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Post by Deleted on Sept 23, 2013 11:48:48 GMT
Present and (in)correct.
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Post by Kathymel on Sept 23, 2013 21:38:47 GMT
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Post by inca on Sept 23, 2013 22:20:54 GMT
Hi, just sticking nose in again. Reading what was said in your email, it appears the guy hasn't actually agreed to give you a decision, just up to an hour of his time, but not a specific goal. In that case he could probably argue that you got what you paid for. However, was thinking about it and i suspect you would have a reasonable chance of getting more of an outcome if you went down the route of looking at what he said. In theory, he could have given you several answers - if he confirmed adhd, then he would have a duty of care to provide treatment for that - somehow, which he hasn't. If he decided you don't have it, or he isn't sure, i would tempted to argue the point that he should not have gone down the route of looking for someone to prescribe controlled drugs which are potentially addictive and can have awful side effects, according to patient info leaflets. Either way, he has failed in providing a safe service to you and could have put your health at risk.
If you really want to rock the boat (prob last option though, after everything else possible) i would prob suggest writing to gmc, copying in your local nhs trust and the private guy. seem to recall that part of their hippocratic oath is to do no harm, and i could imagine you would have a case to suggest these professionals have caused you significant stress and anxiety due to their lack of action and refusal to treat your symptoms, which they have probably exacerbated by their failures. Might be worth a shot, as may well get them to act, if only to get rid of you! Only thing is, you won't be popular with them, but they'll know not to mess you about!
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Post by Kathymel on Sept 23, 2013 22:46:05 GMT
Day 117 in the ADHD purgatory house.
Kathymel revealed a hitherto unseen, sweet-natured side to her personality when she put on her most honeyed voice and phoned the man who'd replied to her complaint to ask a few questions.
After sweetly outlining guidelines and quality statements to someone who should bloody well know better, she asked nicely if Dr R had had any further training in diagnosing ADHD which might explain his sudden change of position from being someone who stated he was unable to diagnose ADHD in adults to someone who now fucking well states he is competent and qualified.
Complaint Man was mystified.
After sweetly thanking Complaint Man, Kathymel hung up and joyfully started composing a new email ...
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Post by Kathymel on Sept 23, 2013 23:00:34 GMT
Hi, just sticking nose in again. Reading what was said in your email, it appears the guy hasn't actually agreed to give you a decision, just up to an hour of his time, but not a specific goal. In that case he could probably argue that you got what you paid for. However, was thinking about it and i suspect you would have a reasonable chance of getting more of an outcome if you went down the route of looking at what he said. In theory, he could have given you several answers - if he confirmed adhd, then he would have a duty of care to provide treatment for that - somehow, which he hasn't. If he decided you don't have it, or he isn't sure, i would tempted to argue the point that he should not have gone down the route of looking for someone to prescribe controlled drugs which are potentially addictive and can have awful side effects, according to patient info leaflets. Either way, he has failed in providing a safe service to you and could have put your health at risk. If you really want to rock the boat (prob last option though, after everything else possible) i would prob suggest writing to gmc, copying in your local nhs trust and the private guy. seem to recall that part of their hippocratic oath is to do no harm, and i could imagine you would have a case to suggest these professionals have caused you significant stress and anxiety due to their lack of action and refusal to treat your symptoms, which they have probably exacerbated by their failures. Might be worth a shot, as may well get them to act, if only to get rid of you! Only thing is, you won't be popular with them, but they'll know not to mess you about! I agree, Inca (and you have as much right to comment as anyone, so don't worry about that). He didn't say he would provide me with any specific result. However, I find his attitude since the consultation lacks professionalism, which is what I mainly have a problem with. Also: He has failed to respond to direct questions and concerns about his report and, in fact, rarely responds to emails at all. After my GP said she was unwilling to prescribe until after titration, he said he would register with an online pharmacy to prescribe for me but he hasn't done this. When I explained to my GP about the discount, she said it was unethical to offer a discount in exchange for advocacy.
