Post by Pol on Jul 25, 2021 21:40:03 GMT
Hi, I'm the mother of a 27 year old diagnosed recently following a decade of being largely unsupported by various health professionals in my attempts to get a diagnosis which made sense compared to the symptoms, and then for treatment which actually would make a difference. Of course the only way to achieve this has been to pay privately having been waiting for 2 + years on an NHS waiting list. I'm assuming all of this sounds familiar to others?
The whole experience has been emotionally traumatising and that's just me; my daughter has been vulnerable and unsupported by the 'system' - education and health throughout.
So now the medication has been prescribed, and there are some changes..she now makes eye contact and is functioning a little better but it is early days and her self esteem is low and the internal self negative chatter hasn't diminished. She has been using alcohol to self medicate, though is making progress in reducing. I've arranged psychotherapy and after the first few sessions, so far so good. She feels like she has missed out on so much in her life, missed opportunities and loss of potential to have lived a better life than she has experienced. It's hard as a parent, you feel so much guilt and sadness, when you love someone - to see them struggling and suffering when you just want to make things better, and for her to live not just exist. It is early days, and I have no idea what to expect, how long it will take for the complex issues to resolve or improve. I wondered if other parents of adults being diagnosed have experienced something similar?