frameofmind
Member's not posted much yet
ADHD used to be my prison, now it is my best tool.
Posts: 26
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Post by frameofmind on Mar 26, 2016 19:04:10 GMT
So this is my proposal. I am a documentary and experimental filmmaker and I am a proud ADHD adult. I have been diagnosed and dealing with it si pence I can remember and it has been Both a good and bad trip I still travel. There are soooooo many thing I still need to learn and work on just to seam normal or according to social standards. During mupy studies at university in London, I made a documentary on adhd but from a child point of view and I am now interested in making a project on how adhd impacts adults... Their accounts and strougless through work, therapy and how it differs from and is carried through growing up and entering the "grown up world". I don't have much money or resources but I have a story to tell, many contacts who could benefit and the hell of determination.
who else is interested let me know and let's share our stories with other confused and soon to experience Ad(h)d people.
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Post by clubby on Mar 26, 2016 20:38:45 GMT
If I was to make a film I would target the following groups:
1. Educators
2. Psychologists
3 The Public
4 Us
Educators have failed us, psychologists are failing us, the Public are in the dark and we are drowning.
But the last thing I would want to be is confrontational.
How do we use film to change some very fixed and dark opinions about adhd being about naughty children who don't grow up?
To be honest I haven't a clue but I would love to hear the opinion of others.
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Post by anopheles on Mar 26, 2016 23:25:54 GMT
So this is my proposal. I am a documentary and experimental filmmaker and I am a proud ADHD adult. I have been diagnosed and dealing with it si pence I can remember and it has been Both a good and bad trip I still travel. There are soooooo many thing I still need to learn and work on just to seam normal or according to social standards. During mupy studies at university in London, I made a documentary on adhd but from a child point of view and I am now interested in making a project on how adhd impacts adults... Their accounts and strougless through work, therapy and how it differs from and is carried through growing up and entering the "grown up world". I don't have much money or resources but I have a story to tell, many contacts who could benefit and the hell of determination. who else is interested let me know and let's share our stories with other confused and soon to experience Ad(h)d people. This may get moved, so don't panic I it's suddenly gone! You need to give some help! How long? Where to? Before? Written or sound file? Anonymous or named? Etc. I'm interested.
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frameofmind
Member's not posted much yet
ADHD used to be my prison, now it is my best tool.
Posts: 26
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Post by frameofmind on Mar 27, 2016 6:44:30 GMT
So this is my proposal. I am a documentary and experimental filmmaker and I am a proud ADHD adult. I have been diagnosed and dealing with it si pence I can remember and it has been Both a good and bad trip I still travel. There are soooooo many thing I still need to learn and work on just to seam normal or according to social standards. During mupy studies at university in London, I made a documentary on adhd but from a child point of view and I am now interested in making a project on how adhd impacts adults... Their accounts and strougless through work, therapy and how it differs from and is carried through growing up and entering the "grown up world". I don't have much money or resources but I have a story to tell, many contacts who could benefit and the hell of determination. who else is interested let me know and let's share our stories with other confused and soon to experience Ad(h)d people. This may get moved, so don't panic I it's suddenly gone! You need to give some help! How long? Where to? Before? Written or sound file? Anonymous or named? Etc. I'm interested. Hey anopheles, can you elaborate on your questions. I'm getting confuse. I'd love to respond to. Your questions and share more information as it anrevels itself. thanks for the interest. Do tell me if you wish your story.
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frameofmind
Member's not posted much yet
ADHD used to be my prison, now it is my best tool.
Posts: 26
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Post by frameofmind on Mar 27, 2016 6:50:14 GMT
If I was to make a film I would target the following groups: 1. Educators 2. Psychologists 3 The Public 4 Us My main target is the public and us the others have proven to me that they give shit all about us and generally people don't understand educators u mean that in lames temrms... Teachers is the only title tossible for at least all they done for me is mindedly decide wether they should teach me a level lower cause they classed my immature mind as dumb. As you say the general public are underinformed and missinformed and we can change this with film. Educators have failed us, psychologists are failing us, the Public are in the dark and we are drowning. But the last thing I would want to be is confrontational. How do we use film to change some very fixed and dark opinions about adhd being about naughty children who don't grow up? To be honest I haven't a clue but I would love to hear the opinion of others.
