Post by Deleted on Jul 18, 2009 13:04:26 GMT
I am still slightly hesitant.... Progress with services for people with adult ADHD is slow, we all know. My experience has been in Cornwall, as those who have read past posts will know. My son has the condition. After a couple of years of hopes and promises, much frustration and hert-ache, a wasted complaint to the local partnership trust, I feel I am finally getting somewhere. I want to share this with others as this may be a way forward for you, too.
I emailed the local PCT this time. I've given up on mental health services provided by the Partnership trust. They have such neat boxes and ADHD doesn't feaure. Our experience has ben that they are certainly not person-centred but service lead.
Any way my email to the PCT was to request a progress report on what their plans are to implement the NICE guidelines, timescales and also how those with the condition and their families are consulted about these new services. After some time and a number of phone calls, I heard from the man who commissions new services such as the ones for adult ADHD. After a discussion, he agreed to intercept a referal from out GP for pscychology services to a) ensure it is specific enough to ADHD but also b) to ensure that my son has a full assessment of his needs. He also advised that if my son was in agreement, his case study could inform future work done. We may also be involved in supporting a working group (forum) on adult ADHD.
I was so excited and relieved to hear that there is such positive intentions of doing something in Cornwall. If it is necessary to help in a practical way, so be it.
Would others consider this approach, perhaps? Sometimes battling for our own individual needs is difficult. In an age when 'consultation' and 'service- user involvement' is key and most health & local authorities have to evidence this, why not exploit it? I'll keep you posted about any real progress. Thank you for listening.
I emailed the local PCT this time. I've given up on mental health services provided by the Partnership trust. They have such neat boxes and ADHD doesn't feaure. Our experience has ben that they are certainly not person-centred but service lead.
Any way my email to the PCT was to request a progress report on what their plans are to implement the NICE guidelines, timescales and also how those with the condition and their families are consulted about these new services. After some time and a number of phone calls, I heard from the man who commissions new services such as the ones for adult ADHD. After a discussion, he agreed to intercept a referal from out GP for pscychology services to a) ensure it is specific enough to ADHD but also b) to ensure that my son has a full assessment of his needs. He also advised that if my son was in agreement, his case study could inform future work done. We may also be involved in supporting a working group (forum) on adult ADHD.
I was so excited and relieved to hear that there is such positive intentions of doing something in Cornwall. If it is necessary to help in a practical way, so be it.
Would others consider this approach, perhaps? Sometimes battling for our own individual needs is difficult. In an age when 'consultation' and 'service- user involvement' is key and most health & local authorities have to evidence this, why not exploit it? I'll keep you posted about any real progress. Thank you for listening.