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Post by annie on Mar 30, 2014 12:49:18 GMT
Well what a start to the day
First I forget the clock changes, secondly the paper boy delivers the Mail, then I collect the Observer and there's this article!!
"One of the world's leading neuroscientists, whose work has been acknowledged by work and pensions secretary Iain Duncan Smith, has suggested that ADHD is not a "real disease" You get the gist of what come after.
What really bugs me is the article does not include any counter expert who can argue the scientific evidence which does support the dx of ADHD. I don't mind a debate but I'm so disappointed the Observer has gone down the reporting route of the Mail.
I meet so many parents and adults who will testify to ADHD being a recognisable condition and it's so disheartening to see their views being discounted. Next week I'm attending a meeting with a parent whose 9 year old son is at the point of being "managed moved" - permanent exclusion by another name. It's fairly obvious the school have some doubts about ADHD being a condition. However, this expert neuroscientist, Dr Bruce D Perry, suggests the fault lies with parents and teachers who need to learn how to regulate themselves when around a "struggling" child. I'm going to use this article to try and get the school to come on board with the parent - perhaps it will encourage them to use their best endeavours.
But seriously, we do need our national experts, such as Prof Asherson, D Nutt etc to come out fighting for all people with ADHD. They are doing a lot to progress the knowledge/expertise within the NHS but the message just isn't getting through to the general public - so,so disappointed with the Observer!!!
annie
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Post by frustrated on Mar 30, 2014 14:12:21 GMT
ADHD is a disorder, not a disease. To the best of my knowledge, Hyperkinetic disorder was originally the name given to a collection of symptoms, therefore ADHD/hyperkinetic disorder must exist, as those original symptoms are still display by a % of the population. My words above are fact. I can not see that anyone, expert or otherwise could disagree with my statement.
Lets pretend for a moment that ADHD doesn't exist. we live in an adhd free world. The experts have said so!
Now we have a % of people who display a certain set of symptoms, lets find a new name for it! What should the health authorities do now? They would find a new label for the same set of problems those with ADHD display.
I have no doubt that one of the following statements is true. Either, ADHD is over diagnosed with parameters that are too wide, and/or it is inherited, ie one person has three children, two meet critera, those two have three children, two meet criteria, now you have four children with adhd, each of those four produces two adhd each, now you have 8, in just a few generations, and/or adhd is aggravated by tv, junk food and all the other wonders we provide for our children in the 21c.
my parents fed me properly, all home cooked from fresh as when I was a child, few working families had the funds to provide anything more. We were without a tv until I was 15, we played outside almost everyday, read books, we had an old fashioned upbringing.
My behaviour was just the same as girls diagnosed today. In fact the person who did my assessment seemed shocked that I wasn't diagnosed back in my school days. As she had been assessing for decades, I suspect that had she seen me in 1980, I would have got that all important diagnosis.
Newspapers print mainly propaganda, they are supposed to report in a neutral fashion, but they don't. That in its self is a problem, because it does under mine all of us who suffer from this set of symptoms. Its easier to say it is not real, than it is to treat every case. Imagine if 50% of diagnosed children continue to suffer as adults. If three million children are now diagnosed, then in maybe 10 years, one and a half million may well be eligible for financial support from the dwp.
We do need those who have proven it to be real to stand up for us and persuade the government to fund more research, so in time, there will be an easy test available to prove or disprove its existence. Personally, I am tired of it all. I have spent more than 40 years dealing with this, having it screw my life over time and time again. I don't care what they call it, or how it is perceived, as long as I get some help
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clariana
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Post by clariana on Mar 30, 2014 16:09:46 GMT
What can I say? The company you keep says a lot about you... Apparently IDS loves this guy... Which means he's probably a combination of quack and f**kwit.
