Post by Deleted on Nov 4, 2009 8:37:34 GMT
hi,
this is a weird one, my son was diagnosed with ADHD, ADD and ODD when he was 11 yrs old, he is 17 now, im a writer (of sorts) and i designed a character based on him, bare wiv me here, becoz of living with him, my only experience of ADHD (i thought- i have since bin diagnosed myself- partially) was my experience wiv his behaviours, so the character had to be dignosed the same - wiv me so far?- anyways, i started to do some SERIOUS research into the disorders and was suddenly struck by just how little I knew, I mean what i thought ODD was it wasnt and I've still to discover wat him having additional ADD means, for him, I am suddenly appalled at just HOW in the dark I was left, my daughter has more symptoms than is required for ODD but I am at a loss for what to do, because of that lack of informtion, my son was neglected by services so badly and i know its pointless to regret its counterproductive as u can't change anything wat cudve bin is bothering me, for instance
one thing i have found out is other 'co morbidities' affect the presentation of the ADHD, but i still have no idea how Daniel's affected him, course hes a man now and its too late but I'm sure theres got to be something we can do, they stated becoz he wudnt take the meds there was nothing else they cud do and signed him off their books to get an appointment he has to go through referal again, of course he aint goin to go through all that now, if I cudve jus got him app wiv psyche maybe ... maybe... I dont know Im just angry at how neglected we were as a family and thouroughly pissed off I only found out about the other diagnosis because I read a letter for the school, I was NEVER told about them let alone had them explained to me... is that right? do i have any recourse on this can i take it to a higher authority all these years later? no dont spose i can its SOOOOOOOOOOOOOOOOOOOOOOOOO frustrating, I dont know angry doesn't cover it!
this is a weird one, my son was diagnosed with ADHD, ADD and ODD when he was 11 yrs old, he is 17 now, im a writer (of sorts) and i designed a character based on him, bare wiv me here, becoz of living with him, my only experience of ADHD (i thought- i have since bin diagnosed myself- partially) was my experience wiv his behaviours, so the character had to be dignosed the same - wiv me so far?- anyways, i started to do some SERIOUS research into the disorders and was suddenly struck by just how little I knew, I mean what i thought ODD was it wasnt and I've still to discover wat him having additional ADD means, for him, I am suddenly appalled at just HOW in the dark I was left, my daughter has more symptoms than is required for ODD but I am at a loss for what to do, because of that lack of informtion, my son was neglected by services so badly and i know its pointless to regret its counterproductive as u can't change anything wat cudve bin is bothering me, for instance
one thing i have found out is other 'co morbidities' affect the presentation of the ADHD, but i still have no idea how Daniel's affected him, course hes a man now and its too late but I'm sure theres got to be something we can do, they stated becoz he wudnt take the meds there was nothing else they cud do and signed him off their books to get an appointment he has to go through referal again, of course he aint goin to go through all that now, if I cudve jus got him app wiv psyche maybe ... maybe... I dont know Im just angry at how neglected we were as a family and thouroughly pissed off I only found out about the other diagnosis because I read a letter for the school, I was NEVER told about them let alone had them explained to me... is that right? do i have any recourse on this can i take it to a higher authority all these years later? no dont spose i can its SOOOOOOOOOOOOOOOOOOOOOOOOO frustrating, I dont know angry doesn't cover it!