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frameofmind
Member's not posted much yet
ADHD used to be my prison, now it is my best tool.
Posts: 26
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Post by frameofmind on Mar 27, 2016 6:56:52 GMT
If I was to make a film I would target the following groups: 1. Educators 2. Psychologists 3 The Public 4 Us My main target is the public and us the others have proven to me that they give shit all about us and generally people don't understand educators u mean that in lames temrms... Teachers is the only title tossible for at least all they done for me is mindedly decide wether they should teach me a level lower cause they classed my immature mind as dumb. As you say the general public are underinformed and missinformed and we can change this with film. Educators have failed us, psychologists are failing us, the Public are in the dark and we are drowning. But the last thing I would want to be is confrontational. How do we use film to change some very fixed and dark opinions about adhd being about naughty children who don't grow up? To be honest I haven't a clue but I would love to hear the opinion of others.
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Post by clubby on Mar 27, 2016 12:09:10 GMT
There was an excellent documentary on TV last week called Employable Me. contrarymary posted a thread about it earlier. What the film makers managed to do in spectacular fashion was to show how, what you see , is not necessarily what is going on inside the head. I think if you can use film to capture this phenomena in adhd, it would be a powerful message. ADHD people are not what the appear. Do not make judgements hastily. A message to teachers - Do not judge impulsively the energetic actions of a child who wanders away while your attention is focused on a political curriculum.
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frameofmind
Member's not posted much yet
ADHD used to be my prison, now it is my best tool.
Posts: 26
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Post by frameofmind on Mar 27, 2016 12:46:51 GMT
there are special alowences, paarking spots and help for less phisically capable people. people whose injuries and conditions are visible. but what about those conditions that arent visible, those who get misplaced and pushed to aside because no one can see our handicap. WE ARE DIFFERENT AND DESERVE TO BE UNDERSTOOD: THAT IS A MOVIE.
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Post by clubby on Mar 27, 2016 13:30:31 GMT
Well said frameofmind. We deserve the respect to be understood. We have a disability which is hidden. Psychologists are scientists who are trained to observe or dissect. Our condition cannot be understood by either method. So here is the problem: How can a camera which observes get one better than the psychologist? How can the camera see into the mind?
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Post by vagueandrandom on Mar 27, 2016 14:33:26 GMT
Interesting point clubby it's something that I've been interested in for most of my life. My thesis for my first degree was about how things that are in someone's head can be expressed in the theatre. This meant that I could look into how other artforms tackle the same things. . I seem to remember that I got heavily into theatre of cruelty. . I think that film is possibly the best medium for expression of the internal. . images can be manipulated and sound is exceptionally powerful. I'm currently working on a project to use sound to trigger new responses to our everyday environment. . getting a bit overwhelmed with it tbh. . I have to provide a budget and proposal documentation . . Procrastinating. .
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frameofmind
Member's not posted much yet
ADHD used to be my prison, now it is my best tool.
Posts: 26
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Post by frameofmind on Mar 27, 2016 16:13:06 GMT
That is a great dilema we filmmakers constantly battle and im glad you asked as it makes me focus my thoughts on an answer for you. I havent preciselly figured it out but it is my aim. To use film to express feelings and thoughts... hence why my master degree is in creative documentary and experimental cinema where i have learned and practiced different methods of capturing and portraing through film and audiovisuals the emotions that drive audiences and societies. there is no assurance that will succeed but i am a fighter and i will search under the last rock to find a way. I have only just started to "hyperfocus" on this are and subject of Adult ADHD and hence have tones of work ahead but along with all of the help i can get and my own creative tools I know the company that will produce this piece will make a just accont on our mental processes and how they respond to social structures and how they affect us. I DONT LET PEOPLE THAT TRUST ME DOWN ( thats my first rule) vagueandrandom , if you need any help at all let me know. As a producer i have slight experience.
