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Post by justsawasquirrell on Apr 26, 2016 13:17:06 GMT
5 days from finding this forum to getting a referral for some kind of assessment.. Without the openness of others here, I think the self-doubt would have prevented me from going any further And yes garlic sausage bonus.. for the dog ( did it in the garden because of the stink, started hailing/snowing almost immediately ) A minor blip in what has been a fairly positive morning
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Post by contrarymary on Apr 26, 2016 18:44:45 GMT
5 days. v well done you.
it's taken me about 6 years So Far- to get distracted, forget, get distracted, forget, join the forum, see the GP, get assessed/diagnosed privately, go back to gp, get reluctantly referred to the clinic next door, waiting on waiting list, see a specialist... blah blah blah. never dull.
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Post by vagueandrandom on Apr 27, 2016 12:44:43 GMT
Hi justsawasquirrell it's good that you had such a positive response from your GP. . . . HOWEVER. . .you say that you don't know where you've been referred to. CAMHS is for Children and Adolescents. You will probably have been referred to your local Secondary Mental Health Service for a general psychological assessment. This is what happened to me when I moved areas to one without an ADHD service. I tried asking every time I saw the GP "where have I been referred?" and genuinely think that they are unaware that the Secondary MH Service does not have an ADHD specialist. I don't need a diagnosis - I fought really hard to get one - and I've just wasted 5 months on another waiting list! Anyhow. . .I hope you don't mind. . you mentioned MK, so I had a bit of a google for services. . . . Seems there isn't a specialist adult ADHD service in your health area. If you don't want to wait for months on the wrong waiting list, it might be an idea to go back to the GP and ask where they have referred you to and get them to check if there is anyone there who is qualified to assess and diagnose adult ADHD (I suspect that there may not be). If this is the case, you should ask if they will fund an out of area assessment. It's reasonably easy to get to the Maudsley from MK, so it would be worth suggesting that you'd like to be referred there. Unless you find somewhere better suited to you. It's a pain having to do all of the legwork and constantly challenging health professionals . . . Grrrrr!!!!
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Post by justsawasquirrell on Apr 27, 2016 13:15:39 GMT
vagueandrandom No apology needed for Googling, I appreciate it I was so flustered at the GP agreeing to refer me, it didn't even register to ask where he was sending a letter to Being sketchy I realised after that A in CAMHS stood for adolescent, but I didn't get any further I'll get on the phone and see what I can find out Is the Maudsley London? I haven't been there in over 20 years, the hustle and bustle terrifies me I'll have to at least try if that becomes my only option Thanks for your input
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Post by vagueandrandom on Apr 27, 2016 13:34:33 GMT
Yes. . fluster. . I posted because that's what happened to me on my first appointment with my new GP . .she upset me so much (refused to prescribe meds) and I'm pretty sure she doesn't 'believe' in ADHD . . . I was all prepared with a list of things . . and came out not quite knowing what she'd referred me for, so had to make another appointment to ask about it. . Yes, Maudsley's in London . . there may be somewhere you'd feel happier about travelling to. At least you GP isn't an ADHD refusenik . . early days
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Post by justsawasquirrell on Apr 27, 2016 13:40:17 GMT
Just given myself the fright of my life On your advice vagueandrandom I just phoned my surgery and firstly blurted out too much information to the receptionist I then spoke to the medical secretary to find out where I was being referred to, she told me ASTI at MK hospital I wanted to find out first what ASTI stood for ( assessment and short term intervention ) then phone to find out if they had a specialist in the subject I read through the information, then clicked on a mental health link....here goes.. The link started talking about memory services and dementia, no mention of ADHD so I panicked/got angry and phoned the number on the screen After a few minutes of talking with a man who sounded equally confused, he wondered why I would be referred to them and not ASTI?? I had phoned the memory assessment service.....I think I've failed ASTI went to answer phone, enough phonecalls for today, I'll try again tomorrow
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Post by contrarymary on Apr 27, 2016 20:20:41 GMT
quite a few local services have an assessment pathway/process which is: 1. you are sent to local general mental health services (community mental health team or CMHT) 2. to a local consultant 3 and only then - when other causes of your symptoms have been explored - to an adhd specialist it may be that this is what's operating in Milton Keynes. it should be possible to find out so that you know what you're dealing with, which is always easier than not. good luck
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Post by justsawasquirrell on Apr 27, 2016 20:55:07 GMT
Thankyou, so much information from so many places and all very much appreciated Feeling slightly parasitic at the moment because I don't have much to offer back More brain clutter, which probably explains why, after the third attempt, I stopped trying to dock the Bisto packet on the kettle base this evening! got to laugh..
