Hi all, So I've tried methylphenidate and elvanse now and still no calmness, no light bulb, no correct glasses focus. I just feel that I get some focus from speeding which in turn makes me feel quite ill. I'm on edge, quite angry, brain whirring and crash like you wouldn't believe. I'm scared to make plans to see anyone as I'm not sure who I'm going to be that day. It's like a roller coaster ride. I dread taking it now. I'm only on 20mg of elvanse and thought it was getting better as the palpitations and crashing had lessened but yesterday so horrible again and I felt my adhd was worse. High with no focus....able to eat, overeating about 3 hours after taking in fact. Forgot to look at lists, very unproductive at work and missed an appointment at midday. Anyway I've stopped them today until I speak to Psych but I wanted to ask what hope there is for people with adhd that can't tolerate stimulants. It's very difficult to find support groups or advice if you just can't take meds for whatever reason.If meds (apparently) don't work for 1 in 5 of us, where is that sub-tribe hiding? Too unorganised to form a support group?♡ Im really sad that I didn't get the calm brain effect as I've craved it all my life (46 now). Everyone told me it would be fantastic when I got my meds and I was really excited.... and its not. Maybe I'll need to give up my career and just stuff cushions for a living? Anybody in same position? EVA XX
Cheers for reply Boost, I guess everyone's experiences are going to be different. Not sure 10% in clarity is worth it for me tbh to feel this shit. Maybe it is about dose, I don't know anymore. Some say its too low that's the problem. So who knows. Some people just feel worse on them I guess because brains are wired differently. Just the sane as some people can drink a bottle of vodka and still be standing but give them a pint of cider and they are on the floor. I'm glad you get what you need from them. I'm having a break then maybe try again. Too exhausted by it all. Take care, Eva
I’m sorry that you’ve had so much trouble Eva. I’m trying to work out of the effect from drugs is worth the discomfort. I’m not sure I have an answer but it’s only been three weeks. I am also limited with how much contact I can have with psych that prescribed them and that’s creating some anxiety that I’m not sure how to deal with. I think a break may be sensible but please make sure you are supported through it as the crashes can be intense. More so than the good effects I hope you find your way soon. X
Post by ADHD in Denial on Jun 12, 2021 16:12:02 GMT
Sorry to here the Elvanse didn’t work out. Not sure you can take lower than 20mg dose. Drugs don’t seem to really work for me either. I was sold the line Adhd really easy to treat. 9/10 people drugs work for by my Psyche. Anyone bothered to check the statistics by gender and if the drugs were even trialed on males and females equally, seen as the symptoms often present differently and our physiology’s different, I felt really calm on 5mg on methylphenidate once and that was it, neve r happened again. I just feel normal on them now. By that I mean my old stressy, anxious, forgetful, distractible, busy head self. We should start our own support group, ADHD people who don’t do drugs 😂.
Hi,London willow and adhd in denial. Really good to hear from you. Sorry took a while to get back to you but had a break there. Felt fine tbh not on the drugs. My psych is hopeless and impossible to get in touch with. I'm astounded at how badly treated people with adhd seem to be. I feel like I've lost myself in it all, practically begging for advice. I'm a fairly successful person in my life as I've worked very hard, in my job I make sure I treat people with respect and dignity but I've got to say I'm lost for words with this ADHD circus. I also feel that the drugs are touted as a miracle cure, a night and day situation but from my reading on this forum and around its anything but for many many people. Anyway I hope we can chat a little in this thread. I have no prescription at the moment and my Dr has ventually asked me now what I'd like (prescription wise) and offered me a first appointment in July even though I've fed back about my reactions. I'm so unaure what to do. I have some methylphenidate left from first prescription and thinking of cutting them up and microdosing but as they are slow release I'm not sure if that works. I bought a pill cutter from Amazon. I can't believe I am even talking like this. How the f@!$ did this happen!! Anyway I hope you guys are getting on OK. Are you both taking Elvanse or Methylphenidate? Take care Eva xx
It’s always a good idea to take a break when things get overwhelming. Happy to have a chat thread though. I guess I don’t need to tell you I talk a lot and will probably treat lots through the convos. Lol. I have been on elvanse for fifteen days and it hasn’t helped enough for my psychiatrist to feel I should stay on them. Spoke to her today and she’s told me to stop taking them and she’s going to send me a script for Methylphenidate so will see how I fare. I got dismissed from my last job almost a year ago after a MH episode the previous winter. I am attempting to address is via tribunal on disability basis but they insist I have no disability despite long term records at the time of suffering with depression and anxiety (exacerbated by relationship breakdown). I am due to start a new job now but before I was told, I had asked doc to sign me off while I adjust to meds. Im kinda glad I asked for the time off because I have no idea what is going on with me right now but at 42, there’s a real chance of hormonal changes playing a part but it’s no good surmising because without any medical analysis, my evaluation doesn’t mean anything. And it’s not the sort of thing the medical professionals care much about in the time they have. (This is not a dig at them as I do understand the pressures. I just personally believe in a more holistic form of medicine) I mainly pursued the diagnosis because I had noticed traits in my children and wanted to make sure they had a better experience than me if approaching docs for help.
dariuso: Please see details in my post at Research Opportunities.