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Post by clubby on Mar 27, 2016 18:54:02 GMT
How enlightening.
The difference between image and art.
Image represents what we see in the world around us whereas art represents what we see in the mind.
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Post by blaze on Mar 27, 2016 19:51:40 GMT
there are special alowences, paarking spots and help for less phisically capable people. people whose injuries and conditions are visible. but what about those conditions that arent visible, those who get misplaced and pushed to aside because no one can see our handicap. WE ARE DIFFERENT AND DESERVE TO BE UNDERSTOOD: THAT IS A MOVIE. Legally reasonable adjustments within employment and education exist for all disabilities & parking spaces/blue badges exist for people who would be unable to access normal daily activities without them- it isn't just for those with physical disabilities or for everyone with physical disabilities- it's judged on the dis-abling effect of their condition & if being nearer to shops etc en-able them to access them. If someone's disability, physical, visable or otherwise doesn't make it impossible to access a shop or resteraunt from a *normal* parking space then they don't need them- it's not based on condition. there are also many many physical disabilities that are also hidden disabilities. Personally i come accross much more stigma & lack of understanding for my hidden physical disabilities than for my (severe) adhd (as an adult atleast)
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frameofmind
Member's not posted much yet
ADHD used to be my prison, now it is my best tool.
Posts: 26
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Post by frameofmind on Mar 27, 2016 20:23:16 GMT
the disabilities that are not visible fully are often considered lightly or less severely than the visible ones. sorry if my comment hit any nerve
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Post by contrarymary on Mar 27, 2016 21:09:30 GMT
actually, physical conditions are also largely invisible.
those aids which are visible - eg wheelchair, walking stick - don't give a total picture of what someone may be living with. people use aids for zillions of different reasons, you can't see or feel someone else's cancer, MS, brain damage, kidney disease.
and visible physical aids often lead people to make massive assumptions eg behaving as tho a wheelchair is a diagnosis.
please let's not get into the mindset of making assumptions about what it's like to live with disabling physical conditions and imagine that it's all rosy, somehow easier, all fixed with ramps and blue badges, or any other unhelpful stereotypes.
some of us here live with more than one set of neurodiverse issues, and/or neurological or other physical condtions. I can assure you that it's different flavours of the very same crap, multiplied.
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Post by contrarymary on Mar 27, 2016 21:21:24 GMT
We have a disability which is hidden. Psychologists are scientists who are trained to observe or dissect. Our condition cannot be understood by either method. So here is the problem: How can a camera which observes get one better than the psychologist? How can the camera see into the mind? interestingly, i was just reading the Spring 2016 BFI FIlmmakers magazine about a film called Notes on Blindness, based on the experience of an amazing man called John Hull. John kept audio diaries record & reflect on his experience as he lost his sight in his 40s, and wrote a book about it. alongside this new film they've developed a VR experience called Into Darkness, which is trying to recreate the expereince of becoming blind. the magazine articles talk about how to make a film about something which cannot be seen, and is itself about not seeing. v interesting
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Post by clubby on Mar 27, 2016 21:36:59 GMT
Very good point contrarymary So all disabilities are essentially hidden. What people see and make assumptions about is like the tip of an iceberg. What it comes down to is to educate people not to make wild assumptions about anyone and to get to know them as individuals.
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Post by vagueandrandom on Mar 27, 2016 21:41:28 GMT
That's interesting contrarymary . . my only serious relationship (and oldest friend) is a visually impaired visual artist. . and because he went to a blind/visually impaired school, I know quite a few blind people and find their view on the world really interesting. I also agree with you about many disabilities being defined by the aids used. . . There's so many reasons to use a stick, or wheelchair etc. A disability isn't always consistent. I know someone who's on the Paralympic wheelchair racing team who can walk a bit. . He has cerebral palsy, so running's not an option. Doesn't stop him representing his country and it's not a cop out to use a wheelchair. Going back to the subject. . I think that a film would be good, but maybe not a 'straight' documentary. Seeing inside a mind is a creative challenge.
