Post by Lame44 on Sept 25, 2011 19:00:26 GMT
I know some of you know I keep falling down and most of it is put down to my Menieres Disease (ear condition). Well a few weeks ago I keep going to the loo loads and went to my docs because I felt dizzy again and he checked my wee n said it was fine. He also told me that I had too many red blood cells and that they were higher than a normal mans should be and he'd write to the Endo at the gender clinic to see what he suggests! He also told me that it has been too high for over 18 months. Nice to know isnt it!
Anyway later on that night I popped out to post a letter and I collapsed next to the road I waited til i could see and wasn't too dizzy n got up and carried on walking, I took the dog too. But I feel down again n ended up going to A and E who just said I have white blood cells in my wee n that it was probably an infection. They also told me that I have too many red blood cells aswel and sent me home with anti-biotics.
I took the anti-biotics but on the last day of taking them I kept weeing loads again and getting back pains, I collapsed again n we called the NHS out of hours who got me an appointment with a out of hours GP at the hospital. I kept getting this pain in the top of my stomach when I fell down and also I kept having these really bad itching attacks and my chest gets these pains. My Mam also came to see the ou of hours GP as this keeps happening n they dont help me. She asked him why, if I had too many red blood cells which can make me have a stroke didn't they have me in and take one or twp pints of blood out of me just to releive some of my symptoms.
The doctor went ballistic having ago at my Mam saying she was black mailing him. He told her to get out of the room and everything. Then he was too interested in fixing a blood sugar machine that was busted even though he had already found a working one n done my blood sugars which were six something which is good for me. Anyway he then told my girflriend she was blackmailing him even though she hadn't opened her mouth and he told her to get out.
I told him no, she isn't going and while he was busy accusing people of blackmailing him, just for asking a question I popped my i-phone recorder on and recorded him. Not sure if he saw or not but I wasn't hiding it and he said 'tell her she can come back in if she wants' pointing to my Mam outside the door who was very upset by him.
Anyway he did my BP and it was a bit high n I explained whats been happening n in the end he said he would send me to A and E because of the chest pains aswel. So he wrote a quick note n sent me round to the A and E section.
I saw the triage about half hour after seeing that other GP and she did my blood sugars too and they were going too low. She told me to make sure I drink my drink Ihad got from the machine and they got me a cubicle after a few minutes.
They did an ECG and compared it to my other abonormal ones but there wasn't any change from the last time I fell down so that was good. Then this other hospital doctor came and he was ever so nice to be honest.
He said it could be the hormones making me have too many red blood cells which are giving me the symptomes I am having but he said it also could be that they are messing with my cushiniod gland which would cause cushins disease. I've been tested a few times for the opposite which is Addisons and was tested for Cushings about six years ago before I started male hormones but it was ok then.
Anyway he kept me in and said he didn't care if anyone gave him a bollocking because he wasn;t going to be there for much longer Anyway they kept me in did some blood n a chest x-ray n the next morning they tested my water. They said I had white blood cells coming out n that it was probably an infection.
I asked how come because I had taken anti-biotics until the night I was taken in because I was told I had a water infection then so it cant be still there. They said the lab results of the water test they had from the week before showed no growth which meant there wasn't a infection.
Anyway they sent me home with more anti-biotics and then I saw my GP because while in the discharge lounge of the hosp I suddenly went really badly weird, I burnt up and everything spun for a few seconds. The nurses must have seen because they came rushing over n one got a fan and put on next to me n asked if I had discharged myself.
I said no, the doctors are sending me home despite this keep happening. Anyway since then I got thrush because of the anti-biotics but didn't realise. I had to see another out of hours GP because I kept having stomach pains and weeing loads again too and he tested my water n said I had white blood cells coming out again. Now since the second lot of anti-biotics my GP said there was no growth again from my urine the hospital took.
The out of hours said I have an infection below because of the thrush and gave me even more anti-biotics. He said the white blood cells in my wee are probably not from an infection though so he told me to see my GP again.
