How to access adult adhd service in SW England? Jan 6, 2017 16:33:03 GMT
Post by zoeyou on Jan 6, 2017 16:33:03 GMT
Three years ago I received an ADHD diagnosis from my GP which was confirmed by local adult mental health service in London, where I then had an address (I'm pretty itinerant, being ADHD..). That local service couldn't even write out a prescription that a chemist would accept for controlled ADHD drugs so i went back to the GP and was then referred to Maudsley, supposed to be centre of excellence for adult ADHD. I was a year or so on their waiting list but once I got through they redid the assessment, confirmed the diagnosis, made recommendations for various treatments to try and said they'd oversee things, which for a year or so they did.
BUT... the Maudsley couldn't prescribe the medication they recommended. They said my GP had to do that. Cue *endless* internal NHS arguments about who does the prescribing and who funds what.. after a year or so of which my GP just deregistered me - without notice. They said it was because I'd 'moved house' but they'd been trying to get rid of the responsibility of prescribing ADHD medications for me for ages and had even asked me to deregister a couple of times before that. They eventually discharged me without notice, just at the point when one of the various medications I'd been tried on (Elvanse) seemed to be beginning to work..
Now, I can't find any GP at all who will prescribe as the Maudsley recommended. As far as I can tell this is due to a postcode lottery. It sucks,
By now I'm less in London (it's too stressy for my untreated adhd brain and I can't get another address there without loads of extra hassle/expense), so I found a new GP in Cornwall (where I often am now, the wild nature here help me cope, and I can easily use an address). This new Cornish GP eventually talked to my nurse at Maudsley - who told her (but not me..) that they too have now discharged me - because of I no longer have a London address.
The ne GP says she is trying her best to help and suggests that at some point in the future I'll probably be put back in specialist adult ADHD care, once she's referred me either back to Maudsley again or to some local Cornish service (though there is 'no funding' for adult ADHD in Cornwall, hmm....). Either way I'll be back onto a waiting list - and even after that have no reason to think there'll be any progress with the NHS deciding which part of itself will cover the costs of prescribing and overseeing the medication etc.
So, I have no access to treatment now at all. This is after a sudden end to prescribing of the drug that had seemed to be working... It was stopped ostensibly because I moved house.. something I do because I have ADHD.... so I am trying to get the ADHD treated so as to be better able to sit still... but I can't get the ADHD treated consistently, apparently because I moved house.. which I do because I have ADHD.. which argh STOP!
I'm stressed and sick of talking endlessly to GPs and specialists and nurses and receptionists and CCGs and PALs to try and make them talk to each other and find out who is supposed to prescribe the medication that the specialists recommended to help me manage myself.... PALS and SEAP and all are just offering me forms to make complaints with but I can't take on ANY more admin tasks till I get treatment for the ADHD that makes admin a nightmare.... and means I can't make the NHS work better until I've got some help to cope with my own admin and tasks...
I'm trapped in a loop... someone, please help!
Do I need to go private now to get over this hump? If so, where do I go for consistent prescriptions and oversight of how the drugs work?
Read more: aadduk.proboards.com/thread/10779/locked-treatment-adult-adhd-help?page=1#ixzz4V02yFidT