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frameofmind
Member's not posted much yet
ADHD used to be my prison, now it is my best tool.
Posts: 26
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Post by frameofmind on Mar 28, 2016 7:41:30 GMT
I am open minded but if you all are really interested whether it is experimental, documentary or fiction I will do my best to make it as real as I can.
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Post by clubby on Mar 28, 2016 7:59:58 GMT
I am open minded but if you all are really interested whether it is experimental, documentary or fiction I will do my best to make it as real as I can. How about eye-opening and life changing?
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Post by clubby on Mar 28, 2016 8:12:52 GMT
Re the TV series Employable Me
Interestingly the man suffering tourettes found an element of peace behind the lens of a camera.
I too am at my happiest taking pictures.
The small frame reduces the number of relationships that I have to deal with yet allows me to push the button when my emotions are at a height.
I sense a lot of us here find comfort in the lens.
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frameofmind
Member's not posted much yet
ADHD used to be my prison, now it is my best tool.
Posts: 26
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Post by frameofmind on Mar 28, 2016 8:13:22 GMT
eye opening, i thought that came without mentioning, but it has to be real and to the point of what we Work wih
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Post by blaze on Mar 28, 2016 8:26:16 GMT
the disabilities that are not visible fully are often considered lightly or less severely than the visible ones. sorry if my comment hit any nerve [br no nerve, just the assumption that all physical disabilities are visable/taken more seriously isn't accurate or helpful, and this misinformation needs highlighted every bit as the ways in which adhd is stigmatised. I am not sold on the idea that visable disablities are considered more severe/taken more seriously either. This is a huge generalisation and it will depend so much on perspectives. I very much find my physical disabilities are dismissed- i have used disabled toilets when pain is unmanagable & been snapped at by by standers about how they are for people in wheel chairs, and had the same happen when i have had my kids with me & if i explain they have spd it's accepted, explain i have hmjs/chronic pain etc they continue to berate me. Hidden physical disabilities ime recieve much poorer treatment/acceptance/understanding than nuero developmental disorders/mh problems/learning disabilities. But then thats just my experience so far. Other than v ignoranr uni professors, the odd ideot gp, and a few other ignorant comments & the likes of dm (who are seriously ignorant on many issues so i don't give them a second thought) have generally found my adhd taken seriously. So i don't think it's possible to make sweaping statements. I guess for me because i work in mh i find mh problems mostly taken seriously- but then i have worked with people who have several complex dx so i may find those who never go through the hospital system arn't treated with the same acceptance. Cancer isn't visable but taken seriously- recieves more attention than most illnesses especially when it comes to charity fund raising. Autism seems to be the recognised catch all at mo (every time my kids melt down in public passerbys say this & nod under standingly- too much hastle to explain that while a referal for pda is being consodered their main dx will likely be adhd-once cahms referal goes through- & spd) but everyone, even hcp jump straight to autism-with alot of sympathy. The number of times i have delt with huge incidents through work with police etc & you just mention schizophrenia as the dx & suddenly theres no recriminations- so i think it often depends on the condition as well, not specifically of it's visable or not.
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Post by clubby on Mar 28, 2016 9:31:03 GMT
This is the last verse of one of my favourite poems.
Burns is famous for standing up for he who is trampled by the establishment
In this poem he is aiming to demonstrate that those who consider themselves perfect are living in an illusionary world.
I think this is relevant to all of us who are in the "normal" zone of whatever condition we are discussing - sometime we need our eyes opened and eat humble pie.
Robert Burns - Address to the Unco Guid, or The Rigidly Righteous - final verse
Who made the heart, 'tis He alone
Decidedly can try us;
He knows each chord, its various tone,
Each spring, its various bias:
Then at the balance let's be mute,
We never can adjust it;
What's done we partly may compute,
But know not what's resisted.
