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Post by Marnie on Sept 12, 2018 9:55:30 GMT
Hi everyone, I am new to this site and would just like a bit of help or feedback about elvanse. I was diagnosed a few years back but due to pregnancy and breastfeeding did not take any medication. I was started yesterday on elvanse, I initially felt quite spaced out but good, then I had about ten minutes of crying. I then spent the rest of the day feeling a bit strange. I wanted to hide from everyone when normally I'm buzzing around being very sociable. I was a bit anxious about stuff that never normally bothers me, and I just really didn't feel myself I felt vacant. I did however get loads of work done and drive without using my phone all the time or nearly crashing. I also managed to sit and spend time with my daughter so in some respects it was good. Just wondered if maybe the dose was too high? I'm on 30mg, but I have worked for a few years to be super clean I don't even have caffeine or sugar, so I knew I wouldn't need a high dose. Any feedback or others experience would be great, I'm considering just stopping it I have halved the dose today and didn't get the crying yet, but I don't feel as focused. Should I stick with it? Thanks guys
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Post by Nah on Dec 28, 2018 23:25:02 GMT
I started Elvanse about 5 weeks ago , not sure exactly how I feel about it . In all honesty sometimes it has me questioning my sanity, also be very careful when stopping it, I had to stop for 5 days to wait for another prescription, questioning further use I think its dangerous to be honest, stopping and starting is dodgy. But had to be done, apart from that I don't know wether its worth taking, it puts you in fight or flight that you can't think your way out of your trapped in fight or flight , you either fight or run, but there's nothing to fight , so it's uncomfortable then you Come down and find it difficult to form a bloody thought struggling to decide wether it's worth it, you lose a lot of fluids on it if your not careful and can end up exhausted by the time its worn off,I'm not 100% convinced there what I need .
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Post by L-ad on Dec 29, 2018 6:46:16 GMT
Hello there!
I started off on 20mg Lisdexamphetamine and at first, I was extremely underwhelmed. It seemed to only last around 7 hours or so, which was awful. I am now at 50mg and honestly? It is far better than Concerta or Methylphenidate. I also have PTSD so I am very aware of the possibility of amphetamine-induced Psychosis so I am currently trying to take it almost "as needed" for days when I will need far more executive function and impulse control. This is to avoid tolerance and risking withdrawal effects.
Conclusion after 6 weeks: I think Concerta and Lisdexamphetamine are pretty much equal for me, but others really dislike one or the other.
HOWEVER: In your case, you are displaying some warning signs that amphetamines may not be for you. Almost everyone who takes dexamphetamine becomse more sociable not less; so that is a big warning sign. I'd stop and ask to try Concerta if I were you, start around 18mg since it sounds like you are very sensitive to stimulant medication. (I only say this because some doctors like to start at 27mg/36mg which can send you into a panic attack episode)
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reg
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Post by reg on Dec 29, 2018 20:11:19 GMT
Hi everyone, I am new to this site and would just like a bit of help or feedback about elvanse. I was diagnosed a few years back but due to pregnancy and breastfeeding did not take any medication. I was started yesterday on elvanse, I initially felt quite spaced out but good, then I had about ten minutes of crying. I then spent the rest of the day feeling a bit strange. I wanted to hide from everyone when normally I'm buzzing around being very sociable. I was a bit anxious about stuff that never normally bothers me, and I just really didn't feel myself I felt vacant. I did however get loads of work done and drive without using my phone all the time or nearly crashing. I also managed to sit and spend time with my daughter so in some respects it was good. Just wondered if maybe the dose was too high? I'm on 30mg, but I have worked for a few years to be super clean I don't even have caffeine or sugar, so I knew I wouldn't need a high dose. Any feedback or others experience would be great, I'm considering just stopping it I have halved the dose today and didn't get the crying yet, but I don't feel as focused. Should I stick with it? Thanks guys Within a few hours of taking Elvanse 30mg on the first day, i felt fantastic. Similarly, 50 and 70mg have helped me improve further. Concentration, working memory and emotions have all improved. Anxiety that i experienced everyday has disappeared and my BP is lower than it was prior to starting medication. I no longer snack and impulsive behaviour has disappeared. In the weeks since the titration period ended, the benefits have continued to build. If i was in your position, i would try taking the 30mg dose for a few days and see if the crying continues. If you get any other side effects, i would either stop and/or speak to your consultant for advice.
