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Post by Oxymoran on Jul 5, 2012 21:35:57 GMT
This seems such a negative response ....feeling upset ....have no experience of being on forums ....this was my first time ...oh well .....
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Post by OxymoronSs on Jul 5, 2012 21:41:01 GMT
Hard to get around this site any way not very visually friendly ... Fed up
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Deleted
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Post by Deleted on Jul 5, 2012 21:42:21 GMT
Chill, oxy - you've got ADHD, we've got ADHD, it's not always sunshine, roses and happy talk. But at least you should feel at home!
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Post by cleverliteral on Jul 5, 2012 21:52:41 GMT
It's ALWAYS not sunshine, roses and happy talk. :-) It's a torture.
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Post by Deleted on Jul 5, 2012 22:24:34 GMT
Welcome to the internet - if you can make it better then please get on with it.
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Post by odat on Jul 5, 2012 22:58:36 GMT
Your first post on the forum was about wanting to review the ADHD talks. C'mon surely it's not hard to see why people would be suspicious of posts like that? For what it's worth, is the other one where people join us 'just to tell us about this amazing new product/ service etc' they've heard about.
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Post by Deleted on Jul 6, 2012 9:04:49 GMT
Your first post on the forum was about wanting to review the ADHD talks. C'mon surely it's not hard to see why people would be suspicious of posts like that? For what it's worth, is the other one where people join us 'just to tell us about this amazing new product/ service etc' they've heard about. Well put. I spend far too much of my time binning first posts by spammers.
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Post by odat on Jul 6, 2012 11:24:30 GMT
Thanks Oxy refers to a 'season ticket.' I am fairly sure the season ticket was not showing as an option the June event and the ticket definitely wasn't mentioned at the June talk because I was there. 'Nough said really!
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Post by Deleted on Jul 12, 2012 23:32:29 GMT
I didn't go to the talk but have been to a lot of the, now deceased, sunday support groups - have moved out of London so much more difficult to get there. Have been to other Simply Wellbeing organised talks and they were very good. It isn't free to set these things up and there is definitely a gap in the market for it, a gap in the host of ADHD related material. Lovely as the coffee shop group in London was, I found the background noise far too distracting and prefer the more structured, although not too structured, approach of the support group and lectures.
If you don't like it, don't go. Seems pretty miserable just to criticise its existence.
CleverLiteral, stop trying to define everybody else's ADHD experience for them.
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Post by odat on Jul 13, 2012 7:58:25 GMT
TIP - Don't fuel the flame As for the SWB, my main criticism about the SWB groups now is that twice we've had people usually posting without a forum ID at first seemingly coming here to give positive reviews about the group. That's just fishy and I hope they'll stop it.
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Post by Deleted on Jul 15, 2012 8:18:54 GMT
Not really too fussed about fueling the flame or not, just pretty miffed by the objectionable approach that if something doesn't fit a personalised view of ADHD resource, then it shouldn't be done at all. Also object to view that any positive perspective of ADHD is incorrect.
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jdog
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Post by jdog on Jul 15, 2012 12:11:37 GMT
Trouble - I agree. Sometimes a response needs to be made.
1 - Everybody's experience of ADD seems to be similar but ultimately different through unique life circumstances. the Venting Section is great because a poster can rant and rave about shit going on in there lives. But it does get a bit frustrating when the black dog barks in the middle of a post about something more interesting.
2 - I have been lightly involved with 2 other forums, both job/profession related so not support or self help related. Only registered users are allowed to make posts so no guests. This is because a - the site owners have the details and can prevent or sanction against multiple spammers or trolls and b - the forums are more self controlling with members shooting down the worst excesses. It doesn't mean they have to be closed from view although there are private groups. Keeping the email details also means that anything litigious can be passed on for somebody else to be sued. Just a thought
BIG HAND to Planet Dave as I bet you deal with a load of junk and put a lot of effort into keeping the site free from Spam etc. It is appreciated.
3 - Simply well being might be interesting to go and look into. Bit sceptical about the messianic zeal of some of the posts, which are more off putting than constructive.
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Post by zestyut on Jul 19, 2012 22:50:28 GMT
I think i have logged on. When i saw this chatroom thing, it just said reply at the bottom, so i did. Theres was nothing about having to register as a member. Now, you see, here's another paradox, i am too trusting and have been screwed over a few times, because of it, but i do have a few ADHD friends (not anymore) who have gone in the other direction, and totally cynical and untrusting.
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Deleted
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Post by Deleted on Jul 19, 2012 22:59:51 GMT
Hello
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Post by Deleted on Jul 20, 2012 7:58:35 GMT
Hello Dr Bose.
Your lack of payment from simply wellbeing for your talk (that people had paid to go and see) just confirms what a profit driven organisation it is.
Nice first post though, and welcome.
