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Post by contrarymary on May 6, 2014 19:45:31 GMT
woop bloody woop woop woop!!
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Post by fuzzywuzzy on May 6, 2014 20:28:51 GMT
more magnificent members of the Maudsley mob!
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Post by computermandan on Jun 6, 2014 10:14:45 GMT
So as per Psychologists instructions I actually remembered to chase up the GP ten days later than suggested... GP secretary said "yes we've had the letter, is there anything else?" Dan said "erm... i don't know what do you normally do?" secretary "i'll check the doctor, which doctor do you usually see" Dan "The one you say is there for an appointment" Secretary "ok i'll chase a doctor" Dan "ok thanks"
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Post by computermandan on Jul 6, 2014 21:29:26 GMT
visited GP on Sat.. got an (un)healthy dose of shingles it seems... doc says caused by stress... lol.
also mentioned secretary has passed on request for referral to Maudesly to some governing body, something to do with funding... they're waiting on that.
stuck.
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Nick
Member's not posted much yet
Posts: 6
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Post by Nick on Aug 13, 2014 21:42:54 GMT
Dan, I just wanted to say that bar the odd thing here or there you sound just like me - swamped with much of the ADHD sysmptoms but pretty low on impulsivity. I've yet to seek a diagnosis, so hearing your tale of woe so far has me dreading being led down a million wrong paths. On the positive side where I live (Edinburgh) there is seemingly a specialist in adult ADHD who (through some means my wife relayed to me but I forget) you can get a direct referral to so I'm hoping to avoid getting the run around.
Again, thank you sincerely for sharing because it's nice to hear a familiar story coming from someone else. Makes me feel less like I'm some kind of unique and alien creature.
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Post by computermandan on Aug 14, 2014 9:01:41 GMT
Good Luck with your Journey Nick I hope should you choose to seek diagnosis it works out like it looks like it could....
I'm just floating around aimlessly with random new ideas and the usual influx of setbacks. post holiday (freedom) blues at the minute I love camping because you do what you need to do when you need to do it, assuming you haven't left everything at home that is
This year I had a big list and a big marker pen, and still the packing was started late and into the wee hours followed by 3 hours sleep and a "focused" drive to our destination.
glad my ramblings offer something to someone lol.
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surprised
Member's not posted much yet
Yes, a custom title. The only one.
custom title?
Posts: 47
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Post by surprised on Aug 18, 2014 5:50:06 GMT
Can i just add that drs nowdays always seem to refer you to the internet, instead of actually telling you and giving you information! Its a huge cop out IMO and very lazy. Ok they are pushed for time, but what did they do prior to the internet?
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Post by computermandan on Aug 19, 2014 15:09:15 GMT
had another psych appointment today... only 20 minutes late after taking the whole morning off to make it on time...
told him I'd stopped taking the citalopram as it just made me "careless" about everything.
he listened and agreed with my reasoning, agreed no more anti-dep meds and will chase the referral for me with GP.
didn't offer any additional suggestions but recognised my moods/anxiety appear to come and go with issues caused by the same patterns of behaviour whilst not erratic visibly its more the distracted lack of focus that causes the issues...
one suggestion he did make was to turn my mobile off at work... seems I've become addicted to mobile gaming apps (oops)
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Post by contrarymary on Aug 19, 2014 15:56:47 GMT
so the psych has agreed to stop plying you with anti-depressants - that is indeed progress compared with a few months ago. i'm now on the queuing for maudsley funding square too - do you want to race?
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Post by computermandan on Aug 19, 2014 16:08:12 GMT
sounds like fun... although at the current rate of progress I'm not sure I'll remember what I was there for!
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Post by computermandan on Aug 19, 2014 16:13:52 GMT
Whilst I'm here... I wanted to post this somewhere because ever since my Dad played it the words just kind of stuck and became more and more appropriate with age.
Though I think it probably applies to most adults in some way or other I really find it rings true for pretty much anything I've ever wanted to do or be able to do...
the "achievements" in my life so far (wife, 3 kids etc) I've kind of floated through coasting in the "middle" of everybody around me... it's only recently I've noticed I haven't actually DONE anything with the time so far, I certainly haven't really chosen to do anything EVER....
