tor840
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Post by tor840 on Jan 7, 2014 23:30:02 GMT
Haha I meant or February stupid auto correct and yeah diagnosed through nhs on 25mg of strattera was 40mg but had to be reduced due to my weight but that's another story
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Deleted
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Post by Deleted on Jan 7, 2014 23:32:37 GMT
But I'm not 'out' in my family. I think most of them know Really? Hadn't noticed anything amiss...... ...... well, maybe a tiny/weeny/itsy/miniscule........ sign/slither/crumb/pinch.... of possible/could-be/might be/unlikely but..... quirks/oddness/uniqueness/special.... mannerisms/ways/traits/behaviour It was a bit of a problem... mainly because they're all nuts! My mum has ADHD and my dad probably has Aspergers. My brother takes after my dad and my sister is an ADHDer. When the questionnaires came, for my assessment, they sent them back with me as normal! Yeah - normal for a psychiatric ward!
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Post by boo on Jan 7, 2014 23:36:22 GMT
Haha I meant or February stupid auto correct and yeah diagnosed through nhs on 25mg of strattera was 40mg but had to be reduced due to my weight but that's another story another story? yep, i think we all have one or two of those Looking forward to hearing/sharing them with you
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tor840
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Post by tor840 on Jan 7, 2014 23:42:06 GMT
I have way to many stories for such a short lifetime so crazy what cracks off!!
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spok
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Post by spok on Jan 8, 2014 0:15:18 GMT
What chance do we have of getting the general population to take ADHD seriously as a mental health condition if the best known mental health charity, MIND, do not have a single mention of it anywhere on there website.
Ladies and Gentlemen, to the War Room!
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tor840
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Post by tor840 on Jan 8, 2014 0:43:45 GMT
Totally agree with you until mind actually recognise it as a mental health condition we will still be caught in the stigma of general population not seeing it as a serious condition!!
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Deleted
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Post by Deleted on Jan 8, 2014 0:47:08 GMT
I only meant late in my eyes as I have only heard of people who have been diagnosed when they where kids. Have read stories of people not being diagnosed till they are in there 50s though suppose I am lucky in that sense Stories? They're not stories here, it's quite normal for the newly diagnosed to be grey and wrinkly. That's right - elephants are welcome too
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tor840
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Post by tor840 on Jan 8, 2014 1:44:35 GMT
Haha swear I always use the wrong terminology
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Post by JJ on Jan 8, 2014 3:46:05 GMT
I was waiting for my prescription today and went to the 'Understanding....' Family Doctor Series book stand that they have in practically every pharmacy I've been in - they have loads of little books about different conditions. So I picked up this one I'm unable to make my picture bigger, so just to make sure you can see, that blue banner across the top says And of course it's 'The Family Doctor Series', in a pharmacy, and this one's written by 'Professor Colin Terrell and Dr Terri Passenger' So it must be good then... You can judge for yourself - the book. 1). It introduces itself by giving a sentence summary of each condition - this is ours: That's it.... .....So automatically, the parent looking for answers or help for their unknown adhd PI child doesn't think this book is for them. .....Neither does the disbelieving family member / friend, whose attention is caught by the title cos their lazy sister / brother / friend etc told them the other day they had adhd... 2). It then says: So, this definitely isn't for the inattentive child, certainly not the inattentive adult...
3). Then, any concerns are finally dispelled because: So even if it is adhd, it won't be a problem in adulthood - not even for the hyperactive.... Phew Presumably those who don't keep their behaviours in check just have the lazy gene... Or are in prison so don't matter.... Or drug addicts / alcoholics (see above) 4). Then there's a case study of 'John' - who would definitely meet the ICD-10 criteria for hyperkinetic disorder... John's teacher told his mum about adhd, she took him to the doctor, he was immediately referred, and diagnosed by a specialist 6 weeks later. The specialist gave mum some advice and sent someone to the school to advise the teachers..... Mum says, " From that point whatever they did in school to handle John when he got excited we also did at home". Bosh bash bosh, all sorted, and the story ends with 'even though it wasn't easy', 7 years later, John got all his GCSEs and is on course to take a teaching degree. Hurray . All's well that ends well 5). It goes on to the next section: What is it like to have ADHD?" And the first (of only 4) headings says: 6). It then has a screening questionnaire for parents (with only hyperactive and impulsive symptoms) (And the whole,book refers to 'him' and 'he' - even in this screen) BUT it's not that they're deliberately only focussing on childhood ADHD PH - because they say (And for those that don't know, those figures are for all 3 types of ADHD, not just primarily hyperactive - ICD-10 hyperkinetic disorder affects 1-2%) 7). And the main thing I can remember from the rest of it (past where you can get an excerpt online) is a disproportionately large section on making it all better by looking at the child's diet. An opening paragraph (from memory) said 'even though there's no conclusive evidence, there are many media case studies that suggest adhd can be treated by changing your child's diet.' What's a 'media case study' other than a Daily Mail article or Katie Hopkins spouting off on the Huffington Post... An entire section written on this basis alone... 8). I didn't get as far as the ASD section... But was fully expecting to read a reference to Rain Man in their 'Symptoms Checklist'.... And that, my friends, is one of the reasons no one takes this seriously and why it's all so bloody hard ..... I have been on the BMA website, and various of those for Prof and Dr Ignorant..... At some stage I'm going to write to them. I'm thinking the letter to the BMA should be quite easy to mostly take from my letter to the Mental Health Foundation - who have never responded btw - and are on my new fab 'wunderlist' to-do app as to be contacted within 6 weeks. Watch this space Or a properly titled new space so I don't derail this thread And welcome to the forum tor840
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Post by boo on Jan 8, 2014 3:54:38 GMT
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Post by shapes on Jan 8, 2014 5:44:52 GMT
Reminds me of reading a "science book" written by creationists, JJ.
