|
Post by fuzzywuzzy on Aug 14, 2013 0:57:56 GMT
Hi JJ.....and other peeps..... Or even meeps! I am in the process of doing my important nightly bedtime countdown..... aka painting my toenails.....so if I disappear....you know why.... and I promise to reply intelligently....or not .......bit later/lot later/tomorrow x x x
|
|
|
Post by mighty on Aug 14, 2013 15:27:33 GMT
Best of luck with your book, interview sounds impressive I was just concerned is all. Not applying this to your daughter, but childhood and teenage years come with their ups and downs obviously. What one may call an instance of 'rapid cycling episodes', another would call 'growing up', 'temper tantrums', etc. It probably is more than that in your daughter if it's given cause for concern of course. You'll know it's difficult to distinguish the point where it becomes something worth treating. You don't wanna run the risk of pathologising natural parts of life. I just personally would be incredibly cautious, if somebody has not been psychotic, and managing in a normal school, and still have a developing brain, then my opinion would be careful monitoring and developing the right habits, skills etc are a better alternative to medications. I can totally see where you're coming from though, in that although meds may be bad, a person developing in a "skewed" way may be worse. But sure you're aware of the potential to exacerbate symptoms with mood stabilisers and antipsychotics, i.e. coming off of them may provoke psychosis that otherwise wouldn't have occured. What medications were you thinking of? I think at a young age, short courses of them would be best during times of crisis, if at all, or something like a benzo as needed. You've probably read otherwise though so may disagree. Saying that, I've worked with teenagers showing these types of problems, who have found a small daily dose of risperdal to be beneficial in addition to ritalin By the way I am not totally against you or trying to wind you up, I'm undecided with a lot of this issues, just thinking out loud and giving food for thought
|
|
|
Post by mighty on Aug 14, 2013 15:38:25 GMT
Also wanna say, if using rigid diagnoses, I do agree that bipolar disorder is indeed evident before adulthood, and indeed there are a lot of professionals who haven't yet recognised it. Not sure whether I'd call it bipolar though. I think that developmental psychopathologies are kind of like a syndrome rather than a discrete disorder most of the time, with ADHD/affective traits running through the centre! Like AIDS, if that makes sense?? Like.. it took a long time to realise that various infections and ailments being presented were actually the result of the larger underlying vulnerability/syndrome (AIDS).. haven't explained very well but hope it makes sense! Like, some children have a vulnerability to more struggles than others (almost always with attention and mood problems!), and this may manifest as something that more closely resembles bipolar, anxiety, whatever.., sadly people may be vulnerable to it all! Anyway I ramble so not gonna hijack your thread, my bad! Gonna make my own, all the best
|
|
|
Post by JJ on Aug 14, 2013 21:25:56 GMT
Hi FW - just wanted to say don't worry about answering all my questions - was having a brain whizz last night - looked back at my post and answering everything would require an assignment sized essay!!
Was asking all that cos the sudden flip in mood and outbursts etc followed by overwhelming need to sleep and the staying up for 2 or 3 days at a time all resonated with my childhood and adolescence - I had several suicidal depression times but only remember 1 time of weird euphoria / hyper / feelings of invincibility though - so was curious as to where the line between adhd and bipolar was....
Been reading about it today - and stuff about the DSM V changes.... Forgotten what the actual name was but the one about temper regulation dysphoria thing sounds v like how I was - was interesting to read that it doesn't develop into bipolar as adult but more likely to be depression...
