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Post by JJ on Jun 5, 2013 17:47:24 GMT
I know it's v early days yet, but....
Picked up IR MPH ( 5mg 3x per day)
Took 1 yesterday afternoon, no effect except tired and hungry after 2 hours and my brain felt a bit dull. I was at my son's new secondary school for pre-September presentation. I was sat next to someone I didn't know trying to make conversation and nothing came into my head.
I'm not normally great at conversation cos think of million things to say, always want to blurt out things and talk over people, so I therefore try and keep quiet and then I concentrate so much on doing that, that I lose what they're talking about and then don't know what to say.
This time, I just couldn't think of anything to say because my brain just felt not quick and I was aware of not easily being able to find the words when I did say something.
Ate loads when I got home, really tired, went to bed at 11 (unheard of normally) and slept quite well.
So today I've taken all 3 (at specified times). I have a ton of work to do and today/tomorrow is pushing the extremities of the deadline. But I've done about 15 minutes' worth of work all day, even though I've been trying for a few hours.
I can't concentrate but in a different way. Normally I can't concentrate because I have a zillion things buzzing round my mind and they're all sharp and quick and they fill my head. I always feel like the thoughts are whizzing round, bursting at the seams trying to get out of my brain and when i try and focus I've got a big magnet thing in the centre of my head and it's trying to pull in the focussed thoughts and straining against their pulling away from it.
Now I still have all different thoughts but a bit less of them, its like they're on Valium and my magnet doesn't work. I can't concentrate because I feel like I've lost most of my IQ, I feel like a really thick person, slow in the head. Not cotton wool fuzzy but just not quick and not sharp. My dad called and asked my advice on something - it needed weighing up pros and cons - and I couldn't do it cos couldn't think of all the scenarios to decide.
And I just can't be arsed to do anything. Obviously procrastination/lack of motivation is a way of life but normally I feel stressed about what I should be doing but today I can't even summon up the anxiety. But it's not like I actually feel calm and serene about it, I know I have to do it but I can't stress. It's weird and actually worse than before - because the deadlines would have normally forced me to do something.
Part of my job is writing reports (which is horrendous to motivate/focus for) but some is doing accounts and, once I've actually made myself start, it's normally ok cos I quite like doing figures and can get absorbed. So I started on the accounts side but just couldn't do anything quickly, couldn't find solutions to the problems, felt I'd been presented with something too taxing intellectually and couldn't summon up the anxiety of the deadline to force clarity or speed.
Since I joined this forum I've had my ipad practically glued to my hand to cope with the constant and irresistible urge to keep logging on and reading everything. I've just had a first quick look at the recent posts only now, but glanced at rather than read properly and, even though I had lots of things to comment on, I've not been able to summon up the motivation to log in and write. It was all too much effort.
This has turned into a massive post but I can't go back and cut anything cos my brain's not clever enough to think of another way to say it better and more concisely. I feel a bit self-indulgent posting so much - but I can't help it and at least I've put it in the diary section!
If anyone's managed to get to the end of it and has any advice about whether this is normal or more importantly, whether it'll get better, I'd be grateful for any comments. I apologise in advance if I don't reply quickly though cos I might not be able to summon up the energy needed to do so.
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Post by Notlonelyinacrowdnow on Jun 5, 2013 18:00:01 GMT
Hmmm I can relate here I took it for a week & felt a little slower if you get me!! In a way calmer but lacked motivation ., I stopped taking it and just been using a Paul McKenna Confidence App instead I think I'll try without meds see how I get on again x
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Post by grim on Jun 5, 2013 19:32:51 GMT
i hear you.
Low (starting) doses of MPH made me feel very similar.It's a bit like all the thoughts charging around the brain have all scuttled off and hidden in the corners and under things,and it's an almost impossible effort to find even one.
Well that's how it affected me.
...a larger dose might work better,i hope it improves for you.
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Post by JJ on Jun 5, 2013 19:43:22 GMT
It's all worn off now and I feel back to myself again . - can even use a smiley again!! Thanks for your replies x An hour ago I was thinking, I just would rather not take anything but now I'm back to myself, I just can't face my life with full on adhd, so will just have to keep going until the dosage and/or medication is right. Do really understand why you would feel the way you do though Notlonely. I take it you never increased mph dosage beyond minimum? Grim - did you increase then and start to feel better? Soooo glad at least 2 people know what I was talking about - felt like an anomaly with all the reverse symptoms
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Post by dizzydee on Jun 5, 2013 21:33:39 GMT
I felt exactly the same as you did but I couldn't put it into words. it was like my head was just empty.
