandrandom on Jan 12, 2018 0:53:20 GMT
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Post by jp on Jan 14, 2018 18:32:14 GMT
Hello and welcome all the new folks :-D
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hry40
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here are a couple of links to handy ADHD websites- https://stuff.health/s/do2QkjeW and this one for
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Post by hry40 on Apr 11, 2018 4:13:28 GMT
Hi I am 55 female just diagnosed... bit of a shock I just thought I was stupid
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Post by indycisive on Oct 5, 2018 5:21:04 GMT
Hello, pretty new to this, no dx and am not on meds but can identify with plenty of the experiences on here. Interested in continuing the research journey I’ve started on thanks to these forums. At the moment I’m kind of feeling it's difference rather than disorder but it’ll still crush you I know.
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Kaz
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Post by Kaz on Oct 9, 2018 21:25:37 GMT
Greetings... I thought I would say Hi seeing as I'm new. Not newly diagnosed. (Diagnosed age 8-9) Holistic parents scared of medicating so I have always learnt to cope on my own, conditioned my psycho-motor etc. Never medicated before for ADHD after refusing the offer of Ritalin. Certainly self medicated when I was a teenager. So I'm almost tipping 30 and over the course of the last year or so the symptoms of my ADHD have been ramping up steadily. I have always been symptomatic, yet these symptoms that were very prominent were ones that feel very dangerous to me. Mostly my working memory became frustratingly unworkable in the simplest of situations, at work and in social interactions, chores, pretty much everything when I think about it. The biggest one for me being the impulsiveness side of ADHD. My symptoms have become so bad that I haven't been able to work in my job becasue that's within a clinical setting with serious responsibilities and I can't trust myself to retain my control very well at this time. My pertinacity towards risky behaviours is high and always has been and I work exhaustively hard to control that which is my normality. The levels lately are way above that. I go see my GP becasue I'm really concerned about these things as I am starting to feel out of control. I was in a state where I was having periods of physical anxiety without the mental component. He was great, listened to what I said, spoke about the previous diagnosis. He refers me to the ADHD clinc. Warns me about the waiting time. I explain how that's great I get that there is a waiting time yet I need some intervention now becasue of the severity. We start to discuss what he is able to prescribe me as a stop gap whilst I wait to see the consultant. He is unable to prescribe any stimulant based medication due to the NICE guidelines 2018. I am in agreement with NICE's guideline updates considering the schedule rating for medications categorised and 'Major Stimulants'. So I end up prescribed with Propranolol 10mg PRN a beta-blocker to alleviate the physical anxiety symptoms, and Sertraline 50mg OD an SSRI to attempt to alleviate some of the Impulsivity. I expressed my concerns about taking and SSRI becasue ADHD is generally governed by Dopamine dis-regulation and Serotonin is an antagonist to Dopamine, but I agreed to try it. By the end of day two I was starting to come up from the Sertraline, I say come up I mean get high in a manic way, it took a few days to really notice the hypomanic effect but it was terrifying loosing all of that control. Of course adding that to the impulsiveness was like adding petrol to the fire. I took 6 doses of Setraline. As Soon as I stopped the hypomanic effect dropped off over the course of the next day or so. As soon as I feel I can go see my GP I do explain what has happened, severe side effect, SSRIs are not in anyway suitible. The Propranolol was amazingly effective in what it does. No complaints. Ask if I can be prescribed Buproprion, Part of the NDRI drug group. As a stop gap a better drug choice for an ADHD brain GP's are now also not able to prescribe this drug either. My only option from there ability to prescribe was upping the Propranolol to 120mg spread over the day in three doses and then to take Diazepam 2mg PRN which for me in my state at the time would have required very regular sedation to keep the symptoms in check. I then Find out the waiting time for the ADHD clinic is 3+ years if not longer when I call them to speak to them due to the severity of symptoms I was having and the receptionist practically laughed down the phone at me. I was quite distraught about the proposition of waiting that length of time for the correct treatment. The idea of sedating myself to the point I would be unable to work seemed very unrealistic. I look at the cost of private care that it is huge but in the long term better than waiting how many years for treatment. The private clinic can see people in an average of two weeks. The only thing I could do was to order a CNS Stimulant online via an accredited online pharmacy. I had to do something to alleviate my symptoms so I am able to work in order to pay the cost of private treatment. I didn't expect it to be as easy as it was to order, a few clicks and a small amount of incorrect information about what condition I have. It was approved and delivered the following day. I wanted to do it properly, and under GP supervision, so I informed my GP of what I had done, the medication, how it was acquired etc. It was checked for safety and the GP was happy that it was the actual medication I had purchased. He agreed it wasn't unreasonable for me to do in the circumstances because the option was that or sedation. I had my bloods taken the day before commencing the medication, and all my baseline observations taken by the GP and discussed a safe way of beginning the medication and finding the correct therapeutic dose. All other medications stopped as they interact with the CNS Stimulant I was about to take.
That's where I am at the moment.... 5 days into using a CNS Stimulant. It honestly feels like a wonder drug to me. The first day was emotional becasue I have never felt that clear and it was a third of the dose I am actually taking therapeutically. My symptoms have decreased dramatically and I'm at a functionable level. I should be returning to work like this so I can actually afford to get it sorted properly. I still require a reassessment and the correct medication, or I should say a condition specific prescription with legitimacy. I will not be able to maintain acquiring the drugs this way long term. In fact with the ease that I acquired these I suspect a huge crack down on how these can be prescribed online.
So we will see how it goes, A few months before I can go private. Sorry for the essay.
Has anyone else had issues actually getting treatment or prescriptions even when they previously have a diagnosis of ADHD?