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Post by contrarymary on Apr 27, 2016 21:39:42 GMT
don't worry. we've all been there, at the starting place. and been helped. and come back round to hold out a helping paw to the next one. it all balances out in the end, and that which has seemed mightily obscure becomes clearer inc what to do with a bisto packet, obvs amazing what we can do on autopilot
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Post by marionk on Apr 27, 2016 21:51:14 GMT
Thankyou, so much information from so many places and all very much appreciated Feeling slightly parasitic at the moment because I don't have much to offer back More brain clutter, which probably explains why, after the third attempt, I stopped trying to dock the Bisto packet on the kettle base this evening! got to laugh.. lol Add that one to the "You know you have ADHD when . . ." thread
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Post by justsawasquirrell on Apr 30, 2016 14:55:18 GMT
Yesterday I had a purpose... to take father-in-law to Oxford for a CT scan which took up until all of 11:00 How did I find myself losing the rest of the afternoon on Rightmove Thoughts, possibilities, if's, maybe's, all swimming in your head alongside memories, emotions from memories, smells from memories, memories from smells sounds ffs My mental filing system seems a bit broked Noticed that I am squinting whilst I concentrate, as if I'm trying to read my thoughts from a blurred image in my noggin Now questioning if I am noticing things more because I think I may have stumbled on the reason I think and act the way I do Today it has only taken 2 hours to list 3 items on ebay
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Post by easilydistracted on Apr 30, 2016 15:23:13 GMT
An afternoon on Rightmove? Yep, prob best no-one ever mentions pinterest or tumbler to you, you'll be pulling an all-niter on those sites.
Ebay's dangerous too, way too many shiny things!
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Post by justsawasquirrell on Apr 30, 2016 16:44:49 GMT
Ebay's dangerous too, way too many shiny things! Hmm shiny! or anything mains,battery,or usb powered I'm there. I have a great wire collection... fortunately as social interaction isn't my forte, I don't understand the likes of Twitter and Instagram........If there is a plus side
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Post by contrarymary on Apr 30, 2016 17:07:22 GMT
i've spent hours on rightmove, and i neither own nor can afford to buy a house. i like to find out about places and do fantasy house-shopping - used to do it with the local paper, have since advised all sorts of people about various options and areas despite never having done it myself now i've joined homeswapper, and i'm trying to keep myself limited to areas where i Might Actually Live rather than looking at seaside towns, country villages, wilds of scotland etc i spent a couple of hours this morning choosing knitting wool, simply because i had an email offering a free bag. and then i forgot about the free bag and bought the wool. and have spent another 45 mins corresponding with customer services the internet is a drug, and i'm hooked
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Post by justsawasquirrell on Apr 30, 2016 17:39:21 GMT
It's not just a man thing then? without the internet this forum wouldn't exist, so it's not all bad if it makes you feel any better ( which it probably won't ), I still keep meaning to read the post about the Guardian article.. I got distracted by the advert for "free" solar panels on whatever day I looked at it It sent me down an angry road to the .gov website because I knew they stopped subsidising solar panels early this year, so these companies are just collecting personal information unless you can afford to buy them.....tangents It seems we become aware of our sidetrack after the event, but every distraction is different so how can we prepare.....stumped ( less the # because that just annoys me, it means number! )
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Post by clubby on May 1, 2016 21:29:54 GMT
Re How do we prepare for a distraction? I have taken 53 years to figure this one out. There are some circumstances when it is critical not to get distracted, such as when there is a pot on the cooker. I allocate a tune to the task I have to pay attention to and I hum it out loud or to myself. When I get distracted, before long the tune pops back into my head and I remember the pot on the stove. Works for me and it is a miracle.
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Post by justsawasquirrell on May 1, 2016 22:29:40 GMT
Been logged in for ages..nearly started a thread but not quite I couldn't commit to the potential brain power it might use Using tunes is great, but then I get earworms (ribena advert again! aarrrghh!! ) that drown out the tune Electronic music is my hobby, but I can't even concentrate on that. 2 weeks off and I think I've added about half a dozen notes Got lost in the few bars I've done and progressed no further, story of my life And as a 40+ man I have spent a good hour creating my avatar, quietly snickering to myself...grow up man! But this is me clubby Finding a moment of clarity in which to compose a small mental tune is a rare thing, always thinking about stuff & things
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Post by clubby on May 2, 2016 8:53:33 GMT
Love your Avatar. It was worth the time spent on it. Very deep and meaningful.