I happened again when I went up to 10mg
I'm due to go up again in a week or so, (If I remember to ring that is!)
Will let you know if it happens again. x x
Keep going it should get better!
You can see my first day in my "at last" thread, if your interested that is x
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Post by JJ on Jun 5, 2013 22:48:49 GMT
Thanks Dizzydee, I did specifically look at your thread and like you, I can't see how it's going to become any different after a few days/weeks cos they wear off after 4 hours
But then you posted couple days ago that you made it into work on time etc so I figured it must have some sort of cumulative effect
So on the 10mg do you feel as thick in the head?
I'm supposed to take this 5mg for a month but I can't see how I'll be able to manage if I feel like this every day...
Xxx
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Post by JJ on Jun 5, 2013 23:06:53 GMT
Hmm, had a thought about it having any cumulative effect. I looked at drugs testing and found a couple of posts (one looking like it was from a reasonable source) saying it could be detected in a urine test 1-2 days afterwards
So, assuming 1-2 days is right (stopped self from looking properly in case I lose the next couple hours on net and only looked at a forum which looked like was for people experimenting with drugs and not wanting to get caught) I wonder if that does suggest a cumulative effect?
Have no knowledge or idea really, feel it's doubtful....
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Post by Notlonelyinacrowdnow on Jun 6, 2013 6:45:31 GMT
JJ have you tried Concerta!!! Now that for me was A ping moment felt great was happy on it but started having loads of Heart Palpatations ECG was normal but they took me off it x
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Post by JJ on Jun 6, 2013 8:58:06 GMT
No, not tried anything, just starting out....
I'll have to go through this for a couple of weeks then will try and call to up the dosage of this.
Took a tablet 2 hours ago, don't feel so dull in the head but not even tried working cos no motivation and feeling vaguely stressed like normal. On a plus (or negative in terms of getting things done), I am able to read this forum and type - yesterday didn't have the will to do that x
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Post by grim on Jun 6, 2013 18:51:03 GMT
Grim - did you increase then and start to feel better? Yup,i got to 20mg x 3 daily before everything seemed to clear up and start working.
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Post by dizzydee on Jun 6, 2013 19:23:48 GMT
I don't think it builds up but maybe your body adapts and learns to work with it. That how I feel any way A month on 5mg is a very long time! I went 2 weeks by the end of the second week I felt back to normal and then started on 10 but I felt crappy again for another 2 weeks. I am taking 10mg for a full month to see how it effects my hormones. Its makes a big difference if you remember to keep your food and fluid intakes up. I'm not finding my concentration any better yet but I am sleeping better and more alert when I am awake. so I am much more hopeful than I have been
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Post by JJ on Jun 6, 2013 20:03:46 GMT
I don't know how I'd cope without people here to ask... Thanks for your info Grim - can I ask you whether you then increased to more than 20 to see if there was a better effect even after things seemed to be working? Thanks Dizzy - that makes sense actually what you said about your body being used to it more than it building up . Can I ask why there's interest in your hormones? Im so behind in my work and so up against it that I didn't take anymore after this morning's one. i cant believe I've spent the last year and a half wishing for these tablets and now I'm voluntarily not taking them! I intend to finish off my work tonight or tomorrow then I don't need my brain so much for a week or so, so I'll just go through it til I can reasonably call the Dr and say Ive given it my best - thinking I'm not going to be patient enough to last 2 weeks though Really really appreciate your help here - thanks so much xxx
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Post by JJ on Jun 6, 2013 20:08:09 GMT
Its makes a big difference if you remember to keep your food and fluid intakes up. Do you mean you feel any effect more, or just that you don't feel sick or headachy? I was drinking but not eating - put on almost a stone giving up cigarettes so glad of opportunity to take a step towards fitting into my clothes better but more importantly, I assumed that empty stomach would have more effect - like alcohol???
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Post by dizzydee on Jun 7, 2013 16:15:39 GMT
hello I will have to be quick i'm meant to be busy!! I was feeling hypoglycaemic shaky, headache etc, But I have less energy for the week before and can get a headache that can last for my whole period. I was also very snappy it turns out that mph can have a negative affect when mixed with fluoxetine so he has stopped this, I took this to help with pms so I just want to make sure that I'm all ok before I go up a dose. Food to stop the light heads and water to stop headaches both my pills cause dry mouth etc. Still feeling good in my self still get a sort of daze often but I can cope with it at the minute. If I remember I can elaborate later!! Happy to help if I can x
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Post by grim on Jun 8, 2013 18:41:22 GMT
Thanks for your info Grim - can I ask you whether you then increased to more than 20 to see if there was a better effect even after things seemed to be working? After the 20mg i then went onto 72mg and then 90mg Concerta daily. ...which was ok for a few months but then it all went a bit strange and i am now on 2 x 10mg Dexamfetamine daily,which for now is working ok for me.
