merrial
Member's posted somewhat
Posts: 63
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Post by merrial on Mar 24, 2016 18:27:48 GMT
How frustrating I can understand your disappointment. I have to say that the report from the psychiatrist who diagnosed me was also full of inaccurate details.
I was really annoyed when I read it and wrote on it "This is a load of Rubbish!"
Although I was diagnosed with ADHD. And your right that girls do present in childhood with quite different behavior than boys and I have read that this is what
makes it less likely that they are diagnosed as children. My son who has ADHD was far more reckless in his behavior than I was. And like you I mainly got into trouble
for being inattentive and talking over people, not waiting my turn and not sitting down when required to.
Can you challenge this diagnosis?
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Post by vagueandrandom on Mar 25, 2016 18:26:07 GMT
It's worth writing, or making an official complaint.
When my GP referred me, it was the consultant who turned down my referral, even though it was the same department that suggested ADHD when I was assessed for ASD.
I made an official complaint and was eventually diagnosed by the same consultant - in one session - although I was told I had an unusual presentation.
I'm Hyperactive/Impulsive and although I had some school reports to support dx, my MH history and some 15 year old notes from a therapist that he found
on my electronic records were what convinced him.
BPD symptoms are quite similar to ADHD, although you say: I have all of the above except hanging onto anger and thought that it was all part of ADHD. . . . but what do I know?
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Post by manson88 on Mar 25, 2016 19:25:13 GMT
I wanna say that I have been through similar experience as you...
I had to make a complaint about a psychiatrist whom didn't get everything I had..
I have a learning disability,dyslexia I had the mental health problems anxiety and depression.. Which can be found common in Adhd inattention..
Had a dx in 82 of mild Cybele paulsly.. Probably dx now days as dysprixia.
The psychiatrist had diagnosed me with boarder line adhd inattention.
I wasn't satisfied like you with his decision. So I made a compliment to management.. It went to the top and finished there with a reply more covering their own backs.
Anyhow wasn't satisfied with that tried getting diagnosis out of trust and that didn't work. Cause they said that there was service with in the trust so they wouldn't send me..
So a passage of time went by maybe 6mths or so hassled the gp a bit more.. He then said that the psychiatrist whom had screened me had left so he referred me back there.
The new psychiatrist said it was unfair what the previous psychiatrist had done all the evidence was suggesting that I had adhd inattention. Was going to treat me..
Getting the dx and the treatment is only the start. The rest is finding a away forward, new organisation skills, routines, and being easy with yourself and accepting it.
Hope this helps..
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alien
Member's posted somewhat
Posts: 76
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Post by alien on Mar 29, 2016 9:10:37 GMT
Hi gc7 - just to say another one here with similar experience to you. I saw two and a half (one was a trainee) psychiatrists who focused on my doing well at school and okay at work, despite scoring very highly on all tests. They sent me away probably with the the same advice as if i'd had a diagnosis as I know I don'the what meds. Read ADHD self-help boOKs (I already had (and suggested counselling. Said they'do write to my GP to look into that but of course almost six months later and no word. You know what though -I'm okay with it now. (If I was after medication i'd feel at a loss.) Reading everyone else'so experienceS on here has been of far greater use. I'very also come to understand some of my own coping mechanisms and worked out why i've been comfortable in some jobs and not others. All very helpful. Regardless of what many on here may think at times about their own self worth and importance, the people who post on here regularly are making such a valuable contribution on the lives of others they should feel very proud.
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alien
Member's posted somewhat
Posts: 76
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Post by alien on Mar 29, 2016 9:11:42 GMT
Sorry about the typos. Blummin' phone doesn't know how to deal with apostrophes. : )
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Post by vagueandrandom on Mar 29, 2016 15:24:30 GMT
Hi gc7 sorry you're not getting anywhere. if you give us some idea about the area you live in (you don't need to be specific, just midlands, or Wales etc) There might be someone who could recommend a private consultant, or suggest some other route on NHS.
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alien
Member's posted somewhat
Posts: 76
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Post by alien on Mar 29, 2016 16:09:12 GMT
Just to add, gc7, from experience relating to my daughter's assessment/treatment under CAMHS, we went through the complaint route and it caused us sooooo much added distress. I'm not saying to not do it, as maybe we did have a bit of an effect, but I had much more success detailing my family's experiences to our MP (this is autism not ADHD-related), and feel, in concert with the NAS, we made a real impact. I suppose what I'm saying is that if you have the will and the fire, that was where we found most success, and the ongoing relationship is hopefully going to be useful moving on too. (We've split all ties with CAMHS, although maintain a relationship with our local Trust's developmental paediatrics.) I'm in Surrey, and my experience of the ASD/ADHD clinic is that they're completely over-stretched, under-resourced and cant offer anything in the way of support aside from medication. One of the psychiatrists, who I chatted to in the waiting room, also told me he thought the next five years would see services cut further. That could have been a simple case of professional pessimism though.