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Post by contrarymary on Mar 30, 2014 21:15:16 GMT
i'd be really interested in knowing this doctor's politics... could this possibly more Atlantic Bridge stuff? and where is the money trail?
i'm gobsmacked and p'd off. some random american doctor coming over to "advise" british politicians about how to treat people in the nhs- wtf?? when the heck does that normally happen - with cancer? heart disease? generally only when someone wants to make some money out of something, or there is some other agenda afoot. smells fishy to me.
and it should smell fishy to a journalist. so why is a - supposedly left-wing, but indeed any - british newspaper regurgitating instead of reporting? cos it's not asking why these meetings are happening - and the guy's viewpoint is left unanswered by british experts, as tho what he says is infallible.
W T F??
EDIT: and now i begin to wonder whether there is something even less savoury than the need for a retirement fund behind the recently well-funded and incredibly well-publicised book tour by the (previously unknown) "american expert" with his "adhd does not exist" (conspiricy theorist, moi?)
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Fairy13
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Post by Fairy13 on Mar 30, 2014 21:40:24 GMT
From the Oxford English Dictionary; Definition of disease:
"NOUN A disorder of structure or function in a human, animal, or plant, especially one that produces specific symptoms or that affects a specific location and is not simply a direct result of physical injury"
Perhaps I'm missing something crucial (it happens sometimes and I freely admit that!) But from that definition it sounds like ADHD is a disease to me..
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Post by shapes on Mar 30, 2014 21:53:48 GMT
It's crap like this that means I don't feel I can be honest with people about my ADHD.
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Post by Deleted on Mar 30, 2014 22:00:32 GMT
From the Oxford English Dictionary; Definition of disease: "NOUN A disorder of structure or function in a human, animal, or plant, especially one that produces specific symptoms or that affects a specific location and is not simply a direct result of physical injury" Perhaps I'm missing something crucial (it happens sometimes and I freely admit that!) But from that definition it sounds like ADHD is a disease to me.. Diseases usually have cures and disorders are usually chronic.
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Post by Deleted on Mar 30, 2014 22:03:17 GMT
It's crap like this that means I don't feel I can be honest with people about my ADHD. Human psyche seems preset to believe anything read over the experience of someone they know. Diagnosis by Daily Mail (et al) is with us.
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Post by contrarymary on Mar 30, 2014 22:16:51 GMT
and his words are weaselly... a collection of symptoms rather than a disease?
and what else is "a collection of symptoms", without any definitive clinical test or laboratory findings to "prove" its presence.
how about a blood test for autism. or a scan which is clinically diagnostic of depression - or indeed any physical test for what is currently labelled neurodevelopmental or mental health issue. how about an ultrasound for asthma - or even a simple x-ray. nope - there are a lot of physical health issues which have no tests and are simply "accepted"
huge numbers of "accepted" conditions are called "syndrome" - it simply means a collection of symptoms. Tourette's syndrome, Behcet's syndrome, Fragile X - the list is enormous.
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Post by shapes on Mar 30, 2014 22:27:12 GMT
Yes it is a bit ridiculous and relies on the public's poor knowledge of the condition. You could make the same claims about most mental illnesses and disorders. Nobody claims depression doesn't exist because normal people sometimes feel sad and unhappy. Yet this is essentially what the article is claiming with regards ADHD.
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Fairy13
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Post by Fairy13 on Mar 30, 2014 23:16:49 GMT
I don't like arguing or debating, it makes me highly uneasy, it's taken me roughly AN HOUR to come up with an answer I'm fairly happy with and I feel a bit like I'm about to be sick but I would like to say my bit, so please be gentle! To further my point about the definition of disease, the second (sub?) definition of disease by the Oxford dictionary is: “A particular quality or disposition regarded as adversely affecting a person or group of people: we are suffering from the British disease of self-deprecation Origin Middle English (in the sense 'lack of ease; inconvenience'): from Old French desaise 'lack of ease', from des- (expressing reversal) + aise 'ease'.” www.oxforddictionaries.com/definition/english/diseaseI do understand that a disease usually has a cure, and I personally wouldn't call ADHD a disease because it just doesn't sound right! BUT the expert fella said ADHD isn't a real disease.. And from my interpretation of the definition and my own experiences, I would whole-heartedly disagree with him. Perhaps I would even argue with him. As long as he was very patient while I planned my words carefully and I didn't get so wound up I either threw up on him or just burst into tears!