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Post by JJ on Jun 9, 2013 12:19:56 GMT
Thanks for your replies, it's really helpful to know other people's experiences xx Well I didn't take anything for 2 days because I needed to get my work done. I took 1st and 2nd tablets yesterday and didn't feel anything other than a bit tired. My brain didn't feel anything like as dull but my craving for a cigarette (despite full strength patches) was almost overwhelming. I gave up at the end of December and it felt like I'd only given up a few days ago. So I didn't take the last one yesterday because I was scared I'd nip up the shops to get some Marlboro lights. This morning I've taken 2 tablets (10mg). I don't feel anything much. My brain seems to be working ok-ish. I still have lots of things going round my head but maybe they're not banging the sides of my brain with so much force, maybe they are though - I'm just looking for anything different. I'm still definitely less motivated to do things I've found it harder to read this site and remember what's been said for longer than a millisecond (bit worse than usual). I've still lost my purse this morning and then was in a flap ringing my mobile trying to locate it - it seemed to be really near wherever I went....after 10 minutes I realised it was actually in my pocket.... I do think I feel a bit less stressed, but I've got one of my major work things done now, so I would have felt better anyway. I feel quite tired though - which kicked in after about hour and half. It's just over 3hours and I can feel things wearing off. Going to call the dr tomorrow - not sure whether to admit I've already tried a bigger dose though....
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Post by Kathymel on Jun 9, 2013 12:44:50 GMT
I've still lost my purse this morning and then was in a flap ringing my mobile trying to locate it - it seemed to be really near wherever I went....after 10 minutes I realised it was actually in my pocket.... Oh, my. That's worse than the glasses on the head thing. Not sure there's any hope for you, JJ. Going to call the dr tomorrow - not sure whether to admit I've already tried a bigger dose though.... I'm sure you won't be the first. Tell him everything. If he is fully informed, he will be better able to help. Kx
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Post by jan on Jun 9, 2013 12:49:04 GMT
prob better to be honest - their prob used to it with us adder's anyway hope it starts coming together sooner than later (ps i do that all time - spend ages looking for something - but instead of finding it in my pocket its actually in my hand!!! what we like eh!) if i could have all the time in my life i've spent looking for things i'd prob get an extra ten years on the planet
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Post by JJ on Jun 9, 2013 13:00:08 GMT
if i could have all the time in my life i've spent looking for things i'd prob get an extra ten years on the planet Immediate thought 'wow - 10 extra years would be good' - immediately followed by 'that'd be 10 extra years of sitting on sofa trying to motivate myself to go and tidy up!'
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Post by JJ on Jun 10, 2013 18:36:11 GMT
I have another question if anyone can help - Yesterday took 10mg mph 3 times, felt ok in the head (no different really) and very tired and quite hungry and cold. So today took 10mg late morning and felt the same - really tired So second dose I took 15mg and now feel v tired, not hungry and thick in the head again - I can't find my words easily and feel really dim and dulled. Called dr and now the special time to call is Tomorrow in a specific hour time-slot My question is then - does increasing the dosage just make small improvements and then you find the optimum dose, or does it not work and do the opposite thing all the time until you try a bigger dose and suddenly everything is good in one step? I hope this makes sense - I just can't think properly.... This has taken a while to write and I'm now 2 hours since took tablets and I can feel hunger kicking in (I have eaten today so don't need anything)... This is insane - just so opposite of what's supposed to happen ....
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Post by Kathymel on Jun 10, 2013 18:53:44 GMT
Poor you. This must feel like such a let down after actually getting the meds and feeling you were getting somewhere. I hope your dr manages to reassure you tomorrow. Didn't you have to ring 400 times to get through last time? Fingers crossed that doesn't happen again! xXx
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Post by jan on Jun 10, 2013 19:39:03 GMT
oooooh babe - you must be fealing gutted hopefully michael and some others will come on and share their knowledge with you wish i could say more to help - you will get there in the end - don't give up now xx just bit more experementing and you'l have it sussed xx
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Post by dizzydee on Jun 10, 2013 20:34:04 GMT
I've got to say I was tempted to just keep trying more but I don't think its a good idea to just keep upping the dose
I think if you go by the book you up the dose not more than once a week, this is so that you can keep a check on your blood pressure and pulse rate and to make sure that there are no adverse effects. If you keep changing it then you will not learn to adapt.