Anyway, that's me going on - just wanted to relieve you of any pressure to get back to me! In any case, I'll read your book one day xxxxxx
|
|
|
Post by fuzzywuzzy on Sept 14, 2013 18:59:06 GMT
Hello you lovely, lovely people..... I'm back......on planet earth... ...sorry for going AWOL.....(again) hope everyone is wonderful just a quick update:- (as I have lots of catching up to do....to find out what you've all been up to....) - psych at CAHMs is now confirming IN WRITING daughter's ADHD diagnosis - THANK GOD for that! I could do without yet another battle...phew! - I have now passed my appeal against the local authority's refusal to carry out a statutory educational assessment for my gorgeous daughter OVER TO SOLICITORS.....I couldn't cope with the stress ....mind you, they said that the appeal letter (volume!!) that I had constructed was 'brilliant' so quite pleased with myself . The deadline for the appeal to be submitted is 31st of this month, but it will pack a better punch if my letter is accompanied by a letter from them......the local authority will realise that I mean business - regarding daughter's referral to Guy's Hospital for assessment of paediatric bipolar disorder.....might be a bit of a hiccup there as my daughter's lovely GP has called me in to discuss a letter he has received from Guy's. I have no idea what it's about but prior to this we had the go ahead and the funding for her to see Dr Gillian Baird who is an expert on this. Will have to wait and see. - in the meantime, just found out that Sunday Times Magazine article is AT LAST with the editors so should be coming out any minute now I hope ......mine and my daughter's story goes head to head with the (WRONG) views of Dr Stuart Kaplan who has written a book called "Your Child Does Not Have Bipolar Disorder". IN THE MEANTIME I AM RUSHING TO COMPLETE MY BOOK....AAAAGGGGHHHH......AS IT WILL BE REFERRED TO IN THE ARTICLE......and there will be other parents just like me who know that Kaplan is wrong and are searching for answers.....or, they may, like me, have been that child themselves - Re me and the Maudsley neuropsychological tests....still waiting for next appointment - won a Tribunal happy, happy, happy, but just got one or two more related hurdles to go i hope I'm on top of things now.....and can DEVOTE MORE TIME to VERY IMPORTANT PEOPLE AND VERY IMPORTANT MATTERS ON HERE lots of love x x x
|
|
|
Post by JJ on Sept 14, 2013 19:21:03 GMT
That's all amazing and you're amazing Bloody hell - I knew you were writing a book, but didn't realise you'd done so much it was almost finished !! I'm totally in awe And goes without saying that need to know when article in paper and book available xxxxxx
|
|
|
Post by fuzzywuzzy on Sept 14, 2013 19:27:11 GMT
Thank you JJ x
Praise from you is praise indeed
hope all is great with you x
|
|
|
Post by fuzzywuzzy on Dec 1, 2013 1:11:52 GMT
Really quick update...... me = still awaiting 3rd appointment at the Maudsley for ADHD neuropsychological testing......ZZZzzzzzzzzz Sunday Times article = journalist still waiting for study results to be published as wants to include those in article.ditto Zz yawn, but not a problem as not just hoping it would be a launch pad for book (see book progress below) but mainly to get help for naughty daught (see progress on naughty daught below) daughter = 1. Still awaiting Tribunal re statutory assessment, following my appeal 2. Dr Gillian Baird finally said she couldn't see gorgeous naughty daughter...... 3. I emailed pediatric bipolar disorder expert in Switzerland.........who recommended I contact new Director of Affective Mood Disorders.....which I did........he said he only deals with adults but that he would forward onto child expert.....said child expert contacted me........has agreed to see her.....she is now awaiting appointment to see none other than Dr Stringaris.......AT THE MAUDSLEY!!!!! Yippee! Book = coming on well.....in between fervent cutting of wayward loose strands off towels....... Note to Self = MUST SPEND MORE TIME ON SITE, SO AS NOT TO LOSE TOUCH WITH FELLOW BRILLIANTLY MAD ADHDers Aspirations of Goddesshood = never gonna happen without above big love to all x x x hoping to read more, converse more and post more in not too distant future, wayward towel strands permitting
|
|
|
Post by Kathymel on Dec 1, 2013 19:03:59 GMT
Hi FW. Fabulous news re daughter. Major kudos for pursuing it internationally and getting the result that way. I am so not going to look at my towels to see their wayward-strandage - I would be there for hours.