PS I think Robert Burns had adhd (controversial I know)
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frameofmind
Member's not posted much yet
ADHD used to be my prison, now it is my best tool.
Posts: 26
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Post by frameofmind on Mar 28, 2016 10:19:55 GMT
this is amazing Ive alway believed were highly extracreative (if you allow me to use that term) and i want to use a convination of the different Creative qualities of each of you.
I want to make u guys proud.
the moto of my production company is: whether it changes or impoacts one person or a whole society we will have succeeded.
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Post by vagueandrandom on Mar 28, 2016 11:09:29 GMT
Going off topic slightly to reply to blaze . . . re: autism. . it's great that it's become accepted and is treated sympathetically. In my own experience, my mother couldn't have been more supportive and spoke to the consultant for an hour on the phone when I was being assessed for ASD. When they concluded that I have significant austistic traits, but not enough for a dx, but scored in the clinical range for ADHD, she wouldn't (and still won't) talk about it and was very resistant to filling in the observer questionnaire when I finally got my assessment. As you know, I also have eds hypermobility and I'm lucky that my pain is manageable. But people think I'm being awkward when I ask for help reaching for things, or when I was on a plane last week the crew insisted that I put my coat and bag in the overhead locker instead of under the seat, which I can't do without risking dislocating my shoulders. I look fit and healthy, I go to the gym and was made to feel like an awkward cow when I said that they'd have to put stuff in the locker for me. I then had to ask a stranger to get it out at the end of the flight (crew are at doors then)
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Post by vagueandrandom on Mar 28, 2016 11:23:28 GMT
frameofmind I come from the experimental end of the arts, so I'm always going to sway that way. . . A straight documentary would be fine, but it's really hard to describe what it's *like* in words. There's a film posted by alec77 in Videos about ADHD, which I remember has quite a lot of distracting background noises which I think are intentional and I thought that it could have been explored much more, maybe not all of the way through, but perhaps in the way that dream sequences or drug trip simulations are used in otherwise linear storylines.
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Post by contrarymary on Mar 28, 2016 11:41:36 GMT
re: autism. . it's great that it's become accepted and is treated sympathetically. when I was being assessed for ASD... they concluded that I have significant austistic traits, but not enough for a dx hello vagueandrandom staying OT for a moment... i think autism has some acceptance, but generally superficial understanding. an increasing number of people get that it's something to do with sensory issues, expect that they aren't going to understand behaviour because it's completely "other" and accept that autistic people are really different. i see that the Employable Me series is part of a wider Autism season on BBC1, and there are a number of other programmes including some pulled from the archives. i watched this Horizon documentary Living With Autism yesterday, and there's a bit in it where Uta Frith talks with Simon Baron Cohen (who was once her PhD student!) about the autism spectrum, and how it is decided whether to give someone a diagnosis or not. which might be helpful. in terms of big picture, societal level, i don't think there's much genuine acceptance of difference or integration of disability in general or of neurodiversity in particular, however *acceptable* or instantly recognisable its face. some things are moving forwards, and some things are moving backwards; but things are better than they were. it seems to take for ever, some things seem almost instant but may have been years in the making. often it's about building relationships, telling stories, getting information out there one conversation, one article, one presentation, one conference at a time. and it's great when we can be agents of change - not just fitting in with others' ideas or giving a snippet of our lives used to add colour to an article, but setting the framework of the conversation, telling our stories our ways, getting across something of our lived experience. giving myself brownie points for segue back to original topic
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Post by blaze on Mar 28, 2016 11:46:24 GMT
