face1971
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Post by face1971 on May 11, 2017 22:07:29 GMT
Hi I just wanted to know if anyone else in Manchester has had to wait this long (5yrs). to see a specialist... I feel this is soo wrong and I really don't think I can take much more of waiting and wasting my life away...xxx
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Post by roland on May 11, 2017 23:02:16 GMT
Hi@face1971, 5 years! I'm totally shocked! Can you tell us a bit more about the circumstances then we can help figure out what's gone wrong! Oh and btw welcome to the forum
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Deleted
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Post by Deleted on May 12, 2017 5:31:58 GMT
That isnt giving me much hope, im 2/3 weeksin to clarity of this. If that isthe case it will have to be private I thin.
Im from Salford, and iv just been referred to a specialist Dr Ting I think.
He does NHS and private. Thats definitely a route I will be looking down...
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Post by Mouse on May 12, 2017 6:02:46 GMT
five years is a ridiculous length of time to have to wait to be seen on the NHS...but as to whether it is common I don't know. I am tempted to add to my list of undone projects carrying out a survey by area to find out.
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Post by stresshead75 on May 12, 2017 7:12:19 GMT
Hello, Wow 5 years!!! I'm nearly 5 months into looking for a referral in Tameside, At the moment i'm having a dual diagnosis with a drug treatment agency and they tell me that the ADHD specialist is aware of my case but thats all i know so far. This has all come on the back of a string of arguments with g.p's ,M.H. workers at Tameside hospital and my arrest in February (tbh not the best route).So if i can get Dx from all this bring it on!!!!. Hope you get seen to soon cause 5 yrs is just crazy!!!!!!!! Fingers crossed for everyone seeking a Dx or trying to find out more about themselves, hang in there !!!!!!!!! SH75
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face1971
Member's not posted much yet
Posts: 4
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Post by face1971 on May 12, 2017 14:52:54 GMT
Hi everyone
Sorry I forgot to introduce myself...hello.
Ok I had already noticed a pattern of starting and never finishing things and problems with my jobs, but when l 39 I decided to study adult nursing (I had been advised in college to have dyslexia test when I hit university)
I had my test (I already kinda knew I had dyslexia) as it turned out I had dyslexia and dyspraxia and should seek help regarding ADHD. I failed a module at this point near end of 1st year. The old panic set in and I went to my GP. There was a pilot scheme running and so he wrote to see if I could be placed on it.
The response was "no" as I was not diagnosed as a kid, and since I am at uni, its not affecting too much. Failed the 1st year and stepped off.
GP wrote again but no joy. I was by now totally convinced I had it. Tryed again at uni failed again and was now in debt. Back and forth to GP, had 4 sessions CBT, not sure why though...got referred to a psychiatrist who diagnosed with Borderline personality Disorder. That was 3yrs ago. My GP referred me to the ADHD team in early 2015 I phoned to check progress late 2016. They told me I was not on the list.. Devasted!
GP sent it again, I went completely mentally hysterical on the phone of the utter unfairness, eventually they said they would add me from start of 2015 and it could still take 2yrs. So here I am still patiently waiting while slowly going crazy and debilitating daily.
Apologies for the the long reply...and thank you for your messages... Xxx
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Post by roland on May 12, 2017 16:18:38 GMT
Hi face1971What a horrible time you've had! I think you should now give them another quick ring (enough time has gone by)and ask them for your position on the waiting list. Don't bother giving them the whole story. Just get your position on the list (or not if your referral failed again--if that has happened try & stay calm because we can help you sort it). Once you've got your answers whichever way it goes, come back to the forum. We'll help you figure out the next step and there will be some things you can do to set things right. Good luck
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face1971
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Posts: 4
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Post by face1971 on May 13, 2017 15:18:23 GMT
Hi Roland
Thank you soo. That very kind. I am going phone next week and will let you's know where I stand, but I have a funny feeling that I will be given a vague answer when I where I am on the list. We shall see...xxx
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Post by roland on May 13, 2017 16:00:44 GMT
No worries and here's to hoping you get good news but we're ready if you don't
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face1971
Member's not posted much yet
Posts: 4
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Post by face1971 on Jun 15, 2017 1:33:47 GMT
Hi all...I was on a while ago and said I would get back and let you know how I got on in regards of waiting list...sorry its taken so long, everything takes do long for me these days...my brain feels like its floating in mud...it does...I do exercise to the point of injury in trying to focus and balance everyday things, works a little, mindfulness I started months ago (Feb) its a 4 week course I am only on 2nd week...thought I would do some tonight... I wrote the heading and still sat at my dressing table 6hrs on with my head up arse...sorry...swearing makes me laugh i don't mean to offend anyone though. I phoned ADHD team for which again they got dates mixed up, so again we cleared it up, and hey the earliest I will be seen is..."drumroll"...May 2018...2011 I first went to my GP. This time waiting has definitely took its toll on me...I am too scared to study...too scared to work in case I end up in rent arrears like the last time when at university and was took to court...and still owe hundreds in arrears that when I calculated the most a person like me could earn I would be flogging a dead horse... Confidence has gone...feel I am loosing all the nice bits of me left...not even been to mass for months which is a killer...my temper and frustration has become so bad that I have almost nothing left to smash up in my flat and in the last year alone I have smashed up microwave, toaster, TV,2 mobiles, a laptop, the oven door is hanging off and numerous other stuff...my neighbours (20 yrs I have lived on this estate) think I'm a nutcase and so do i. I continually do stupid things like go to the shop and forget about the food I am cooking to come back to a blaring smoke alarm...aha.. Oh I have only 1 pan left now...a week ago went to bed and left the front door unlocked and wide open, I only realized my error when I heard a male voice the following morning saying "is there anybody home" it was parcel guy...had a laugh about on face book with friends and swore I'd be more careful then 2days later done it again...it really scares me though...you see I mean to go back and lock it but get distracted within seconds I have done things like this in the past but few and far between but they happen more regular these days...i think my brain is dying at a rapid rate...I feel ashamed I am not contributing to society but never show it and always crack on I'm grand and then I start thinking am I just lazy and Mard (in any job and there have been numerous ones, I have never ever been called lazy...but was continuously late)...I use humour to conceal things but I am even finding humour a choire now when it used to come naturally...I hope you all keep my out poring of my heart confidential as I have not even told my friends this, not that I have many left these days...I do feel had this been nipped in the bud sooner I would be in a very different place today...feel disappointed and sad...thanx for reading if you haven't nodded off already...xxx
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