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Post by manson88 on Mar 29, 2016 16:22:45 GMT
Hi Alien I agree with you - this site is really helpful and it is very comforting to find that others have been through the same sort of experiences with so called 'experts' (although we shouldn't have to!). I have decided that I have no hope of getting a proper assessment via the NHS and feel that the only option left to me is to seek a private one. I feel really disappointed about this, as I support the NHS as an organisation. It has some excellent clinicians who do a fantastic job in the most difficult circumstances. However, both my assessment appointment and the Psychiatrist's report were very unprofessional. Although my cortisol levels are through the roof already, after having to fight for my ESA benefits by taking my claim to tribunal (which I won), I have decided to make an official complaint about this. I think that just because we are using a 'free' health care system, it should not mean that we have to accept poor care or be fobbed off/ignored. Finding a way to afford a private consultation is not going to be easy, but in the scheme of things, I think that it is well worth the cost to be properly assessed. It's all about being treated like a human being - feeling heard, not being patronised and having my past medical history properly looked at. If a private doctor had written the medical report I received, they would go out of business very quickly (in fact, I doubt they would even be able to get a job in the private sector writing garbage like that). Apart from the many obvious errors in respect of my medical history, background and presentation, it was also full of ambiguity and, in parts, unintelligible due to poor syntax, grammar and lack of punctuation. I am not being pedantic - this letter was intended to form part of my medical notes. Accurate detail and clarity of communication is of the utmost importance in a document like that. Grrrrr..... still seething when I think about it .....maybe I do hang on to anger after all. However - this is a pretty big deal for me. I tried contacting my GP surgery to see if I could get an appointment to ask for a referral for a private ADHD assessment and the receptionist told me the earliest appointment would be 4 April! I've managed to get a telephone appointment sooner. Here's hoping I can make a request like that without having to go in personally. Every step is sooooo slooooooooow....impatient, moi?? I just wanna say here, take a break.. You could do some other things.. Go for counselling.. This is and has been a corner stone of my survival of the last 4 years... Working with a counsellor you can reduce your issues. They will help you look at things in a different way and work through the feelings. I would also suggest that you do some investigation work yourself. Like try and find out through patients support when the psychiatrist move.. Even have a chat with patients support of your experience of your service.. Remember that they are always looking for ways to improve the service. Also your experience could lead to a better service or they could talk on your behalf. They serve a period of time in each field of psychiatry and move on. Try find out when the next rotation is. Through a friend or some who may work there.. Then hit your gp for a second opinion.. Don't give as it's taking a step back.. Don't give in to it they don't want people like us seeking questions to answers.. There's good gate keepers to the service and then when you have put pressure on the gate keeper you will get success.. Hope this helps Manson88
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Post by contrarymary on Mar 29, 2016 21:14:09 GMT
hello gc7 & welcome to the forum thank you for freely sharing your experiences and creating a really interesting thread which others will identify with sorry i have no comparable helpful experience to share, altho if you were to plough through contrarycorner you can read just about everything that's been on my path thus far (albeit interspersed with anecdotes, bright ideas & small think pieces) but i do want to say a huge well done to you in taking ESA decision to tribunal. i've done it twice with ICB & once (or twice) with DLA, and have an inkling of how very hard it is. i take my hat off to you, & make a deep bow nil desperandum; you will get there. in the meantime, welcome
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Post by vagueandrandom on Mar 29, 2016 22:10:03 GMT
gc7 I am very outspoken in my views on CBT and have not yet been banned for my opinions. My experiences of other NHS talking therapies (excluding psychodynamic and CAT, which don't seem to be as available these days) is also not great. 1. The mood questionnaire: I will always score highly as most of the questions describe my ADHD traits and will always be the same, regardless of mood. 2. I'm incredibly self-aware and know, in an academic way, what my reactions 'should' be. . .but can't *make* my brain change as it's instinctive reaction. I'll edit this after I've looked at some of my less tired old posts. . . In Venting. . 'But you are so self-aware'. . . also look at my latest posts in my vagueandrandom diary. . . I've also written in Abble Babble diary (page 2)
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Post by marionk on Apr 4, 2016 23:06:41 GMT
No need to apologise, this is the Venting forum after all.
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