|
Post by Foxtrot on Jun 4, 2015 17:32:12 GMT
I've been on Concerta XL since March. I'm currently on 36mg am and 18mg midday. I don't feel the dose is high enough yet, I'm hoping for a dose increase when I see the psyc in July.
My partner picked up my prescription for me and ended up going to 4 different pharmacies with it because none of them can order in what the GP has written the prescription for. Instead of concerta, it says Xenidate XL.
I assume Xenidate is also methylphenidate, but I'm worried that it's not Concerta. Should I be? It's hard enough trying to figure out how it's affecting me, to figure out what's the right dose, or even if it's the right med without the GP switching things up. Is this a generic? Does that mean the dose is unreliable? Is it a different delivery system? Have I been reading too much internet and find myself talking crap?
I've asked if the GP will change the prescription to concerta because I can't get Xenidate anyway. I won't find out until tomorrow if they will. I'd like to be more informed about Xenidate, though incase I need to put it on my list of things to kick up a stink over.
Can anyone answer these questions please? I'd be very grateful.
|
|
|
Post by contrarymary on Jun 4, 2015 20:53:56 GMT
Hello Foxtrot i'm not on meds so i only have theoretical information, but AFAIK xenidate is a newer generic SR methylphenidate i found this article outlining the similarities/differences between the different brands of SR MPH, hope it's helpful. good luck
|
|
|
Post by Foxtrot on Jun 4, 2015 21:31:39 GMT
Thanks contrarymary I've been googling all night and have cobbled together the following information. Xenidate XL is a generic version of Concerta XL. It is 30% cheaper than Concerta XL. It has the same ingredients as Concerta but I don't think it has the same delivery system. I cannot find much about Xenidate XL but other generics are well documented on the Internet. Because they have a different delivery system they may differ in dosage release/effectiveness by up to 80% or 125% when compared to Concerta. Such a difference can have a profound effect on ADHD symptoms or side effects experienced by the individual. The FDA in America have downgraded generic versions of Concerta, as they are not considered to be interchangeable with Concerta. Due to Tory austerity, many health authorities are swapping Concerta XL prescriptions for Xenidate XL in order to save money. This is not being given as an option to patients, it is just happening. In my case there was no warning or explanation. I'm pretty pissed off because I'm trying to navigate titration on Concerta XL only to have my GP change up the medication without even having the courtesy to inform me, or to explain that I may have a different experience because of this. I'm already finding all this self awareness, is it? isn't it working? Very stressful. Anyhow, I haven't got any meds at all because 4 out of 4 pharmacies can't get it on order so the Tories can stick that where the sun don't shine! For now at least.
|
|
|
Post by MrX on Jun 28, 2015 18:01:39 GMT
I was also prescribed Xenidate XL to my 13 old kid. I had the similar concerns you have mentioned above, however, my GP told me the decision to switch the patients to Xenidate XL from Concerta was made by consultants in CAMHS after reviewing all aspects of the new medicine. She also explained the new product has be proved to be equivalent to Concerta in clinical studies and provides round the clock control of symptoms.My boy is fine with this generic drug.
|
|
|
Post by MrX on Jun 28, 2015 18:03:19 GMT
I was also prescribed Xenidate XL to my 13 old kid. I had the similar concerns you have mentioned above, however, my GP told me the decision to switch the patients to Xenidate XL from Concerta was made by consultants in CAMHS after reviewing all aspects of the new medicine. She also explained the new product has be proved to be equivalent to Concerta in clinical studies and provides round the clock control of symptoms.My boy is fine with this generic drug.
|
|
|
Post by Gazza on Jun 28, 2015 22:15:47 GMT
Xenidate XL is very different to Concerta and does not even work for 12hrs. I think there is another generic version of Concerta that is the same but is a little more expensive than xenidate. Trouble with the NHS is that its all about cost and short termism
|
|
|
Post by Foxtrot on Jun 29, 2015 18:11:08 GMT
It's the same ingredient but a different delivery system. That doesn't necessarily make Xenidate a bad choice. The difference in the delivery system could even be a better fit for some than concerta is.