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dobo81
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Post by dobo81 on Feb 12, 2019 21:18:37 GMT
GOD BLESS THIS MEDICATION, its like me... but on a good day. I have been on it for about a week, was getting some 7 to 8 hour crashes but taking a second pill leveled that out at about 12...
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dobo81
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Post by dobo81 on Feb 14, 2019 18:12:34 GMT
GOD BLESS THIS MEDICATION, its like me... but on a good day. I have been on it for about a week, was getting some 7 to 8 hour crashes but taking a second pill leveled that out at about 12... WOW what a difference two days can make, I still take the second pill in the afternoon but it doesnt help. I crash really really hard and depression sets in, I have an appointment with my doctor tomorrow at 8:30 I will keep you updated but my conclusion is this: Day 1, EUPHORIA you but on a good day, you get stuff done and feel like you can build a rival company to apple and call it banana and you will crush them Day 2, Kind of... sort of day one Day 3, takes longer to kick in, kicks in you feel great but in the afternoon you crash Day 4. Afternoon crash becomes a bitch, anxiety, shaking, bad mood depressed Day 5, morning great, afternoon take second pill feel like you are tripping your balls of for about 4 hours then BANG CRASH WHALLOP Day 6, Morning great, afternoon pill, no effect feel like crap for about 4 hours then you feel better in the evening Day 7 and 8, horrific depression in the afternoon that makes you feel like its not even worth living let alone taking this pill, so... in conclusion I am looking forward to my doctors visit tomorrow for those of you who are still reading and not on instagram or facebook or making tea etc... all people react differently I wake up very early I walk for up to 3 to 4 hours a day I am 37 and male and I dont sleep much or eat much now (1 shake in the morning, salad for lunch and 1 shake in the evening) so these all may not help but... my story is repeated over and over on youtube.
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Post by marvelousmatt on Feb 15, 2019 16:21:55 GMT
Hi Dobo,
How did your doctor's appointment go?
I've not tried Elvanse, I've got a few bottles of Concerta and a few packs of Ritalin on the go at the moment, and i choose what to take on any given day by what i think i need to get done.
So on a normal workday, i'll have a 36mg of Concerta in the morning.
But if it's a Friday and i know i'm meeting someone for a beer that night, i'll take the Ritalin, which will wear off in the afternoon, then a few coffees to see me through 'till pub-time and i'm good to go.
I agree with what you said about building a rival to Apple, if i've had a couple of days off the pills then go back on them, it has a very positive effect on my mood!
which i actually enjoy, but it worries me slightly too.
When I first started taking pills the crashes were definitely more noticeable, but they've got a lot better over time. Also much less of a crash on the long acting pills, in my experience.
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dobo81
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Posts: 12
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Post by dobo81 on Feb 26, 2019 9:34:18 GMT
Hi Dobo, How did your doctor's appointment go? I've not tried Elvanse, I've got a few bottles of Concerta and a few packs of Ritalin on the go at the moment, and i choose what to take on any given day by what i think i need to get done. So on a normal workday, i'll have a 36mg of Concerta in the morning. But if it's a Friday and i know i'm meeting someone for a beer that night, i'll take the Ritalin, which will wear off in the afternoon, then a few coffees to see me through 'till pub-time and i'm good to go. I agree with what you said about building a rival to Apple, if i've had a couple of days off the pills then go back on them, it has a very positive effect on my mood! which i actually enjoy, but it worries me slightly too. When I first started taking pills the crashes were definitely more noticeable, but they've got a lot better over time. Also much less of a crash on the long acting pills, in my experience.
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dobo81
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Post by dobo81 on Feb 26, 2019 9:38:17 GMT
Thanks marvelousmatt
It seems all is well for the moment, as I said I am a morning person so pills are not needed, so I take them at 12:00 and they see me through to the evening just fine and no crashes. On the weekends I do not take any to give my body a chance to recover but my only gripe is that i do need to take sleeping pills (half a tab) I have never been the best sleeper and prior to meds I used to use melatonin and it did the trick but only for a superficial sleep a deep sleep for me requires pills. One thing on the pills, if you nap during the day and go to bed early you wake up feeling like sh1t, if you go to bed at the right time and get the reccomended 7 to 8 hours you wake perfectly normal. I dont want to be on either sleeping pills or Evanse for a long time but, for now in order to get a routine I will continue and slowly address the biggest issue, the sleeping pills.
