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Post by fuzzywuzzy on Jan 5, 2014 23:41:21 GMT
Hi Camcaroo.... with regard to my daughter's ADHD.....the school were experiencing problems.....and I was experiencing problems....ALL the obvious ones that you have mentioned with regard to your son.....we were seeing CAMHS.....she was, thankfully, receiving help, but NOTHING was happening regarding a diagnosis....for absolutely AGES.......just lots of faffing around.....and obviously therefore, NO MEDS..... .....SO.....I printed off the diagnostic forms.....took them into her teacher and asked her to kindly fill them in.....I filled the parent ones in too....and handed them into CAMHs.....who immediately made the diagnosis.....she was off the scale.....could you do the same and hand them into your GP x
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Post by fuzzywuzzy on Jan 6, 2014 0:09:56 GMT
It is outrageous that 2 ed psychs have mentioned these traits....AND your son is struggling at school....yet nothing has been done....
i just think that sometimes not everyone involved is 'talking' to each other.....and that the dots haven't been joined up....
i just helped it along....
your GP should then refer to CAMHs
x
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Post by JJ on Jan 6, 2014 0:33:02 GMT
My son is still in the middle if diagnosis. They now want to do a "global assessment" even though we've had 2 educational psychologists assess him and highlight his impulsivity, hyperactivity and inatentiviness I wish I had gone private!!! It's bloody joke, so annoying! My son needs support in class in every lesson! He's starting secondary school this September, he's so behind it breaks my heart. I am so worried about him. What can I do, who can I speak to? You could request a CAF I believe. Others will know more than me, but my understanding is that you have a right to request one and this means that all significant parties involved with your child HAVE to get together to co-ordinate to help you child. My friend is professionally involved in these - I'm very happy to ask her more about this if you need - PM me if you want xxx
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Post by fuzzywuzzy on Jan 6, 2014 18:12:15 GMT
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Post by fuzzywuzzy on Jan 6, 2014 18:16:55 GMT
Today, I can't quite decide whether I'm.....
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Post by fuzzywuzzy on Jan 6, 2014 18:18:06 GMT
......or.......
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Post by fuzzywuzzy on Jan 6, 2014 18:18:58 GMT
So, come to the conclusion that I'm.... FRAZZLED!
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Post by fuzzywuzzy on Jan 6, 2014 19:03:43 GMT
I think it is because naughty daught returns to school tomorrow.... and I have to return to being the responsible adult
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Post by fuzzywuzzy on Jan 6, 2014 21:39:13 GMT
Oh joy of joys.....I can't quite believe this...... gorgeous naughty daught due back to school tomorrow.....hates school so been v temperamental all day.... An hour ago.... I go to plait her hair ready for bedtime....it drives her nutty otherwise.... (And me when it gets tangled).... only to discover......for the first time ever.....nits! we've managed to avoid them for 9 whole years..... so now, I've had to go out and get Hedrin....smother her hair in it....all greasy and wet.....so now she's late to bed....ready for her first day back.... AND....it has to stay on overnight....so I'll have to wake her up early to wash it off......
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Post by Kathymel on Jan 6, 2014 23:53:01 GMT
What a nuisance.
Genghis has only had nits a couple of times. We didn't bother with Hedrin because nits are becoming resistant to chemicals, apparently. If it doesn't work, our method is to smother the hair with conditioner and thoroughly comb through, over and over, inspecting the comb for nits every few strokes (and sticking a finger nail to them). We've never found any after the first two nights of doing this.
Hope the Hedrin works, though. x
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Camcaroo
Member's not posted much yet
Posts: 19
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Post by Camcaroo on Jan 7, 2014 18:51:14 GMT
Hi Camcaroo.... with regard to my daughter's ADHD.....the school were experiencing problems.....and I was experiencing problems....ALL the obvious ones that you have mentioned with regard to your son.....we were seeing CAMHS.....she was, thankfully, receiving help, but NOTHING was happening regarding a diagnosis....for absolutely AGES.......just lots of faffing around.....and obviously therefore, NO MEDS..... .....SO.....I printed off the diagnostic forms.....took them into her teacher and asked her to kindly fill them in.....I filled the parent ones in too....and handed them into CAMHs.....who immediately made the diagnosis.....she was off the scale.....could you do the same and hand them into your GP x Hi Fuzzywuzzy, lol your name describes my mind most times CAHMS gave us all forms to fill in one for parents one for school teacher and one for my son which were meant to help with diagnosis. I don't know what else they want, the GP referred us to CAHMS when I took the ed psychologist report to him. To be honest I don't think the Dr that we are seeing at CAHMS really believes in ADHD, it's the impression I got. She even said maybe the work they're giving him is too hard (like hello, he's dyslexic woman!) she is an SHO so I guess she's not that experienced in the diagnosis. I am now waiting for our next appointment this year and see where it takes us. I will also see if I could speak with her superior. It's just so irritating. what site did you get the diagnostic forms from? I don't think GP will do anything as he's already referred us to who are meant to be the right people to diagnose. Thank you for your reply. will keep you posted.
