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Post by beetlegoose on Feb 6, 2017 17:08:44 GMT
I feel it's time to do another post on this diary that isn't just a reply to someone else's comment, cause I'm trying to use this thing to keep track of my life, but I'm not feeling very inspired...last week was a bit of a write off and I wasn't really trying anything that might help so I can't chart how successful it's been, but this week I'm hoping to be a bit more organised and maybe do better...why do all the things that are supposed to help with ADHD like eating healthily/exercising regularly/sleeping well seem to require non-ADHD levels of organisation and self-control to pull off? Maybe I'm trying too many things at once, and need to wait until one of these things has become a habit before adding in the others, but I can never decide what one thing to focus on first! Then again, one of the main reasons I want to do all this stuff is to help with my 'emotional lability' (which is a big problem for me!), and I realised the other day that my emotions have actually been unusually steady recently, and it's probably been about a month since I had a proper meltdown, which is great, and maybe means that I don't need to be trying so hard to be healthy and have a more stable lifestyle because I haven't been doing that lately...but I can't think what I have been doing differently...perhaps it's just luck of the draw and I can't really do much to influence it, but I don't want to believe or accept that it's out of my control, because that would mean that there's nothing I can do about it when it is bad! And that's what I really really want, so I don't feel so out of control most of the time...agh, who knows?
On in a different note, I'm also going to use this diary to keep track of my 'to-dos' so they are all in one place, so here goes...
-Contact HMRC about tax rebate -Phone ASD/ADHD service to let them know I want counselling and not assessment -Tidy whole flat for this weekend -Phone water company to find out when bill needs to be paid by and if it can be paid in instalments -Book hotel for trip to Scarborough(must be done before 14th Feb!)
There's more but I can't think of them right now...
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Post by beetlegoose on Feb 6, 2017 16:17:48 GMT
Hi amelia! Nice to meet you Yeah that's the one I'm talking about, I didn't realise they offered diagnosis for ADHD, it's not very clear on their website is it? Almost all the information seems to be about ASD...Thanks for all the information about how it works, as I wasn't able to work out much from the website so I just thought I'd have to wait and see. And yeah it would be really useful if you can keep us updated about how you get on! So do you have to get funding for medication on an individual basis? Also, I might just be misunderstanding your post, but after your assessment, did you have to go back on another waiting list for the sessions to sort out your medication? That seems crazy! Or is it just because you're still waiting for funding to be agreed? All this information is really helpful but it's not giving me much hope that I'll get anywhere...guess I need to keep looking into/trying alternatives! It's so hard though cause I can't seem to stick to anything for more than a couple of days so it's not really possible to tell if it helps or not
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Post by beetlegoose on Feb 2, 2017 17:37:10 GMT
Hi vagueandrandom, I remember you too! Yes that's right I am in Sheffield and thanks for the info about the potential situation regarding services/medication because I wasn't sure what I could expect...the service I have been referred to is for both ASD and ADHD, but it's obvious from their website that ADHD is less of a priority for them...they don't seem to offer assessment for ADHD for example...and they don't really say what they can offer, but I was hoping that medication might be something they could help with...though technically I have been referred for counselling (actually, I haven't...you have just reminded me that I received my letter from them yesterday and they seem to think I've been referred for an assessment, so I will have to contact them to sort that out as there are separate waiting lists for counselling and assessment and I need to be on the right one...sigh). So if the situation hasn't changed does that mean I won't be able to get medication?! I really shouldn't be surprised I guess having read about your ordeal and others on here, but it just seems so unfair and ridiculous! I wonder what they do offer for ADHD then? I'd understand if I lived in the middle of nowhere (not that you live in the middle of nowhere) but Sheffield is a big city! There's got to be loads of people here who need it...ugh! I guess I'll just have to wait and see what happens Do you feel you're getting any further with your complaint? Thanks for the information about the support group too, I should probably give that a go in the meantime
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Post by beetlegoose on Feb 1, 2017 12:01:25 GMT
Feeling really anxious and nauseous today, but also very 'blah.' I met up with a friend last night, which was really nice, we hadn't seen each other for a while and had lots of interesting conversations, but I think I may have overstimulated myself a bit...I stayed up for hours when I got home and went to bed much later than I usually do, but still woke up at the usual time, feeling fuzzy-headed and already anxious straight away...I had no vague plan in mind for what to do today when I woke up, and I can't think properly right now to decide, so I'm feeling very aimless (which doesn't help the anxiety) and can already tell this is going to be an unproductive day (I've been up for a few hours already). Hopefully I can at least manage to decide what to make for dinner later...that's my one task for today! Plus making it of course, but deciding what to make is the really hard part...thinking about it makes my brain hurt...I really feel like I need to establish more of a routine in life so that these things are easier, but I can't seem to manage it. I read something earlier on a blog I follow about being autistic and having ADHD which kind of hinted at my issue...talking about that feeling when you need a routine so you don't forget to do things, but routines are so boring, but for me it's more like 'when you need a routine so you know what to do with yourself and don't get paralysed by every minor decision (and also so you don't forget to do things), but routines are f***ing impossible.' I reckon I could handle the boring, if I could just get into a routine in the first place! I mean, don't get me wrong, some days I am full of energy and do 'all the things,' (well, my version of 'all the things') but I have so many days like this and I wish I could get things on more of an even keel. I guess maybe medication will help with that when I can eventually get it...