May 10, 2021 9:15:13 GMT
dariuso: Research participants wanted (Skype interview)! Wanted adults (30 and 65 years old), with English as your first language, with an official diagnosis of ADHD who tried hypnotherapy (first session within the last 24 months but more than 1 month ago)
May 10, 2021 9:10:54 GMT
sofiavyas: Hello, I am a freelance journalist and investigative journalism postgraduate student looking into ADHD for a feature article. Please take a look at my post in Research Opportunities and let me know if you might be able to help. Thanks so much!
May 6, 2021 9:45:21 GMT
humptydumpty999: I sensed my sisters death from over six hundred miles away !. And am currently suffering depression because of the passing souls during the covid crisis !
Apr 30, 2021 18:00:17 GMT
humptydumpty999: Today unbelievably I am a psychic Empath that i inherited from my Mother I can walk up to people and sense their illnesses which i feel in my body !
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humptydumpty999: Plaugue me to this day !. I cant reverse the damage that the heavy metals and possibly the traumas did to my brain. But if i hadn't done those three mircle things where would i be today ?
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humptydumpty999: I still have a serious seasonal Bipolar condition and am highly sensitive to light cold and atmospheric pressure a full moon and stormy weather causing me to feel suicidal ! I try to eat a very strict diet which helps enormously but symptoms of ADD
Apr 30, 2021 17:53:55 GMT
humptydumpty999: I have taken SAM-e again since and never been Hypomanic ? The book Gut and psychology syndrome explains the causes of Autism ADD Bipolar and other conditions ! All disease begins in the gut ! and what to do about it !
Apr 30, 2021 17:51:40 GMT
humptydumpty999: Yes she said and looked in my ears ! They were full of yeast ! A simple course of antibiotics and they soon cleared up !
Apr 30, 2021 17:47:35 GMT
humptydumpty999: I now told the doctor i was going to Spain and he became angry again ! He new that he was going to be found out to be a liar ! I went to Spain where i saw a doctor and said Systemic candida Albicans !
Apr 30, 2021 17:46:33 GMT
humptydumpty999: diagnosis had turned into a stab in the back as even after my complaints to the nhs i was not taken seriously and it was obvious that everyone was listening to the Psychiatrist ! You could almost hear them saying !" Oh he is Bipolar !
Apr 30, 2021 17:43:08 GMT
humptydumpty999: and incompetance. My family had contacted the diagnosisng Psychiatrist who swiftly removed himself from Facebook ! sending him a letter with the Nutritionmist findings we told him that it made a mockery of his diagnosis ! What had been a stab in the dark
Apr 30, 2021 17:41:06 GMT
humptydumpty999: I had told the doctor that i was a co dependent ! and now they knew i had a weakness that they could exploit ! I would put the doctors needs before my own and give him a letter saying that I would not be holding the NHs responsible for their negligence
Apr 30, 2021 17:38:24 GMT
humptydumpty999: Lord Prior had stated that bullying in the NHs was unacceptable but did he know that they would now Intimidate hastle lie and obstruct people with mental health problems ??
Apr 30, 2021 17:35:58 GMT
humptydumpty999: This was the sick and disgusting immoral state of the Nhs. I had several mental health problems and it was like i was being angrily bullied again !
Apr 30, 2021 17:34:31 GMT
humptydumpty999: The poor doctor had been told to obstruct me at all costs ! He was a nervous wreck !. He would now get very agitated !
Apr 30, 2021 17:32:50 GMT
humptydumpty999: Back at the doctors he told me that Candida Albicans did not exist ! But i had a copy of the NHS immunology dept saying that it did ??
Apr 30, 2021 17:31:31 GMT
humptydumpty999: He had started to lie to me !. I would now get an intimidating phone call ! " The mans voice saying You are a very clever man !"
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humptydumpty999: I asked him to do a bread intollerance test which he said was negative ! another member off staff telling me it was positive !
Apr 30, 2021 17:28:52 GMT