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Post by inca on Sept 23, 2013 23:10:50 GMT
This bloke is an absolute arse! Makes me really mad that you're being treated in this manner. Am wondering whether he's in private practice because he couldn't work in nhs. have known it before that doctors have pissed their colleagues off and got so many complaints that they've left to go private - thinking he might be one of those. God help any patients he has previously operated on - maybe i Will take out this appendix, or maybe i won't - maybe Will just see if anyone else can do it for me! Grrr!
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Post by JJ on Sept 23, 2013 23:13:27 GMT
Day 117 in the ADHD purgatory house.Kathymel revealed a hitherto unseen, sweet-natured side to her personality when she put on her most honeyed voice and phoned the man who'd replied to her complaint to ask a few questions. After sweetly outlining guidelines and quality statements to someone who should bloody well know better, she asked nicely if Dr R had had any further training in diagnosing ADHD which might explain his sudden change of position from being someone who stated he was unable to diagnose ADHD in adults to someone who now fucking well states he is competent and qualified. Complaint Man was mystified. After sweetly thanking Complaint Man, Kathymel hung up and joyfully started composing a new email ... Oohhh!! Well done you xxxx. Stand down troops! .
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Post by Kathymel on Sept 24, 2013 17:35:41 GMT
It's taken me half the day, but I finally hit 'send' on my response to Complaint Man's response to my complaint. Have agreed to see not-sure-if-he's-able-to-diagnose-or-not psych, but made it very clear that I am not confident in his ability to make said diagnosis, suggested I would be more confident if he acquainted himself with Adult ADHD and mentioned that the ADDISS conference has a talk on ADHD in women. Think I will start a letters thread. Sometime.
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Post by DKL - darkknightslover on Sept 24, 2013 20:10:59 GMT
A thought occurred to me earlier today; Have you written anywhere in these letters about how much help you may have been getting in writing them, or how difficult you find it to sustain your attention on it/you're only able to keep up your efforts for this from how angry you're feeling from the injustice you feel from it all? Just to an untrained eye who's not aware of hyper-focus it could look rather suspicious and might be contributing to the hardness of the brick wall that you're facing.
Keep it up though! Have you thought about getting in touch with the media? BBC 5 live did a feature on adult ADHD recently. If you're willing to "out" yourself, they might be interested in your story which could in turn help you out?
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Post by Kathymel on Sept 24, 2013 20:33:26 GMT
Hi DKL. It's in the back of my mind that they may consider I'm too capable to have ADHD but I've not mentioned the help I've received in any letters (as far as I remember). There must be lots of people who use advocates/family etc to write for them, so I would hope they take that into account. I did mention in the epic that I sent to the NHS psych that intelligence masks symptoms and that I was quite bright. I did think about writing to my local paper. That's as far as I got, though. I meant to ask you how long it has taken to get support in place at uni?
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Post by Deleted on Sept 24, 2013 20:59:20 GMT
If they query it just say ego-driven perseverance is very common.
Dopamine trips; every little helps!
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Post by Kathymel on Sept 25, 2013 10:13:27 GMT
Got an acknowledgement back from the complaints team, today. My point about having a right to a choice of consultants doesn't count in Wales, apparently: I should explain that the third point you raise is taken from the NHS Choices website. This is about the NHS in England, not in Wales, which is managed differently under separate legislation. In Wales patients are allocated to a professional who is appropriately qualified and experienced and who has the shortest waiting time. If you are dissatisfied with the clinician leading your care, you can discuss being transferred to another, appropriately qualified and experienced, member of the team.Fails to acknowledge that none of the team members may be either qualified or experienced.