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Camcaroo
Member's not posted much yet
Posts: 19
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Post by Camcaroo on Jan 7, 2014 18:55:20 GMT
My son is still in the middle if diagnosis. They now want to do a "global assessment" even though we've had 2 educational psychologists assess him and highlight his impulsivity, hyperactivity and inatentiviness I wish I had gone private!!! It's bloody joke, so annoying! My son needs support in class in every lesson! He's starting secondary school this September, he's so behind it breaks my heart. I am so worried about him. What can I do, who can I speak to? You could request a CAF I believe. Others will know more than me, but my understanding is that you have a right to request one and this means that all significant parties involved with your child HAVE to get together to co-ordinate to help you child. My friend is professionally involved in these - I'm very happy to ask her more about this if you need - PM me if you want xxx Hi JJ thank you for your reply, how exactly do I do the CAF?
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Post by fuzzywuzzy on Jan 7, 2014 23:21:39 GMT
Hi Camcaroo,
you may have spoken to JJ about this by now.....
but just in case not, the SENCO at my daughter's school organised the CAF....Common Assessment Framework....
this is still in place and we all meet up once or twice a term....whoever's involved at the time e.g. teacher, CAHMs, play therapist etc. and so on......we also now have a TAC....Team Around The Child.....and a type of IEP....individual Educational Plan....
hope you're doing ok.....and speak soon x
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Post by fuzzywuzzy on Jan 8, 2014 13:34:47 GMT
As per my to do list on the thread....getting things done....or something like that... I rang the Maudsley just now....I have seen the clinical nurse....and seen Dr Susie Whitwell....that was back in August....was told neuropsychological testing waiting list would then be about 4 months....receptionist said she will ring me back....it's taken me absolutely aaaaages to get round to chasing them up ......it's sooo important, I should be chasing them all the time....oh well, at least I have now..... HAS ANYONE ELSE BEEN SEEN BY DR WHITWELL?? -------------------------/----------------------- re gorgeous naughty daught ...her lovely GP came back to me and said that unfortunately he has been told that he cannot personally refer her to Dr Stringaris....EVEN THOUGH.... 1. he wants and has agreed to see her.... 2. indeed has been chasing ME to see her..... 3. The Maudsley children's clinic ACCEPTS referrals from GPs 4. we already had the go ahead previously from the CCG or whatever they're called now...for a previous referral to a different expert, which didn't go ahead in the end....(Dr Baird being part retired and more specialist in autism, I think) GGGGGGRRRRRRRRRRR Instead, the laughable and absurd situation is that you have to ask the person whose opinion you are questioning to refer...,in this case the CAMHS psychiatrist......
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Post by fuzzywuzzy on Jan 13, 2014 23:09:01 GMT
It's a repeat, but in case you missed it..... tonight, Channel 5, midnight..... Gymnast Louis Smith 'Living With ADHD.....' Will post in TV section too....
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Post by fuzzywuzzy on Jan 14, 2014 10:26:01 GMT
Did anyone see Louis Smith "Living With ADHD...." last night or when it was first shown a few months back?
I was really looking forward to it.....but was really disappointed...
Cons.....
no girls, only boys.... No adults struggling....
