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Post by vagueandrandom on Jun 10, 2016 22:51:02 GMT
I want to give you some support, but I'm drained from my experiences today. .
i may feel better after some sleep. .
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Post by marionk on Jun 11, 2016 6:46:36 GMT
First off, don't get so bothered about their not taking the letter off the records. Think about it the other way round, especially as you are contemplating making a complaint.
You start to make a complaint about a letter, and suddenly they say "We have no record of any such letter."
Also it doesn't mean any diagnosis in one is set in stone, and although it might be all a GP could act on until you get another one, you CAN get another one.
This sounds like another case of the specialists not knowing diddly. (see vagueandrandon's diary).
If impulsivity is supposed to have magically disappeared at age 18 (like, until very recently, the rest of ADHD was supposed to) how come so many with it, have financial problems from impulse spending?
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Post by contrarymary on Jun 14, 2016 16:51:04 GMT
it's a mare, sorry to hear you're going through this.
if it's any consolation, i have all sorts of inaccurate and inappropriate crap on my medical records. some of it may be mistaken, some of it is downright wrong, other bits i wonder if the doctor and i were in the same room.
For me, they've made up pregnancies, invented non-existent family members, all sorts of opther clearly factually inaccurate stuff. no wonder they get so much other stuff wrong, like forgetting half my symptoms or putting words into my mouth.
i used to get really really really stresed about it, nowadyas i just see the GP, critique the letter and ask him to add my comments to my medical records.
tho none of that is helpful when the buggers can't seem to follow the NICE guidelines for long enough to diagnose you. there's a huge amount of crap out there.
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Post by marionk on Jun 18, 2016 9:01:43 GMT
Do you remember anything that might point to ADHD from your school days (before age 12)?
If you were fine as a child, then you almost certainly have something else. In that, if nothing else the doc is right to say that without information from that period it will be difficult to diagnose.
Some of my problems weren't at school, anyway. I remember a whole bunch of stuff, more than even my Mum is aware of, so there was no point dragging her to the psychiatrists' either.
I have my doubts that there is any point seeing a psychologist, and I'm pretty sure they can't prescribe anything.
Isn't the Maudsley nhs? If you can only get there (in reasonable time) by going privately, there may be a private specialist ADHD psychiatrist nearer to you, that will be cheaper/quicker.
Do be sure to check with your GP that they will do a shared care agreement with whoever you find before you make the appointment though.
You will almost certainly need to get a referral from your GP, so you can talk about shared care at the same time.
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