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amybcw
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Hi! I'm newly dianosed ADHD: inattentive subtype. Looking forward to meeting others at support group
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Post by amybcw on Feb 27, 2019 14:34:25 GMT
Elvanse has changed my life- I was an adult diagnosis and now take 50mg a day. The first day I did feel strange but after that and ever since I have felt calm, mildy euphoric, focused and have been able to concentrate for hours. Elvanse is just a brand name, it's very recently been released on the market in the UK. But if it doesn't suit you, perhaps consult your physician about changing- I am inattentive subtype and have a very high ADHD score as well as IQ (I have 2 Msc and am now doing a degree in photography). Everyone is different. If you are more hyperactive subtype which it sounds like, as you mentioned being very chatty etc, perhaps Ritalin would be better? I have no medical training but I would recommend consulting your prescriber about trying a different medication.
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Post by Marnie on Mar 4, 2019 22:12:37 GMT
Hi all thanks for your replies, really interesting to hear about others experiences. So i stopped the elvanse, and tried concerta, im up to 27mg and find this much better, focus is better, less impulsive, i have even read half a book and had several baths which is so nice, i dont feel uncomfortable relaxing now. I have one day off a week so that i can sleep well. The only thing i have found is that i am questioning my whole life now, even down to my choice in husband, its like the concerta has made me change my perspective on things and i cant shake it. Anyone else have this when they started meds?
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Post by Marnie on Mar 4, 2019 22:15:29 GMT
Elvanse has changed my life- I was an adult diagnosis and now take 50mg a day. The first day I did feel strange but after that and ever since I have felt calm, mildy euphoric, focused and have been able to concentrate for hours. Elvanse is just a brand name, it's very recently been released on the market in the UK. But if it doesn't suit you, perhaps consult your physician about changing- I am inattentive subtype and have a very high ADHD score as well as IQ (I have 2 Msc and am now doing a degree in photography). Everyone is different. If you are more hyperactive subtype which it sounds like, as you mentioned being very chatty etc, perhaps Ritalin would be better? I have no medical training but I would recommend consulting your prescriber about trying a different medication. Interesting you say about types, my letter says the type on it ill dig it out it was definately a hyperactive type though i remember that, and that was my main issue id say. i didnt realise some types suit different meds?
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bruh23
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Post by bruh23 on Mar 27, 2019 18:32:14 GMT
Thanks marvelousmatt It seems all is well for the moment, as I said I am a morning person so pills are not needed, so I take them at 12:00 and they see me through to the evening just fine and no crashes. On the weekends I do not take any to give my body a chance to recover but my only gripe is that i do need to take sleeping pills (half a tab) I have never been the best sleeper and prior to meds I used to use melatonin and it did the trick but only for a superficial sleep a deep sleep for me requires pills. One thing on the pills, if you nap during the day and go to bed early you wake up feeling like sh1t, if you go to bed at the right time and get the reccomended 7 to 8 hours you wake perfectly normal. I dont want to be on either sleeping pills or Evanse for a long time but, for now in order to get a routine I will continue and slowly address the biggest issue, the sleeping pills.