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Post by Deleted on Mar 31, 2014 0:08:04 GMT
You're trying too hard!
Defining it isn't important.
Disorder/disease/ailment/syndrome...even 'chorea' and just words to describe something is wrong.
What is important is whether or not the collection of symptoms we call ADHD is correct or not.
Eminent medics have spent years crafting DSM 5. It's mainstream medicine - they have described ADHD and how to diagnose it.
Anything IDS talks about is politics, not science.
Unfortunately politics controls the funding and science pays bugger all, unless it's popular and includes fluffy kittens or children.
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Fairy13
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Post by Fairy13 on Mar 31, 2014 3:04:47 GMT
Ok, well defining is important to me. It gives me direction. But you're right, I did get a bit caught up with it..
My point was that ADHD IS diagnosed and IS treated.
We all have the same symptoms to varying degrees. There is a test, of sorts and MPH is a med that is good for helping to reduce the symptoms.
If my ADHD is only a bunch of symptoms caused by bad parenting, and Tom's is symptomatic of a poor diet, or being dropped on his head, why would we both respond so well to the same treatment?
You treat anaemia with iron. You treat a chest infection with antibiotics. You can't treat anaemia with antibiotics; chemically, it won't work. Nothing will happen to the anaemia.
You give MPH to someone diagnosed with ADHD and it could help turn their life around. Chemically, something is going on.
He said it's not a real disease (or condition/syndrome/etc, but he used the word disease). So how can so many of us, with our collection of symptoms caused by different life experiences, respond so positively to the same or similar treatments?
Because he's wrong.
That was my point, but I perhaps got too anxious about voicing my opinion to realise that no one else could understand it without an explanation unless they were in my head..
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Post by contrarymary on Mar 31, 2014 6:40:49 GMT
his area of expertise is childhood trauma. i cannot find that he has expertise on anything else. he is now extrapolating and has written some "pop psych" books and appeared on Oprah. end of. he is not an expert in adhd.
he is coming to meet POLITICIANS. he is not coming to a peer-reviewed conference, or anything which would actually merit some academic interest. it is a POLITICAL trip.
the observer is an intelligent newspaper full of trained journalists who are trained to question reasons, motivation etc, particularly when it involves politics. it gives them credibility; their interrogation of a subject gives the subjects of their articles credibility. they have not done this. what on earth is going on?
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Post by Deleted on Mar 31, 2014 8:19:47 GMT
It's crap like this that means I don't feel I can be honest with people about my ADHD. I get that totally. But I'm sticking my neck out more. On my email "Disclaimer and Confidentiality" notice which I generally always attach to officialdom, I now promote support for action against general MH and ADHD prejudice. I've already had blank outs from people who probably still think that the term "nutter" is an acceptable way to describe sufferers, but I don't care. It's their problem not ours. And if they're offended by the truth that MH disorders and ADHD symptoms actually do exist then that is, quite frankly, their ignorance and they need to deal with it! But I do truly believe ADHD will be sub-divided into a whole plethora of new conditions and disorders as the brain becomes better understood over time. And as these disorders become further categorised and re-ordered, messageboards like this one will probably have to embrace them - which is why I feel we might need to have an SCT (Sluggish Cognitive Tempo) topic area, if only for general discussion and under a banner of "Neo-ADHD Developments" for example. And as far as the media is concerned, I probably agree with frustrated: it's seems to be less about informing the public and more about putting individuals in the stocks for them to chuck rotten apples at. Link that to the ever-increasing belief that AD(H)D sufferers are more likely to end up in jail vis-à-vis the percentage incarcerated and you remove the need for sensationalism and hence a good source of income from the feeding frenzy circuit. Whilst we have to protect society from harm and the impulsive nature of some disorders, we