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Post by andy12345 on Jun 24, 2011 18:00:58 GMT
So, I've apparently been having these, but so rarely. Only about 6 in 5 years. I only managed to find out early this morning after my 6th attack. It's always the same, a central effect, no pain, no body symptoms, only optical, and I was aware of the patterns whilst my eyes were closed. Anyone else have optical migraines? Anyone suffer migraines in general? Symptoms A shimmering/fractal/kaleidoscope (take your pick) effect etc that does not go away with eyes closed and pervades through both eyes. This is it actually. www.knownjohnson.com/?p=73#
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Post by boo on Jun 24, 2011 18:55:33 GMT
is that where you get strange patterns in you field of vision? i read about that somewhere and never knew it was a migraine, i get that now and again, (havent done for ages though) . i've never ever suffered with 'migraines' but remember someone mentioning that this vision thing was actually classed as one.... and was quite surprised when they described it, cos it was what i had had but never heard of anyone else describing it before, and found it really difficut to explain it to anyone too, so never bothered..... especially as it goes away on its own and stuff. anyway, waffle over is that what you meant?
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Post by andy12345 on Jun 24, 2011 18:57:56 GMT
All I can say is the words I used to describe it to myself was shimmering pulsating, kaleidoscope etc that does not go away with eyes closed and pervades through both eyes, I used to put potato waffles in the toaster as well as turkey burgers.....the oil wasn't too good though as it fell through..
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trigger
Member posts quite a bit
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Post by trigger on Jun 24, 2011 20:05:52 GMT
God this adhd keeps creeping me out. It must b related I can't believe ppl are talking about it here. I'm 31, just diagnosed but did do tests on optical migraines when I was 16 or so. 1st I lose peripheral vision and am unable to focus on objects. I get grainy yellow flashes streaming across my field of vision. Then as it fades away the actual headache sets in. Its vile and lasts 1-2 hours. Might be triggered by being tired and/or bright lights. I only get them once a year now. Used to be more frequently
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Post by boo on Jun 24, 2011 20:13:07 GMT
yeah like a kaleidascope, and it just wont go!! trigger, i dont get any pain, either during or after, do optical migraines usually have pain aswell then? maybe thats not what it is for me then, maybe im just a freak I used to put potato waffles in the toaster as well as turkey burgers.....the oil wasn't too good though as it fell through.. although maybe im not the only one eh....... got any tissue left andy ;D
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Post by andy12345 on Jun 24, 2011 20:13:44 GMT
The optical migraine is meant to be pain free. Yours does not sound exactly like what I tried to describe although it's damn hard to describe it, during my short questing this morning, the word fractals also was mentioned. Considering how unfit I am, I should be more predisposed to migraines, yet only had one pain migraine when I was about 8. i must be doing something right o.O
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Post by kakema on Jun 24, 2011 21:40:22 GMT
I've had a couple of pain ones in my life and they were pretty grim. Had the optical ones a few times when younger but not for a long while. My vision went funny - like I was looking through a multi-faceted prism. Lots of angles.
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Post by twix on Jun 25, 2011 6:13:10 GMT
I've had this, I was in town, think it was triggered by bright lights in a shop, I couldn't see properly it scared me, managed to walk to the opticians who were very nice and made sure it wasn't anything worse.
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Post by twix on Jun 25, 2011 6:14:13 GMT
I have had normal migraines too, but only very rarely, 3 or 4 times in my life.
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Post by boo on Jun 25, 2011 11:31:49 GMT
actually shimmering is quite a good adjective to use too, dunno bout pulsating though?
do you find it moves with your eye movement too? whatever you are looking 'at' would be where the 'pattern' would be, obscuring that entire part of your vision?
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Post by andy12345 on Jun 25, 2011 14:25:32 GMT
3403458 5£%£50s';jafap4f0f4u 4f$F$F f94304f90uYes$%$^$^ £$£$as£$£%£its£$%£%£%^before the optic nerve£$£$etc£$£$and therefore3$"%"%$£ 5pervades£$£$"$
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Post by boo on Jun 25, 2011 14:43:36 GMT
totally agree!
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Deleted
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Post by Deleted on Jun 29, 2011 21:19:59 GMT
That sounds weird and unpleasant.. :0(
last summer I had a 'Aura' migraine, which was really frightening.
I was convinced it was a stroke which had me running (hobbling) to my GP which Ive never done in my life..Since that experience ive spoken to a couple of other sufferers and have been enlightened to these weird migraines I'd never heard of.
I have these strange brain moments (!) occasionally since i was in my teens, I really struggle to describe so bare with me.
