Deleted
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Post by Deleted on Dec 1, 2014 18:44:07 GMT
Good news! And you've got, what, 6 weeks to prepare. Could you make a plan and post it here so we can all help and encourage (ie, NAG) you to get it done? Top priority: ask your dad in advance to save the date, and try to get a firm agreement with your boss (Could Christmas be leverage, eg you cover what he needs before Christmas, but you must have agreement on your appointment date?)
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Post by Deleted on Dec 1, 2014 19:42:50 GMT
there's all sorts of questionnaires attached to the email to fill out pre-appt. I've just skimmed through them - I hope I don't forget to sort them out. One thing I will add: if you can face it, download those questionnaires to your computer, save them to your desktop as individual documents and start filling them in sooner rather than later. Assuming that some of them ask for examples of behaviour/ways that ADHD impacts on your life, I found it beneficial to fill those in over a period of time, rather than in one setting. You will probably keep recalling examples as time passes and it may be easier to go back and edit them as and when, than to stress over it the night before your appointment.
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Post by contrarymary on Dec 1, 2014 19:59:38 GMT
also my boss has suggested the date might not fit because he "might" be going away then... like he "might" be going away before xmas. I guess I fit in round everyone else's plans again eh (one day I'll stand up for meself!!). groan... hate complications. You will have waited 16 months for this appt. It is a specialist appt at a national referral centre and is costing the NHS £1500. You are giving your boss 6 weeks' notice to have time off for an important, expensive, long-awaited medical appt the result of which might enable you to perform much better at work. His "might" be away is hard bloody cheese. Book the day off for the medical appt now. End of. xx
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Post by computermandan on Dec 1, 2014 22:23:21 GMT
Know what you mean - I'm sure he will okay it and rearrange any plans he's a good guy really. He gets the call as he approves it and passes it to senior bosses from there... Pains of working in a two person IT Dept I guess. Thanks for the suggestions - I've printed the questionnaires and read through them tonight.
Typical me I thought of January as months away not six weeks... All of a sudden it seems closer than I'd thought
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Post by computermandan on Dec 8, 2014 15:39:33 GMT
ok so well the appointment had to be cancelled, dubious as it may be I was told I couldn't take the time off as my colleague had booked a holiday already. I called and cancelled - remembered to do it there and then for once. however they couldn't rearrange at the time so had to call back today. lol next issue... couldn't get back to back appointment when I called as apparently the assesment involves 2 clinician appointments. now to take my Dad with me I don't think I can drag him from work twice so wanted a single appt. so now have to call back next week on monday. can only blame myself for this one as I didn't stand firm on dates in the first instance. ho hum. on another note - got a lot of post from maudsley today so suspect the postal copy of the questionnaires has arrived. now to try and focus on not getting grumpy over christmas (well not Christmas so much as having no money for presents, and remembering not to forget anyone)
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Post by supine on Dec 8, 2014 20:08:49 GMT
Oh man, that is so crap. Everyone's situation is different, but this could make so much difference to your life. In your situation I would have told them that if they couldn't give me the time off then they can find someone else to shit on. Apologies for the crudeness but they are totally taking the piss. The fact that it is a two man dept. and the other person has already booked time off just means that the business has failed to adequately staff the department - which isn't your problem. If you give >4weeks notice for time off that you *need* (and is a medical appointment at that - not some snowboarding expedition) then they should honour it. Don't ask them, tell them - let them deal with the fallout. Here, I'll help you out (feel free to ignore - I'm ranting because I'm so bloody angry on your behalf). "Dear HR Director, please note that I will be taking some annual leave on dd/mm/yyyy to attend an essential medical appointment. The potential difficulty in re-scheduling this appoinment (due to NHS resourcing issues) means that this is my only opportunity to address my personal medical concerns. I understand that the department I work in is understaffed, but I trust this is sufficient notice to organise cover for the period under discussion. Yours Truly Mr C.M.Dan." PS if you don't like it you can suck my salty balls, because I'm off for pastures new. [/optional] If you need a reference, let me know. I could probably chivvy up some really good references from some security and business consultants from places such as Verizon, Reuters, BT Exact etc. I can also help you conjur up an email trail showing how interested company X is in your services after the head-hunting company put your name in the frame for their recent opening
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Post by computermandan on Dec 9, 2014 10:32:05 GMT
"Mr C.M.Dan" i love it lol. Thanks supine for the support and effort gone into your post too! unfortunately EVERYONE (wife, colleagues in the know, friends etc) have all said the same thing and in hindsight I should have listened to you guys in the first place and stood my ground. there is actually a policy in place here regarding notice for holidays etc. that hasn't really been adhered to. case of small business thats actually got quite big and hasn't caught up with itself properly. in any case because I rushed in and tried to rearrange the appointment is cancelled so i'd be cutting off nose to spite face if i rush in again and kick up a fuss now. some close friends & colleagues have all said the same thing though.. .time to move on. I just loathe job hunting I'm so lame at it. and part of the excuse staying here I guess is it's a little easy and I get away with my quirks a lot.