should also realise that to categorise individuals as "psychos" and "nutters" is no different from using racially abusive or gender derogatory terms that are now deemed hate crimes! Why? Because if we are all born equal, but with differing physical qualities which we have no control over, then rationality takes over from headlines - and that hurts the media's raison d'être. So discriminating against a MH sufferer should be deemed a hate crime IMO, and all the media is doing at the moment, is exploiting a vacuum in that definition to demonise individuals and groups in exactly the same way we all did around the execution gallows during the Middle Ages. And contrarymary, I concur with your frustration re the neuroscientist's hijack. But have you seen what comes out of Hollywood and Shepperton studios these days? The collaboration between the US/Canada and UK, now to include Australia, New Zealand, Sweden/Denmark, Spain/Hispanic countries and beyond is unprecedented, suggesting to me that there's a massive move, through the film industry, to homogenise the psyche of the Western World - especially the Anglo-Saxon economies. It doesn't surprise me any more that we have a Canadian running the Bank of England or an American dictating NHS policy through the media. We're all becoming one and the same with one report this morning suggesting that apart from the very poor, we should all give £10 a month to the NHS. Well that sounds less European and more US in approach to me and a convergence towards Obamacare. And this probably all comes down to money. If whole swathes of the public get dxed as AD(H)D, then money might have to be diverted, as one example, out of our Imperialist foreign policy. And we can't be having that can we.
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Post by roland on Mar 31, 2014 11:33:37 GMT
Article in Full
Article History: Children's hyperactivity 'is not a real disease', says US expert This article appeared on p5 of the Main section section of the Observer on Sunday 30 March 2014. It was published on the Guardian website at 07.01 BST on Sunday 30 March 2014. It was last modified at 09.00 BST on Sunday 30 March 2014.
Byline: Daniel Boffey, policy editor
Headline: Children's hyperactivity 'is not a real disease', says US expert
Neuroscientist says children are being 'labelled' as having ADHD when there could be other reasons for their disorder
One of the world's leading neuroscientists, whose work has been acknowledged by work and pensions secretary Iain Duncan Smith, has suggested that attention deficit hyperactivity disorder (ADHD) is not "a real disease".
On the eve of a visit to Britain to meet Duncan Smith and the health secretary, Jeremy Hunt, Dr Bruce D Perry told the Observer that the label of ADHD outlined a broad set of symptoms. "It is best thought of as a description. If you look at how you end up with that label, it is remarkable because any one of us at any given time would fit at least a couple of those criteria," he said.
Prescriptions for methylphenidate drugs, such as Ritalin, which are used to treat children diagnosed as suffering from ADHD, have soared by 56% in the UK, from 420,000 in 2007 to 657,000 in 2012. Such "psychostimulants" are thought to stimulate a part of the brain that changes mental and behavioural reactions.
However, Perry, a senior fellow of the ChildTrauma Academy in Houston, Texas, said he was concerned that children were being labelled as having ADHD when that merely described the symptoms of a range of different physiological problems. The symptoms that lead to a diagnosis of ADHD include inattentiveness, hyperactivity and impulsiveness over a sustained period.
Perry added that clinicians were also too readily prescribing psychostimulants to children when the evidence suggested there were no long-term benefits. Animal studies have raised concerns over the potential for damage to be done.
Perry, who will also meet cabinet secretary Sir Jeremy Heywood during his visit as a guest of the Early Intervention Foundation, a charity aimed at tackling the root causes of childhood dysfunctions, said: "We are very immature in our current evolution in giving diagnoses. A hundred years ago, someone would come to the doctor and they would have chest pain and would be sweating. And they would say, 'Oh, you have fever.' They would label it, just like we label it [ADHD] now. It's a description rather than a real disease."
He added: "If you give psychostimulants to animals when they are young, their rewards systems change. They require much more stimulation to get the same level of pleasure.