I support the idea of making cost savings like this, so that the limited budget of the NHS can go further. I feel reassured after talking to the psyc about it, if I try it, and it doesn't work out, he will specify Concerta only. That sounds fair enough.
For me the issue is the lack of communication and honesty. I think it's really important that the GP tells someone if they change up someones medication. Not telling people means that they are unaware that they may react differently to the medication and may need a dose adjustment. I have also been told by a GP receptionist and a pharmacist that 'it is interchangeable with concerta'. That is misleading. For this kind of medication the rate at which the dose is released throughout the day can, potentially have a profoundly different effect for some people. Simply having the same ingredient doesn't make it interchangeable. That's not to say Xenidate is bad, it's just different.
|
|
elic
Member's not posted much yet
;-)
Posts: 28
|
Post by elic on Jul 2, 2015 22:24:13 GMT
I have had a similar thing. My doctor prescribed Matoride XL instead of Concerta XL. Seems to work the same. One month the pharmacy did not have the Matoride XL so gave me the Concerta. Last week i went back to MAtoride and there didn't appear to be any change.
|
|
|
Post by Hammy on Jul 30, 2015 18:14:29 GMT
Thanks contrarymary I've been googling all night and have cobbled together the following information. Xenidate XL is a generic version of Concerta XL. It is 30% cheaper than Concerta XL. It has the same ingredients as Concerta but I don't think it has the same delivery system. I cannot find much about Xenidate XL but other generics are well documented on the Internet. Because they have a different delivery system they may differ in dosage release/effectiveness by up to 80% or 125% when compared to Concerta. Such a difference can have a profound effect on ADHD symptoms or side effects experienced by the individual. The FDA in America have downgraded generic versions of Concerta, as they are not considered to be interchangeable with Concerta. Due to Tory austerity, many health authorities are swapping Concerta XL prescriptions for Xenidate XL in order to save money. This is not being given as an option to patients, it is just happening. In my case there was no warning or explanation. I'm pretty pissed off because I'm trying to navigate titration on Concerta XL only to have my GP change up the medication without even having the courtesy to inform me, or to explain that I may have a different experience because of this. I'm already finding all this self awareness, is it? isn't it working? Very stressful. Anyhow, I haven't got any meds at all because 4 out of 4 pharmacies can't get it on order so the Tories can stick that where the sun don't shine! For now at least. I was on 36mg of Concerta XL until May when they upped my dose to 54mg (because the 36 wasn't even touching the sides!) I was originally prescribed Concerta until I got a letter through in the post to INFORM me, not ASK for my permission, that I was changing medication to 54mg Xenidate XL. The letter had no explanation of why so I rang up to get some answers! - to which they wouldn't give me a straight answer other than "It's got the same active ingredients as Concerta". Now I know why, thank you! I had my suspicions that it was something to do with the cost - that Xenidate was clearly cheaper! Went back to see them last week, still not responsive to the medication and can barely eat anything! I go all day without feeling hungry! Do you feel like that too?
|
|
|
Post by Foxtrot on Jul 30, 2015 20:52:37 GMT
I'm not on Concerta now. It wasn't really working for me and unfortunately, it triggered anxiety disorder. I muddled through for a few months hoping it was just side effects that would pass but a mixture of anxiety, depression, insomnia got the better of me.