It tells me your subconscious mind is very creative and desperate to burst out into a glorious firework display.
The only trouble is that "CREATIVITY" decides when to surface, whilst "YOU" just have to go along with the ride.
I know the feeling. Sometimes you just have to accept the gift (like the Avatar) when it comes.
The Avatar is a very small thing but it speaks volumes.
If the workplace was more able to accept our random creative acts as gifts then we would have an easier time in employment.
About the tunes. I couldn't compose a tune to save myself. I use silly tunes like the ribena advert to bridge my attention parallel universes.
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Post by vagueandrandom on May 2, 2016 10:27:13 GMT
I think that in the ADHD universe, the male/female is less pronounced. .
The way that our brains work is what brings us together here. . .
Of course there are differences, but we're all individuals. .
Just a thought.
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Post by justsawasquirrell on May 2, 2016 10:53:19 GMT
Just realised I forgot it is my dad's birthday today
Very angry with myself
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Post by Mouse on May 2, 2016 17:13:31 GMT
Commiserations on that from someone who often overlooks birthdays. Can't forget my Dad's tho' as it's the same day as mine. ☺
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Post by contrarymary on May 2, 2016 20:22:27 GMT
it's also my sister's birthday today. i actually sent a card on friday, which feels simply genius to me - i have walked on water and then i was unreasonably annoyed with my mother, who arrived for tea today and quickly reminded me that it might be a good idea to send a birthday text. just because that's what's happened in previous years i rarely actually forget close family birthdays, prob because they're ingrained in my head from childhood, but i often forget to do anything
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Post by justsawasquirrell on May 2, 2016 21:08:51 GMT
After a bit of a melt down, I did the 50 mile round trip The more significant, the more likely I am to forget Took over 30 years to register that my parents' wedding anniversary is on my birthday Had I sent a card on Friday, I too would feel a great sense of achievement, I'd be buzzing Must try harder
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Post by Mouse on May 3, 2016 4:55:23 GMT
It took a similar amount of time to register my mum's birthday is at the end of April and not March... so I'd have annual panic in early April that I'd missed it followed by sigh of relief as my sister put me right. I wonder if she got used to my panicked call of despair ☺
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Post by justsawasquirrell on May 5, 2016 9:38:31 GMT
So I was going to go back to work on Tuesday......signed off until next Thursday now Do I want to go back?...no not really Is it appropriate that I phoned in multiple times to speak to someone to confirm that I would not be put at risk of further injury, only to get a farcebook message saying that I would be risk assessed.....i.e. badgered back into a situation I don't want to be in again. Home visit from work today, I don't know what they expect to find? Don't even know if they are allowed to harass me after 2 weeks when I have a fitness for work note? Should be enquiring about other jobs instead of being on here, but that might start something that I can't then finish.. I'm going to keep my shoes on when my line manager turns up....and ask him to remove his! My home, my rules
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Post by justsawasquirrell on May 11, 2016 13:13:34 GMT
Only a handful of decisions to make but they are all inter-twined today and my head hurts, not in a headachey way, just an overwhelmed, can't untangle them to tackle them individually, feel like sobbing when my wife walks through the door way. Child-like. Responsibilities versus feelings. I don't know, just a pants day
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Post by vagueandrandom on May 11, 2016 14:21:38 GMT
I'm sorry to hear you're having a bad day Overwhelm is horrible. . Try taking yourself off off for a short walk, have a bath. . something to break the cycle. . and try not to be so hard on yourself
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Post by justsawasquirrell on May 11, 2016 17:25:52 GMT
Thankyou vagueandrandom. I know everyone on here has their own troubles, I read far more than I comment, so again thankyou
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Post by easilydistracted on May 11, 2016 23:16:32 GMT
Home visit? Wtf? I'm guessing/hoping that's just to make sure you're not mountain climbing in Greece or out on a golfcourse somewhere and they need go no further than the front door. Can't think of anything more stressful than having work seeing the chaos at home, my desk at work is bad enough
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Post by justsawasquirrell on May 11, 2016 23:41:26 GMT
Haha easilydistracted, I suspect it was exactly that! Anything over 2 weeks is considered long term sick, so they had to just double check I was genuinely unfit for work; I got off my pogo stick and put down the juggling balls when the doorbell went. amazing, I didn't get even a phone call for the first 2 weeks. my notice is going in today, main cause of my morning meltdown
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