"So on a very concrete level they need to eat more food to get the same sensation of satiation. They need to do more high-risk things to get that little buzz from doing something. It is not a benign phenomenon.
"Taking a medication influences systems in ways we don't always understand. I tend to be pretty cautious about this stuff, particularly when the research shows you that other interventions are equally effective and over time more effective and have none of the adverse effects. For me it's a no-brainer."
Perry said he favoured an approach that went back to the root causes of the problem, and often required attention being focused on the parents. "There are number of non-pharmacological therapies which have been pretty effective. A lot of them involve helping the adults that are around children," he said.
"Part of what happens is if you have an anxious, overwhelmed parent, that is contagious. When a child is struggling, the adults around them are easily disregulated too. This negative feedback process between the frustrated teacher or parent and disregulated child can escalate out of control.
"You can teach the adults how to regulate themselves, how to have realistic expectations of the children, how to give them opportunities that are achievable and have success and coach them through the process of helping children who are struggling.
"There are a lot of therapeutic approaches. Some would use somato-sensory therapies like yoga, some use motor activity like drumming.
"All have some efficacy. If you can put together a package of those things: keep the adults more mannered, give the children achievable goals, give them opportunities to regulate themselves, then you are going to minimise a huge percentage of the problems I have seen with children who have the problem labelled as ADHD."
The chairman of the Early Intervention Foundation, Labour MP Graham Allen, said Perry was the "best in his field" and was meeting senior officials and politicians already "convinced by the philosophy of his research. I would argue that if you can diminish adverse childhood then we eliminate a lot of the causes of dysfunction."
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Post by roland on Mar 31, 2014 11:49:35 GMT
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Post by Deleted on Mar 31, 2014 12:38:31 GMT
I've linked this thread to Jeff's ADDMind hereWould be nice to get some transatlantic debate going with our US brethren since we're now more or less the same nation
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Post by fuzzywuzzy on Mar 31, 2014 12:46:59 GMT
Thank you for that information rolandI sincerely wish some of us could go and ask LOTS of VERY pertinent questions.....not sure we'd be let in? Feel so frustrated that there is NOTHING coming from the TRUE experts to dismiss this bombardment of stigmatising, ignorant, short-sighted, blaming mentality articles within the media....and consumed by vast swathes of the public either sympathetic to such rubbish or misinformed and too easily swayed My thoughts on the participation of Iain Duncan Smith is this.....having cut the welfare bill by denying many disabled adults the benefits that they are entitled to, he is now planning to move onto disabled children....I suspect that it's much easier to deny a child Disability Living Allowance if they don't have a medical condition
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Post by Deleted on Mar 31, 2014 12:55:16 GMT
Thank you for that information rolandI sincerely wish some of us could go and ask LOTS of VERY pertinent questions.....not sure we'd be let in? Feel so frustrated that there is NOTHING coming from the TRUE experts to dismiss this bombardment of stigmatising, ignorant, short-sighted, blaming mentality articles within the media....and consumed by vast swathes of the public either sympathetic to such rubbish or misinformed and too easily swayed My thoughts on the participation of Iain Duncan Smith is this.....having cut the welfare bill by denying many disabled adults the benefits that they are entitled to, he is now planning to move onto disabled children....I suspect that it's much easier to deny a child Disability Living Allowance if they don't have a medical condition I allude to this in my first post in this thread. This is exactly what's going on here...and to be fair, it's really quite nasty. This isn't about moving forward in diagnostic terms, this, as I see it, is just about money. I'm all for a protagonism towards identifying more specific root causes of AD(H)D symptoms, but in the end, this govt is all about getting the masses pounding the treadmill that feeds their gravy train. And you're right, where are the UK Barkleys of this world vociferously and effectively thrusting the counter argument?
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spok
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Post by spok on Mar 31, 2014 14:44:38 GMT
I can see it now... The DDA being changed to explicitly exempt anybody with a diagnosis of ADHD being classed as disabled due to any ADHD symptomatology and resulting impairments.