I did so and my GP said that I've had other things different to white blood cells show up in my water twice before so I might have to have a camera up my wee tube Anyway I'm still waiting for letters to get back to my GP regarding my too many red cells and about these white blood cells I keep pissing out. The hospital did tell me they had asked my GP to send me to a local Endo so I could be seen urgently because of the symptoms and signs of cushings disease too but of course that isn't happening either.
So all this time they've been telling me it's eithe rmy ears or that I'm mad n need to see a psychiatrist because there is nothing else wrong and there has been! I'm really angry n annoyed because they know I see a psych and psychologist too who have told them I'm not mad at all and they need to help me but it has just gone over their heads.
One nurse at the hospital said my cortisol levels were too high too but I wasn't told anything about it so both me n my gf questioned her some more and asked if she had it right n she said yes it was my cortisol levels that are too high too. That is another sign of Cushings disease. They also gave me a copy of a letter they would send my gp and guess what else they missed out, that my blood sugars were playing up and that my cortisol levels are too high. No wonder he wont help me, because they cant communicate to each other properly it seems and it's starting to annoy me.
I've had to take each day as it comes now and I kinda give up because I've even listened to them telling me before now it must be me being stressed out or going mad, I made myself believe it abd ignored things aswel for a time thinking it must have all been in my head but n ope, it wasn't, it hasn't been but my GP still wont help as much because he still doesn't get the right info and still wont refer me to another local Endo. I had trouble with one before who sent me home very ill saying that he could see I was ill but wouldnt do any tests on me or help me in anyway. Some of you might remember he then lied to my GP and told him that he did infact offer to help me and I refused. You might also remember that when I went back to see that Endo I recorded him too, and his excuse for telling me he wouldn't help me but telling my GP he said he would, which was 'he didn't mean' what he wrote to my GP 'like that'!
GP has spoken to him about having this cam up inside my weetube but about nothing else. So half the time I feel I'll be dead before they help me, half the time I'm thinking I must fight to get this sorted properly, but for now I'm just waiting to see what, if anything will happen. Anyway, thats my update I guess, as I havent been on for a fair while because of this. Hope everyone here is doing better than me anyway!
Anyway later on that night I popped out to post a letter and I collapsed next to the road I waited til i could see and wasn't too dizzy n got up and carried on walking, I took the dog too. But I feel down again n ended up going to A and E who just said I have white blood cells in my wee n that it was probably an infection. They also told me that I have too many red blood cells aswel and sent me home with anti-biotics.
I took the anti-biotics but on the last day of taking them I kept weeing loads again and getting back pains, I collapsed again n we called the NHS out of hours who got me an appointment with a out of hours GP at the hospital. I kept getting this pain in the top of my stomach when I fell down and also I kept having these really bad itching attacks and my chest gets these pains. My Mam also came to see the ou of hours GP as this keeps happening n they dont help me. She asked him why, if I had too many red blood cells which can make me have a stroke didn't they have me in and take one or twp pints of blood out of me just to releive some of my symptoms.
The doctor went ballistic having ago at my Mam saying she was black mailing him. He told her to get out of the room and everything. Then he was too interested in fixing a blood sugar machine that was busted even though he had already found a working one n done my blood sugars which were six something which is good for me. Anyway he then told my girflriend she was blackmailing him even though she hadn't opened her mouth and he told her to get out.
I told him no, she isn't going and while he was busy accusing people of blackmailing him, just for asking a question I popped my i-phone recorder on and recorded him. Not sure if he saw or not but I wasn't hiding it and he said 'tell her she can come back in if she wants' pointing to my Mam outside the door who was very upset by him.
Anyway he did my BP and it was a bit high n I explained whats been happening n in the end he said he would send me to A and E because of the chest pains aswel. So he wrote a quick note n sent me round to the A and E section.
