|
Post by roland on Oct 7, 2009 10:40:15 GMT
Here's an extract from a report from 21 Jan 09 that says the following: For ADHD, NHS Lothian has convened a group from CAMHS and adult mental health to look at the development of services for adults with ADHD , including improving transition of young people from CAMHS. The has been complicated by GPs’ concerns about reviewing arrangements for adults on medication for ADHD www.scottish.parliament.uk/s3/committees/hs/inquiries/mentalhealthservices/MH13.pdf
|
|
rick123
Member's posted somewhat
Posts: 64
|
Post by rick123 on Apr 27, 2010 22:25:38 GMT
The ADHD Clinic is now set up and running, details are: Lothian Adults with ADHD Clinic NHS Lothian outpatients Department Andrew Duncan Clinic Royal Edinburgh Hospital Morningside Terrace Edinburgh EH10 5HF Tel: 0131 537 6247
Anyone have personal experience of this Clinic? I think NHS Lothian should be commented - as far as I am aware this is the first Adult ADHD Clinic in Scotland.
|
|
Deleted
Deleted Member
Posts: 0
|
Post by Deleted on Dec 8, 2011 18:19:59 GMT
I've just been diagnosed with ADHD at the Andrew Duncan clinic - I found them very helpful and understanding. So far I have had two appointments and a neuropsych (I think!), which is a few tests (memory etc) to see how you score against others with ADHD. It has taken a while though... nearly a year since my initial referral from my GP, so I think with this one, alas, patience is the key. I personally tried to just forget about it and get on with things, although I'm glad I've finally arrived at a diagnosis. I'm actually surprised to learn that it's so difficult to get a diagnosis for adult ADHD, because apart from the long waiting time, mine has been very smooth. ...Hope that's a little information that helps anyone curious!
|
|
Deleted
Deleted Member
Posts: 0
|
Post by Deleted on Dec 8, 2011 21:52:53 GMT
Hello,
I don't really know where to start, but after seeing this post can someone tell me if the specialist adult ADHD clinic at the Royal Edinburgh Hospital is still running?
To cut a very long story short I think my boyfriend may have adult adhd. We went to the GP and they referred my boyfriend to Dr Strachan at the Royal Victoria Hospital (Inverleith Unit). I think this is part of 'community mental health services'. I had herd of the specialist clinic at the Royal Edinburgh Hospital but the GP said we could only be referred to it from the community mental health team.
Anyway my boyfriend had his appointment with Dr Strachan today and again not going into too much detail I was very disappointed with the consultation. I asked Dr Strachan about the specialist adult adhd clinic at the Royal Edinburgh Hospital and he told us that is has now been shut down. Can someone tell me if this is the case?
I have browsed on the internet to find any news of this and can't find any and saw this post that was written toady! So thank you guppy for taking the time to share your experience it has been very useful,
any help on this matter would be appreciated!
|
|
rick123
Member's posted somewhat
Posts: 64
|
Post by rick123 on Dec 16, 2011 23:57:52 GMT
If you live in the NHS Lothian area or the rest of Scotland and are having difficulty accessing assessment then I would like to hear form you. We can make use of this information in our discussions with with MSPs and the Scottish Parliament.
Best advice I can give is write to the designated lead consultant at NHS Lothian, copy to Dr Shah, the strategy directors at NHS Lothain and to your GP. I can give address and contact details.
The more patients that come forward the stronger our case. The time for pressing this issue is now, the Scottish Government consultation process is open until the end of January. If you are having difficulties speak up.
|
|
Deleted
Deleted Member
Posts: 0
|
Post by Deleted on Dec 17, 2011 22:58:58 GMT
Thanks for the info I'm happy to write a letter - that would be great if you could give me the addresses and contact details. Sorry I've never joined a forum before! - can you give me these addresses publicly or is there a way of sending them privately? What should I include in the letter? I suppose my main concern is how much personal information I should include in any letter, should I go into the reasons why I think my boyfriend has adhd? or do I just need to say why I think the community mental health unit was not effective?? or is better to make the letter as personal as possible?
