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Post by manson88 on Jun 5, 2013 13:55:25 GMT
Whoop came home from work today at lunch time and found a brown letter on the door step, couldn't think who it would be brain scan at the end of the month. . To my surprise I thought I would be waiting on that appointment till August at least Sent from my GT-I9300 using proboards
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Post by Deleted on Jun 5, 2013 14:04:21 GMT
That is brilliant news manson At this rate who knows, we might actually be medicated by the end of this decade!!
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Post by JJ on Jun 5, 2013 20:00:38 GMT
Sooo pleased for you Manson
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Post by manson88 on Jun 5, 2013 20:21:23 GMT
I'm pleased myself now thought it would August before I would here any word. Still have to face the psychologist, I'm thinking of not going back to her cause she made mood dip big time. Last week was wasted I was emotionally washed out took me 4 days getting over an hour appointment wtf? Is it really worth it? Not worth it if it is going to do that is it? Sent from my GT-I9300 using proboards
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Post by furiousfrog on Jun 5, 2013 22:03:27 GMT
Not worth it at all if you don't do it! But how much worse will you feel sitting at home telling yourself that you made the right decision? I know it's hard (believe me - someone here talked me into an appointment I thought was a big waste of time and I'm so glad they did) but you have to jump through the hoops they hold up for you.
You might feel bad after the appointment, but at least it'll be another step over and closer to getting the help you need. Unfortunately counselling and cbt is painful by it's nature but think of it as a drawing pain, it's leaching out the poison!
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Post by manson88 on Jun 5, 2013 22:09:49 GMT
Nice way to look at but I would prefer my safe good mood - & let my energy flow freely rather wallow in depression and pitty cause I don't have a mental health nurse for whenever I crash & burn.
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Post by Deleted on Jun 5, 2013 23:27:35 GMT
I agree with what furiousfrog said. You must go!! Come on, keep going!! You are getting there!! And if you do crash and burn, well you have got us
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Post by jan on Jun 6, 2013 5:28:23 GMT
its a horrible feeling when we dread seeing someone - try and tell her how you feel and how much it affected you last time - she's there to help and if she can make things easier for you in any way i'm sure she will and just talking through those feelings with her will give her more info to work with so she can understand and help you to understand whats going on with you. as the saying goes
feel the fear and do it anyway all the best xx
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Post by manson88 on Jun 6, 2013 5:39:05 GMT
I appreciate your kind comments , I just don't wanna face it. The last time I was there she pushing me hard the fight or flight was kicking in I was about to get up & walk I had to phone one of the mental health support charity's during the evening I was that ajatated. The 4 days after I was useless just wandering about in my own depression & ajatated I think I came on here & ranted a bit lol:o Sent from my GT-I9300 using proboards
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Post by jan on Jun 6, 2013 6:00:26 GMT
thats what i mean though by telling her how you felt last time and have been dreading this time - it may not have been apparent to her - maybe you hide it well - if she knows, she can take things slower and be more gentle . everything we do is always easier the second time and think how proud of yourself you will feel
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Post by furiousfrog on Jun 6, 2013 8:19:00 GMT
+1 to what Janev's said. You can do it, you're clearly a strong person who's managed to deal with all the crap life's throwing at you and you've got a bit more crap to get through but you've done it before and you can do it again. Avoiding the feelings by not doing the actions will get you in a downward spiral where you don't want to move in case you get the bad thoughts back.
If you don't do it and find yourself in the same position in a couple of years time, you'll have to jump through the same hoops again then. Might as well get it over now and get to a better place earlier rather than later.
I'm really rooting for you - sounds like you've had a rough ride and I think most of us can identify with that. Even if others don't realise it, we know how hard it is and we also know how strong you have to be to keep plugging on but it gets easier the further you go.
Thoughts are with you.
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Post by jan on Jun 6, 2013 8:25:00 GMT
maybe think of it like this - - - F.E.A.R. = F*** everything and run !!!! ( not helpful)
FACE everything and recover.
e - motion (s) think original greek word and actually means - movement so emotions are feelings - in motion things go wrong for us when the feeling (emotion ) is not moving and gets stuck so therefore we get blocked hence feeling discomfort does that make sense to you ? (or help in any way?) hope so xx
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Post by JJ on Jun 6, 2013 8:49:49 GMT
Jan - wow - you have such a gift for empathising and explaining things so well, with such insight.... It's a real talent and you should use that professionally some day....