Going off topic slightly to reply to blaze . . . re: autism. . it's great that it's become accepted and is treated sympathetically. In my own experience, my mother couldn't have been more supportive and spoke to the consultant for an hour on the phone when I was being assessed for ASD. When they concluded that I have significant austistic traits, but not enough for a dx, but scored in the clinical range for ADHD, she wouldn't (and still won't) talk about it and was very resistant to filling in the observer questionnaire when I finally got my assessment. As you know, I also have eds hypermobility and I'm lucky that my pain is manageable. But people think I'm being awkward when I ask for help reaching for things, or when I was on a plane last week the crew insisted that I put my coat and bag in the overhead locker instead of under the seat, which I can't do without risking dislocating my shoulders. I look fit and healthy, I go to the gym and was made to feel like an awkward cow when I said that they'd have to put stuff in the locker for me. I then had to ask a stranger to get it out at the end of the flight (crew are at doors then) i agree it's great autism is more accepted these days, but i guess it's the general frustration of why not other dds- and i know it's not that simple & it takes time for knowledge to filter down but it can still be irritating. I was reading something about a campaign in scotlamd for parents of kids with autism to automaticly get blue badges- anyone can actually apply with relevant medical backing if they meet the criteria but they parents starting this obviously missed that point.....- but my first though was why just autism- why not all dds because there will be some kids with other dds who wd benefit more, or need more. Anyways, thats v off topic but just an illustration of how certain conditions get more acceptance and recognition than others, not that it's clear cut between hidden disabilities being ignored & *visable* ones understood. And i totally identify with the hypermobility problems. I have been significantly dis-abled by this in the past (bed bound, morphine& diaz etc) but in some ways it's worse when like now it is managable. I swim, lift weoghts, do advanced pilates, an hr or so of physio daily & lift heavy kids & am on my feet constantly at work- but i also take alot of meds to beable to cope with the pain, many of my joints sublax many times a day, and theres certain things i can't do- like sitting properly at a table or standing still in a que (knees lock badly) & simple things like chopping food can dislocate my fingers but it is v hard to get any understanding of that or the recognition of the effort & cost of staying fit & well in the first place. Something as simlle as a bad bug can leave me a gd six mths worth of rebuilding the stregnth i loose in a few days ill in bed. Slipping down one step, bending funny, throwing up & even sneezing have caused dislocations that require ambulance & morphine drips & i have even woken up with a dislocated jaw because of sleeping funny. Thats before all the many additional problems that lack of collegen comes with. It's a bitch. Majorly off topic op, hope you don't mind
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Post by blaze on Mar 28, 2016 11:56:12 GMT
re: autism. . it's great that it's become accepted and is treated sympathetically. when I was being assessed for ASD... they concluded that I have significant austistic traits, but not enough for a dx hello vagueandrandom staying OT for a moment... i think autism has some acceptance, but generally superficial understanding. an increasing number of people get that it's something to do with sensory issues, expect that they aren't going to understand behaviour because it's completely "other" and accept that autistic people are really different. i find a mix of guenine understandimg & just superficial acceptance - but that's from pov of my kids being under assessment for dds. I imagine that may be different for adults. There was something- and i would have thought it was here???- about gates or face book or one of those big corporatoons actively recruiting people with asd. I didn't read much of it but intresting from an intergration pov. i see that the Employable Me series is part of a wider Autism season on BBC1, and there are a number of other programmes including some pulled from the archives. i watched this Horizon documentary Living With Autism yesterday, and there's a bit in it where Uta Frith talks with Simon Baron Cohen (who was once her PhD student!) about the autism spectrum, and how it is decided whether to give someone a diagnosis or not. which might be helpful. in terms of big picture, societal level, i don't think there's much genuine acceptance of difference or integration of disability in general or of neurodiversity in particular, however *acceptable* or instantly recognisable its face. some things are moving forwards, and some things are moving backwards; but things are better than they were. it seems to take for ever, some things seem almost instant but may have been years in the making. often it's about building relationships, telling stories, getting information out there one conversation, one article, one presentation, one conference at a time. and it's great when we can be agents of change - not just fitting in with others' ideas or giving a snippet of our lives used to add colour to an article, but setting the framework of the conversation, telling our stories our ways, getting across something of our lived experience. giving myself brownie points for segue back to original topic
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