too much emphasis on bad behaviour at school, antisocial behaviour and prisons
giving in to controversy and expert spouting 'just normal human behaviour'
no MRIs
not his fault, but didn't help that Louis was seemingly 'cured' by neuro tests from Prof Asherton and so on, although both Louis himself and Asherton said the price for this control was exhaustion
also, unfortunate that Louis himself was very anti meds
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Post by fuzzywuzzy on Jan 15, 2014 18:38:35 GMT
1. Assistant psychologist phoned me to say I am now on the waiting list for neuropsychological testing at the Maudsley (which will be my 3rd appointment there) .....phew! ....she also said that I haven't really lost out, it will be 6-8 weeks from now, and that would have been the case really anyway......nonetheless, if there is a cancellation, will be top of the list 2. Since jj's experience was 10 weeks from the date of assessment for the report....followed shortly after by meds...I'm probably looking at a minimum of sometime in May.....so can't just sit and wait.....need to try new habits, as per tesss's thread......so, jj and Kathymel can you remind me of that game you were playing to help with motivation in getting things done? Thank you..... 3. Another thing I MUST try and get a handle on is SLEEP......today, I feel like the living dead So, went and purchased these today...... special lavender sleep spray....have used it before and helps to make the association with sleep eyemask ( room is never dark enough) and earplugs and valerian nighttime tea... in addition to using these, aiming to.... not watch tv or use ipad in bed go to bed at.....say 1am tonight.....(instead of usual :o2.30am) and gradually decrease....... Any other suggestions on the sleep front, gratefully appreciated.... I shall wish me luck myself.....I am most definitely going to need it
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Post by fuzzywuzzy on Jan 16, 2014 19:52:10 GMT
New sleep tactics worked.....woo hoo! (1 am instead of 2.30 am) thank God for that! (' All' it took was sleeping tablets, bath, candle, scented sleep spray, valerian tea, ear-plugs, eye-mask, white noise, lights out 2 hours before, muscle relaxing and deep breathing exercises, no tv or laptop in bed etc etc.....) of, course, it could have worked cos I was finally knackered from 2 solid weeks of 4 hours a night CAMHS have confirmed today that they have referred naughty daught to Dr Stringaris at the Maudsley.........Woo hoo! woo hoo! woo hoo! Now just got to wait to see whether CCG agree funding
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Post by Kathymel on Jan 16, 2014 23:01:11 GMT
Fabulous on both counts, Fuzzy! I don't know how you managed to do all those things before bed, though. Fingers crossed for funding! x
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Post by fuzzywuzzy on Jan 16, 2014 23:16:21 GMT
Kathymel thank you x you've saved me...., I was in danger of 'first sign of madness'........... (well, 2nd, 3rd, 4th.....)
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Post by Kathymel on Jan 16, 2014 23:49:49 GMT
If you need another sleep aid, I have an ap called Sleep Cycle that got me to bed at a reasonable time (mostly) for a few weeks until I got bored of it. It was the fascination of finding out how much quality sleep I got and watching the graphs taking shape over time that made me want to go to sleep.
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Post by fuzzywuzzy on Jan 16, 2014 23:53:27 GMT
Ok....when my current routine....(as of last night) loses the novelty factor....actually should be more positive than that...if, not when.....will consult my new sleep therapist.. Thank you x
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Post by Kathymel on Jan 16, 2014 23:58:35 GMT
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Post by fuzzywuzzy on Jan 17, 2014 3:19:25 GMT
2nd night.....yes, that's second night of trialling new sleep routine.....and it has not only failed miserably, but backfired spectacularly I did exactly the same as last night, in preparation for being asleep by 1am.....I refused to open my eyes or get up out of bed, determined to stick to it.....finally gave in and looked at clock....2 hours had gone by and nothing...so instead of being asleep by 1am....or even 2.30am...the habit I was trying to kick....it is now past 3am.....really, really, fed up it's looking like the Gods have decreed I'm having 4 hours sleep no matter what
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Post by Kathymel on Jan 17, 2014 9:11:21 GMT
Bugger. Seems really unfair to have actually made it into bed at (what we at least think is) a reasonable time and not be able to sleep. If I can make it into bed, I generally have a good chance of getting to sleep, although last night I ended up reading until 4.30, which was a bit stoooopid. Fingers crossed it works tonight. If it only works some of the time it'll still be an improvement. x
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Post by fuzzywuzzy on Jan 17, 2014 10:41:20 GMT
Such a good word
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Post by fuzzywuzzy on Jan 17, 2014 20:22:41 GMT
(' All' it took was sleeping tablets, bath, candle, scented sleep spray, valerian tea, ear-plugs, eye-mask, white noise, lights out 2 hours before, muscle relaxing and deep breathing exercises, no tv or laptop in bed etc etc.....) potential boyfriend putter-offer, me thinks.
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Post by fuzzywuzzy on Jan 17, 2014 23:24:30 GMT
It's just gone 11pm on a Friday night.... and out of the blue I've just been contacted by the Sunday Times Magazine journalist.....to say that FINALLY the article with my interview in it regarding childhood bipolar is about to come out.... she wants to meet up next week just to check final details... will let you know when I have the release date....
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Post by JJ on Jan 17, 2014 23:41:36 GMT
It's just gone 11pm on a Friday night.... and out of the blue I've just been contacted by the Sunday Times Magazine journalist.....to say that FINALLY the article with my interview in it regarding childhood bipolar is about to come out.... she wants to meet up next week just to check final details... will let you know when I have the release date.... I think you're amazing xxxxx
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Post by contrarymary on Jan 18, 2014 0:14:39 GMT
what's that thing about waiting for buses and three come along at once? neuropsych appt, daughter's referral, Sunday Times article... fingers crossed for you. xx
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