|
Post by Eva 123 on Jun 9, 2021 9:56:18 GMT
Hi all, So I've tried methylphenidate and elvanse now and still no calmness, no light bulb, no correct glasses focus. I just feel that I get some focus from speeding which in turn makes me feel quite ill. I'm on edge, quite angry, brain whirring and crash like you wouldn't believe. I'm scared to make plans to see anyone as I'm not sure who I'm going to be that day. It's like a roller coaster ride. I dread taking it now. I'm only on 20mg of elvanse and thought it was getting better as the palpitations and crashing had lessened but yesterday so horrible again and I felt my adhd was worse. High with no focus....able to eat, overeating about 3 hours after taking in fact. Forgot to look at lists, very unproductive at work and missed an appointment at midday. Anyway I've stopped them today until I speak to Psych but I wanted to ask what hope there is for people with adhd that can't tolerate stimulants. It's very difficult to find support groups or advice if you just can't take meds for whatever reason.If meds (apparently) don't work for 1 in 5 of us, where is that sub-tribe hiding? Too unorganised to form a support group?♡ Im really sad that I didn't get the calm brain effect as I've craved it all my life (46 now). Everyone told me it would be fantastic when I got my meds and I was really excited.... and its not. Maybe I'll need to give up my career and just stuff cushions for a living? Anybody in same position? EVA XX
|
|
Deleted
Deleted Member
Posts: 0
|
Post by Deleted on Jun 9, 2021 20:25:02 GMT
It's all about the dose, init?
It sounds like maybe you need less. A lot less.
Also, I don't know if 'calm' is the right word to describe how I feel when I take elvanse.
There's clarity, space and depth but I'm not sure if there's calm.
All this said, the overall gains are more like 10 - 20% if you find the right dose, not 1000% like some anecdotes would have you believe.
Is 10%~ even worth it, you might ask?
Absolutely fucking yes.
|
|
|
Post by Eva 123 on Jun 9, 2021 23:32:59 GMT
Cheers for reply Boost, I guess everyone's experiences are going to be different. Not sure 10% in clarity is worth it for me tbh to feel this shit. Maybe it is about dose, I don't know anymore. Some say its too low that's the problem. So who knows. Some people just feel worse on them I guess because brains are wired differently. Just the sane as some people can drink a bottle of vodka and still be standing but give them a pint of cider and they are on the floor. I'm glad you get what you need from them. I'm having a break then maybe try again. Too exhausted by it all. Take care, Eva
|
|
|
Post by londonwillow on Jun 12, 2021 11:21:55 GMT
I’m sorry that you’ve had so much trouble Eva. I’m trying to work out of the effect from drugs is worth the discomfort. I’m not sure I have an answer but it’s only been three weeks. I am also limited with how much contact I can have with psych that prescribed them and that’s creating some anxiety that I’m not sure how to deal with. I think a break may be sensible but please make sure you are supported through it as the crashes can be intense. More so than the good effects I hope you find your way soon. X
|
|
|
Post by ADHD in Denial on Jun 12, 2021 16:12:02 GMT
Hey Eva,
Sorry to here the Elvanse didn’t work out. Not sure you can take lower than 20mg dose. Drugs don’t seem to really work for me either. I was sold the line Adhd really easy to treat. 9/10 people drugs work for by my Psyche. Anyone bothered to check the statistics by gender and if the drugs were even trialed on males and females equally, seen as the symptoms often present differently and our physiology’s different, I felt really calm on 5mg on methylphenidate once and that was it, neve r happened again. I just feel normal on them now. By that I mean my old stressy, anxious, forgetful, distractible, busy head self. We should start our own support group, ADHD people who don’t do drugs 😂.
|
|
|
Post by Eva 123 on Jun 14, 2021 17:44:41 GMT
Hi,London willow and adhd in denial. Really good to hear from you. Sorry took a while to get back to you but had a break there. Felt fine tbh not on the drugs. My psych is hopeless and impossible to get in touch with. I'm astounded at how badly treated people with adhd seem to be. I feel like I've lost myself in it all, practically begging for advice. I'm a fairly successful person in my life as I've worked very hard, in my job I make sure I treat people with respect and dignity but I've got to say I'm lost for words with this ADHD circus. I also feel that the drugs are touted as a miracle cure, a night and day situation but from my reading on this forum and around its anything but for many many people. Anyway I hope we can chat a little in this thread. I have no prescription at the moment and my Dr has ventually asked me now what I'd like (prescription wise) and offered me a first appointment in July even though I've fed back about my reactions. I'm so unaure what to do. I have some methylphenidate left from first prescription and thinking of cutting them up and microdosing but as they are slow release I'm not sure if that works. I bought a pill cutter from Amazon. I can't believe I am even talking like this. How the f@!$ did this happen!! Anyway I hope you guys are getting on OK. Are you both taking Elvanse or Methylphenidate? Take care Eva xx
|
|
|
Post by londonwillow on Jun 14, 2021 19:39:02 GMT
It’s always a good idea to take a break when things get overwhelming. Happy to have a chat thread though. I guess I don’t need to tell you I talk a lot and will probably treat lots through the convos. Lol. I have been on elvanse for fifteen days and it hasn’t helped enough for my psychiatrist to feel I should stay on them. Spoke to her today and she’s told me to stop taking them and she’s going to send me a script for Methylphenidate so will see how I fare. I got dismissed from my last job almost a year ago after a MH episode the previous winter. I am attempting to address is via tribunal on disability basis but they insist I have no disability despite long term records at the time of suffering with depression and anxiety (exacerbated by relationship breakdown). I am due to start a new job now but before I was told, I had asked doc to sign me off while I adjust to meds. Im kinda glad I asked for the time off because I have no idea what is going on with me right now but at 42, there’s a real chance of hormonal changes playing a part but it’s no good surmising because without any medical analysis, my evaluation doesn’t mean anything. And it’s not the sort of thing the medical professionals care much about in the time they have. (This is not a dig at them as I do understand the pressures. I just personally believe in a more holistic form of medicine) I mainly pursued the diagnosis because I had noticed traits in my children and wanted to make sure they had a better experience than me if approaching docs for help.
|
|
slackdad
Member's not posted much yet
Posts: 9
|
Post by slackdad on Jun 16, 2021 13:42:33 GMT
Whether or not the drugs are working is an interesting concept. I think in many ways it's a case of perception, time and finding the right dose. I started off thinking it would be like a miracle pill where all would be calm and clear. In reality I thought they were making no difference but over time and with dose adjustment it became clear that the effect was small but significant, things like not losing my train of thought in mid-sentence quite as often, recognising where I would have been totally distracted previously, and many small gains like this...I am now on the max dose of methylphenidate 108mg XL (timed release) and this seems to suit me but others will get effects at different doses, etc.
But what helped me most was changing my expectations of how far the medication can help and this has worked wonders as now I can absolutely feel the difference when I have taken my meds.
Hope this helps.
|
|