|
|
Deleted
Deleted Member
Posts: 0
|
Post by Deleted on Feb 13, 2012 11:59:13 GMT
Hiya, not sure if my experience will help at all.... I'm from outwith the NHS Lothian area, but after many years of passed pillar to post and being treated for depression etc(which I have since been diagnosed as having never had in the first place!) it took taking print outs from ADHD websites with me to my very understanding GP. I had highlighted all the symptoms I had difficulty with(which was around 95% of them) and openly answered her questions on how these problems affected my life. Asking that I be referred for assessment, her initial reaction was that there was no clinic for adult ADHD she could refer me to, but having done my research in advance I was able to provide contact details for Dr Shah's clinic. She happily referred me on.... This was in 2010. After quite a wait it was confirmed that my referral had been accepted and I began seeing one of the other guys at the clinic(Dr Pattell) every month or 3 when I could be fitted in. Eventually in around April 2011 he made the decision to refer me over to Dr Shah to make a decision on my case. I was eventually seen again in November 2011 and at my second appointment with Dr Shah my diagnosis was official and treatment began. It was brought to my attention during the process of my assessment that I had actually been incredibly fortunate in the timing of my referral. That a mere matter of weeks after my referral was accepted they stopped accepting referrals from outwith their area due to overwhelming numbers of people being referred to the clinic. The decision was made(as far as I know) because there was not enough resources to accept further referrals from outwith NHS Lothian catchment area. As far as I'm aware that situation still stands.... but I can't say with 100% certainty. I heard of another clinic in Fife but have no idea what their situation is regarding referrals outwith their area. Best of luck to everyone still fighting to get diagnosis. It's an important milestone to reach, although it's also when the hard work begins lol then it's finding the correct treatments and support. Unfortunately in my personal case, it may have been a long process but the diagnosis wasn't the most difficult part to get, I'm now stranded and struggling to find support to help me get my life on track. While the Andrew Duncan Clinic may be providing me medication, I am receiving no other support with my condition
|
|
|
Post by Hazel on Apr 30, 2012 13:58:44 GMT
I need your help:
My story
I am at the point of being diagnosed with ADD or ADHD with reduced hyperactivity. I get the results of the testing next week.
I didn't know much about AD(H)D before my doctor picked up on a lot of my complaints and said he thought that I have this. I've been reading up on it the past week or two. I can not begin to describe the long list of frustrations and problems I've had, from being referred to a child psychiatrist for depression, through my teens and a nightmare trying to get through university.
In Scotland the mental health support was pitiful. I could see a doctor once every three months. Imagine if you had a broken leg or severe back pain, to the point where you can't function at work or at home, and you got one physiotherapy session every 3 months after sitting on a waiting list for a year. How much of your life would go down the drain?
I'm now 28. Fortunately for me, I'm now living in the Netherlands, where mental health support is far better than in Scotland. But... the rest of my family are still living near Glasgow.
Here's where I need help:
My brother also has a long list of symptoms, he has not finished three of the higher education courses he started and was kicked out of one secondary school because of his problems. He has not managed long term employment. I am afraid he has ADD, without hyperactivity. Now the search begins for somewhere he can be assessed.
Is it even harder if you do not have the hyperactive part? Can anyone provide advice?
What are the chances of asking for a referral to a test centre in England? Is this at all possible?
What is the process for a private diagnosis? Can you then get medication on the NHS? This is doubly frustrating: you need to be able to hold down a job to pay for it, which may not be possible without treatment. We need some metaphorical IVF to get out of the Chicken and egg situation.
NHS funding for AD(H)D
And as for funding: maybe if I had a proper diagnosis early on, it would have saved all the money the NHS spent on antidepressants that didn't work for me, the sick days I took from work, and the repeat funding for university years that I couldn't get through in one go. Maybe my brother would have graduated and be at work, paying taxes, instead of at home going nowhere fast.
Thanks for posting here, it is very helpful to hear other people's stories.
Hazel
|
|
Deleted
Deleted Member
Posts: 0
|
Post by Deleted on May 2, 2012 21:58:39 GMT
Can't answer all your questions, but yes, predominantly inattentives can get diagnosed and treated. It can be tricky though
|
|
|
Post by jsgthomson on May 10, 2017 17:06:17 GMT
Hi,
I am just about to start my 'diagnosis' journey.
I will update you all when have something to say.
jsgthomson
|
|
|
Post by roland on May 10, 2017 22:42:37 GMT
Welcome to the forum jsgthomson and good luck
|
|