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Post by Deleted on Mar 11, 2010 10:30:22 GMT
Just thought i share; My 5 1/2 yr old has started meds finally. Desperately wanted to wait til she's older but could no longer cope with her symptoms if i'm honest. Shes a darling child, but trapped in the cycle of negativity, most of here will understand. Unable to control her impulses & deeply affecting her siblings lives with violent mood swings etc. Anyway, day 3 & there's improvement so glimmer of hope?! Shes on a tiny dose to start, 2.5 am & 2.5 (methyl) after school. This dose seems short lived, so i presume later on will be increased if all goes well? Shes only 17kg. Shes so proud of herself swallowing her meds like a big-girl bless her. Makes sure she takes hers when i take mine in the morning!! So would love to hear how other kids are doing, How much yours need at that age etc?? How you find they do at school? Simone x
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Post by Deleted on Mar 13, 2010 0:03:19 GMT
Hi there ! Just to let you know about how my son coped with his meds at age 5yrs ! He is 13 in April but at 5 he had short acting Ritalin so had to have a top up at lunchtimes and my ex husband worked nearby and drove to his school to give him his meds but often found him tearful as his meds had worn off too soon ! We eventually got the slow release ritalin which was such a relief for him and us ! Approx 8yrs he went on to Equasym XL as it lasted longer than the Ritalin since starting secondary school changed to Concerta XL ! This summer I reduced his meds from 36mg to 18mg as he was becoming grumpy and unhappy on the higher dose and this seems to have worked ! Must have something to do with hormone changes ? Good luck with the medication ! You are the expert so trust yourself when dealing with your daughters dosage ! Love Light and Angels Sheena x
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Post by Deleted on Mar 13, 2010 22:25:21 GMT
Really interesting, thank you for replying.
In fact i was literally just discussing this with dh. dd has been quite tearful & depressed for the wearing off period. We feel sad/guilty for her. But weighing it up; shes up/down continually without meds, not exaggerating, crying 10+ times a day on average without drugs. Going from euphoria to tears continually. So the lesser evil on meds i think??
still i cant bare seeing her depressed, its unsettling for me. Apart from that, very good result, still talks incessantly, which is a relief, but more in control of herself & temper. Only hit her younger sister once this wknd which is a breakthrough.
I will see what happens, she prob needs slightly more to sustain her, no affect on sleep or appetite. I will let u know how it goes..
Simone x
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Post by Deleted on Mar 21, 2010 13:23:45 GMT
Look forward to next installment ! Sorry if I take a while to reply ! LOL x
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Post by Deleted on Mar 23, 2010 22:17:12 GMT
Lol, don't get on here much either..Its been 2 weeks now, there's still improvement but the wearing off time is hideous! I'm having to crush the tab in small teaspoon of nutella as she's developed neurosis about swallowing the teeny half a med? Its typical of her..
We did have a better wknd again. Mornings still manic & after school, shes not normally home til after 4pm so quite late for second dose..no effect on appetite/sleep etc x
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Post by Deleted on Mar 24, 2010 20:25:32 GMT
Adding..The meltdown at bedtime is just as bad too..Another awful night getting her to bed lol..Nearly drove down the road for a quiet moment, but have shut myself in bedroom with laptop instead..Any tips??
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Post by Deleted on Mar 29, 2010 21:30:58 GMT
hi my son is seven and started meds late November. Only recently has he been settled on them. He started with 10mg but now takes 20mg slow release with breakfast then has 10mg short release when he comes home from school. He has 3mg of melatonin at 7 pm. Before he was given the melatonin he was up all night = horrendous. If you have any questions give me a shout!
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Post by Deleted on Apr 2, 2010 10:24:37 GMT
Mixture of things going on..Still benefits most days..But horrendous rages still on random occasion. Shes just been completely full of rage this morning, throwing furniture kicking, trying to smash our window, trying to climb out..Bearing in mind she diddy. Plus got really paranoid about people outside the house, saying they were laughing/looking at her. i said they saw her at window so were probably concerned etc..Im struggling with my own add atm..badly & am very close to not coping with hers, dont know what to do..I feel like im on verge of b'down..
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Post by .... on Apr 4, 2010 15:54:27 GMT
My DD is 10 now and has been taking Methylphenicate for a year, 5 mg before school, and 10mg at lunchtime. Which I find does wonders for her. Cept for 4pm-4.30pm when it wears off. If she's allowed to spend that half an hour on her own then 4.30 on the dot she's back to herself for the rest of the day : S lol.
School weren't happy that she was easier to engage in the afternoon than the morning tho (math and lit is done first thing everyday). But taking 10mg morn/5mg at lunch doesn't let me get her home and settled before the tantrums and whirlwind behaviour set in. So she's going to be taking two 10mg dose each day after easter, and I'm not horribly comfortable about it - it means her appetite will shift even more toward the eveningtime, but I'm aware of it so guess can deal with it.
And I don't know if this helps, but for the first three months of her taking meds I didn't cope, felt like a fish out of water! Everything changed. Some stuff for the better, some for the worse. The rules got changed! Before meds I knew what was what, eg. how she'd behave in diff environments, when best to serve dinner etc. But starting meds changed lots of little details, it was like parenting a different but equally difficult child. And it made my head spin very badly until things settled, and our routines, rituals and coping mechanism all caught up.
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Post by Deleted on Apr 6, 2010 10:51:07 GMT
Thanks Chys x
Its reassuring to read things are getting into a routine for you now. We all get disappointed there's no miracle cure i guess. Im struggling myself, so haven't much enough strength for everyone else atm..things will improve hopefully, x
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Post by .... on Apr 7, 2010 16:09:56 GMT
I'll cross my fingers, but am already convinced things will get better for you. x
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Post by Deleted on Apr 11, 2010 22:12:29 GMT
Thanks hun, i know what u mean, its taken me a while to get meds right i guess..I'll update when they go back to school?!! Not good to say how things are going in the hols!
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Post by Deleted on Jun 9, 2010 22:45:21 GMT
Ok wee update, still mild improvement during the day, with hideous intervals lol, especially at 6-8pm. She will invent a reason every night to have a rage, mostly things not being in order, but the order of things changes daily, i feel exhausted thinking about it.. For example, she has to have strick routine or else?? Tea at 6, then her 5 mins free-time which is actually longer, if not she freaks out, then bath, then the '5' mins again. Then the rages begin to emerge, try to calm her with story, which usually resuls in freaking out about whos bed the story is being read in, should be alternating between her bed and younger sibling. But randomly gets freaky about that...
Then dad has to give her a kiss and hug, in that exact order, believe me, then i have to kiss younger sibling then her, forehead first them hug, and she does the same to me, if this goes wrong, shes like a time bomb. then older daughter goes in. Then husband has to rinse the water bottles & do the kiss n hug again, while im normally going downstairs by ths time. Then the proper rage starts as she wants me to come up again to do the same thing..This sounds rediculous like she rules the roost, & she does but the consequences are so distressing to the others u just walk on eggshells. She would just have us in and out all night..
Every night she has variations on this. Obviously her obsessive behaviour patterns are like this all day, only the rages are milder on drugs. Her morning routine is just as bad, total fiasco.. Wondering if she needs something to calm her right down at night??
Sorry just needed to rant?
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