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Post by manson88 on May 15, 2013 20:40:25 GMT
Anyone any advice for me tomorrow is DX day I wanna get the best possible out come hopefully tomorrow night I will be popping the cork on the champagne!! Sent from my GT-I9300 using proboards
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Post by Kathymel on May 15, 2013 22:04:26 GMT
Have you got notes on what you want to say in case you freeze up and forget? If so, go for it and good luck!
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Post by Deleted on May 16, 2013 0:19:18 GMT
Fingers crossed for you manson
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Post by Notlonelyinacrowdnow on May 16, 2013 5:53:58 GMT
Goodluck xx
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Post by manson88 on May 16, 2013 6:02:56 GMT
I'm shattered haven't slept, I have employment support coming to work to do an assessment as well Thanks folks just hopefully I will get the best possible out Sent from my GT-I9300 using proboards
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Post by JJ on May 19, 2013 21:33:17 GMT
How did you get on with your diagnosis?
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Post by manson88 on May 20, 2013 6:48:06 GMT
Had a good old chat with the pyshc. She was very understanding, told she can't fix all the issues. But confirmed that I had dysprixia, dyslexia & Adhd/inattention. (I also have general anxiety disorder & social anxiety disorder)
I said that out of all the conditions the Adhd was the one causing the most problems as it was getting me into trouble at work & home losing things & not carrying the tasks through properly.
Anyway tomorrow I have the psychiatrist I'm sure this will be fun just maybe this will be the day he will write me that perscription we all desire!!
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Post by Kathymel on May 20, 2013 13:45:26 GMT
Fabulous that you got the diagnosis you wanted - plus a few bonus ones too. Could that be considered a full house, do you think?
Fingers crossed you get a prescription today. Keep us posted. x
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Post by manson88 on May 20, 2013 15:47:12 GMT
Oh tomorrow can't come soon enough lol:-*
Here's me hoping that it not be a false dawn cause I have been through the cbt & receiving on going consoling cause under nice guide lines no72 perscription is how they treat it.
I had to make a complaint about the psychiatrist cause it's took a year of lip service & note taking to get this far I went to the patient's council and raised the issue, this will be the first I have made contact with him since I put the complaint in. The patients council are ment to contact me this week to tell me the outcome is.
So I think let's fight the system take them on cause I'm a paying customer!! I have paid into the pot just like you guys from I could work & put up with the symptoms. Until one day I woke up in a low mood & decided to do some thing about it.
Looks like a sleepless night for me lol:P Sent from my GT-I9300 using proboards
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Post by manson88 on May 20, 2013 20:08:49 GMT
Okay I might as well explain in 1982 was DX with cerbel paulsy. (age7) Was in the remedial class in school was just slower than everyone else can remember playing with a box of motors while the teacher took the rest of the class cause I couldn't keep up. Had problems doing my shoe laces school tie buttons on my trousers etc. Had a speech defect as well. Was just always behind everyone my age. Anyhow was always aware that there was something I thought it was just dyslexia, so started to research on the Web went to my gp first asked him could he do anything. Cause I was getting in trouble at work making mistakes & this was causing crippling anxiety as I was afraid of getting paid off. Was told no cause I was out of the school system. So I had to go private. Was DX with server dyslexia.(2010 age 35) But I didn't realise at the time the cormorbidity of the other conditions. I'm sorry at the time I didn't get a multi sensory test done ie tested for * Dyslexia Dysprixia Dysphasia Autism Asbugers Adhd Anxiety disorders The problem with theses conditions is that if you have one you could maybe have two or a mix of them all. A long with anxiety. Cause Alot of the conditions over lap. It would have saved me a pile of time & energy. It would if ment who ever had done the test would send the results to my gp he would if then sent me on a psycharictist with the findings. Now it looks like I have the following ; Dyslexia Dysprixia Adhd/inattention General anxiety disorder/social Depression Just hopefully tomorrow I'm going to the psychiatrist & maybe he will give me that wee script ;D.. That wee script not gonna cure me but it will make all areas of my life better it could well improve my general zest for life cause at the minute it doesn't exist. I'm living from appointment to appointment thinking the next appointment gonna be the one were I will be told you have this & we are going to give you this!!! Speak tomorrow folks champagne still on ice ;D Sent from my GT-I9300 using proboards
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Post by Deleted on May 20, 2013 23:48:09 GMT
You have really been through a lot haven't you manson. I really hope you get your prescription tomorrow - am rooting for you. I so know what it's like to live from one appointment to the next. Lets hope they get it right tomorrow. Sending my very best wishes to you x
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Post by Notlonelyinacrowdnow on May 21, 2013 6:18:18 GMT
GOODLUCK for today xx
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Post by JJ on May 21, 2013 19:21:58 GMT
Did you get your prescription?