I started Strattera 2 weeks ago and so far that's going well. I'm still trying to get the anxiety and depression back in its box, but I feel better than I did. Still too early to gauge any impact on ADHD symptoms as yet.
|
|
|
Post by gillywilly on May 31, 2016 11:44:43 GMT
I'm not on Concerta now. It wasn't really working for me and unfortunately, it triggered anxiety disorder. I muddled through for a few months hoping it was just side effects that would pass but a mixture of anxiety, depression, insomnia got the better of me. I started Strattera 2 weeks ago and so far that's going well. I'm still trying to get the anxiety and depression back in its box, but I feel better than I did. Still too early to gauge any impact on ADHD symptoms as yet. I've gone back to methylphendidate* (108mg) but only because Dexedrine (60mg) was doing my head in (my g/f said I'd gone from being homicidal to suicidal on dex... ). Reckon I get ca 15-20% max benefit on stimulants - reduces my impulsivity only, doesn't help me focus at all. Initially thought anxiety and depression (including suicidal ideation) both worse on amphetamine, but tbh, all three are prevalent on the methphen too. Joy. (*Originally Concerta from prescribing nurse while sorting out titration, but recently changed to Xendiate since being handed over to GP surgery to prescribe. It's very much a 'will they won't they' have them in stock... bit of a nightmare, really. Too early to see if any better/worse/different to Concerta.)Are you still on the Strattera? If so, how are you finding it almost a year in? (My prescr nurse is very against me using it, because of what he's seen/heard from his many other patients. Still keen to try it - but wanted to go back to Concerta first until my moods stabilised. Hah - think that might be a long time coming!)
|
|
|
Post by Foxtrot on Jun 23, 2016 20:10:55 GMT
I'm not on Concerta now. It wasn't really working for me and unfortunately, it triggered anxiety disorder. I muddled through for a few months hoping it was just side effects that would pass but a mixture of anxiety, depression, insomnia got the better of me. I started Strattera 2 weeks ago and so far that's going well. I'm still trying to get the anxiety and depression back in its box, but I feel better than I did. Still too early to gauge any impact on ADHD symptoms as yet. I've gone back to methylphendidate* (108mg) but only because Dexedrine (60mg) was doing my head in (my g/f said I'd gone from being homicidal to suicidal on dex... ). Reckon I get ca 15-20% max benefit on stimulants - reduces my impulsivity only, doesn't help me focus at all. Initially thought anxiety and depression (including suicidal ideation) both worse on amphetamine, but tbh, all three are prevalent on the methphen too. Joy. (*Originally Concerta from prescribing nurse while sorting out titration, but recently changed to Xendiate since being handed over to GP surgery to prescribe. It's very much a 'will they won't they' have them in stock... bit of a nightmare, really. Too early to see if any better/worse/different to Concerta.)Are you still on the Strattera? If so, how are you finding it almost a year in? (My prescr nurse is very against me using it, because of what he's seen/heard from his many other patients. Still keen to try it - but wanted to go back to Concerta first until my moods stabilised. Hah - think that might be a long time coming!) I had to reduce dose to 40mg and also on 100mg sertraline. I got a swollen foot, raging hormones and obsessive thoughts. I some 5mg Dex as top up but not taking that at the mo. Had very stressful time recently. Things are on the up hopefully. Need to put my health first for a while. I think autism has complicated ADHD treatment to be honest. I'm on a 2 year list waiting for that diagnosis. Sorry it took so long to reply gillywilly
|
|
|
Post by gillywilly on Jun 23, 2016 23:27:10 GMT
No problem, Foxtrot. Sounds like you've been having a rough time Similar parallels with my situation, too. I've just been put on Sertraline, too - though only 50mg (std dose). I did tell my GP I wished to review my meds but he said he wanted to stabilise my moods first (hence the antidepressants). And then checking my hormone levels (my request, tho). So could be a long time before I'm even given the chance to try Strattera. Re autism, FWIW I read only today that those with ASD have only a 50% success rate after trying first two meds (compared with ca 80-90% of ADHDers w/o ASD). Wishing you the very best of luck, and a much speedier referral than the two years you're expecting.