It would be funny if it wasn't for the fact the public and even health professionals hold the same opinions about ADHD.
Particularly love the:
"Activities that, for other children, have relatively low levels of excitement are likely to overexcite a child with ADHD."
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tor840
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Post by tor840 on Jan 8, 2014 8:01:38 GMT
I actually can't believe that! How can they write something like that it just proves they actually have no idea what adhd is really like and how it affects us from day to day. Also the fact that they only take in the hyperactive side of the condition whilst many are suffering with the in attentive no wonder they just get overlooked. There needs to be some big changes in the perception of ADHD
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Post by fuzzywuzzy on Jan 8, 2014 9:25:46 GMT
I think we need to look and learn from the autism movement....they have made great strides from a similar start point....
national charity.....teams going into schools.....more voiciferous......
p.s. JJ is on the war path, me thinks.....
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Deleted
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Post by Deleted on Jan 8, 2014 9:51:44 GMT
Welcome tor840. Nice read JJ. Can't stop, or I'll never get anything done Welcome other newcomers Have a nice day peeps. Every day is an education. Stay cool
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spok
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Post by spok on Jan 8, 2014 11:55:54 GMT
I can't believe that book JJ posted. How can this be published??? How has the BMA not read this and thought "Holy shit this is low quality". Something has to be done. Seriously. I think we need to get organised somehow (hahahahahahaha) and plan how to tackle all this shit bad stuff.
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Fairy13
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Post by Fairy13 on Jan 8, 2014 13:36:36 GMT
you never see anything on adhd on TV I know it's not a documentary or anything, but thought I'd mention this anyway! In the first Fast and Furious film (The Fast and The Furious) there's a mechanic called Jesse. He's the brains behind the muscle of Toretto. In one bit of the film, Brian O'Connor asks Jesse why he's not at MIT (or something) and he answers something like 'nah, I've got that attention defecit thing' he failed at school, except he loved maths. Brian says 'oh ADD?' And Jesse goes on to say that there's just something about cars that calms him down. So there has been a bit of mention about ADHD on the TV. Talking about the positives and the negatives too. Albeit VERY briefly!
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tor840
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Post by tor840 on Jan 8, 2014 17:10:44 GMT
There is turnoff talk about intron the tv here and there but not as much as other mental health conditions it's just like adhd has been pushed aside cause it doesn't fit the mental health catogery
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tor840
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Post by tor840 on Jan 8, 2014 17:11:19 GMT
Damn iPod it's meant to say some*
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Post by contrarymary on Jan 8, 2014 22:05:25 GMT
JJ - the book is truly truly utterly terrible, a travesty worthy of serious complaint. but your running commentary on it actually made me laugh so hard i fell off the sofa
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tor840
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Post by tor840 on Jan 8, 2014 22:32:10 GMT
Even if we did complain I don't think it would make much difference education is the key more people understand the more they are able to learn
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spok
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Post by spok on Jan 9, 2014 0:32:29 GMT
Even if we did complain I don't think it would make much difference education is the key more people understand the more they are able to learn The problem is though this book is educating people to have a misinformed view of ADHD. This is a recently publiched book, in association with the BMA, written by educational psychologists who assert they are experts in developmental conditions. Yet... "Attention deficit hyperactivity disorder (ADHD) Children with this condition have difficulty focusing their attention on an activity even for short periods, and often become overexcited and seemingly unable to control themselves." Part of the reason many kids with ADHD miss diagnosis in childhood/adolescence is because of crap like this. Part of the reason why women are so under diagnosed is because of crap like this. No wonder we can't get people to take us seriously if they pick up something like this and conclude ADHD is a condition where children have short attention spans and are hyperactive. Not a disorder which chronically raises the suicide risk of its sufferers. Not a disorder that often results in significant lifelong morbidity.