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Post by frustrated on Mar 31, 2014 15:05:30 GMT
lost in my first post is the fact that I suspect that for our government this is a move to cut benefits, possibly intended to cut the costs of the nhs too, however disability is paid on the basis of what you can't do for yourself, rather than because you have a diagnosis.
I would think that this would be used more to bash the disabled to make them ashamed of claiming, rather than actually enabling benefit cuts linked to a certain diagnosis. given the criteria needed to claim, I don't see how anyone with adhd could be penalised. I do see how this would give the government leverage to remove children from home though.
I knew someone who had both of her children diagnosed at a very young age and received dla for both, along with respite care etc. I provided child care for her at some points when the children were very young, comparing her lads to my son (who was diagnosed) and factoring in her ablity to parent constructively, I think she was on the blag for the money. Its people like her who have caused problems for the genuine cases.
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Post by Deleted on Mar 31, 2014 16:29:09 GMT
Bashing the disabled? "Shurely shome mishtake? After'll <hic> itsh their faul' they're dishabled innit?" You're right, I wouldn't put it past them after a few words over a glass of Pimms in some smoke-free committee room with the billiard table setting the scene.
My worry is, that some traditional and vocal proponents of the condition are swaying under the pressure and/or lack of media coverage and co-operation. It's always so bloody political in this country - that everything is driven by expediency (and the current fad) rather than the real evidence behind the science.
This is what pi**ed me off about the C5 debate a couple of weeks ago that @planetdave contributed to. You had a comedian, actress and former Blue Peter presenter telling the world that ADHD didn't happen in their day and it's all down to diet and food. And their evidence? None, just opinion. And people watching DTTV hang on to their every word.
FFS guys, if that's the level of debate going out to the masses, then no wonder the gubbermint see an opportunity to diss the condition.
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Post by purplepower on Mar 31, 2014 16:59:11 GMT
I just sent an email to the Foundation asking if there's any spare seats at his presentation.
I get the impression that ADHD has been overdx in the States and some adults think that ADHD is something you can just take a pill for. There's no doubt parental intervention is very important for kids IMO, as well as things like CBT for kids (if that exists?)
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Post by fuzzywuzzy on Mar 31, 2014 23:11:31 GMT
And now Katie Hopkins wades in on twitter....no surprise there then.....apart from the fact it took her so long!?
"Another expert comes out to say ADHD is not a diagnosis. It is a fabrication. The floodgates are open, Poor mothering is not a condition."
Later, she added, "ADHD is a label bad mums like to wear to excuse their poor parenting skills. A bottle of rattling pills is not the cure."
She is not the most popular person in the world, though, and I think sometimes whatever stance she takes can sometimes actually have the opposite effect and backfire on her
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Post by shapes on Mar 31, 2014 23:38:58 GMT
Hopefully it will blow over and they will move on to some other target. It is wrong though and I feel sorry for children who have ADHD and their parents who are being subjected to stigma.
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Jeff (Jeff's ADD Mind)
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Post by Jeff (Jeff's ADD Mind) on Apr 1, 2014 2:31:39 GMT
It seems that the "ADHD Does Not Exist" movement goes in and out of fashion. I wish I could figure what triggers its resurgence. I have not seen any of the ADHD Deniers provide real data. They provide anecdotes, but the plural of anecdote is not data. They have no longitudinal studies to point to. All they have is their assertion that it doesn't exist. My "favorite" denial comes from Patrick Grimm via David Duke's website. (For those unfamiliar with David Duke, he was the Grand Wizard of the Ku Klux Klan.) According to Grimm, ADHD is part of the vast Jewish Conspiracy against, well, everyone...except Jews. See: davidduke.com/medicating-children-and-the-add-adhd-scam/@addjourneyman, you wrote..."this probably all comes down to money." - Well, yes. But there's something much more. The homogenization of the western world is a consequence of the exponential growth of globalized capitalism, along with the increased dominance, in almost every waking moment of daily life, of the digital world.