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Post by manson88 on May 21, 2013 20:05:33 GMT
DX day er may not be this century lol Well it wasn't all bad, it was a bit awkward cause I had made a complaint about the psychiatrist who is treating my case.But in saying that it has made a difference it's earned me some respect. He has confirmed that I have Adhd/inattention tendencies has said they don't DX adults but it's coming more common. Also they don't normally write the perscription for adult ADD as it's controlled substance and the issue with blood pressure/the after care ect. (i never said that I knew how they treat it but under NICE guide lines it clearly states how it's treated.) Cause I live in northern Ireland it's different he said that there's no Adhd centre or proper specialist here. So the outcome of today rounded up like this he's gonna send me for a brain scan cause in 1982 I was DX cerbel paulsy (brain injury at birth) I'm not bothered about this but it will mean that I get proper closure ie. what conditions I do have cause I always knew I had a neurological condition of some sort. Cause a scan will show every thing on the brain function I think it's a fair thing for him to do. He wants to see my mum, and my school reports. He has requested me to come back in 4 months cause there's a waiting list for the scan. To me that's the only downside to today's meeting another number of months spent waiting. Doh!!! Sent from my GT-I9300 using proboards
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Post by JJ on May 21, 2013 20:11:03 GMT
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Post by manson88 on May 21, 2013 20:18:27 GMT
Maybe I get the euro millions up to night lol;D could jump the queue then!!
It wouldn't change much still wake up in the morning I would still have my issues!! There would be a whole lot like me!!
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Post by Kathymel on May 21, 2013 21:43:33 GMT
I would be growling after that. N.I. still counts as UK, so should have the same treatment guidelines and options as anywhere else. This means adults ARE diagnosed with ADHD and they ARE prescribed controlled drugs.
The scan sounds like a good plan though. I'd love to have someone scan my brain just to know if they can see any difference from NTs.
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Post by jan on May 22, 2013 8:04:24 GMT
oooh 4 months !!! what a bummer that would have done my head in!!! you seem to have taken it well and accepted it ,well done you. if nothing else the system works to help us practice our patience eh you just need to find something to hyper focus on now so that time will fly xx
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Post by Deleted on May 22, 2013 9:13:38 GMT
I would be growling after that. N.I. still counts as UK, so should have the same treatment guidelines and options as anywhere else. This means adults ARE diagnosed with ADHD and they ARE prescribed controlled drugs. The scan sounds like a good plan though. I'd love to have someone scan my brain just to know if they can see any difference from NTs. Where to start...... N.I. is particularly badly catered for for ADHD services and NICE isn't recognised in all territories - eg Scotland has its own version. If you are a resident of a difficult area then some tangential thinking and grit might be required - if in N.I. then maybe asking to be diagnosed in Dublin - it's not a standard procedure but the chances of being sent to 'the mainland' on an out of area referral is pretty slim since they are scared of being stuck with the travel expenses. We used to have a regular N.I. poster who resorted to a private diagnosis in England and a shared care with their local GP - obviously not something open to all/convenient to administer. On the scan front - scanning technology is getting good enough to see differences in ADHD brain structure though it's still experimental/cutting edge. A couple of days ago I read an article about diagnosing ADHD by an eye test Taken from Medscape SAN FRANCISCO — Examining the retina may aid in the diagnosis of attention-deficit/hyperactivity disorder (ADHD), new research suggests.
