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Post by Deleted on Oct 5, 2009 9:47:11 GMT
MY adhd dOC Mr Mason see's me voluntary as my council sefton is the only liverpool council that wont give funding for ADHD. There was meant to be a center opening but now they have told him they dont have the funds which is odd as sefton is quiet an afluent borough of liverpool
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Post by Atticus on Oct 5, 2009 13:12:28 GMT
This may not be of much help, but the current NHS rules are that the PCT either has to treat you or fund you to be treated elsewhere. There is stuff on the board about complaining about/to the NHS which I will try to find or post a link to. (Or if anyone else remembers, please give details.)
As the old saying goes 'don't let the bastards grind you down'.
A
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Post by Deleted on Oct 5, 2009 16:08:39 GMT
Thanks Atticus, I just feel grateful his sec didn't know what postcodes corresponded to which areas as i think without meds i would have been at wits end. There bad as they are now and thats with the meds as I cant get help well not for months anyway, and I,ve just lost another job I would say down to ADHD and were ADHD has left me in a real rut IE working in dead end jobs with kids who see me as a threat and then do their best to get me fired. Now am just supposed to bounce back and find some other job to be humiliated in, great!
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Post by twix on Oct 5, 2009 16:58:15 GMT
sorry to hear this and keep fighting.
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Post by Deleted on Oct 5, 2009 20:28:50 GMT
Thanks i might actually end up fighting if i have to go for wages may send someone else.
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Post by laura on Oct 5, 2009 21:19:01 GMT
im sorry to hear that safensound i quit my job last week, was just feeling too overwelmed by everything, and there was alot of paperwork to do, i only lasted 3 shifts, just under 2 weeks
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Post by roland on Oct 6, 2009 11:38:30 GMT
Hi safensound, That is so frustrating for you and everyone else in your area The good news is that Sefton may potentially be in breach of the Disability Discrimination Act ;D That's good news for you and bad news for them! There's a thing called the Disability Equality Duty that means that Sefton has a statutory duty to provide you with access to care and treatment www.dotheduty.org/files/Healthenglandandwales.pdfSo here's what you can do: 1. Ring the Patient and Liaison Service for Sefton PCT at 0800 218 2333 and tell them that you are not happy that they are not providing funding for an ADHD centre, and also say that since you're sure that they realise that this violates their Disability Equality Duty, you'd like to know what they are doing to rectify this. 2. You can also send the following letter (by registered delivery) to Mr Leigh Griffin, the Chief Executive of Sefton PCT, which asks to see the impact assessment that was conducted before making the decision not to fund a local centre (by law they must do this assessment): Your address Mr Leigh Griffin Chief Executive NHS Sefton 5th Floor Merton House Stanley Rd Bootle, Liverpool L20 3DL Date Dear Mr Griffin Re: Due regard to disability equality Section 49A (1) of the Disability Discrimination Act 1995 (as amended by the DDA 2005) requires public authorities, when carrying out their functions, to have due regard to the need to: • promote equality of opportunity for disabled people • eliminate unlawful discrimination • eliminate disability related harassment • promote positive attitudes towards disabled people • encourage participation of disabled people in public life • take into account disabled people’s disabilities, even where that involves treating disabled people more favourably. The Disability Discrimination (Public Authorities) (Statutory Duties) Regulations 2005 also require certain listed public authorities to produce a Disability Equality Scheme, involve disabled people in the development of that Scheme, and, included in the Scheme, to produce an Action Plan detailing the steps that the authority plans to take during the lifetime of the Scheme. Public authorities must also set out their method of assessing the impact of policies and practice on disabled people. I am concerned that Sefton Primary Care Trust hasn’t given due regard to eliminating unlawful discrimination and also hasn't taken into account disabled people's disabilities even where that involves treating disabled people more favourably in one of its functions; specifically by making the decision not to provide funding for an adult ADHD centre. The general Disability Equality Duty requires you to consider disability equality in relation to everything you do and an impact assessment – which you should have set out your arrangements for conducting in your Disability Equality Scheme - is the means by which you can ascertain how effectively to comply with the duty. Please can you indicate how you have had due regard to the need to promote disability equality in all its elements in your decision not to provide funding for an adult ADHD centre and in particular can you send me a copy of the disability equality impact assessment you conducted before taking this decision. If you have not conducted such an assessment, please indicate why not. Please forward this information to me in hard copy format within 14 week days. I will contact you again if I have not received more information from you in this time. Yours faithfully, [Insert your name] This is the letter that I sent to my own PCT when they refused to fund my meds (the Equality Commission sent me the template).