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bruh23
Member's not posted much yet
Posts: 5
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Post by bruh23 on Mar 27, 2019 18:41:17 GMT
Thanks marvelousmatt It seems all is well for the moment, as I said I am a morning person so pills are not needed, so I take them at 12:00 and they see me through to the evening just fine and no crashes. On the weekends I do not take any to give my body a chance to recover but my only gripe is that i do need to take sleeping pills (half a tab) I have never been the best sleeper and prior to meds I used to use melatonin and it did the trick but only for a superficial sleep a deep sleep for me requires pills. One thing on the pills, if you nap during the day and go to bed early you wake up feeling like sh1t, if you go to bed at the right time and get the reccomended 7 to 8 hours you wake perfectly normal. I dont want to be on either sleeping pills or Evanse for a long time but, for now in order to get a routine I will continue and slowly address the biggest issue, the sleeping pills. What sleeping medication do you use? I, like you, can function in the morning without medication however take elvanse at lunch to ensure I’m productive for the rest of the day. In regards to sleeping meds I’ve tried diphenhydramine and melatonin. Diphenhydramine aids my sleep but makes my following day dose of elvanse ineffective (don’t know why), whilst melatonin doesn’t give me a proper deep sleep. Any help would be greatly appreciated. find that elvanse works better in the afternoon
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tristana
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Post by tristana on Feb 5, 2020 23:41:17 GMT
bruh23 Isn't Elvanse an extended-release drug which can therefore only be taken once a day, in the morning? I have been diagnosed only a few months ago and was started on Medikinet XR -20, 30 and then 40 mg which made me feel unsettled. Now I am on 20mg Elvanse, about to switch to 40 mg tomorrow. So far, I am very underwhelmed - I feel even more disorganised than before. I actually preferred lower doses of Medikinet XR. Anyway, I am hopeful that 40 mg of Elvanse will do the job.
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blobby
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diagnosed in early 2014 (in late 40's!).
Posts: 7
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Post by blobby on Mar 10, 2020 15:59:32 GMT
Hi everyone, I am new to this site and would just like a bit of help or feedback about elvanse. I was diagnosed a few years back but due to pregnancy and breastfeeding did not take any medication. I was started yesterday on elvanse, I initially felt quite spaced out but good, then I had about ten minutes of crying. I then spent the rest of the day feeling a bit strange. I wanted to hide from everyone when normally I'm buzzing around being very sociable. I was a bit anxious about stuff that never normally bothers me, and I just really didn't feel myself I felt vacant. I did however get loads of work done and drive without using my phone all the time or nearly crashing. I also managed to sit and spend time with my daughter so in some respects it was good. Just wondered if maybe the dose was too high? I'm on 30mg, but I have worked for a few years to be super clean I don't even have caffeine or sugar, so I knew I wouldn't need a high dose. Any feedback or others experience would be great, I'm considering just stopping it I have halved the dose today and didn't get the crying yet, but I don't feel as focused. Should I stick with it? Thanks guys Started Elvanse in November 2018 - now on 50mg/day - having previously been on Concerta Xl (on partial response). No problems at all except pushed blood pressure from high normal to having to be treated (despite healthier life changes (mostly pots of exercise and less fags!). I doesn't help that the BP tablets Ramapril (capsules actually) are almost identical as the Elvanse (both white and blue). Note to self - do not take in poor light (dusk). No crashes or anything else that some of you have experienced. Sorry to hear those who have problems. I suppose I am very lucky that I can carry on drinking caffeine and stuff. Sleeping has been a problem all my life (only diagnosed with nearly severe ADD (less hyperactivity) when 47). Indirectly sleep has improved though with time and more exercise activity and a quieter less 'overtired' whizzing mind especially now treated. I think over time the 'behavioural changes' that accompanies the tablets effects (that obviously wear off towards the end of the day) - as well as improved self-confidence that I am not JUST a clumsy odd oaf (I have an explanation of my oddness ) - may be working. I am still a whizzy person though, which I quite like. Some non- ADD people are just so boring and dull.