The lyrics are to the song Time by Pink Floyd...
Ticking away the moments that make up a dull day You fritter and waste the hours in an offhand way. Kicking around on a piece of ground in your home town Waiting for someone or something to show you the way.
Tired of lying in the sunshine staying home to watch the rain. You are young and life is long and there is time to kill today. And then one day you find ten years have got behind you. No one told you when to run, you missed the starting gun.
So you run and you run to catch up with the sun but it's sinking Racing around to come up behind you again. The sun is the same in a relative way but you're older, Shorter of breath and one day closer to death.
Every year is getting shorter never seem to find the time. Plans that either come to naught or half a page of scribbled lines Hanging on in quiet desperation is the English way The time is gone, the song is over, Thought I'd something more to say.
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Post by contrarymary on Aug 19, 2014 18:33:29 GMT
computermandan choose something. however small, choose something. and do it while we're waiting
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Post by computermandan on Aug 22, 2014 9:35:08 GMT
I saw this too late then forgot to post yest. lol... does completing the journey home from work count ? lol Today I will try to leave the office on time and surprise the OH... (potentially too ambiguous???)
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Post by supine on Aug 22, 2014 15:17:58 GMT
My wife and I -> Two lost souls swimming in a fish bowl, year after year Every time we hear it we just look at each other and laugh!
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Post by computermandan on Aug 29, 2014 11:54:45 GMT
sounds about right... I wonder if that randomly odd creativity of "The Floyd" was influenced by an ADD mind in some way? ? ?
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Post by supine on Aug 29, 2014 14:11:35 GMT
Syd Barrett was about as ADHD+ as you can get, plus a lot of other stuff. Although the overuse of psychedelic drugs didn't do him a lot of good. The bloke was a musical genius, but fragile.
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Post by computermandan on Oct 7, 2014 11:30:40 GMT
and we're back to ridiculously frustrated all over again.. come here to un-chest it all lol.
called GP's as suggested by them after apparent 8 week turnaround for referral feedback??
they didn't have a clue what I was on about. Initially suggested I should have heard from Maudesly (spelling?) in july. then asked if Im still seeing psychologist and I explained as per last letter been discharged by him now. They found the letters then promptly said they had no idea what was happening and maybe I should make an appointment with my GP as I havent seen them for a while...
confusled completly Dan said... yeah ok then.
now perplexed why on earth do I need to catch up with my GP... cup of tea and a chat maybe?
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Post by contrarymary on Oct 7, 2014 14:54:43 GMT
boo. i guess if you see the GP you will get on his/her radar and they will take action for you ie chase up the referral to see what's happening. tho maybe it might be quicker if you call the Maudsley yourself to see what's happening? that way you can either not spend your time catching up with the GP, or you can get the GP to be your reinforcements/second line of attack with Maudsley? amazingly i discovered that as soon as my GP got a letter from the Maudsley with a query about funding, he got straight on to the CCG, got funding agreed and had confirmation sent back to the Maudsley, all within the space of three weeks!!! so now I guess I'm waiting to hear about an appointment. Different flavours of waiting, same result.
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Post by computermandan on Oct 9, 2014 13:46:05 GMT
aarrrghhh.. so I decide to make an appt.... Saturday is booked. Monday is booked after 3pm... "Does the doctor do video conference appointments?" They didn't appreciate my comment... then I gave up... "I'll call another time" I despise making appointments.
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Post by computermandan on Oct 10, 2014 12:52:45 GMT
ok so the resolution post anxiety was to have a "telephone consultation" where the nice lady doctor who agreed to set me on this path in the first place talked to me about the referral and said she had actually dealt with the process herself and brought it up in the funding meeting - oddly enough she seemed almost excited about it ? ? ? "I pushed to get this through as I think it could well be an explanation for your bouts of depression and difficulties we've discussed in the past" so in any case we're back in happy land again as apparently now just waiting on an appointment from the infamous clinic... the race is back on contrarymary
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Post by contrarymary on Oct 10, 2014 16:39:31 GMT
woop woop! GP telephone consultations - they are a brilliant invention. after a few too many false starts: on your marks, get set....