I'm going to say something which is virtually impossible I know but ... be patient and keep going it will get better
They do say that most problems are caused by under dosing but I don't think you can rush it, when I hinted that I may have tried to up the dose to see what happened I was told strictly not too!! oops
I do realise that this advice may seem a little hypocritical coming from me, "miss oh no its not working, it the end of the world" but hey ho!!
oh and I think the hunger and the cold are due to you metabolising your energy quicker... I still get this!! Weetabix and bananas help
I truly do hope that you feel better soon, took me nearly 4 weeks ... which reminds me I was meant to call today to up dose
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JJ (just forgot to sign in 1st
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Post by JJ (just forgot to sign in 1st on Jun 11, 2013 12:53:53 GMT
Thanks for yr replies xxx I do feel gutted and it's all a let down. That makes sense Dizzy about metabolising faster - I've taken your advice and got some bananas! I tried eating this morning just before took tablets, but I think I went too far cos once they kicked in, I felt uncomfortably full up.... Every single bloody aspect of my life is all about trying to find the balance (and failing most times ) i managed to get through to the dr and spoke to her directly. She said it was odd that I was reacting the way I was and she'd not heard of it before. She said to get blood tests for anaemia (re tiredness - she accepted that I wasn't like this before the tablets but wanted to rule it out). She wondered out loud about dropping back down to 5 (I told her I'd taken 10 for last 3 days and she was ok about it). I said I felt more tired on 5 than 10, and also said that a couple of people here said they'd felt the same - and that one was ok once upped dosage more. I also just took my bp (111/63) and pulse (64) and told her that. So she said it was ok if I stayed on 10mg 3 x per day or increased to 15 3x per day but we needed some time to get used to it. And she said I could always call her. She is sooo lovely, completely understanding, not dismissive of the views of people here and treated me like a person who knows her own body and mind, which is so refreshing compared to other experiences when you're treated like you know nothing... So I've just taken 15mg and am typing quickly for the next 20 mins until my brain disappears again BTW - Dizzy - are you going to increase to 15 now ? ( you said about upping your dose)
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Post by JJ on Jun 11, 2013 12:56:46 GMT
Grim - did you increase then and start to feel better? Yup,i got to 20mg x 3 daily before everything seemed to clear up and start working. Grim - can i ask you, was it completely rubbish before then complete difference at 20 , or did 15 make a bit of an improvement but 20 properly?
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Post by dizzydee on Jun 11, 2013 14:26:26 GMT
my doctor said exactly the same about it being unusual to feel tired and hungry but I am!! I'm glad your doctor is understanding, I think I will have to be a bit stronger with my opinions when I next speak to mine, I am supposed to be ringing to get a new prescription and a larger dose but I keep forgetting to get my blood pressure done at work (care Home) I am sooo very agitated today I could just scream Must ring tomorrow and sort things out!!!
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Post by JJ on Jun 11, 2013 17:59:55 GMT
Sorry yr feeling horrible today x Let me know how you get on when you get your bigger dosage I took 15mg after speaking with dr and I didn't feel quite as tired.... Still hungry, no motivation and thick, but bit less tired - who knows what the f**ks going on in our brains
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Post by JJ on Jun 11, 2013 18:00:38 GMT
Sorry yr feeling horrible today x Let me know how you get on when you get your bigger dosage I took 15mg after speaking with dr and I didn't feel quite as tired.... Still hungry, no motivation and thick, but bit less tired - who knows what the f**ks going on in our brains
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Post by grim on Jun 11, 2013 20:04:53 GMT
Grim - can i ask you, was it completely rubbish before then complete difference at 20 , or did 15 make a bit of an improvement but 20 properly? Yes you can ask... Yes,15mg was a bit of an improvement...and then 20mg was a revelation,i could not believe the difference the extra 5mg made.
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Post by JJ on Jun 11, 2013 20:12:20 GMT
Omg - thanks for your reply - I soooo hope that's me...
I've taken a second 15mg dose this evening and my brain's been clearer than it has been since I started meds. It's not the same sharpness but a big improvement on the entire rest of the week. I've also not felt tired this second dose, well maybe slightly, but not the overwhelming / cant stop yawning / eyes watering tiredness I have been feeling. I also made my children's tea with a little more ease than the last week - I've been so lethargic and brain dead it's been impossible. I don't think I could do any work or read a book, but I'm managing to remember what I'm replying to here without checking back so often....
I have all my fingers crossed for me then! Thanks so much for your continued input - it's so invaluable to me xxxx
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