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Post by Deleted on Apr 18, 2013 9:44:36 GMT
Wondering if anybody on here could give me some much needed advice. My daughter was diagnosed last year and started on meds in Sept. She is in Yr 3 now. I first raised my concerns with school at the end of reception, re my daughter being left behind. Had to fight to get the senco (head ) to refer to EP. Did so in April 2011. Had to fight again with support of EP to get senco to use IEP for daughter, eventually happened. Little progress made until meds started then classroom became a bearable environment for D and work output increased i kid you not by about 500%!SENCO left and new started. Was told that D had dyslexic tenancies, so had assessment done at local uni(£350 funded by me). Anyway not dyslexia but gaps in early leaning (reception and yr1 and 2 before meds ...) Teachers at school have no training in ADD and dyslexic EMS are advising on interventions. I had meetings yesterday to discuss concerns about interventions used now not meeting Ds needs and with school chair gov and sen gov to ask what could be done re the gaps in Ds knowledge bearing in mind that I had tried to have them addressed since reception regardless of diagnosis.They are getting back to me. My ds FSIQ is 105 and has not got phonological processing difficulties but on reading tests she constantly scores between 5th and 20th percentiles (towre and wiat11) Report from uni also said seek specialist teacher. You wouldnt believe how ive tried!!!! Please if anybody has got any advice i would be incredibly grateful. I just want D to catch up to where she should be.. I have ADD and i spend so much time hyper focusing on this, i would really like some good advice. The LEA is NYCC. Many thanks
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Post by DKL - darkknightslover on Apr 18, 2013 11:28:50 GMT
Lots and lots of acronyms there - don't understand all of them :S I think I've got the basic gist though.
First of all, well done on getting as far as you have! As I don't know anything about the current primary school governance structure I can't help with any of that, but here's my 2pence for what it's worth:
I think this might be a case for the Citizen's Advice Bureau? Not sure. In the meantime find out what your daughter's weaknesses are and work with the school to work on them at home.
You don't have to use their teaching methods, but if you know exactly how they're teaching the kids you can better compliment/supplement them. Using two approaches can utterly confuse her as if she uses home methods at school, she could be told "no that's wrong" (oh such fond memories!) Which will totally undermine her confidence and will end up with her never asking for help (if she's anything like me). I'm now mid 20's and am no longer scared to ask.
If money isn't an issue then hiring a tutor for a little while to "bring her up to scratch" is also worth considering.
Sent from my GT-I9000 using proboards
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Post by twix on Apr 18, 2013 18:53:13 GMT
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Post by DKL - darkknightslover on Apr 18, 2013 19:15:19 GMT
I'll agree that they do, life was a bit easier when I got diagnosed with dyslexia at uni. However the biggest thing is knowing yourself/child. Sorry can't be of any more help.
Sent from my GT-I9000 using proboards
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Post by jan on Apr 19, 2013 7:58:52 GMT
have you tried getting advice from addiss? (attention deficit disorder information service - something can't remember)
tel 0208 9522800 fax 0208 9522909 email admin@addiss.co.uk addiss.co.uk
there's a guy there ,usually on thursdays - colin - used to be headmaster in a special needs school and also worked in lots of other posts in education system, sure he'l be able to help (he's lovely, has a good understanding of add and is very calm so easy to talk to) good luck xx
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Post by Notlonelyinacrowdnow on Apr 19, 2013 8:46:17 GMT
My Daughter struggled through primary was under special needs but we had to fight for statementing which we didn't get till aged 11 during transition to high school was traumatic and only then did we get the support .. She wasn't meeting the requirements for a Special School so we opted for a small unit attached to a mainstream smaller groups .. X
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Post by lambylottie on Apr 27, 2013 7:26:00 GMT
IPSEA are supposed to be amazing at fighting our corner as parents: www.ipsea.org.uk/Other links which may be helpful: www.ace-ed.org.uk/, www.councilfordisabledchildren.org.uk/, Try contacting your local National Autistic Society branch as many of them welcome parents of ADHD children as it now considered as part of the very widening spectrum of ASD. They have been extremely helpful on our journey so far (daughter is only yr1 unmedicated) which is still just beginning. Lottie x
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Post by lambylottie on Apr 27, 2013 7:32:12 GMT
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Post by Deleted on Jun 10, 2013 9:29:36 GMT
Thanks to all for taking the time to reply! Lots of good advice and great to see that a statement IS achievable. School have now agreed to request an assessment from the LEA with the support of the EP. I will consult IPSEA when I have to(undoubtedly!!) appeal the refusal to assess lol! Many thanks again, will update......
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Post by jan on Jun 10, 2013 9:50:54 GMT
thanks for message good that your on way to getting it all sorted for her she's blessed to have you fighting her corner remember its often 3 steps forward - then one step back (for us unfortunately ) but we get there in the end jan xx
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Post by Deleted on Jun 19, 2013 21:59:24 GMT
Had a review today. The BESD team rep actually said "I'm no expert" I told him that it really didn't surprise me, as was expecting the worst anyway. (He's on £30000 by the way) Not even a print out of their services given. No suggestions or questions asked and eyebrows raised at the impetuousness of requesting an assessment. Even Head back peddled and said she's only doing it to appease me! dyslexic e.m.s now signing off too as cued spelling has seen some improvement (as the cheap alternative to ARROW). Basically told them id quote them in court. Has anybody really had expert advice educationally? We are also joining a group tomorrow that offers ADD children activities in Ryedale!! Just hoping that they are the first agency that actually knows what ADD is, as so far, apart from the diagnosis from the pediatrician, no one else here has got a fucking clue!!!
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Post by Kathymel on Jun 19, 2013 22:11:58 GMT
Sounds like they don't know what to do so they're giving you the brush off. Surely they have someone who, even if they are not an expert, can research and implement strategies. Jeez!
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Post by fuzzywuzzy on Jun 19, 2013 22:50:20 GMT
Hi Gremico,
Going through same kind of process as you although my daughter is in year 4....my Senco was more on the ball but only just got diagnosis from CAMHs despite probs like your daughter since reception really....so also got gaps in knowledge......we have a CAF and she is sen plus, so they bring in lots of outside agencies, like play therapy to help with emotions and transitions...... school itself do small groups in school with two other sen girls like a sewing club to help with peer interaction and social skills.....things really changed most when Senco put me in the direction of a council funded but independent parenting course run for parents of children with additional needs.....suddenly you have a face to face support group of parents in exactly the same situation and each one will know something about the system that you don't and vice versa.....from there I went on a course aimed specifically at parents of kids with ADHD or autism......they give advice on statementing,applying for DLA etc and how to deal with schools and accommodations tutoring etc that can be put in place.....must be something like that near you......
I'm just about to fill in the request for assessment......wish me luck........wishing you best of luck too......p.s. if you get a tutor yourself, I wouldn't tell the school......and p.p.s. I stop helping my daughter with homework.....they very quickly give her one to one tuition then to make sure that she does understand
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