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Post by Kathymel on Aug 18, 2013 12:09:51 GMT
I came across this today. It's a couple of years old but I wondered how many people knew about it. NICE guidelines: now they really are “just guidelines”Someone posted fairly recently that PCT/CCGs had a finite period of time to implement the guidelines. According to this blog, this is no longer the case.
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Post by Deleted on Aug 18, 2013 12:46:53 GMT
......it just gets worse doesn't it? I feel I am little more than existing and adhd medication is my last hope for being able to live a reasonable life. It's looking less and less likely that I'm going to get treated. Ive got self help books on the go, with notepad and pens, hoping to read something which gives me a lightbulb moment as to how to move forwards. At present, the most that happens is a flicker of enthusiasm to start a new healthy habit which lasts all of about 5 minutes. Its so depressing and I'm so stuck
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Post by Kathymel on Aug 18, 2013 13:47:44 GMT
I also came across an NHS Wales article from two years ago saying they had funding to 'help to cement Wales on the world stage as a place for cutting-edge research and development.' Part of this funding was £3M into research and development into mental health conditions, including ADHD.
I know research and development takes a while, but I'm so cynical about this ever making the slightest bit of difference. Quite apart from anything else, nothing ever makes moves very far from Cardiff. If they were serious about becoming cutting-edge, surely one specialist for the whole of North Wales would not be too much to ask?
Anyway, I've written to the Welsh Health Minister. I expect I'll get a brief reply full of platitudes, if anything.
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Post by Deleted on Aug 18, 2013 14:18:06 GMT
One specialist for North Wales is definitely not too much to ask. Where on earth does all this money go??? How complex can it be??? i tell you what the Heath service needs ..... some people from this forum at the top levels of it. In fact, anyone would think by the way things are being run that there was a mental health problem epidemic amongst the current employees and politicians, such as, well quite a few things come to mind ..... Good on you for writing to Welsh Health Minister
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Post by JJ on Aug 18, 2013 16:59:05 GMT
The NHS Constitution sets out patient rights - and the ones marked rights are enshrined in law. Quite a bit doesn't apply to mental health issues.... But there's specific mention that there has to be work to improve parity between mental and physical health regard. Says expects the NHS and CCGs to take measures to improve this by 2015, at which stage there will be a review of mental health in the Constitution once they have more information on what can be achieved etc. Says CCGs have a duty to base their decisions on best practice and best evidence... ....So, if your CCG says no funding for adult adhd diagnosis, this suggests to me that they would have to justify their decision to you with reference to best evidence (ie CG72 guidelines). Also says they can make a blanket decision not to fund a specific thing (as long as it's not stated in a technical appraisal - see below) but they must still consider exceptional funding and give you a reason why they can't do it (again, presumably they have to refer to best evidence). ....Also in this vein, it seems from this that if you're dismissed as not having adhd by a non-specialist, the CCG would have to explain to you why you haven't been assessed by a specialist with reference to the NICE guidelines. Says you have a right to treatments and medications within 3 months of NICE publishing a 'technical appraisal' (technical something anyway) - This sets out specific treatments for specific conditions - NICE only has a technical appraisal for adhd in children and adolescents. Have a feeling I might have written all this before somewhere... Sorry if repeating myself....specially as it's not overwhelmingly positive
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