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Post by DKL - darkknightslover on Sept 25, 2013 17:34:06 GMT
neither confirming or denying where I am studying, for the confidentiality of all, I am still waiting for my needs assessment to be done. Being in training for a healthcare profession means my place is funded by the NHS. I was a bit late getting my paperwork in to them, but they have approved a needs assessment for me as I was diagnosed with ADHD after my previous degree. However having the confirmed diagnosis has meant that they're already taking the dyslexia and ADHD into account when marking and assessing me. There aren't any guides about working with ADHD at uni (maybe we should write one? ), but I can't imagine that there'll be much more than the support you get for dyslexia in terms of how one's work is marked. Anyone reading this might want to look at Pocket Study Skills: Studying with Dyslexia by Janet Godwin as there are some really good bits of advice in there very clearly explained and with lovely little pictures (not that I'm easily entertained or anything ). Kathymel I'm really sorry that you're finding it so tough with the Welsh NHS. big huge hugs! Did they say who you could discuss this with? Looks like media might be your only option at this point, although ADDISS is the ADHD charity right? Might also want to contact Mind who seem to be the biggest mental health charity. Otherwise you might want to go private again with a reputable psychiatrist and move to England at some point :S
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Post by Kathymel on Sept 25, 2013 20:20:50 GMT
You could try pointing them at this, DKL - College AccomodationsThey should be doing more than just taking the dyslexia into account.
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Post by jan on Sept 26, 2013 5:40:47 GMT
Kathymel I'm really sorry that you're finding it so tough with the Welsh NHS. big huge hugs! Did they say who you could discuss this with? Looks like media might be your only option at this point, although ADDISS is the ADHD charity right? Might also want to contact Mind who seem to be the biggest mental health charity. Otherwise you might want to go private again with a reputable psychiatrist and move to England at some point :S ridiculously MIND do not recognise ADHD as a mental health problem Swansea seems to me to be best place to get dx in wales - remember guy in feb think was - all done and dusted in 3 weeks - thought he may have it , saw doc, got referred and diagnosed and meds
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Post by DKL - darkknightslover on Sept 26, 2013 8:22:51 GMT
ridiculously MIND do not recognise ADHD as a mental health problem How on earth do they reason that one?! You have to see a psychiatrist and everything!!!
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Post by JJ on Sept 26, 2013 8:35:08 GMT
ridiculously MIND do not recognise ADHD as a mental health problem How on earth do they reason that one?! You have to see a psychiatrist and everything!!! I agree - MIND is officially mental . They're on my list of people to write to - also not included on 'rethink' or 'time to change'
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Post by DKL - darkknightslover on Sept 26, 2013 15:11:53 GMT
You could try pointing them at this, DKL - College AccomodationsThey should be doing more than just taking the dyslexia into account. Ah sorry I didn't say that very well; I meant that there aren't any books out there you can buy as far as I've found. My uni does have appropriate action plans in place, just as I haven't had my needs assessment done yet I'm sort of in limbo on some points.
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Post by JJ on Sept 26, 2013 20:59:39 GMT
I've been thinking...
Does anyone know whether your CCG is determined by where you live or by where you're registered? Jan - do u know this ?
Reason I'm asking is that you go to UCLan, and most students register with their university GP, and presumably UCLan is in England....
So, if your CCG is determined by which GP you're with and you registered with your university GP, you'd be part of NHS England, so the rules about choosing your consultant etc would then apply to you.....
Just a thought.....
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Post by JJ on Sept 26, 2013 21:15:50 GMT
Saw this yday and thought might be useful to add to your armoury of knowledge for the complaint thing - and it's also relevant to the Welsh Minister's response to you: Following on from the NICE Quality Standards (which are only written for "high priority areas for service improvement"), NICE then has an 'Into Practice' section, which is a guide for Commissioners on what to do / how to meet the quality standard. In this is a sub-section Developing a high-quality service for the diagnosis and management of ADHD in adults and young people in transition , which says: - child and adult psychiatrists, paediatricians, and other child and adult mental health professionals (including those working in forensic services) should undertake training so that they are able to diagnose ADHD and provide treatment and management.
