Lame44
Member posts quite a bit
Posts: 207
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Post by Lame44 on Nov 18, 2009 12:53:59 GMT
Any other ADHD sufferers also have Menieres Disease or other balance problems with thier ears? I am undergoing tests as I keep getting vertigo so bad that I vomit, I have tinitus really bad when it happens n my ears feel like they fill up n need to pop open.
My ENT says it could be Menieres, but wants to rule out other nasties first. I was worried coz I've yet to start meds for my ADHD due to postal strike delaysa nd letters not getting to where they should.
One of the things to avoid for Menieres is stimulants, so I'm wondering if anyone else who has balance problems related to their ears can still have thier ADHD meds.
I'm seeing my GP Friday armed with the letter thats now turned up from my psychologist stating I may well want to try meds for ADHD which I do of course, but I dont know if they will send me into fits of vertigo even more etc etc.
Any help would be great.
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Post by Gavinh on Jan 10, 2022 12:52:58 GMT
Hi, very late addition to this thread!! I was diagnosed with suspected early menieres a few years back. It was worsened a lot this year to the point of making big dietary changes to cut out salt/alcohol/caffeine triggers however a few months ago I was diagnosed with adhd and prescibed elvanse first and then methylphenidate. both stimulants complete get rid of menieres for me. However if I don't taken them and drink caffeine etc, menieres symptoms come back quickly. Both adhd and menieres run in my family also although none of my other family members have tried stimulants. I have a big hunch there is a connection between the two as the vestibular system relies on dopamine as a neurotransmitter. Some other adhd patients report the opposite however (stimulants making menieres worse). Most of these are from the states however where misdiagnosies is reputed to be more common than in the UK so potentially that may be a factor. I'd love to hear from anyone else whose had success treating menieres with stimulants as I'm pretty convinced it is a big clue for understanding conditions
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Post by Gavinh on Jan 10, 2022 12:54:03 GMT
Hi, I was diagnosed with suspected early menieres a few years back. It was worsened a lot this year to the point of making big dietary changes to cut out salt/alcohol/caffeine triggers however a few months ago I was diagnosed with adhd and prescibed elvanse first and then methylphenidate. both stimulants complete get rid of menieres for me. However if I don't taken them and drink caffeine etc, menieres symptoms come back quickly. Both adhd and menieres run in my family also although none of my other family members have tried stimulants. I have a big hunch there is a connection between the two as the vestibular system relies on dopamine as a neurotransmitter. Some other adhd patients report the opposite however (stimulants making menieres worse). Most of these are from the states however where misdiagnosies is reputed to be more common than in the UK so potentially that may be a factor. I'd love to hear from anyone else whose had success treating menieres with stimulants a I believe this is a big clue to understanding both conditions a little better
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Post by Bob-0 on Jan 25, 2022 12:57:30 GMT
Hi Lame44 I'm on here looking for info about how to cope with ADHD in general and then I saw your post. I've done some degree level study in medical field and felt I would share what I have learned - as you've no other replies yet. There have been strong links between the ADHD, Dyslexia etc and early years developmental problems with balance measurement equipment we have in our ears. The signals from this measurement equipment can be inconsistent / variable. Which can affect our brain development of how we experience 3D space and movement and make us easily distracted as we have to spend alot more 'brain energy' on coping with normal day to day distractions. So the answer to the first part of your question is yes, many other ADHD people will have Miniere's. Meniere's disease is THOUGHT to be from increased pressure in the inner ear affecting nerve signals to the brain. The treatment you get is likely to reduce the presure in the inner ear. This may well help. It's possible that you may get adverse reactions (like vertigo) at the beginning while your body/brain gets used to the pressure change (the change in nerve stimulation). After the initial change your symptoms will settle down. here's a link to a useful website www.healthyhearing.com/help/tinnitus/menieres-disease Hope this is helpul and I hope your GP is too. Best of luck
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Post by Rossall on Jan 25, 2022 13:20:42 GMT
Hi Lame44 I'm on here looking for info about how to cope with ADHD in general and then I saw your post. I've done some degree level study in medical field and felt I would share what I have learned - as you've no other replies yet. There have been strong links between the ADHD, Dyslexia etc and early years developmental problems with balance measurement equipment we have in our ears. The signals from this measurement equipment can be inconsistent / variable. Which can affect our brain development of how we experience 3D space and movement and make us easily distracted as we have to spend alot more 'brain energy' on coping with normal day to day distractions. So the answer to the first part of your question is yes, many other ADHD people will have Miniere's. Meniere's disease is THOUGHT to be from increased pressure in the inner ear affecting nerve signals to the brain. The treatment you get is likely to reduce the presure in the inner ear. This may well help. It's possible that you may get adverse reactions (like vertigo) at the beginning while your body/brain gets used to the pressure change (the change in nerve stimulation). After the initial change your symptoms will settle down. here's a link to a useful website www.healthyhearing.com/help/tinnitus/menieres-disease Hope this is helpul and I hope your GP is too. Best of luck This post is hidden for me so I've reposted it.
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Post by Datsakin on Jul 31, 2022 10:29:45 GMT
Hi. I just wanted to say Thankyou for posting and updating this thread. I’ve been trying to do some research after being diagnosed with Menieres. I found that is more common in people who have had meningitis which I did in childhood. I then discovered that you are more likely to have ADHD if you have had meningitis or brain injury. This all makes sense to me now. I have now been given a diagnosis of ADHD and due to start Meds. My assessor thinks I should also get tested for dyslexia. Another interesting point is that my menieres was worse when I didn’t wear my glasses. I went for an eye test and was told that my eyesight had deteriorated and that I needed a stronger prescription. Since then my symptoms of menieres has changed from vertigo and vestibular migraines to blocked sinuses and fullness in ears. It has only been a couple of months of discovery so far but it has been an eye opening journey. I’m interested to find out the best meds to treat my ADHD as this is having the most impact on my life.
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Post by Mh on Nov 1, 2022 15:32:16 GMT
I have menieres disease and adhd. I had to stop taking concerta bc it was triggering my menieres symptoms very badly. I am not trying out a non-stimulant medication called Strattera. I'm on day 2.
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Post by david on Nov 22, 2022 21:31:36 GMT
Hey from Sweden, Just found this thread. I have ADHD and likely also Menieres (however I had not had any menieres attacks since last oct/Nov - almost lost all hearing on one ear). Asked my ear doctor if he knows about any connections but he didn’t. I’m on Elvanse
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Post by emmylou151 on Jan 11, 2023 20:38:08 GMT
Hi forum,
I have just joined tonight as I was looking to see if anyone knew if there was a link between Adhd and Ménière’s disease.
I was diagnosed with dyslexia 14 years ago Ménière’s disease 3 years ago Adhd 1 month ago!!
I am learning so much about this strange condition which I have for 54 years!!
Thank you in advance
Emmylou
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