jj11
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Post by jj11 on Feb 27, 2018 13:11:51 GMT
I have been overweight most of my life joining a slimming group,at 14 and on and off my whole life. For what it is worth, my view is that rather than focussing on the 'diet as nutrition' 'diet as eating pattern' with dHD there is probably a neurological component too. For example, the impact of emotional dysregulation might lead to overeating. The ability to feel satiated might be impaired. I know now that I used (use!) food as a way of managing emotion as it acts as an anaesthetic. However, hyperfocussing meant I also lost 5.5 stone. I think it would be an interesting area to research! Wishing you well on your journey
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Post by jj11 on Feb 27, 2018 13:05:09 GMT
I was also strugling with weight a couple of years ago and hated gym and everything I danced but didnt loose weifgt. until i joined boxinggym and wthin a few months i had lost the 20kg overweight as well as the medicaion and all the side effects of ADHD. boxing had cured me... until i lefyt my team and chnegd countries. I am still boxing in spain but the family i had left behid was a real change. I am back to 10 kg overweight and medication and verymuch textbook ADHD. It was not the boxing that helped me, it was having found a true paassion and peope to share it with. Not only that they respected me so i felt i was important and had a purpose. I had a vsible battle to fight not fighting against myself but for myself and towards something so that would be my advise to you would be tofind your passiion that will stop you from hinking about food. if you can spend a day or to whith that passion and not remeber when you last ate then youre on the right track... find something sport oriented such as hiking or rowing. know of a friend who is a volunteer and spends her time going on charity events and trips. find yours.
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Post by jj11 on Feb 27, 2018 13:02:15 GMT
Success! I managed to get ESA support group anf PIP. So relieved but cross it has taken so long.
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Post by jj11 on Feb 27, 2018 12:02:41 GMT
Hi Nat, I was just looking into a research proposal myself (Finalist M.A. Psychotherapy at Minster Centre, London) when I stumbled across yours. I've got ADHD. I am 55 and was diagnosed last year. I think I may need to rethink how I do my research as I may run into difficulties finding participants too. I'm happy to help with yours. A fellow psychotherapist had suggested I ask similar questions to the ones you are asking. If there are 5% of us with ADHD then practitioners need to know this stuff. I just tried to email you but when I cut and pasted your email addy it wouldn't send. I am happy to help. I'm not sure how to contact you. Here is my email: jones.sorcha@gmail.com Warmest, Sorcha Hi Sorcha, like you I was diagnosed late in life at 54. Trying to find articles on late diagnosis and/or ADHD in middle-age and later life almost non-existent. I'm sure this an area ripe for research!
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Post by jj11 on Feb 27, 2018 11:59:38 GMT
Hi everyone, My name is Natalie (Nat) and I’m a postgraduate student in my final year of an MSc Psychology with University of Derby. I have just been given ethical clearance to recruit participants for my final project and have added some info below in case anyone one on here would be willing to take part. Project title: ADHD in adulthood: A qualitative study of lived experiences, self-image, diagnosis and service provision in the UK
Aims and objectives: The aim of the study is to investigate the lived experience of people who are diagnosed with ADHD in adulthood. • What is the lived experience of adulthood ADHD including the diagnostic process. • Experiences of service provision and treatment after diagnosis. • What works in service provision and how can this be improved? • The role of ADHD online support groups and communities. • How adulthood ADHD impacts self-image and if self-image changes as a result of diagnosis. This is a qualitative study which requires 6-8 participants to take part in an interview which will last between 45-60 minutes. Once participants agree to take part and complete the consent form, they will be interviewed via Skype or phone and voice recorded for transcription purposes. Participants will not be pressurised into providing more information if they feel they have finished the interview before this time and have no further responses to provide. The recordings will be transcribed and analysed with the aid of NVivo software. This study will use a thematic analysis approach to interpreting qualitative data and look for themes, commonalities in ideas and also differences in attitudes towards lived experience of ADHD. The rationale behind choosing this form of analysis is that it is able to offer an inductive approach where the researcher does not take a preconceived stance on what the data will provide nor on a participant’s lived experiences. Coding and theme development will be directed by the contents of the data. This is in fitting with the context of the study which seeks to listen to participants in order to make recommendations to improve service provision and provide a deeper understanding of what it is like to live with adult ADHD. ADHD must be the participant’s primary diagnosis. Co-morbid conditions such as depression and anxiety frequently occur alongside ADHD but