A small study by investigators at Albert-Ludwigs University of Freiburg, Germany, showed that patients with ADHD displayed significantly elevated "background noise" on a pattern electroretinogram (PERG) compared with their healthy peers.
Altered visual signal processing may be a "neuronal correlate for ADHD," study presenter Emanuel Bubl, MD, told Medscape Medical News. "If we can replicate this finding, it would be of great clinical importance because it would be an objective marker of ADHD."
Dr. Bubl presented the study here at the American Psychiatric Association's 2013 Annual Meeting.
PERG — which is a kin to an electrocardiogram of the retina — provides an electrophysiologic measurement of the activity of the retinal ganglion cells.
"This technique is an easy-to-apply and already well-established instrument in ophthalmology. With adaption, it could be widely used," Dr. Bubl said.
Inattention and distractability are core symptoms of ADHD, but a "clearcut neuronal correlate is missing. Any attempt to find objective markers of ADHD would be very helpful in this context," Dr. Bubl said.
Dr. Bubl and colleagues used PERG to measure the response of the retina to a checkerboard visual stimuli in 20 patients with ADHD and 20 healthy control participants.
"An elevated neuronal noise or background firing has been proposed as an underlining pathophysiological mechanism and treatment target. We found evidence for an early alteration in visual perception or signal transmission in patients with ADHD, with significantly elevated neuronal noise (P < .014)," said Dr. Bubl. In particular, neuronal noise significantly correlated with inattention, as measured with the Conners' Adult ADHD Rating Scale.
"The results might explain why patients with ADHD are easily distracted," Dr. Bubl added.
With more study, the results could have potentially important clinical implications. "With ADHD, there is a debate about the existence of the disease on the one hand and a growing concern about overdiagnosing ADHD and prescription of medication on the other," he said.
With PERG, the diagnosis of ADHD could be "objectified by measurable signals, and this would be dramatically helpful in the controversial public discussion." Use of PERG might also help in determining the effects of methylphenidate or psychotherapy on ADHD.
The authors report no relevant financial relationships.
The American Psychiatric Association's 2013 Annual Meeting. Abstract SCR02-2. Presented May 18, 2013.
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Post by simonwgill on May 22, 2013 12:39:23 GMT
With PERG, the diagnosis of ADHD could be "objectified by measurable signals, and this would be dramatically helpful in the controversial public discussion." Use of PERG might also help in determining the effects of methylphenidate or psychotherapy on ADHD. Now *that* is interesting news. Any idea on how long discoveries like this take to become useful from the "ooh, this is cool" stage?
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Post by manson88 on May 22, 2013 12:54:35 GMT
Yo plantdave your not far off the mark there cause I have issues with back round noise & visual perception (dysprixia). I'm on my lunch I will be back on later. #lovetheforum
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Post by manson88 on May 22, 2013 21:31:54 GMT
I wouldn't say that I'm not bothered I got more than I expected.It was a bit awkward anyway cause I had raised an issue with the patient's council about the psychiatrist who is treating my case. (for just note taking & lip service) But he did conduct the appointment in a different manner & commented on my complaint. I personally think he's one of those psychiatrist's who believes there is no condition as Adhd/inattention in adults & he's only treating me because he has too. Furthermore I'm convinced that I'm only getting the brain scan cause there was a DX of cerbel paulsy when I was 7. It will only prove that there's an issue there of some sort ie. cerbel paulsy/dyslexia/dysprixia/Adhd/anxiety. In some respect he's doing the right thing but the issue that I have is the amount of time its taken. I have referred for the waiting list for the scan, that will be 3 months then back the psychiatrist a month after that so it's gonna be September before I'm back with him. In mean time he's looking a chat with my mum and wants to see a few school reports. He did give me a whole load of nonsense on Adhd adult treatment in northern Ireland is new & the way they treat it is with stims. Also said that they are very hit & miss, but they don't like prescribing them cause of the after care blood pressure and ecg ect. www.dhsspsni.gov.uk/hsc_18-09_cg72.pdfNhs guide lines for treatment of Adhd in northern Ireland But he doesn't seem to think I think getting onto that medication would make difference to the quality of life. What I'm doing next, I'm thinking of going back to the patient's council, I'm seriously thinking of asking to get a meeting with the trust area manager of mental health & disability services. To more or less to tell him his services suck lol!! What I want to put forward is that if they can't treat or don't want to treat me could they at least send me out of trust to another region were they may have experience or the interest to do so these are my feelings. Sent from my GT-I9300 using proboards
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Post by Deleted on May 23, 2013 21:31:01 GMT
@manson looks like you are going to have to keep chipping away at it like me! How hard can it be to get a piece of paper saying Ritalin or something similar on it?? Very apparently. As you say - chin up x
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Post by manson88 on May 24, 2013 4:54:52 GMT
Ah frig! Some plunker thought it would be a good idea to drop my chlorpromazine from 25mg to 12.5mg, couldn't get to sleep now can't stay asleep doh I'm not even on the retlain !!