|
|
|
Post by fuzzywuzzy on Dec 2, 2013 19:38:10 GMT
Thank you, got there in the end.... We're nothing if not resilient and determined, are we? ......only took 40 S.O.S. emails worldwide....and 3 years and I had emailed him myself previously, but it took 'You've been recommended to me by ...(such and such expert) think I might sleep for a year now
|
|
|
Post by JJ on Dec 2, 2013 23:53:35 GMT
How did I miss this post yday Amazing news re daughter - I'd never take on an adhd mum if I were a medical professional - they're way too tenacious - really just not worth the hassle, cos they'll get there in the end, whatever the obstacles in the way Well done you Tribunal - what an arse still going on - but see above - have faith in you, but feel for you with all the time it's taking xxxx Really No maudsley appt yet No idea even? That's really dragging..... And the book - still completely in awe - still can't wait to read it xxxx And your towels . There should be health warnings on them - BEWARE PROCRASTINATION DANGER
|
|
|
Post by fuzzywuzzy on Dec 5, 2013 17:59:19 GMT
Thank you JJ x can someone please scrape me off the floor...... Dr Stringaris (Maudsley) just PERSONALLY phoned my mobile himself to talk to me about naughty daught..... Reminds me of that scene in one of my favourite films....As Good as It Gets.....where Helen Hunt kisses the doctor she's so happy when he turns up at her apartment for her son..... bloody amazing.....can't wait to meet him now...... Hmmmmm.....if only it was so easy for us adults!!!! Anyone qualified as a psych yet to rescue us???
|
|
|
Post by contrarymary on Dec 5, 2013 18:25:24 GMT
brilliant news fuzzy - absolutely brilliant. amazing what a difference it makes to come across someone who is committed to doing the best possible. well done you for getting it to this stage. astonishing achievement.
|
|
|
Post by fuzzywuzzy on Dec 5, 2013 18:46:59 GMT
Thanks Mary ooh I knew it was a mistake mentioning a film....now I can't get that scene out of my head where she rushes in the pouring rain on the subway to Jack Nicholson's place to thank him.....and tell him...I am never, ever, never, never, never, ever going to have sex with you!
|
|
|
Post by fuzzywuzzy on Dec 10, 2013 22:47:22 GMT
Are you ready for it?
|
|
|
Post by fuzzywuzzy on Dec 10, 2013 22:50:00 GMT
Me.....I've found a few coping mechanisms.... For the past 3 years.....I haven't sent any cards......far too messy and stressful Stressful choosing/writing/addressing/stamping/sending..... on time at least.... messy.....all the ones that come pinging back
|
|
|
Post by Kathymel on Dec 10, 2013 23:03:11 GMT
I don't send them either. In fact, the things I manage to get done get less and less every year. I don't make my own Christmas cake any more, only manage to get the decs up a day or two before and then only the minimum. And I just incinerated the only fucking mince pies I am going to bother with this year.
|
|
|
Post by fuzzywuzzy on Dec 10, 2013 23:12:54 GMT
I don't send them either. Makes me feel better.... Do you still have to get them for Ghengis? I have to for naughty daught...that's where my plan goes all wrong.... Christmas cake.....never been able to make Mince pies....me thinks you need a new batch on reserve for Boxing Day, warm, with tons of thick melting brandy cream
|
|
|
Post by fuzzywuzzy on Dec 10, 2013 23:19:38 GMT
Also for past 10 years..... on Christmas Day.... Gone out to eat.... ok....I've admitted it now Phew.... I just CAN'T cook....absolutely hopeless.....can't organise it, can't time it, can't co-ordinate it.... on the up side, I AM aware of my faults
|
|
|
Post by Kathymel on Dec 10, 2013 23:24:13 GMT
Mince pies....me thinks you need a new batch on reserve for Boxing Day, warm, with tons of thick melting brandy cream I think the next batch will come in a box.
|
|
Deleted
Deleted Member
Posts: 0
|
Post by Deleted on Dec 11, 2013 2:57:23 GMT
You just can't beat a good mince pie!