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Post by clairemariehoppo on Oct 1, 2020 21:29:15 GMT
Hey, I'm new here. Diagnosed as an adult 44 with adhd after being treated for depression and anxiety all my adult life. I started on Elvanse 20mg, I felt totally overwhelmed, started crying and felt horrendous for a few day's on and off but soon started getting used to it. My psychiatrist titrated it to 70mg and 5mg dexamfetamine as a top up in the afternoon. I felt it worked for 3 or 4 month's but then I became agitated and more impulsive again, spending sprees and obsessions with collection's. My psychiatrist has changed me to Elvanse Adult 70mg ( although) no difference between them he just said some people suit adult better. To be honest I'm really not sure i feel any benefit off it at all now. Iam on alot of meds, i take citalopram 30mg for depression and anxiety, lamotrigine 50mg for mood swings, quetiapine 75mg for sleep amitriptyline 10mg for pain relief. I genuinely don't know whats working and what's not. I'm quite a complex character. I feel the side effects are outweighing the benefits. I'm constantly shaking, jittery,ringing in my ears, crying, agitated, guilt, headaches, spots on my head, risky behaviour, impulsive, massively insecure and paranoid, trust issue's, lacking motivation at times then other time's I don't stop (all or nothing) distracted, can't stay on task. My psychiatrist told me he is surprised Elvanse doesn't seem to be working now, he said he could change me onto methylphenidate but it isn't as strong as Elvanse and it is more suitable for hyperactivity. So I have no idea. I want to come off all my meds now as I don't know if there is any point if I'm feeling equally rubbish taking them. I've ask my care coordinator if I can do therapy but geared towards adhd but that isn't something they provide. So I'm now left trying to find online therapy and support.
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lupin
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Posts: 8
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Post by lupin on Oct 6, 2020 8:41:57 GMT
Hey, I'm new here. Diagnosed as an adult 44 with adhd after being treated for depression and anxiety all my adult life. I started on Elvanse 20mg, I felt totally overwhelmed, started crying and felt horrendous for a few day's on and off but soon started getting used to it. My psychiatrist titrated it to 70mg and 5mg dexamfetamine as a top up in the afternoon. I felt it worked for 3 or 4 month's but then I became agitated and more impulsive again, spending sprees and obsessions with collection's. My psychiatrist has changed me to Elvanse Adult 70mg ( although) no difference between them he just said some people suit adult better. To be honest I'm really not sure i feel any benefit off it at all now. Iam on alot of meds, i take citalopram 30mg for depression and anxiety, lamotrigine 50mg for mood swings, quetiapine 75mg for sleep amitriptyline 10mg for pain relief. I genuinely don't know whats working and what's not. I'm quite a complex character. I feel the side effects are outweighing the benefits. I'm constantly shaking, jittery,ringing in my ears, crying, agitated, guilt, headaches, spots on my head, risky behaviour, impulsive, massively insecure and paranoid, trust issue's, lacking motivation at times then other time's I don't stop (all or nothing) distracted, can't stay on task. My psychiatrist told me he is surprised Elvanse doesn't seem to be working now, he said he could change me onto methylphenidate but it isn't as strong as Elvanse and it is more suitable for hyperactivity. So I have no idea. I want to come off all my meds now as I don't know if there is any point if I'm feeling equally rubbish taking them. I've ask my care coordinator if I can do therapy but geared towards adhd but that isn't something they provide. So I'm now left trying to find online therapy and support. Hi Claire! How are you today? Just seen your post. I stopped taking elvanse after taking 50mg for 2 months. At first it was quite good and I could focus on tasks and could complete projects before starting new ones. Then that started fading off after a few weeks. I used t take it in the morning and by the afternoon I would start feeling anxious and paranoid. I also take 40mg of citalopram and it was almost like the elvanse was counteracting the benefits of these. For me the minimal benefit of taking elvanse was outweighed by the side affects.’I am now trying to self manage which is not really working well but I just don’t want to go through the paranoia and anxiety again and this is putting me off trying anything else. Like you I texted to find out if there was any therapy available for adult ADHD within the health system and was told there is nothing for adults. It is very frustrating. The psychiatrist who diagnosed me suggested a book for me to read but I find it difficult to read non fiction books and actually retain anything that I have read. It is good that we can talk to people on here who understand x
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Post by Adhd/add on Jul 19, 2021 9:23:01 GMT
With or without prescription contact : adhdmedicines.org
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Post by londonwillow on Jul 21, 2021 8:51:22 GMT
Personally, I found my anxiety went through the roof. Now on delmosart (methylphenidate) and it’s subtle but better. I would give it a go and if you don’t hey on with it, then take a break. I have myself three days off meds before starting new ones to avoid any confusion over the crossover period
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Post by Lukes Combined on Sept 26, 2021 10:19:02 GMT
Thought I'd jump on here because I'm feeling that good to randomly create this thread for you.
I started taking ELVANSE 20MG for my Combined type ADHD - I've been on it for one week and all I can say is, my world and entire life has changed - for the better.