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Post by Kathymel on Sept 26, 2013 21:35:31 GMT
I have thought about moving my GP, JJ, but it would be a lot of hassle as I'm in Preston less than half the week (and this year barely at all). I also worried that I might move and end up starting from scratch with just as long a wait all over again.
Thanks for the NICE info. Every little helps ...
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Post by JJ on Sept 26, 2013 21:38:48 GMT
some things I've discovered recently have made me think that maybe the Maudsley has an arrangement with one or some GPs in each area, who are willing to prescribe, and who they send your details to as well as your own GP, so that if your own one refuses, there is someone else, albeit probably a way away from you, who will. Interesting ... I wonder how I would go about finding out if there was a GP in my area who is linked to them? I happened to speak to a Clinical Psychologist at the Maudsley today (she was telling me that Kent usually refuse funding for that 3 day course I want to go on - but also that someone else in Kent has just appealed this and won) Anyway, it was after the above post, so I asked her about what they do re prescribing and whether they have any special arrangements. She said she wasn't entirely sure cos she doesn't get involved with meds side of course, but that Kent was different anyway cos they have a satellite clinic there and the contract for adults. She said she didn't know about other areas and the person to ask would be the Clinical Nurse Specialist - who can be contacted through the main Adult ADHD number (which is the one guarded by the horrible admin woman). She was obviously vague but I came away from the conversation with the impression that it was her impression that the Maudsley try and make sure something is sorted out, even if it means they prescribe for a bit - just my impression... Wrote this here so I didn't derail that other thread anymore xxx
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Post by Kathymel on Oct 1, 2013 13:28:42 GMT
A bit of more positive news today.
I wrote to my GP a few weeks ago about finding a psych who was actually qualified and mentioned a Dr Sood who I'd heard had diagnosed someone local-ish. I got a letter from her today to say she hasn't been able to speak to him personally as he's away, but that she has sent my info to him and if he thinks he can help, he'll send me an appointment.
Everything crossed again.
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Post by JJ on Oct 1, 2013 23:09:28 GMT
Fingers crossed for you xxxxxx
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Post by DKL - darkknightslover on Oct 3, 2013 18:54:17 GMT
Yes and here too!!!
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Post by Kathymel on Oct 31, 2013 18:35:48 GMT
Got a phone call from the guy dealing with my complaint against the CCG, yesterday.
Previously, they'd set me up with a consultation with Dr Roberts (who refused to refer me, before) and, although the complaint chap acknowledged that that he did seem to be unqualified, the MH boss insisted that he was good for the job. I insisted that he wasn't qualified, but agreed to see him anyway.
It seems as though they actually listened (a bit). I have now been referred to a different psych (although she is still a general psych, not a specialist). I was told she has offered to do the consultation because she was concerned that Dr Roberts hadn't given enough time for it. She told the boss that the one hour (!! I'd no idea) consult I had was too short and that at least 3 hours would be needed and she outlined the need for a thorough investigation into school reports, etc.
It's another month longer to wait, but it sounds like it's going to be worth waiting for.
Really glad not to be seeing
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Post by DKL - darkknightslover on Oct 31, 2013 18:47:49 GMT
Woo hoo!!!!
Sent from my C6603 using proboards
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Post by contrarymary on Oct 31, 2013 19:48:13 GMT
fingers crossed!!
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Post by Deleted on Oct 31, 2013 20:21:26 GMT
................. Really glad not to be seeing Didn't manage to finish the sentence - probably fell unconscious onto the send button. Hey-ho
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Post by Kathymel on Oct 31, 2013 21:42:20 GMT
................. Really glad not to be seeing Didn't manage to finish the sentence - probably fell unconscious onto the send button. Hey-ho Ha ha! How did I manage to do that? ... Dr Roberts. I feel rather negative about him, regardless of the fact that we've never met.
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