|
|
|
Post by fuzzywuzzy on Dec 30, 2013 0:03:44 GMT
Christmas.......and......Hyperfocus ok, so I can't begin to say that I was anywhere near as super duper at Christmas as clever contrarymary.... but I had my moments..... i wrote brilliant lists....of course .....and went off trying to hunt everything down....I was good at the presents, even did them EARLY, but certain food items evaded me.....I persisted....drove around a bit more....looked online....made phone calls got vanilla liqueur double thick cream - tick found red cabbage with apple to have hot - tick. Finally down to just one item on the list.....mulled wine.....everywhere I went had already sold out.... I love mulled wine.....decided I just HAD to have it....asked everyone to grab a bottle for me if they saw it anywhere...no luck Suddenly had a brainwave.....so nabbed naughty daughter and whisked her off to make a special trip to this gorgeous, magical, Christmassy Garden Centre....and lo an behold.....they had a bottle.....ONE bottle......I grabbed it quick....possessively.....furtively looking around to check that no one else was after it....it was miles more expensive than it would have been from anywhere else... ......but came home very satisfied....food list - tick, tick, tick Got home, got daughter to bed, put feet up, cosy in front of the tv, looked warmly at my lovely twinkly Christmas tree, poured a glass......then noticed the very important missing ingredient on the bottle..... Nooooooooooooooooooooooooooo!
|
|
|
Post by shapes on Dec 30, 2013 5:44:12 GMT
Unlucky.
That said you should really make your own.
Just take red wine and add the correct spices.
|
|
|
Post by Kathymel on Dec 30, 2013 8:46:46 GMT
I had the perfect reason for not being organised this year - I could blame everything on having to relocate at the last minute to Scotland on account of S. Ex's mother being at death's door (still there ). If I realised I'd forgotten something, I just said I'd planned to do it on the day I was driving so it had to be crossed off. I did end up driving round the Dundee area looking for chocolate oranges for quite a while, though.
|
|
|
Post by fuzzywuzzy on Dec 31, 2013 18:00:22 GMT
JJ, Kathy, Mary.....and all you other lovely, hyperfocussing Christmas busy bees..... Is this how we're feeling?
|
|
|
Post by fuzzywuzzy on Dec 31, 2013 18:02:18 GMT
Just had to adjust that......Mary is clearly still going strong and....
|
|
|
Post by fuzzywuzzy on Dec 31, 2013 18:05:33 GMT
Either that.......or........ Please humour me.....new mood chart....and just discovered how to attach photos.....can't stop doing it now!!!
|
|
|
Post by contrarymary on Dec 31, 2013 21:26:54 GMT
excellent fuzzy - love your mood chart can we see some more plz? actually, i am spent (or is there something beyond spent?) i just had three days exhausted in bed and only got going again cos i had some help yesterday organising stuff. i am clearly either wired or mad. basically i've got a handful of lovely friends who have helped me enormously this year, and i wanted to make presents for them to say thank you... i had the ideas of what to make but ran out of time/energy before chrimbo... i enjoyed making foot&body scrub yesterday and made myself do labels and ribbons for it today.... plus i had the boiler fixed today so chance to make some lavender & thyme bath salts and give them a test run...... made my pain levels go down enormously, and feel more relaxed than when i had diazepam - it's astonishing! i'm supposed to be resting up and then working on a small bit of serious writing which has got a deadline of next week. instead i'm faffing around on here and making toiletries out of things i've got lying around the house, like some sort of mad chemist...
|
|
|
Post by JJ on Jan 1, 2014 2:41:31 GMT
Either that.......or........ View AttachmentPlease humour me.....new mood chart....and just discovered how to attach photos.....can't stop doing it now!!! You've got an ipad haven't you? How are you attaching pictures? I did it once, but now can't for the life of me work out how... I made an amazing gingerbread house, was soooo proud, I tried posting a picture and just couldn't....
|
|
Camcaroo
Member's not posted much yet
Posts: 19
|
Post by Camcaroo on Jan 5, 2014 23:21:57 GMT
My son is still in the middle if diagnosis. They now want to do a "global assessment" even though we've had 2 educational psychologists assess him and highlight his impulsivity, hyperactivity and inatentiviness I wish I had gone private!!! It's bloody joke, so annoying! My son needs support in class in every lesson! He's starting secondary school this September, he's so behind it breaks my heart. I am so worried about him.
What can I do, who can I speak to?
|
|