Manson, obviously from what I've just said, I agree with the others but also, on a more purely pragmatic level, you're fighting for an accurate diagnosis and effective treatment - I feel it would help your case if you're being seen to participate in what they're offering along the way ie seen as you're trying to help yourself and, when that's not the whole solution and there are still unresolved issues, that strengthens your case for them considering that there might be adhd and other things they need to actually treat...
You're really going through it at the moment, I really feel for you xx
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Post by manson88 on Jun 6, 2013 8:54:31 GMT
She's looking to do attention tests trying to say that I have a selective attention, she also said that I'm not showing symptoms that warrant Adhd DX,
And said the other conditions are adding to attention problems dyslexia, dysprixia, & anxiety ah come on is it any wonder is was spent and washed out for a number of days.
It's ok for these ones sitting with their letters after their names sometimes I wonder do they realise how hard it is for us how difficult it is to be pretty much normal but,not. If I was I normal I wouldn't be sitting in front of here ha lol, rant over
Its a hard place between a rock & a stone lol Sent from my GT-I9300 using proboards
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Post by JJ on Jun 6, 2013 9:13:20 GMT
Bloody hell - I keep losing my posts and have to write again
Basically said that selective attention is actually a feature of adhd, we can all suddenly get engrossed in something and everything else goes by the wayside, we just can't do it on command or if it doesn't interest us or when we want to. She's talking so much crap and clearly her quick skim through a daily mail article about adhd hasn't given her any proper knowledge about the condition, however many other non-adhd qualifications she has.
You should take a copy of the NICE guidelines along that state that a diagnosis can only be made by a qualified specialist....
The diagnostic process is very in depth, examining all aspects of you and adhd and unless she's qualified and has done that with you, she shouldn't venture into territory and offer opinions about something she's not able to.
Last thing I wrote was that your anxiety etc is almost definitely affecting your concentration - as it does all of us - but that doesn't mean there's not underlying adhd at all
Xx
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Post by manson88 on Jun 6, 2013 9:19:56 GMT
Hi folks love the vibe coming from the forum this morning thanks all for your ideas #lovetheforum Sent from my GT-I9300 using proboards
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Post by jan on Jun 6, 2013 9:37:19 GMT
yes (not gonna risk trying to quote) - - and anxiety is a comorbid (ity) of A.D.H.D. - - - so its not unusual that you suffer from anxiety and A.D.H.D.
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Post by furiousfrog on Jun 6, 2013 11:08:25 GMT
Surely (involuntary) selective attention is THE primary symptom?! Don't understand what she's saying tbh - my daughters ADHD inattentive and I kept getting told she was anxious. Was so proud of her when in one session she burst out saying: "but I wouldn't BE this anxious if I could just get stuff done".
Personally, I think anxiety is a byproduct of something else that gives you stress - I mean, it's not bloody idiopathic for god's sake - it's CAUSED by something! Is there anyone you can take to advocate for you?
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Post by manson88 on Jun 6, 2013 13:24:39 GMT
For me it the fear of judgment someone one watching you and making suggestions that you didn't read or listen properly to what was going on. (even when they know I'm dyslexic)
When I'm at work it leads to a ticking of for not paying attention, investigation in to how the mistakes happen & how it could be avoided. (& they know well about my situation)
That's how it roles one simple mistake & everything on ravles then it's a simple role from one mistake to the next & a circle of anxiety don't sleep, dnt eat have sore muscles don't interact with anyone.
judgment like this has put me under pressure from I could work so that is how I have ended up with general & social anxiety disorders. From people casting their views of how much trouble I have made by not listening or paying attention.
That's why I think it's an attention problem cause I can read it's everything else impacting on my function to carry my job out.
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Post by JJ on Jun 30, 2013 15:49:20 GMT
Hi Manson - didn't you have your brain scan this Friday? How did it go? Did they tell you anything there ? X
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Post by manson88 on Jun 30, 2013 21:18:58 GMT
Hi there thanks for asking, It went ok they but the radio operator just said that the psychiatrist would get results in two weeks.
I was with him in may 16th he said he would see me in 4 long months.
Still attending psychology she wants my school reports but we can't find them.
My mum has been to meet the psychiatrist they had a good chat.
The psychologist wants to meet my wife & my mum now to see what I'm like to live with. The next couple of months will be interesting.
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Post by JJ on Jun 30, 2013 22:55:11 GMT
4 months is a loooooong time Still, at least it's not May 16th any more... Here's to the next couple months whizzing by!! X
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Post by manson88 on Jul 1, 2013 9:07:40 GMT
Here thanks for asking I have sort if turn a corner I haven't gave up but I'm kinda thinking from what I see here it may not be a good idea to be medicated just seems to cause more frustration trying to find what works.