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Post by Deleted on Oct 6, 2009 12:02:22 GMT
Thanks roland it seems mad that am going to do a group in the area and they dont have any support for the adults so what would i tell them go and beg Dr Mason to see you for nothing come to think about it I supose i should get that clarified if I end up with a load of ADHD parents un dx, not a good situation if they cant get any help.
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Post by roland on Oct 6, 2009 12:09:09 GMT
Hi safensound, Tell them to do the things I outlined above because it's time we all start standing up for our rights. btw Dr Mason has not yet signed the petition so could you ask him to do that? Tell him that Prof Nutt and Prof Asherson and Prof Coghill have done so as well as many other luminaries in the ADHD world. I've attached a leaflet. Attachments:
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Post by Deleted on Oct 6, 2009 12:31:54 GMT
I will Roland
I mentioned last time in his face a bit about how beneficial i thought the sight was but I dont think he understood what I was getting at and looked uncomftable so will mention petion and benefit of sight for helping people who are isolated help with learning social skills and good source of support 24/7 i meant to get more prepared last time but i think i forgot so it was all verbal and got lost in the moment.
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Post by Deleted on Oct 6, 2009 14:01:50 GMT
Laura
sorry to hear about you job maybe do some voluntary work see what suits you and what quals needed, thats kind of were am at its just hard when also need to raise cash but the way jobs are now 24/7 you can always find somthing to fit, where there's a will there's a way!
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Post by andy12345 on Oct 6, 2009 15:07:35 GMT
Safensound Hope this helps as well as everything else already posted. We need a flowchart hmmmmmmmmmmm. www.nice.org.uk/media/654/22/AccessingTreatmentRecommendedByNICEEngland.pdfJust read the sections........ and note that NICE ADHD is a clinical guideline, not a technology appraisal. PAGE 3 - CLINICAL GUIDELINES PAGE 4 - UNABLE TO ACCESS TREATMENT Print out a few copies of it for reference, and of course, one for doodling strange images on, whilst making phone calls......... On another note....... ============================ Probably old news, but sometimes re-reading does show that NICE understands quite clearly the implications of not treating ADHD www.nice.org.uk/nicemedia/pdf/ADHDCostingReport.pdf Page no 7 clearly shows that NICE expects ADHD referrals etc to cost a maximum per year of £45 million for the next 5 years, but then easing off to about £40 million per year. When you imagine that ADHD can affect, 5-7% not to mention nuclear area affect all the children, families, businesses etc. £45,000,000 is a walk in the park... compared to the, say, £100,000,000,000 for the NHS (ADHD treatment is 0.45 percent or 1/222ndth (lol) of the total budget) and anyway, just cutting out 100k of those bean counter types (the horrible ones) will do a nice job by saving about 50 times the yearly ADHD treatment cost...... It is not exactly rocket science....... QUOTE Benefits and savings Implementing the clinical guideline may bring the following benefits. • A reduction in broader societal costs, such as parental absence from work and related productivity losses. • A reduction in the costs of special education services, and costs of other social services, including the youth justice system. • An increase in the productivity and performance of adults with ADHD, at work, after starting drug treatment. • Compliance with NICE guidance is one of the criteria indicating good risk reduction strategies and, in combination with meeting other criteria indicating good risk management, could lead to a discount on contributions to the NHS Litigation Authority schemes, including Clinical Negligence Scheme for Trusts (CNST Oops went off a bit there lol. Argh, tired after that..........pfffffffffffffffffffffffffffffff, deflating.
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Post by Deleted on Oct 6, 2009 21:31:54 GMT
Thanks andy will have to look into all this soon if am ever gona get going on this, be christmas before i know it.
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Post by andy12345 on Oct 7, 2009 0:16:13 GMT
Just print out the doc (not the doctor ) , and fold it up, take it with you, but make sure the sections I mentioned are marked for you to take notes.
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