K
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Post by Ed on Oct 16, 2018 9:36:10 GMT
Hi All,
I am new to this group and have recently "self-diagnosed" myself with ADHD. I am aged 40. I was surprised when I have done these online tests (I know these tests have their limitations!), but I am generally off the scale, not borderline or anyway, which at least is a positive result! And it also explains a lot about the path my life has taken so far, and the "jokes" from friends that I had ADHD! Maybe I should have taken these jokes a bit more seriously 20 years ago.
I found it very interesting to read Kaz's experience in the previous post. Over the last say 7 years my GP thought I was depressed or had an anxiety disorder etc. I have been prescribed SSRI's and Xanax etc a few times, but the SSRI's never seem to work and actually make me feel worse most of the time (in addition to the standard side effects). But when I analyse myself, I am not depressed. I get overwhelmed by situations, and my mind just jumping from one task or idea to the next. I realise now that my mind never stops, it never relaxes, which also explains the previous "burn-outs". I thought this was normal, and how everyone was, but apparently not. SO, now that I am mindful of this, whenever I get into this situation I know that it is the ADHD talking and that I need to calm down, or do something else, like go on a run or listen to or play music, basically take myself out of the situation.
I am also now looking at getting some specific drugs to help me through the most difficult times. I would not like to rely on these all the time, but it could be worth trying. I have an appointment with a private psychiatrist next week, so we shall see what comes out of that meeting.
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nick91
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Posts: 6
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Post by nick91 on Nov 21, 2018 17:01:20 GMT
Hi all
I'm 27 and was recently diagnosed as inattentive type ADHD in February this year. It was a relief to finally find out why i'd been struggling with holding down jobs, relationship problems, a lack of confidence, anxiety and depression. I always had a feeling that something wasn't right. Since my diagnosis I've gone private to get hold of medication rather than going via the NHS route which had waiting lists of 18 months. I started on Concerta 18mg extended-release each morning in June and then upped this to 5mg immediate-release at mid-day. I felt like I had more energy to begin with but it didn't seem to alleviate my symptoms of ADHD and the side-effects were problematic so i switched to Elvanse 30mg and tried this for a couple of weeks but I didn't think it alleviated my impulsiveness. I'm still interested in trying out medication but i'm unsure as to which one would work best as I've currently been out of work for 3 months since my last job at Sainsburys and I'm trying to be as self-sufficient as possible.
For the last few months I've tried quitting drinking and I'm running for Bath Mind in the Bath Half Marathon 2019 to stay active and busy. I'm currently researching medications which is where I'm at at the moment.
Thanks, Nick
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Deleted
Deleted Member
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Post by Deleted on Mar 9, 2019 21:32:52 GMT
Hi I'm Alan in my 40s and in the process of getting some one to assess me for ADHD👍 May have some questions for you guys 🤯
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Post by DamoNG on Mar 18, 2019 11:40:02 GMT
Hi There, I'm really struggling with my ADHD. I was diagnosed about 2 years ago and I haven't really taken it seriously. Work have now noticed my behaviour and have got involved. I am scared and angry. I have just become aware that my behaviour has been off-the-wall and impulsive. I need help and support. This stuff has brought me to my knees. Are there any WhatsApp groups or Zoom meetings where I could meet fellow?
Thank you,
Damien
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damo80
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Post by damo80 on Mar 18, 2019 11:48:51 GMT
Hi Everyone,
My names Damien. I was diagnosed with ADHD two years ago and didn't really take it seriously. Work have now noticed my impulsive and out of character behavior and HR are now involved. I'm scared and angry and the moment that I have this condition. I am realizing that this has always affected my life and has caused problems in all my relationships and jobs. I am keen to meet some fellows. Is there a Whatsapp group or zoom meetings I can get involved with as I would like to connect with others?
Thank you
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Post by vagueandrandom on Mar 21, 2019 15:37:05 GMT
Hi Everyone, My names Damien. I was diagnosed with ADHD two years ago and didn't really take it seriously. Work have now noticed my impulsive and out of character behavior and HR are now involved. I'm scared and angry and the moment that I have this condition. I am realizing that this has always affected my life and has caused problems in all my relationships and jobs. I am keen to meet some fellows. Is there a Whatsapp group or zoom meetings I can get involved with as I would like to connect with others? Thank you Hi Damien I don’t know of any national Whatsapp groups, but a lot of local support groups have them. I also find Twitter a great place to chat to other ADHDers. If you’re in work, you can get help with reasonable adjustments, coaching and having someone talk to your HR about ADHD from Access to Work. www.gov.uk/access-to-workIt’s quite easy to get, although your employer will have to pay initial costs and claim back. It’s quite difficult for them to refuse because it’s the DWP and to do so would be against equality laws.
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Post by Dinah on Apr 29, 2019 9:16:00 GMT
Hi ,I’m new to this , middle aged and feel like I’ve been swimming through soup all my life ,with brief glimpses of how it COULD be. I seem to be getting worse ,or certainly more frustrated and less capable, ......I have never bothered to get diagnosed because I didn’t see the benefit but I’m now wondering if drugs would rather belatedly change my life ?any advice ? also are there any support groups for adults out there in my area of Winchester or Portsmouth? many thanks
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Post by Dinah on Apr 29, 2019 9:32:45 GMT
Sorry I’m new to this .....asumed that I had actually posted something , I am middle aged and feel as though I have been swimming through soup all my life ....with brief flashes of clarity.,it seems to be getting worse ,or certainly I feel more frustrated and that I am waisting my life !? I have never been diagnosed as I didn’t see the point but I am beginning to think drugs are the only answer,,,,??any advice please Also are there any adult support groups in the Winchester or Southampton area ? I am feeling more and more isolated .....huge thanks .
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