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Post by beetlegoose on Jan 31, 2017 17:01:29 GMT
Hello everyone! I'm not exactly new here but I'm sure nobody will know who I am, as I joined right before a very chaotic period in my life (moving to a new city), made a couple of posts and then disappeared completely. . .Anyway, since then I have received my official diagnosis, but I'm not receiving any treatment because I had my assessment in London just before I moved and couldn't even stick around for the one follow-up appointment that was offered, and I'm feeling very stuck. For some reason I thought that upon receiving my diagnosis everything would become clear to me and I'd somehow magically know what to do to make my life better and be happier etc, but of course that hasn't happened. I can't try medication because my GP says she can't prescribe it without an 'expert' opinion or something. So I'm pretty much in the same position as I was before the diagnosis...I know there are lots of recommendations online etc for what you can do to help yourself, but I don't seem to be very good at implementing them or sticking to them...I feel like I need someone to help guide me...I've been referred to the adult ASD/ADHD services in my area (I also have ASD) but it's going to be months and months before I can see anyone, so I thought I'd start one of these diaries to see if it will help me get my thoughts and feelings in order a bit, and get a bit of a sense of continuity in life if that makes any sense...so anyway, here I am! Not sure what else to say so that's it for now, bit of a negative first entry, but I'm proud of myself for starting (Been meaning to for ages...) and for keeping it pretty short and sweet!
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Hello!
Aug 12, 2016 9:47:37 GMT
via mobile
Post by beetlegoose on Aug 12, 2016 9:47:37 GMT
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Post by beetlegoose on Aug 9, 2016 13:46:28 GMT
Hello and welcome ag90! I'm new here too and haven't really posted much yet. It's a bit difficult to know how to get involved here once you've got your introduction over with, so I've decided to start by welcoming other new people! I myself have recently been diagnosed with aspergers and possibly adhd, though I have not had my adhd diagnosis confirmed yet, only the aspergers one. From what you have described it seems possible you could have adhd also, but I don't know enough about adhd or you to really be able to comment. It's good that you are going to see someone who may be able to help you work it out. Do you know if the person you're seeing knows anything about adhd? The doctor I saw for my asd assessment had quite a lot of knowledge of adhd and was able to spot the signs that I might have that too. It is apparently quite common to have both. Having only just found out myself that I have asd and maybe adhd, I can't offer you much advice, I'm still trying to work everything out myself, but I just thought I'd say hi! Also just to let you know this post is not showing on the website for some reason but is showing on the mobile site, so that may be why you haven't had any replies so far!
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Hello!
Aug 9, 2016 10:14:18 GMT
Post by beetlegoose on Aug 9, 2016 10:14:18 GMT
Hi! Thanks for the advice vagueandrandom, I have seen that yes, and I think I could definitely use some counselling at the moment, so I guess once I'm all signed up with a doctor in Sheffield I'll see about getting referred there No worries about not replying the other day, I've been trying to stay off the internet for the past couple of days anyway to avoid falling down the rabbit hole! Glad you had fun volunteering at the music festival I know what you mean about enjoying feeling useful, I'm feeling pretty useless at the moment and it's no fun...but I'm going on holiday for a couple of days today and then its only about a week until I move to Sheffield so I'm hopeful that will change soon! And thanks for the info about the support group too, Wakefield is not so far to travel so perhaps I'll give it a try. . .Scary!
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Hello!
