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Post by Deleted on Jun 24, 2009 8:51:05 GMT
Hi I just need to get this panic off my chest We are off to OT soon. I have been told they can dx dispraxia but not sure about ADHD. Really I just want someone to say they can see where I am coming from with him. I spoke to his teacher this morning. She has told me she is worried about his hand writing. He gets letters back to front all the time and his formation of each letter is really bad. She did say his co ordination was fine in p.e. which I dont understand. Why can't he climb on the clibing frame like the others? Why can he not walk in a straight line? Why is he the only child in his class that can not ride a bike? I could go on but you can see where I am coming from. I am so frustrated by all this. He is still crying when I leave him. Surely this alone would be enough to make the teacher see that he is struggling. Well lets hope I have a sensible OT. I am sick of being told I am wrong. My older son was 8 before being diagnosed with ASD, learning difficulties and Hunters Syndrome. up until then I had been told that there was nothing wrong him and that if he had any problems it was my fault Anyway rant over, must pull my self together. Mrs M
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Post by lily on Jun 24, 2009 12:51:13 GMT
Hi Mrsmuddle
You sound like a really good mum to me. It just seems like you have so much on your plate and you deal with it really well and I dont think I could do that! I bet your sons and family really love you a lot.
I imagine when you become a parent you are very instinctive when it comes to your children. Women are anyway but I imagine even more so when it comes to your children.
I obviously have no experience in this area at all so cant offer the best advice but will give my opionion anyway because I want to try and help wherever I can.
If people start to tell you things which you really feel are not right then I would do everything in my power to make them understand. Shout, swear, beg, plead etc.! Id probably even do what I did when I went to the drs. about adhd. Take along symptoms of what you think your son is struggling with then explain everything your son struggles with and just demand help! Surely if they have facts in front of them they cant deny it?
Also that is soooo crap about your 8 year old son. Did someone actually say to you that its your fault?!
A girl I work with basically said earlier that ADHD doesnt exist. I was literally lost for words because I was so angry. Maybe if people could live like we do for a week they wouldnt be so ignorant?
Good Luck mrsmuddle im thinking about you today. sorry for the crap advice.
Lily x
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Post by Deleted on Jun 24, 2009 13:59:23 GMT
Hi Lily thanks for your response. I am a shouter/screamer/nagger when needed, its kind of my forte! Yes I was told that my older sons disabilites were my fault. I was even sent on a parenting class with a bunch of morons (harsh but true!). It mad me feel crap. My older son has had bowel incontinence on and off all his life. When he was in main stream school just before his dx they used to make me go to the school to clean him up when he had an 'accident' which was most days. One day I walked in to hear the staff say "we can't beleive she send her 8 year old son to school and he can't even clean himself up" I was also told by the senco at the same school "your son makes noises like an animal when he is stressed, I don't tknow how long we can cope with him" and his last teacher at the school tried to refuse his wheelchair in the class room as "they didn't have enough room". I could go on. I have been fighting for years for my children and I am just worn out Cheers again. Lisa
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Post by twix on Jun 24, 2009 15:59:44 GMT
I can't remember of you like hugs, but if you do then I am sending some to you. If not then you are in my thoughts anyway.
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Post by boo on Jun 24, 2009 18:55:02 GMT
hi mrsmuddle,
how did you get on?
i hope it went well
boo x
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Post by Deleted on Jun 24, 2009 19:07:56 GMT
Hi all, Thanks so much for your words of encouragement. Sometimes I feel that it is all in my head. We were there for an hour and a half! OT was very nice but you're never quite sure are you! We spoke about my sons development and what my concerns are now and then did some motor skills tests. They were aged up to 5 and he is 6 in a couple of weeks but she assured me that was OK Typically he seemed to do pretty well. Now I'm not making excuses but....He loves to entertain and be the centre of attention so he put his all in to it. On a normal day he is so distracted that his coordination is terrible. i.e. at home he can stand on one leg for about 5 seconds (he only learnt about 6 months ago) today he managed up to 18 seconds!! So I don't think it is a good over all opinion of him. OT asked him what his favourite lesson was. He said "Its all rubbish".."I get confused and writing makes me really tired"..."I hate p.e., you have to get changed and changed and changed". She is going to the school soon to watch him in p.e. and class. I guess she will speak to the teachers too About 8 week until I get the results but I'm not holding my breath. Thanks again x
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Post by Deleted on Jun 25, 2009 19:46:29 GMT
Getting the right sort of help seems to be such a gamble and an uphill battle. And the waiting....don't get me started on the waiting! It is really horrible. It's so frustrating and a worry we really can do without. Hope everything works out well.
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