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tor840
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Post by tor840 on Jan 9, 2014 1:08:09 GMT
But that's it they aren't experts in it because they haven't looked in to ADHD enough they haven't analyzed it like they do with the other mental health conditions therefore they just come to this crap conclusions on how it's just kids that are hyperactive yes this is one part of it but it's not the whole picture and until more research is gone into it I feel that' there never wil be proper information on ADHD
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Post by JJ on Jan 9, 2014 11:15:29 GMT
p.s. JJ is on the war path, me thinks..... So I wrote a review on Amazon - which is the original link I gave - it's under the name of Joannee - or JoanneJ or something - it did my head in trying to sort it out - I kept trying all sorts things - can't remember what I ended up with ATM it's the latest one - *******if you click the link and like my review, it'll keep it on the top by the book so people see it. Before I knew I could write one on amazon without buying the book, I commented on the most positive review there - about 3 or so down by 'S. Keene-Elliott' She commented back asking me to explain, so I did - this is on the website of course. What she wrote demonstrates perfectly how we do need to make a noise. Her son has recently been diagnosed with adhd, ASD and (dyslexia I think), she wanted to find out more, so bought the BMA book as a proper source of information..... I then wrote to the publisher: Family Doctor Books - Contact Us PageDear Sir / Madam I am raising serious concerns with the information on ADHD in the book 'ADHD, Autism, Dyslexia and Dyspraxia . It is very misleading, contains factual inaccuracies and does not even nearly describe the condition or treatments in accordance with the NICE Clinical Guidelines (CG72). It provides a completed distorted overview of the condition, which just serves to perpetuate popular misconception about this severely life-impairing disorder, and so hinders detection, diagnosis, treatment and acceptance. Of course, it also means the book doesn't do what it says and is worthless as a knowledge tool, certainly for ADHD (I haven't read the other sections). I would be grateful if you would look into this matter and let me know what action, if any, you will take. Yours faithfully ******So you could cut and paste my letter and do the same. I've also written a letter to the BMA I'll paste it here when I've sent it I need to find the best person (s) to send it to - I saw a committee that deals with public information or something, then there's the president, the press office and the general public enquiries (the last one they state they can't always read or something) I lost a couple of hours on there yesterday when I was looking cos their website has tons of really useful info about how CCGs operate, the legal and financial obligations of implementing quality standards and nice guidelines and everything like that .... -I found something that looked like it said it was a proper legal thing, effective right now, that would help those with bipolar and adhd - petra and @jan this could be exactly what you need. .... So I'm too scared to go back on there til later cos I have so much to do
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spok
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Post by spok on Jan 9, 2014 11:19:17 GMT
On the contrary Tor ADHD is in fact the most researched Psych condition in childhood. More research goes into it than Autism. There is lots of information on it.
The problem we are talking about here with MIND and this book is not a lack of research, but misinformation or at the very least highly biased information presented from positions of authority.
I don't think the problem is one of data or information available (what has been collected not necessarily what has been published). I think its a human problem. Bias, Stigma and stereotyping.
When people get into positions of authority who holds them accountable for the accuracy of the information they spout? for example Ian Duncan Smith was caught out lying about the number of people on benefits who are believed to be fraudulently claiming. He said it was 40 something percent but a report conducted by the DWP not very long beforehand claimed 0.7%. When he was quizzed on what evidence his claim was made he said it was just a guess. The damage had already been done though. What happened to him? Nothing. It's called propaganda. The mis use of information can be a very powerful tool to achieve aims. Pharma companies know this, look at the publication bias for AD's...
There is so much information out there these days how do people know what to trust, what to believe?
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jackat
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Post by jackat on Jan 9, 2014 11:21:23 GMT
link?
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Post by JJ on Jan 9, 2014 11:43:28 GMT
Link is on my post about the book in the first place - scroll up 5 or 6 posts - but I've now put it in the second post for you
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Post by fuzzywuzzy on Jan 9, 2014 12:00:50 GMT
WOW JJ...... TOTALLY AWESOME! x
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Deleted
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Post by Deleted on Jan 9, 2014 12:08:18 GMT
p.s. JJ is on the war path, me thinks..... So you could cut and paste my letter and do the same. Thanks for doing all this JJ. Perhaps an admin/site founder can also challenge the author(s) to come on here and explain themselves? Or at least be invited to the chatroom one Friday evening?
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Post by fuzzywuzzy on Jan 9, 2014 12:15:26 GMT
We are ALL experts through experience on that basis, I don't discriminate who I educate.... ..........the average person in the street ...........the average person in the street/family member/journalist/teacher/book author ............ who thinks they are an expert...........the professional person, be they GP, CAMHS, Psychiatrist, mental health worker or charity ............ who should be an expert, but is not , through ignorance, bias or out of date info/training
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Deleted
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Post by Deleted on Jan 9, 2014 12:19:57 GMT
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