these should not be a primary diagnosis. Participants should be over the age of 21. Exclusion criteria include having a comorbid psychiatric condition which has been given as a primary diagnosis, people under the age of 21 and those who live outside of the UK. There is no external funding attached or additional organisational involvement. This is a student led project. I am currently employed in the NHS as a Band 5 Research Assistant and have full DBS clearance. Ethical clearance for the study was granted on 9th February 2018 by University of Derby by two separate academic staff. Completion (submission) date is 8th August 2018. It is hoped that the findings from this study may be published in a peer reviewed journal. The idea for the project has come about as two of my friends were diagnosed in adulthood with ADHD and have experienced some challenges but also positive aspects to diagnosis and treatment. I would be very interested in particular in hearing about how online communities such as this can have an affect on self-image and esteem and may act as a form of self-sought support. An in-depth participant information sheet and consent form can be found at this link: derby.qualtrics.com/jfe/form/SV_0Ife96BTVKFlarbThere is also a pre-written interview schedule which you are more than welcome to read through and make suggestions if you can think of any important topics to consider. I have put it up via Qualtrics (securely and anonymously provided by University of Derby) at this link: derby.qualtrics.com/jfe/form/SV_ekP9raVT3LNTvedPlease get in touch either on here or via email if you would like to participate or contribute ideas to the research in terms of important considerations. My email is N.Webster4@unimail.derby.ac.uk. All communications and data are held with the GDPR data protection regulations and University of Derby ethical code. No personally identifiable information will be shared with any third party at any point. All the best, Nat I wish someone would undertake research
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Post by jj11 on Feb 27, 2018 11:52:21 GMT
What are you looking to study?
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Post by jj11 on Feb 27, 2018 11:50:59 GMT
Well, I only went and got it. I initially applied in Sept 16 but went to tribunal last week- a really harrowing journey which ended up at tribunal. I took someone with me but he didn't say anything. Even though they totally ignored the impact of fatigue and arthritis, I got the points for basic award. If it helps, they were persuaded by oral testimony which included me telling them how difficult it is to get out of the house on time - keys/glasses/purse/bag. Bag? Keys? etc... And also leaving pans on cooker and forgetting them etc. It seems specific things help. I share the post because I remember others who had difficulty getting pip.
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Post by jj11 on Sept 12, 2017 14:46:01 GMT
No, I haven't as yet. Did you have someone with you? Are you going to appeal?
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Post by jj11 on Sept 12, 2017 14:44:27 GMT
I'm going through a major depression atm but had to go to ESA assessment. I was asked, 'what stops you from killing yourself?' Perhaps they should give us a gun to finish it off properly. I feel emotionally violated. Was sobbing throughout. Horrid experience.
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Post by jj11 on Jun 9, 2017 13:46:51 GMT
It's the way the whole system is designed to be dis-abling rather than enabling. I was awarded no points at all and I remain of the opinion that the assessor had no idea about adhd and the impact it has on day to day life. I agree with you about the nasty tendency to dismiss invisible disability.
Im still waiting for a tribunal date....
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Post by jj11 on Jun 9, 2017 13:40:39 GMT
I'm sorry, and I don't have answers but beating yourself up isn't going to help. It is what it is. Take stock, we are nothing if not resilient.
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Post by jj11 on Jun 9, 2017 13:35:21 GMT
I applied last September. I also have physical health issues. Awarded no points. Am going to tribunal. Awaiting date. Get everything you can in writing,to back you're claim from health professionals. Hope it goes well.
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Post by jj11 on Jun 9, 2017 13:33:21 GMT
Hi there I'm new at this so I will be very brief. I have suffered depression ptsd anxiety and the rest still suffering from birth till date. I've recently been diagnosed with with Adult ADHD. Never claimed benefits but got to a stage in life I need help. So my psychiatrist told me to apply for pip. Just wanted to know is there any hope as I have my home assessment on weds. Thanks
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Post by jj11 on Jun 9, 2017 13:25:32 GMT
Oh, the irony. Apparently there is a new policy at theMaudsley adhd clinic with med phone calls. It seems if you fail to make this, you will be discharged from the service. I pretty upset at this one. Surely if anyone was going to understand this adhd thing and that we don't always remember, get there, wrong day/time etc it would be them? Can we as a group put pressure to challenge this? I intend to make a formal complaint. What do others think?
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Post by jj11 on Apr 12, 2017 8:10:49 GMT
Im so sorry this has happened. Hopefully things will turn around.
