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Post by bikemonkey on Jun 30, 2013 8:21:02 GMT
Hello
This is all a bit odd for me as I've never got involved in anything like this before.
Not sure if it will work as I know what I'm like; initial idea and the excitment of doing something new that will make my life more fulfilling which usually goes no further than the idea stage. Will do my best to remain engaged with posting and particpating though. I am 42 and recieved a diagnosis back in May and am trialing Concerta XL. My partner had suggested I do this years ago and to my lasting regret I didn't until things had got totally out of hand.
Get my prescription through a private consulatant at this time costing £110 a month!! No local AADD service available, so have asked my GP to refer me on to the nearest centre which is in London.
No support groups locally either (South West Kent) so calling out to anyone who may be from around here to see if we might at least think about setting a group up.
Bikemonkey
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Post by JJ on Jun 30, 2013 15:44:07 GMT
Hi, I'm from East Kent and would be interested in a group or something. I'm also wary of committing to something that I can't carry through . I'm on mph now so theoretically I should be better than I used to be but I'm not sure if I am... I've been on this site since March and I've not seen anyone else from Kent. When I've looked on the net there's a couple of parents of adhd kids groups mentioned - in Dartford, Folkestone and Bromley if I remember correctly. I never went any further in contacting them cos I was looking for an adult adhd group and also info about groups tends to get out of date quickly anyway. I saw you pay for your meds..... I was diagnosed in March by the Maudsley and got my report with meds recommendation through in May. My GP wouldn't prescribe and the Maudsley automatically sent my info to a GP in Faversham (not my town) to prescribe on the NHS. She told me that she sees people from all over Kent (and mentioned Sevenoaks, Dartford and Thanet - so a wide area). She said she prescribes for people whose own GPs won't. So it might be worth contacting her or getting your GP to contact her to see if she'll take over your prescribing so you don't have to pay? And the other point about this GP is that she obviously meets lots of adhd adults in Kent, so if a group or something were started, she might be willing to give out some info to them at their appointments. There's also a new private mental health services clinic opened recently in Canterbury - they specifically mention adult adhd diagnostic services... Anyway, just my initial thoughts because I definitely would be interested in a group....
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Post by bikemonkey on Jul 2, 2013 8:09:15 GMT
Hi
Good to hear from you.
I feel MPH is making a difference, but it is early days and I'm having therapy as well.
A lot of groups for families of children with ADD as you say, but not so much for the older folk.
I'm hoping that as I've already been assessed and diagnosed that the process of being taken on by Maudsley will be relatively straightforward, but maybe I'm being hopeful rather than realistic.
Thanks for information on this GP. I'm hoping mine will prescribe. He says he would be willing to, but not sure whether this has to be run past people to get the ok or not. If I draw a blank I'll take this one further with the Faversham option. Do you have her name?
Kent is big county, but we should think about trying to set something up. Maybe the GP could help in terms of publicising it.
This is an idea in progress at the moment I think. I am still coming to terms with the diagnosis I think and have days when I wonder whether this is what it is all about, or whether I'm barking up the wrong tree/clutching at straws. I fit the diagnosis perfectly, but i think because of the publicity (often bad) about the disorder and also what we with ADD can be like, I fluctuate from feeling I can crack this and make a real difference to myself, my relationships and my life to a sense of being stuck with also much to do to get there.
Stay in touch and lets see what we can come up with over the coming months.
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Post by JJ on Jul 2, 2013 13:25:04 GMT
I know what you mean about coming to terms with it and questioning whether you can crack it. I feel the same. I've not questioned whether I actually have it - I'm 100pc about that, I've just questioned what I can realistically expect from medication - and how that compares with what it would be like to be normal and just not have adhd... I had a million plans of what I was going to do / achieve once I had meds, I don't now think they were all possible, but, although I've lowered my bar, I don't know where it should be or could be... I could do with having an idea but equally importantly, my children could do with knowing too - we're all living in unknown times while I'm getting used to all this. I assume your counselling is with someone specifically knowledgeable about adhd? Can I ask who / where / how much? I really think I could benefit from something like that if it was affordable... Re your aim to be referred to the Maudsley - they have a satellite clinic in Sittingbourne and that's where I was diagnosed. However the Consultant and the follow up adhd nurse who's monitoring me are actually based in the main hospital. With all the changes this April, I'm not sure how much of Kent as a whole has amalgamated. Certainly some things have (the stop smoking service for example is now one service for the whole of Kent - although that's run by KCC so not NHS properly) but I don't know I enough about it. The GP is Dr Chopra in Boughton. There's nothing on their web site about adhd and if you put GP adhd Kent in google nothing comes up. My own GP never mentioned anything other than she wouldn't prescribe - so I don't think she knows about Dr Chopra - and mine is a huge GP practice that is specifically mentioned on the new CCG website and one of the practitioners there sits on the board (of about 10). My point being that nothing seems to be known about anything - even by a significant GP practice. Once I feel properly settled on medication and have seen what the routine is with regard to monitoring me etc, I'm going to put all the info I know about diagnosis, medication, services in Kent on a thread here so there's some reference for new people looking for help. I'm also going to write to my CCG to tell them of my experience and what could be improved - particularly mentioning the complete lack of information. I'm wary of this as another plan for the future which might go down the pan with my entire life's plans to date of course - but it is something I feel strongly about so surely that should help with following through? !!! It's nice to speak to someone else in Kent, I do want to stay in touch and let's keep the idea of a Kent group on the burner Btw - depending on where you are in Kent, the London group might be of interest - it meets tonight I think - details on here somewhere.
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Post by Cal on Jul 17, 2014 20:32:01 GMT
Hi, just wondering if any progress has been made on setting up a Support Group in Kent? As I know of someone in Ramsgate that really wants to meet others.
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Post by TQ84 on Dec 14, 2014 4:32:38 GMT
Has a group been set up yet? I got my diagnosis a year ago combined type with ASD (most likely Aspergers). After having nearly 8 years of a provisional diagnosis in another country. I've been looking for other adults in kent with ADHD or ASD but not had much luck finding any. It would be nice to meet others who can understand the weird and wonderful ways of the ADHD or ASD mind!
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Post by Rob h on Mar 1, 2017 12:47:32 GMT
Hi I live near Sevenoaks in Kent and would be interested in joining a group if one is available
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borednotbad
Member's not posted much yet
Back on the naughty step...
Posts: 6
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Post by borednotbad on Mar 27, 2017 9:45:37 GMT
Hi I joined this forum today and was diagnosed last Thursday. I'm in East Kent and would be very interested in joining a support group.
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