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Post by ADHD Watchdog on Apr 1, 2014 2:54:12 GMT
Thanks, Jeff, for pointing me to this board.
We really must join forces with our UK friends to counter this nonsense.
It seems that any two-bit hustler who ever took a science class (not necessarily passing!) is hiring PR firms to plant stories at so-called "news outlets." These so-called "news outlets" are desperate for web traffic and ad revenue -- and they've learned that ADHD fearmongering brings results!
The latest Guardian piece was almost straight from the press release. It had to be.
One has to wonder how this Perry fellow ended up at a non-profit in Houston, of all places. It's a "neuroscience backwater," to put it mildly. A cloud hangs over him from his wife's brutal murder years ago.
The non-profit gambit for these hustlers is a popular one. They set up a non-profit, burnish their public image as a humanitarian, hustle up donations "for the children!", draw a fat salary, get government contracts, and all while promoting their own books, services, etc. Sweet deal! All at the taxpayers' expense!
No one here had heard of Richard "ADHD Does Not Exist" Saul. But Rupert Murdoch does own Harper Collins, the publisher.
And this week's nugget in Esquire, The Drugging of American Boys, comes courtesy of someone who calls himself a psychologist, but he apparently has only an MA. Howard Glasser.
Interestingly, both Glasser and Perry describe their own childhoods are being highly reminiscent of having ADHD, oppositional variety. (Who knows about Saul; his childhood was about two centuries ago!)
Looks like they are still opposing the diagnosis.
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Post by Deleted on Apr 1, 2014 7:29:35 GMT
Welcome our North American cousins. Thanks for popping over
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Post by roland on Apr 1, 2014 8:37:49 GMT
Photograph: Dr Perry meets Francis MaudeThis is a photograph of Dr Perry (on the left) meeting with the lovely Francis Maude (on the right). The chap in the middle is Graham Allen MP and he's the one who invited Dr Perry over here and is taking him round to meet Ian Duncan Smith and Jeremy Hunt (Health Secretary) CONTACT DETAILS (ask them why they're meeting, on tax-payer funded time, with an apparent ADHD denier) 1. If you have a twitter account, you can contact Dr Perry, Jeremy Hunt, and Graham Allen at the following: @bdperry, @jeremy_Hunt, @grahamallenmp You can also contact the Early Intervention Foundation @eifoundation you can also tweet IDS at DWP @dwpgovuk. You can tweet #10 @number10gov Andy Burnham @andyburnhammp 2. Here are their email addresses (for speed & convenience you can send one email to the whole lot): Graham Allen: marie-claire.platt@parliament.uk or allengw@parliament.uk Iain Duncan Smith: nashj@parliament.uk or ministers@dwp.gsi.gov.uk Jeremy Hunt: huntj@parliament.uk or mb-sofs@dh.gsi.gov.uk Francis Maude: francismaudemp@parliament.uk or public correspondence@cabinet-office.gsi.gov.uk For added pressure you can cc Andy Burnham (Shadow Secretary of State for Health): andy.burnham.mp@parliament.uk In your email, you can ask if it is true, as reported in the Observer, that Dr Perry does not believe that ADHD is real, and that if the Observer has reported his beliefs accurately ask them if they realise that by meeting with an ADHD denier, thus validating his beliefs, they are contributing to the stigma and discrimination that make the difficulties worse that ADHD people encounter. Stigma and discrimination make it harder for us to access services, education, work, and so on and so on. But please do contact them (your email can be brief) because they are all public figures, they are paid from our taxes, and they should be held responsible!! I have already tweeted them and I will be following up with emails, but the more of us they hear from the better! And finally here is a photograph (titled Dr Bruce Perry, my early intervention hero) that Graham Allen has placed on his twitter account Photograph of newspaper headline "ADHD not real etc" from Graham Allen titled Dr Bruce Perry, my Early Intervention hero
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