Psychiatrist has already stated that he's not happy to prescribe cause of the after care/follow up.
But I am going to ask him could we try being slightly medicated if there's such a thing.
But at the same time there's part of me is worried that I may not have Adhd at all cause I'm working with the psychologist I'm afraid of her writing a report & saying it's all in my head I'm making it up. Sent from my GT-I9300 using proboards
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Post by manson88 on Jul 20, 2013 12:06:07 GMT
Got my results it came back clear! I don't not what they were looking for really but we all know that a there's a difference in the way a dyslexics/Adhd brain works than a an ordinary persons works. I am still working with a psychologist she has done tests & confirmed that I am very easily distracted & find it difficult to get back on track. To some relief to me it means that I not making it up. She has requested a meeting with my wife & mother. She has said when that is done she will write the report and send it on to the psychiatrist who will then DX me. He has said to me that the trust in which I live in dnt normally treat an adult with Adhd inattention cause of the follow up after care . I have spoken to the patient's council about the issue. They suggested that whenever I'm DX see what he offers if he's going to prescribe that's ok but if he doesn't, challenge the situation through the patient's council. Basically ask to get referred to another psychiatrist in another trust that is going to prescribe. If I had asma they would give me a inhaler wouldn't they?? why should Adhd be any different??? So that's we're we are getting down to the fine end of the knife lol. Sent from my GT-I9300 using proboards
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Post by JJ on Jul 20, 2013 17:07:42 GMT
Not there yet Manson, but it's all looking more positive... Fingers crossed for you xx
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Post by Kathymel on Jul 20, 2013 23:22:49 GMT
He has said to me that the trust in which I live in dnt normally treat an adult with Adhd inattention cause of the follow up after care. What kind of a Mickey Mouse health Trust decides not to treat because the follow-up care will be complicated? I'm pretty sure follow-up care for some physical illnesses must be hellish complicated, but do they baulk at them? Nonsense.
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Post by JJ on Jul 21, 2013 0:34:22 GMT
He has said to me that the trust in which I live in dnt normally treat an adult with Adhd inattention cause of the follow up after care. What kind of a Mickey Mouse health Trust decides not to treat because the follow-up care will be complicated? I'm pretty sure follow-up care for some physical illnesses must be hellish complicated, but do they baulk at them? Nonsense. Quite - on diagnosis - prescribe stims, couple of appts for titration, follow up appt once a year ...... One or two of the ineffective talking therapy sessions Manson's had foisted on him have taken up more 'care' than this.....
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Post by manson88 on Jul 21, 2013 16:37:14 GMT
Funny JJ your not far off the mark lol:o
Your right to the point the last 18 months has been like that running from pillar to post there's been CMHT a psycharictist appointment every 6-8 weeks there's various forms of counselling cbt, general counselling, psychologist & employment support yes some of which I went on my own choice & some of which if I hadn't I it would've seen that I didn't want to move forward.
Oh & add the consent to & fro to the doctor's surgery.
I'm on antidepressants as it is I'm sure that the cost wouldn't be much more when you add in the rest what I have been through.
Had a chat today with my sister in law who is a paharmist in are local hospital she was telling me that they only have so much money to treat a percentage of people that turns with the conditions. So that would explain my theory just the same in my job my manager putting me under pressure to cut costs/time . It's the same way with the doctor's at the hospital being put under pressure from ward management to be saving money ie no overtime , out sourcing cleaning cheaper drugs foreign nurses & doctor's it goes on, most relevant to us they don't prescribe meds to people who they think they don't need them. Then throw in maybe a doctor who doesn't recognise Adhd in adults it just makes it harder never mind living in a trust were they don't have a Adhd specialist centre or any one experienced in it. Just relying on a psycharictist who is a where of it but maybe have no experience DX it.
Rant over. Sent from my GT-I9300 using proboards
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Post by JJ on Jul 21, 2013 21:07:27 GMT
See, my imperfect and clearly stupid adhd brain would then say, why don't we weigh up the financial costs of all the futile appointments, treatments, medications, consultations, therapy etc etc above - against brief training for GPs to spot/acknowledge warning symptoms, an adhd specialist triage nurse and a qualified adhd psychiatrist - leading to early diagnosis and effective intervention, support and treatment.... I bet you the £'s are massively in favour of my method and, if you look at the bigger picture of the economic cost as a whole (benefits / tax contributions / educational achievement / outcomes for children - incl those of adhd parents / divorce / prison etc etc etc ) I'd bet my life on it being a no brainer to deal with this ridiculous current ineffective mish mash hotch potch situation...... My rant over now too
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