Its a heaviness in my head, a pleasant but strange sensation in my jaw (like my jaw is falling away from my skull) and the top front of head has an indiscribable, tingly, sensory experience. I used to think it was odd but im sure its to do with these aura thingies now..
Anyway, i hope you feel ok now and dont have another one anytime soon?
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Post by mindthegap on Jun 30, 2011 19:46:01 GMT
I've have the aura migraine thing, like you simone, feels like I'm having a stroke. I get tunnel vision,see colours and shapes, pins and needles/numbness down one side of my body..including in my mouth so I get slurred speech. The last one I had was the freakiest...I had aphasia, as the doctor explained my inability to say the right words was called.....I knew what I wanted to say but the totally wrong word kept coming out....really scary.
I've also only had them occasionally, once every 2-3 years, since my teens. I link it to times when I've been in situations where I've had to concentrate massively for long periods of time...the first was in a triple period science class...just don't think I could sustain the attention and my brain flipped!
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bigsmidsy
Member's not posted much yet
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Post by bigsmidsy on Jul 1, 2011 23:34:18 GMT
Is this another adhd symptom? ? I get these, usually in the summer but not very often. They occur on bright sunny days mostly. Limited peripherel vision and sort of slow moving blobby lights. Hard to describe, anyway it goes after a short while so i never bothered about it.
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Post by andy12345 on Jul 2, 2011 10:21:31 GMT
You could guess from now until doomsday, which is a half-past next week. You haven't got much time, so plan it carefully.
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Deleted
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Post by Deleted on Jul 3, 2011 20:20:46 GMT
Stress doesn't help at all, my husband sufferes with cluster mirgaines and hes always in pain over the wknd after a manic week.
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Post by boo on Jul 3, 2011 20:34:07 GMT
simone, cluster migraines, is that literally where they are clustered one after another?
if it is that must be completely debilitating!
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Deleted
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Post by Deleted on Jul 3, 2011 20:45:55 GMT
In my husband's case they can go on for weeks at worst, one after another sometimes a day or two break inbetween or continuous. The GP gave him amitriptaline in a very low dose which does break the cycle and does ease it.
But at the mo hes just in pain wknds only which must be lifestyle related, and unfortunately no off the shelf painkillers work. His family seem too suffer with them too. I keep nagging him to go back to GP but you know what men are like. Ill have to make the appointment.
Another trigger is alcohol and staring at computer at work all day.
Its really horrible i dont know how he copes, im such a wimp with a headache!!
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Post by boo on Jul 3, 2011 20:50:16 GMT
yeah that does sound pretty awful, poor thing!
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Deleted
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Post by Deleted on Jul 3, 2011 21:00:33 GMT
Thanks Boo, Ill pass on the sympathy!!!
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Post by phil on Jul 4, 2011 16:45:37 GMT
Big migraines are linked to Epilepsy as Epilepsy is a comorbid condition of ADHD there is No reason why migraines should not also be a Comorbid effect of ADHD! As for pain free migraines there could be other explainations like sleep deprivation!
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Post by andy12345 on Jul 4, 2011 17:13:56 GMT
I sleep deprivated considerably for years, without optical migraines.
Now I don't and they only randomly appear.
I haven't found a trigger yet, not that I've got a running campaign to establish it anyway.
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Post by phil on Jul 4, 2011 17:22:53 GMT
Any thing else happen during these optical migrains? Like metalic taste in mouth? Hearing chanting? (Noises) Feeling quesey?
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Post by andy12345 on Jul 4, 2011 17:28:17 GMT
Only as described previously. When I studied a few sites, I did not see epilepsy listed (unless I missed it lol) as linked to optical migraine. I did wonder it at the time.
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Post by phil on Jul 4, 2011 17:34:55 GMT
Have you looked into epileptic seizure aura's? And yes you can have an aura without a seizure!
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Post by andy12345 on Jul 4, 2011 17:37:49 GMT
Before I look phil, please answer this.
In your experience, if I have these thingies you are referring to, am I likely to only have had about 6 in the last 6 years or should it be more. Also, if I am susceptible to these, should I at least have some other epiletic related issues at least once or twice?
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Post by phil on Jul 4, 2011 17:50:55 GMT
It's truly a time bomb and can be trigger related! People can have an aura every other hour or once every 10 years! You use a computer a lot and as you are sleeping well now you could be photo sensitive meaning that it is brought on by rapid flickering lights I'm not photo sensitive but have had aura's I don't get the colours in my aura's but that is common in others aura's even though I have never experienced them myself!
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Post by andy12345 on Jul 4, 2011 18:21:56 GMT
updated my first post with examples of optical migraine patterning.
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Post by phil on Jul 4, 2011 18:55:14 GMT
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