I've always struggled with depression, anxiety, focus, concentration, execution, making friends, attention, insomnia, everything.
Now taking Elvanse, I'm already fully focussed, I concentrate for hours, I can read a book for once. I get up and do things, I'M SO MOTIVATED MENTALLY! I'm a lot more calm, My brain isn't like a pinball machine. My sleep is unbelievably rewarding, and this is just the beginning. my only regret Is I'm now 29 - and only just been diagnosed. I do wonder how my life may have turned out if I was to start this medication for my ADHD when I was a child.
Don't think it... DO IT.. Please.
Luke
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Post by Mike W on Sept 1, 2022 18:47:32 GMT
Hi all, I am 62 and have been on citalopram for years. I was diagnosed 7 months ago with AD and am on elvanse 70mg which i split into 2/3 in the morning and 1/3 in the later afternoon.
I hear a lot of people just starting out on elvanse who say it is wonderful,, at first. Like many I had great results initially but have over the months had to wonder if any of the benefits i now get are worth the bad heads, depression, dizzyness and other side effects. Sadly it just doesn't seem to last. Today I have had bad headaches and brain fog since lunchtime, along with the bad head often is a feeling of being uncomfortable mentally which i cannot really describe. I often feel I have no physical energy to go to work. I feel lost and have no confidence in the medication but if I stop taking it then after a few weeks I cannot function, my ability to think is severely impaired. Actually despite this message's tone I do try to be happy person.
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Post by cassandro on Oct 4, 2022 7:07:15 GMT
That's useful notes, Mike. I'm just starting on 30 mg a few days ago, and it seems to have fewer side effects than methylphenidate and even the insomnia is manageable - what I found with methylphenidate was feeling ill and tired a few hours after taking it, rather than just as a rebound coming down. But people report lisdexamphetamine declines in effectiveness quite quickly. So I'm expecting to have at least two days off it every week to rest, reduce any desensitisation and see how much the momentum it has given me can be used to do stuff without it.
Are you getting any psychosocial support? The leaflet with the amphetamine as well says it will be given as part of a treatment programme usually including psychological, behavioural, occupation and social therapy - the NICE guideline also recommends a range of support, but you probably know how the NHS and social care is at the moment. I'm wondering if 'being uncomfortable mentally which i cannot really describe' is the 'inner restlessness' that they call 'akathisia'.
Hope you find a way to feel better soon.
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Post by James s on Oct 29, 2022 20:30:02 GMT
Hi everyone, I am new to this site and would just like a bit of help or feedback about elvanse. I was diagnosed a few years back but due to pregnancy and breastfeeding did not take any medication. I was started yesterday on elvanse, I initially felt quite spaced out but good, then I had about ten minutes of crying. I then spent the rest of the day feeling a bit strange. I wanted to hide from everyone when normally I'm buzzing around being very sociable. I was a bit anxious about stuff that never normally bothers me, and I just really didn't feel myself I felt vacant. I did however get loads of work done and drive without using my phone all the time or nearly crashing. I also managed to sit and spend time with my daughter so in some respects it was good. Just wondered if maybe the dose was too high? I'm on 30mg, but I have worked for a few years to be super clean I don't even have caffeine or sugar, so I knew I wouldn't need a high dose. Any feedback or others experience would be great, I'm considering just stopping it I have halved the dose today and didn't get the crying yet, but I don't feel as focused. Should I stick with it? Thanks guys
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Post by cassandro on Nov 24, 2022 15:20:32 GMT
It hasn't gone well with the lisdexamphetamine for me. It's a bit like dobo82 wrote above for me: the first day at least I have some energy, even if I'm still frustrated at my inability to stick to my plan, then the second day I'm already accustomed to it and by the third it's little effect, then the first day I'm off it the momentum is carrying on, then the next day the fatigue is worse than normal and mood can suffer too (not that mood is ever good for me). Someone wrote about their experience in the Guardian a couple of months ago: www.theguardian.com/lifeandstyle/2022/aug/20/adhd-drugs-side-effects-prescription-stimulantsGiven everything I've tried and everything that's failed, I do often come to the conclusion that I'm completely screwed and there's really no point in trying. So I have to wait that out.
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