|
|
|
Post by vagueandrandom on Jun 23, 2016 23:45:43 GMT
Why don't the doctors realise that unstable moods are part of ADHD? The only benefit that I found with mph was that it stabilised my moods a bit. I've moved area and the psychiatrist that I've been sent to is refusing to treat my ADHD. . . wanting to stabilise my moods first
|
|
|
Post by gillywilly on Jun 24, 2016 12:31:30 GMT
Why don't the doctors realise that unstable moods are part of ADHD? The only benefit that I found with mph was that it stabilised my moods a bit. I've moved area and the psychiatrist that I've been sent to is refusing to treat my ADHD. . . wanting to stabilise my moods first Crap, isn't it? I'm still on my ADHD meds but my GP (probably sensibly) isn't considering a review and switching until he's stabilised my mood, too (now on Sertraline, an antidepressant). And then looking at oestrogen levels (and treating if née)... and only then (if neither of these make a difference) will be look at my ADHD meds again. From what I've read, given the comorbidity of ADHD with numerous other conditions, medical professionals are advised to treat whichever condition they see as having the greatest impact. Once that one is under control, they can address the next. Which seems sensible - but given how depression and anxiety can so easily be caused by ADHD and its impact, as well as being a separate comorbid condition alongside it, I don't see how they can split mood either way.
|
|
|
Post by Linzeeyk on Feb 25, 2017 21:23:19 GMT
I've been on Concerta XL since March. I'm currently on 36mg am and 18mg midday. I don't feel the dose is high enough yet, I'm hoping for a dose increase when I see the psyc in July. My partner picked up my prescription for me and ended up going to 4 different pharmacies with it because none of them can order in what the GP has written the prescription for. Instead of concerta, it says Xenidate XL. I assume Xenidate is also methylphenidate, but I'm worried that it's not Concerta. Should I be? It's hard enough trying to figure out how it's affecting me, to figure out what's the right dose, or even if it's the right med without the GP switching things up. Is this a generic? Does that mean the dose is unreliable? Is it a different delivery system? Have I been reading too much internet and find myself talking crap? I've asked if the GP will change the prescription to concerta because I can't get Xenidate anyway. I won't find out until tomorrow if they will. I'd like to be more informed about Xenidate, though incase I need to put it on my list of things to kick up a stink over. Can anyone answer these questions please? I'd be very grateful.
|
|
|
Post by NIkki on Apr 17, 2018 15:03:22 GMT
I have had exactly the same problem and it's all down to a Tory cost saving exercise. But you can't get it anywhere! So they are prescribing a drug that is not widely available or on pharmacy's lists, I've got home with nothing in tears after hours of driving back and forth stressing,
|
|
flibberty
Member's not posted much yet
Posts: 4
|
Post by flibberty on Apr 19, 2018 7:31:05 GMT
I was recommended concerta xl by psych and prescribed xenidate by my GP, which I took to be down to cost-saving local prescribing guidelines. Tested side by side they are sufficiently similar to be deemed equivalent by phamacists, but my experience has been that the xenidate effect drops off at about 8 hours in. The graph below on page 7 100% mirrors my experience of xenidate vs concerta. Get better sustained cover with concerta. GP has now switched me onto concerta. Was considering top up of short acting on the afternoon on xenidate but on concerta thinking I may not need to but early days. So my experience probably thanks to the different ways the mph is released, has been a noticeable difference but it’s amazing how differently individuals respond to medications anyway and so I wouldn’t want to be saying Concetta is superior full stop. www.sps.nhs.uk/wp-content/uploads/2016/05/Methylphenidate_ER_A_review_of_PK_or_products_available_May_20162.pdf
|
|
|
Post by Millymoo162 on Jun 19, 2018 7:07:29 GMT
Hi my 18yr old son has just been prescribed xedindate xl starting at 18mg & increasing by another 18 weekly for 3 weeks , he’s also taking respiradone 1mg & 50mg certiraline has anyone had positive /negative experiences with this medication/ all theses meds together ? Thanks in advance 😊,
|
|