I saw the triage about half hour after seeing that other GP and she did my blood sugars too and they were going too low. She told me to make sure I drink my drink Ihad got from the machine and they got me a cubicle after a few minutes.
They did an ECG and compared it to my other abonormal ones but there wasn't any change from the last time I fell down so that was good. Then this other hospital doctor came and he was ever so nice to be honest.
He said it could be the hormones making me have too many red blood cells which are giving me the symptomes I am having but he said it also could be that they are messing with my cushiniod gland which would cause cushins disease. I've been tested a few times for the opposite which is Addisons and was tested for Cushings about six years ago before I started male hormones but it was ok then.
Anyway he kept me in and said he didn't care if anyone gave him a bollocking because he wasn;t going to be there for much longer Anyway they kept me in did some blood n a chest x-ray n the next morning they tested my water. They said I had white blood cells coming out n that it was probably an infection.
I asked how come because I had taken anti-biotics until the night I was taken in because I was told I had a water infection then so it cant be still there. They said the lab results of the water test they had from the week before showed no growth which meant there wasn't a infection.
Anyway they sent me home with more anti-biotics and then I saw my GP because while in the discharge lounge of the hosp I suddenly went really badly weird, I burnt up and everything spun for a few seconds. The nurses must have seen because they came rushing over n one got a fan and put on next to me n asked if I had discharged myself.
I said no, the doctors are sending me home despite this keep happening. Anyway since then I got thrush because of the anti-biotics but didn't realise. I had to see another out of hours GP because I kept having stomach pains and weeing loads again too and he tested my water n said I had white blood cells coming out again. Now since the second lot of anti-biotics my GP said there was no growth again from my urine the hospital took.
The out of hours said I have an infection below because of the thrush and gave me even more anti-biotics. He said the white blood cells in my wee are probably not from an infection though so he told me to see my GP again.
I did so and my GP said that I've had other things different to white blood cells show up in my water twice before so I might have to have a camera up my wee tube Anyway I'm still waiting for letters to get back to my GP regarding my too many red cells and about these white blood cells I keep pissing out. The hospital did tell me they had asked my GP to send me to a local Endo so I could be seen urgently because of the symptoms and signs of cushings disease too but of course that isn't happening either.
So all this time they've been telling me it's eithe rmy ears or that I'm mad n need to see a psychiatrist because there is nothing else wrong and there has been! I'm really angry n annoyed because they know I see a psych and psychologist too who have told them I'm not mad at all and they need to help me but it has just gone over their heads.
One nurse at the hospital said my cortisol levels were too high too but I wasn't told anything about it so both me n my gf questioned her some more and asked if she had it right n she said yes it was my cortisol levels that are too high too. That is another sign of Cushings disease. They also gave me a copy of a letter they would send my gp and guess what else they missed out, that my blood sugars were playing up and that my cortisol levels are too high. No wonder he wont help me, because they cant communicate to each other properly it seems and it's starting to annoy me.
I've had to take each day as it comes now and I kinda give up because I've even listened to them telling me before now it must be me being stressed out or going mad, I made myself believe it abd ignored things aswel for a time thinking it must have all been in my head but n ope, it wasn't, it hasn't been but my GP still wont help as much because he still doesn't get the right info and still wont refer me to another local Endo. I had trouble with one before who sent me home very ill saying that he could see I was ill but wouldnt do any tests on me or help me in anyway. Some of you might remember he then lied to my GP and told him that he did infact offer to help me and I refused. You might also remember that when I went back to see that Endo I recorded him too, and his excuse for telling me he wouldn't help me but telling my GP he said he would, which was 'he didn't mean' what he wrote to my GP 'like that'!
GP has spoken to him about having this cam up inside my weetube but about nothing else. So half the time I feel I'll be dead before they help me, half the time I'm thinking I must fight to get this sorted properly, but for now I'm just waiting to see what, if anything will happen. Anyway, thats my update I guess, as I havent been on for a fair while because of this. Hope everyone here is doing better than me anyway!