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Post by JJ on Oct 10, 2014 20:04:08 GMT
I've not been on the forum much for quite a while Just read your thread computermandanCANNOT believe they're still faffing around and you've not been diagnosed yet
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Post by supine on Oct 10, 2014 21:08:24 GMT
I bet if undiagnosed ADHD frustrations caused people to go postal on GP's they would sort their act out.
Still got my fingers x'd for you Dan
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Post by computermandan on Oct 13, 2014 15:04:03 GMT
thx all... stressing about the whats and where fors now (is that how you write that?)
todays procrastination led me to the SLaM website for Maudsley's services, been browsing all day on and off.
drifting off to "how do I show that I was the same in school etc?" land.
I have some school reports but they don't show too much - a bit of "if only Daniel Applied himself or participated" is all really.
I asked my mother about it all and got "you seemed alright to me" and then drifted off into book+wordsearch+shoppinglist+tv+daydream land again. Dad said "stay away from pills" my old school mates remember some of my quirks like spending all day doing a 30 minute piece of homework and actually getting it done in 15 minutes... but I can't take them with me.
hmmmm... how or what do you do?
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Post by slash32 on Oct 13, 2014 17:57:55 GMT
Drifting through life not being able to realise your potential. Not able to enjoy the simple things. Not being able to give yourself fully to your partner.
It doesn't matter what the label is or whether you feel the label is a perfect fit for you. UK health works on a narrow set of parameters for helping people; it's almost comparable to binary. Integrity, duty, honour? These words mean nothing when you are in survival mode and the NHS has been in survival mode for a long time.
This doesn't mean you don't deserve to be recognised and helped but we have to realise there are no experts waiting in the wings to rescue us so we must *seize* the help that is available before even that little help is beyond grasp.
You work in support yourself; it's one fire fight after another. If it's not a fire, it doesn't get looked at.
It might be time to put yourself first, fella.
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Post by computermandan on Oct 14, 2014 15:33:16 GMT
Slash.. sometimes I wish I would... then I do and it last about 5 minutes before i slip back into aim to please everyone mode again...
are you sure you dont actually know me? lol.
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Post by computermandan on Dec 1, 2014 14:59:17 GMT
wahey... just took a call on my mobile from a nice chap named Gary at Maudsley... assessment booked for 19th Jan yay!
now I'm panicking about getting there and undecided on taking anyone with me (if allowed) lol.
relieved yet cautious.
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Post by computermandan on Dec 1, 2014 15:22:12 GMT
ok had an email with details... they're used to dealing with people like me I guess lol...
We would ask if you could (where possible): 1. Bring a parent or someone who knew you well in early childhood (0-12 years of age) with you to assist with your appointment. 2. Please also bring any school reports that you may have. 3. Please complete the enclosed questionnaires and bring them with you to your appointment. The questionnaires include those to be completed by an informant from both childhood (eg parent/relative/elder sibling) and adulthood (eg partner/friend/relative who has seen you regularly over the previous 6 months).
this could be interesting...
Dad... "there's nothing wrong with him" Mum... "I don't understand, stop picking on him he's fine" Age 0-12 Friends... "Dan's just a bit nuts like he's always been"
confuzzled.
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Post by contrarymary on Dec 1, 2014 16:35:02 GMT
wow computermandangreat news about the appt. and i share your confuzzledness with what to do/who to get to fill in forms/ take with you etc. i would be stumped too. on the other hand, this is all new and hpefully some ideas will come in the next day or so when you have a chance for a bit of perspective. on the other other hand, it would be fairly straightforward to forget all about it - other than worrying, that is - and suddenly it's the 18 january and nothing sorted... do keep posting! i haven't got my appt yet and it's all helpful to know, ta v much
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Post by computermandan on Dec 1, 2014 17:06:49 GMT
there's all sorts of questionnaires attached to the email to fill out pre-appt. I've just skimmed through them - I hope I don't forget to sort them out. I think I will ask my Dad if he can come along but I'll probably forget to ask in time for him to arrange things. also my boss has suggested the date might not fit because he "might" be going away then... like he "might" be going away before xmas. I guess I fit in round everyone else's plans again eh (one day I'll stand up for meself!!). groan... hate complications.
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