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Post by jj11 on Apr 12, 2017 8:03:25 GMT
Thanks for your post it was helpful. I dont know how to try and explain the adhd and the impact it has, its really hard but I am trying. Still cant quite beleive rhat with adhd and an auto-immune disease I had NO points!
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Post by jj11 on Apr 5, 2017 22:50:32 GMT
Im just going to appeal now. Clearly ADHD is not sufficiently understood.
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Post by jj11 on Jan 17, 2017 17:54:41 GMT
I'm just putting in for mandatory consideration. I will fight this. I too got no points. The report was appalling. Talk about money for old rope!
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Post by jj11 on Jan 16, 2017 14:29:17 GMT
Would your M.P support you?
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Post by jj11 on Jan 16, 2017 14:28:10 GMT
I know I'm in the right about this, I've had such support and advice in the many angry hours I've been ranting on social media. . thank whatever for the Internet . .don't know what I'd do without you all . . All I need now is a way to persuade the CCG round to the sensible decision to just pay for ADHD treatment for those who need it. . I'm going to out them . .Hull . . you *insert favourite profanity here* Bastards!
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Post by jj11 on Jan 16, 2017 14:25:09 GMT
<img src="//storage.proboards.com/forum/images/smiley/superangry.png" alt=" " class="smile" contenteditable="false" text=" " I'll tell you next week after I've had my assessment Not looking forward to it . . . How did you get on?
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Post by jj11 on Jan 2, 2017 12:30:26 GMT
Thanks. Let me know how you get on
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Post by jj11 on Dec 29, 2016 18:56:13 GMT
Assessed by a paramedic who even referred to me as 'he' at one point. Clearly no understanding of adhd and to add Insult to injury, declared that mental health probably ok as not with the local mh team. Clearly missed, or has never heard of the Maudsley. To say I'm mad is an understatement. Anyone had experience with atos appeals.
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Post by jj11 on Dec 18, 2016 12:22:56 GMT
I just wondered if you have had any psychological therapy? My understanding is that medication alone does not provide all the answers. Can you not get further help at uni as technically, add is a disability.
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Post by jj11 on Nov 23, 2016 13:45:53 GMT
I hate phones. I was born with a phobia of phones. I can remember as a child running behind a curtain whenever the phone rang, while other kids would run towards it, begging to be allowed to pick it up. I overcame the phobia after 7 intensive years of manning the phones of a breakdown business but still struggle with the mechanics of it. If someone in the room talks while I am listening on the phone then the voice on the other end completely disappears and I have to ask them to repeat. I cannot hear properly if there is room noise like a kettle or TV on. I don't hear well what people are saying especially if there are important details to remember. My speaking voice gets tongue tied. I generally have to plan my calls and have a list of key words in front of me.
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Post by jj11 on Nov 23, 2016 13:45:32 GMT
I hate phones. I was born with a phobia of phones. I can remember as a child running behind a curtain whenever the phone rang, while other kids would run towards it, begging to be allowed to pick it up. I overcame the phobia after 7 intensive years of manning the phones of a breakdown business but still struggle with the mechanics of it. If someone in the room talks while I am listening on the phone then the voice on the other end completely disappears and I have to ask them to repeat. I cannot hear properly if there is room noise like a kettle or TV on. I don't hear well what people are saying especially if there are important details to remember. My speaking voice gets tongue tied. I generally have to plan my calls and have a list of key words in front of me.
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Post by jj11 on Oct 23, 2016 13:40:31 GMT
Got it now, thanks
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Post by jj11 on Oct 21, 2016 20:33:01 GMT
I can't access this, it says servers are down
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Post by jj11 on Oct 21, 2016 20:32:27 GMT
gc7 . .of course I agree. . more so since I increased my dose of Elvanse. . after 30 - odd years of depression and so many other dx, drugs and therapies and my denial that I suffer from excessive anxiety. . .what I notice is a 'lack' . . of anxiety. .which must have been pretty much constant, just the way I am . . if it has no other effect than this, it's the best antidepressant I've tried! I experienced a kind of faux-anxiety on mph . .the physical symptoms without the mental prompt, but I know that marionk finds that mph helps with her anxiety. . like everything, everyone reacts differently. . .and often Drs are reluctant to prescribe stims to people with ADHD and anxiety because they think it might make it worse. . It's all about treating the cause and not just the symptoms. . Busy weekend. . . I must update my diary with all this soon
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Post by jj11 on Oct 18, 2016 17:41:08 GMT
I'm in East kent, can you message me too please?
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