John
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Post by zestyut on Jul 20, 2012 11:29:24 GMT
I didn't expect payment when i was asked to give a talk, I only found out people had to pay to go to my talk, when Andrew sent me the flyer, he was going to send out about my talk. When i found out people had to pay, should i have then said i didn't want to give the talk, i don't think that would have been a good idea, because everyone who has given me feedback on it, said it was a good lecture and it helped them in some way.
Let me give you a scenario, say there is some ruthless businessman (he doesn't have ADHD), and he has a plan, the result of which is twofold, that every doctor in this country understands and knows how diagnose adult ADHD, and secondly he makes a million pounds. Lets so that nobody suffers in him making his million, (it goes on the tax-burden), should we deny him making his million, for the good of 3% of the adult population.
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Deleted
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Post by Deleted on Jul 20, 2012 13:19:23 GMT
You need to factor in the fact he's making the million out of the ADHDers to make the analogy fair. Then it comes down to costs, benefits, efficiency and choice. Oh, and ethics, I guess, if he engages in profiteering...
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Post by odat on Jul 20, 2012 15:30:17 GMT
I didn't expect payment when i was asked to give a talk, I only found out people had to pay to go to my talk, when Andrew sent me the flyer, he was going to send out about my talk. When i found out people had to pay, should i have then said i didn't want to give the talk, i don't think that would have been a good idea, because everyone who has given me feedback on it, said it was a good lecture and it helped them in some way. Let me give you a scenario, say there is some ruthless businessman (he doesn't have ADHD), and he has a plan, the result of which is twofold, that every doctor in this country understands and knows how diagnose adult ADHD, and secondly he makes a million pounds. Lets so that nobody suffers in him making his million, (it goes on the tax-burden), should we deny him making his million, for the good of 3% of the adult population. It's not possible noone is going to suffer because the government would have a serious crackdown and it'd probably be even harder for us to get meds then than it is now. Apart from that, you also have to find a way for GPs (and society for that matter) to lose their skepticism about adult ADHD. Ps. It's pretty bad you weren't told that we'd paid to attend. Maybe you're just too non-commercial Dr Bose
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Post by zestyut on Jul 20, 2012 22:24:35 GMT
I don't want to think about this one too much because it will give me a headache. I gave the same talk that i give the medical students, and they get it for free, not only that but half of them don't turn up.
I felt a bit of pressure when the thought came into my head "is this talk going to be worth £20" and Andrew had never heard me talk before, so he had no idea what i would be like. I would work with Andrew again for free, because my main aim is to get people talking about adult ADHD and if it wasn't for me giving that talk i wouldn't be on this forum now.
One of my patients who i had diagnosed with ADHD at 45, and who is doing quite well on the meds, came into my out-patient clinic waving the flyer, saying how disgusting it was that i should charge for talking about adult ADHD. I told him i wasn't making a penny out of it, and his reply was "and you won't be making a penny out of me". I didn't have a response to that.
Another way of looking at it, is that it is a free country, and you can choose to go the talk or not. I understand that a lot of people would never be able to pay £20 for a talk, but a lot of things, unfortunately work that way, you pay more money you get better healthcare, better education etc. I think £20 to hear me talk is a real gamble and i am really blown over so many people attended.
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Deleted
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Post by Deleted on Jul 20, 2012 23:11:36 GMT
You do realise we're not having a go at you, don't you? We're not. Stay. Enjoy the forum chat.
Let's let this thread go. It's all been said.
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Post by odat on Jul 21, 2012 8:06:49 GMT
Dr Bose - I back up what Ooohshiny said. We aren't having a go at you at all. Only one person tried to criticise you and he wasn't even there, and many of us don't seem to be 'ADHD enough' for him I also agree with you about people having a choice to be there or not, and I said the same thing much earlier on in the discussion.
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jdog
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Post by jdog on Jul 21, 2012 11:13:33 GMT
I agree with Ooh Shiny and Odat.
Planet Dave - Can you lock this thread and lets start a really positive one about how much Dr Bose has to offer to the site and bring him on board with a huge welcome and some lessons stored for the future about commercial interests.
Cheers
J
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yasmin
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Post by yasmin on Jul 24, 2012 17:02:47 GMT
Hi how r u all? i have not been on here for ages.. wow i never thought this thread would get this long..
I never got to tell you guys about the talk. I managed to go and i have to say i was pleasantly surprised. it was quite short, it could have been longer but I really enjoyed the doctor who gave the talk. He was engaging and i never knew he had adhd. There are quite alot of things i did not know about adhd personality types that was useful to me.
my only critisism is that i would rather the speaker have more time rather than the introduction by the coach and the breaks. Just when we were getting into the topic it stopped and longer q&a would be nice
But all in all i liked it and was glad i went. I want to go to the one on Thursday but i just want the nutrition talk.
Anyone going?
from my samsung galaxy note
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yasmin
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Post by yasmin on Jul 26, 2012 11:23:43 GMT
Darn it. Odat I wish I did not book it before seeing you comment. I've booked the ticket last night when no one replied. I also prefer natural food rather than supplements. Ahhhhh
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