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Post by andy12345 on Nov 4, 2009 14:02:38 GMT
Well,
I opened the post this morning and had a hand written envelope from the Maudsley clinic. (Modern technology eh, can't beat the quality of hand printers.......)
The most notable points.
The Maudsley 2 page Information Booklet contained a statement...
SNIP
That's all I really need to type here because I have one question?
Seeing as I have received a pre-assessment questionnaire Does/should this mean that my PCT has actually granted out of area funding for me (living in southend-on-sea) seemingly without much resistance at all?
OR... Am I getting my hopes up.....? because there is a fail in the chain somewhere, ie. my doctor might have written to them and told them that I had got funding...?
I don't think he would make that procedural error personally.....
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Post by Deleted on Nov 4, 2009 14:26:47 GMT
great stuff andy!...
certainly seems to me that they've granted funding... did they say when your appointment might be?
-matt ;D
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Post by Deleted on Nov 4, 2009 14:31:59 GMT
Last year I didn't get the questionnaires until the referral had been funded and I was officially accepted. So it sounds like you're in. Give the admin/receptionists hell, I'm sure you can manage that
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Post by andy12345 on Nov 4, 2009 15:31:09 GMT
Hell, are they the receptionists that tell people to "be patient" because if they do, I will laugh them out of their chairs.
If they tell me to calm down I will say "wwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwwhy oh whyyyyyyyyyyyyyyyy, do you think I am here, hmmmmmmmmmm.... just passing by.......needed directions.......hmmmmmm perchance?"
NOTE the adhd clinic phone hours are MON-FRI - 0930am to 1pm lol.
Are they that budgeted.. Jeez.
Well I know from when phoned them months ago about the out of area issue, that the lady said "15 weeks" so, as I have yet to submit questionnaires and consent forms for them to process and then send to my mother/people that dealt with me during childhood, that means its likely to be submission and process time of about 3weeks +christmas (2 weeks) plus 16 weeks (15 + x variable factoring) = 21 weeks.........
So, using the magic of my hypothetical abilities, I should be seen no later than..........
The 1st April......errrrrrrrr. that's a date to look forward to.
Hah, and then I can look forward to the new hell of titration, still by then should have the testosterone issue nailed well and truly and errr. to be honest, what to do next with my life, is quite a scary thought.
Now to fill in the questionnaires ........
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Post by roland on Nov 4, 2009 15:36:27 GMT
Andy this is great news ;D Now go and fill in those questionnaires!!
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Post by andy12345 on Nov 4, 2009 15:38:31 GMT
questionnaires .......er....yeah, they are right in front of me now in between the left side pile of documents and the right side pile of documents.
Hmm. I was thinking about something else... oh well better get on..
oh, I was reading emails lol.
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Post by andy12345 on Nov 4, 2009 15:54:02 GMT
I am also looking at a "BARKLEY CURRENT SCALE - SELF RATED" QUESTIONNAIRE Dare I even guess that the Maudsley is using a questionnaire from Russell Barkley? That's important, because if the Maudsley is using it, then it could set a precedent for other assessors etc..... I might as well put this here whilst I am at it. www.russellbarkley.org/adhd-facts.htm its much more detailed....... www.russellbarkley.org/adhd-research.htmwww.russellbarkley.org/adhd-courses.htm (the above link contains a link to this speech given on 25th September 2009 ----------------- Its about Deficient Emotional Self Regulation...and how its welded to adhd - his words. stream.buffalo.edu/shared/devo/CCF/Barkley/rnh.htm Its well presented and I could actually read all of the projections.... EDIT - There is a questionnaire for self rating where I am meant to evaluate myself up to age 7........how the hell can I do that when I can't really even remember much as all I was doing was playing computer games for....ever..? oh and eating.....
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Post by Deleted on Nov 4, 2009 20:46:52 GMT
Goood stuff Andy!
Just had to do all my questions again and theres a vast improvment but it wasnt down to meds alone although you could be forgiven for thinking that, as services are hard to find, in my neck of the woods anyway.
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Post by Deleted on Nov 4, 2009 23:34:11 GMT
Andy that lecture was gooooooooooood stuff, I never watched anythink like that B 4 RE: stream.buffalo.edu/shared/devo/CCF/Barkley/rnh.htmOnly prob is if Id watched that when first dx would have scared the pants out of me it's like the odds are stacked so high against you with no support. Am talking from experience very overwelming stuff like that when just found out. I mean we need and want to know all that but I think there should be more good stuff about and there just isnt. Not to say this sight aint great but just think there should be more. Also everythink I have found has been by chance, its just not right, anyway well done with the maudsley.
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Post by andy12345 on Nov 5, 2009 19:24:14 GMT
It's good to see vids like this. This one certainly made a lot of sense to me as an unDX
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Post by andy12345 on Nov 5, 2009 19:27:52 GMT
Oops, forgot to phone them today........Actually, I woke up at 2pm and they were closed but I had forgotten anyway. I really need to use my whitetack+note on side of monitor trick more often......
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