I'm just about to start fight the system pyshc has said that he is willing to DX but doesn't want to treat me.
If you had acne you would get cream or tablets for it wouldn't you? Why should we be any different?
Anyone read the link above phoned the dhss yesterday they said that directive is still current. But they can get out of it under some circumstances.
What I'm doing next, gonna find out how long I should be waiting on a brain scan from the patient's council. Then may request a meeting with the trust area manager to discuss a fair way forward. I'm nobody's fool.
#lovetheforum
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Post by Kathymel on May 24, 2013 7:58:30 GMT
If you had acne you would get cream or tablets for it wouldn't you? Why should we be any different? You're right, but because so many of us have to get diagnosed out-of-area, we are sharing money from the same limited pot as that for cancer sufferers etc. If we are refused, we can either back down or decide to fight, at which point we run the risk of looking uncaring and selfish. It's unfair that this happens - the playing field is so uneven. If we were being diagnosed locally, the money would be coming from the same pot as the acne sufferers, the depressed and the broken legged. Anyone read the link above phoned the dhss yesterday they said that directive is still current. But they can get out of it under some circumstances. Did they detail what those circumstances were? Me too!
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Post by JJ on May 24, 2013 8:03:08 GMT
Ah frig! Some plunker thought it would be a good idea to drop my chlorpromazine from 25mg to 12.5mg Hi mason, I'm not a dr and all I know is what I've learned from the net over the last few years but it looks like chlorpromazine is a drug that lowers dopamine - and given that ADHD means not having enough dopamine in the first place, this drug won't be helping yr ADHD. Says on net that has to be come off slowly cos of side effects. Not sure if this info helps in any way but thought I would point out to you cos least it explains possibly why they've just dropped your dose. Good luck with your fights xx
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Post by manson88 on May 24, 2013 20:24:06 GMT
Kathmel, I'm gonna request a meeting with the trust area managers to discuss the options I don't think it's fair really at all because it's by chance I'm in a different trust area. There's adults with similar symptoms 25mile away from me in Belfast in a different trust under a different doctor getting there prescriptions. #noton JJ I was put on chlorpromazine about January cause my mood had taken a dip especially at the evening when everything quietens down. I would become anxious and it would spiral bound control. Last night couldn't get to sleep couldn't stay asleep, then go to work make mistakes cause I haven't slept right which brings on more anxiety then the whole thing is a circle just keeps going on & on. Then getting told off in work your not attention.!!! Wtf? I have a condition lol??? This is how I have ended up with social anxiety disorder & general anxiety disorder. The fear of judgment what is gonna happen and what people think !! #notnice Sent from my GT-I9300 using proboards
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Post by JJ on May 24, 2013 23:43:42 GMT
I sympathise with you manson88, I had social anxiety disorder for a few years about 18 years ago and it's just a terrible horrible thing. I had anti-depressants for a while, which helped with the depression I was feeling but not specifically the s a d. I eventually came through it - I don't know why, I didn't have any actual treatment for it but it subsided in the end. Like all these types of head things, I think I could get it again ( you know how you never feel cured of depression for example, but just in remission) and I pray I don't - I'd have unmediated adhd every day rather than that. I don't know anything about it but there surely is a mood stabiliser that is adhd friendly... I hope you sleep a bit better tonight x
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