Aug 6, 2016 12:09:28 GMT
gc7 likes this
Post by beetlegoose on Aug 6, 2016 12:09:28 GMT
Hi vagueandrandom, Thanks for replying! Yeah, I can read like a champion...I suppose its the ASD. Also I'm unemployed and have no money and am just waiting to move house, so I'm really struggling to do anything productive and seem to be wasting a lot of time reading on the internet (as you can see, I'm still here...), so although your thread is indeed long, reading it didn't feel like too much of a chore. Especially because I was having a lot of moments of recognition! Yeah, I'm like that too, my boyfriend says I'm the least reflective person he's ever met (though I've been getting better at that recently), and I feel like starting a diary might help me, so I could sort of compare my thoughts and feelings from day to day to try and get a clear idea of whats even going on in my head, but I can never seem to gather my thoughts together properly anyway and I have never been able to motivate myself to do it for more than one day. But perhaps a diary thread I could do...Yeah, I have had a look into what services there are for ASD/ADHD where I'll be living (Sheffield), there seems to be quite a bit for both, but not many where they have knowledge of both at once, so I don't know if they'll know what to make of me, although as you've said it's a common co-morbidity...from what I've read on this forum so far it seems like a lot of people (including you) have enough trouble getting the appropriate treatment/support or to see someone who understands ADHD in itself, so I'm not feeling that optimistic about what I'll be able to get. I suppose I'll have to wait and see if I even get diagnosed with ADHD and what treatment is recommended if so. I do hope I do though because now I am absolutely certain I have it! Though I think I will because the doctor was sort of acting as if she had already diagnosed me by the end of the assessment. She told me she thought I had ADHD but I didn't think it would amount to a diagnosis because I assumed she was only qualified to diagnose me with ASD, but when my mum was asking about treatment she said 'but there isn't really any 'treatment' for ASD is there?' and then the doctor said 'no, but you can get medication for the ADHD,' and I said 'but surely I would have to be seperately assessed and diagnosed for ADHD to get medication?' and she told me that she was qualified to diagnose that as well and should be able to put it into my report in such a way that I would not need a seperate assessment. But she hasn't actually confirmed the diagnosis yet. So I'm a bit in limbo at the moment. I feel a bit conflicted about the idea of groups too, I dunno how I would fare amongst people who are dominant! I think I would just clam up. I have a feeling I'd maybe be a bit crazy for the ASD people but a bit shy and spooky for the ADHD people. I should definitely at least force myself to give them a try though...Anyway sorry I'll shut up now! Sorry for my long reply which was far more of a ramble than yours...your post just made me think of loads of stuff to say! And I'm bored at the moment. Feel free not to reply though Maybe I should get started with that diary.
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Hello!
Aug 6, 2016 8:42:54 GMT
Post by beetlegoose on Aug 6, 2016 8:42:54 GMT
Hi vagueandrandom, Nice to 'meet' you! I have to admit, I ended up reading your entire diary thread yesterday (amongst other threads of course!). Sorry if that's beyond creepy, but I'm in a bit of an in-between stage in my life at the moment and have a lot of time on my hands (I too will be moving up north from London soon) and I found that I could relate to you a lot! Especially with regard to the emotional stuff. I had thought that my issues with emotional regulation were more to do with ASD, being caused by not being able to understand/process my own emotions properly and by extreme reactions to sensory experiences etc, but reading your posts has made me think that it's probably more to do with ADHD. So yeah, I know the conditions can overlap quite a lot, and even if you really do have both (which I think I do), it's a bit hard to tell where one ends and the other begins and which issues are caused by what! But that's one of the reasons that it's interesting reading about other people's experiences on this forum, I'm quite enjoying figuring it all out really. I'm sure I have loads of questions to ask people but I can't think of anything right now, but no doubt I'll be on here a lot in the lead up to my move and will soon have tons of questions inspired by my reading Anyway, sorry to jump on your post like this vagueandrandom, I'm sure you were just being friendly and casually introducing yourself, but I felt the need to say more as I did just so happen to get very absorbed in your diary yesterday. Come to think of it, that's probably what I was reading when I burnt the toast!
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Hello!
Aug 5, 2016 14:26:20 GMT
Owl likes this
Post by beetlegoose on Aug 5, 2016 14:26:20 GMT
Hi Everyone, I was recently assessed for Asperger's Syndrome/ASD(which I have been diagnosed with) and during my assessment my doctor also said that she thinks I have ADHD as well. She hasn't actually confirmed it yet, but she said she is qualified to diagnose it and is pretty certain that she will diagnose me with this too. But I think I have to wait for my report to come back (another few weeks) to hear about that. Since my assessment I have been reading loads about ADHD and I'm pretty sure I have it too, the symptoms fit me perfectly, and I had been wondering why I am so chaotic compared to most people with Asperger's. Today I discovered this forum and have been stuck here all day reading posts and deliberating about joining up. At some point I decided to go and make myself some toast and then foolishly came back into the front room to read a few more posts while it was getting ready...anyway my flat is now full of smoke and I have got a fan going in the kitchen to try and 'encourage' the smoke out of the window so that my boyfriend doesn't think the house is on fire when he gets home...and I've taken this as a sign that I definitely should join up and introduce myself! I'm not really sure what to say about myself apart from the fact that I'm female, 25, and pretty sure I've got ADHD. Looking forward to getting to know you all and learning more about ADHD
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