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Post by supine on Dec 9, 2014 11:32:50 GMT
Have you called them [NHS] to ask if the original slots have been re-assigned yet, or have you assumed this?
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Post by computermandan on Dec 10, 2014 15:24:46 GMT
Have you called them [NHS] to ask if the original slots have been re-assigned yet, or have you assumed this? I spoke with a lady named Lola who seems to be responsible for it. I believe the slot has been booked now.
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Post by supine on Dec 11, 2014 8:59:46 GMT
Ah well, another thing to chalk up to experience I suppose. I know how difficult it can seem to stand up for your rights when you don't feel like you can just move on easily. I still have some problems with that even though I contract now, but it has taught me a lot of valuable lessons (like timing for example). I hope you get re-booked soon, and at least you know how to approach your company next time Good luck
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Post by computermandan on Feb 23, 2015 15:42:42 GMT
So.... just out of step 1 at the Maudsley assessment. waiting so thought i would post.
mentally drained already it was questions and discussion around the questionnaires sent in the post before.
got a little emotional towards the end when asked what would other people hope you got out of this etc etc but otherwise hope i answered accurately.
next step some other thing about i think autism but i suspect this is a little overkill by my referrer and a question from the last chap made me feel he thought possibly the same.
update later need to rest my head lol
dan
p.s. had trainee sit in on assessment and she was a very attractive lady lol
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Post by contrarymary on Feb 23, 2015 19:31:06 GMT
woohoo computermandan so glad to hear you have Finally Got There!!! look forward to hearing more when you have reoxygenated your brain xx
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Post by computermandan on Feb 24, 2015 8:03:33 GMT
ok so second part was actually more adhd related discussion formed around questions. It was clear there's not enough childhood examples of any symptoms for a positive diagnosis and that's what was summarised at the end too.
me as i am now there's clearly issues and its clear i was a daydreamer 7-12 but no impairment as such. The suggestion was made that perhaps because my childhood was so well structured no symptoms became obvious but they need more info before i can be dismissed or diagnosed.
so a phonecall to my mother to discuss what she remembers (i guess questionnaire based) and me going in for some kind of psycho analytic tests (not sure if thats the right word) is going to happen next to build a better picture.
to be honest it all seems fair enough to me.
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Post by computermandan on Jun 3, 2015 23:18:41 GMT
quick - somewhat mega late update.
report from assessment stated things like 8/9 traits for ADHD as an adult and 2/9 traits as a child. mostly formed on mine and my dad's input on questions asked....
I will dig out the image - wont post the whole q&A as it's a bit long winded but the "score" section shows how I didn't get diagnosed on the day.
They do say in the report (sent in march!) that they want to offer me to come back for different test - cognitive and intelligence tests of some kind from memory.
I really must chase them though...
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Post by computermandan on Jun 3, 2015 23:27:16 GMT
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Post by computermandan on Jun 3, 2015 23:27:43 GMT
woah thats massive lol
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Post by chaoticwitch on Jun 3, 2015 23:31:03 GMT
What does that all mean???
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Post by computermandan on Jun 3, 2015 23:56:39 GMT
yeah its all a bit wooooaaahhh at first. the diagnosis guides help with understanding it a bit.
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Post by gemstone26 on Jun 6, 2015 23:01:54 GMT
Hey dan ?. Iv just spent the last two hours reading your journey and WOW it's been emotional lol . Can't wait to hear what happens next
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Post by computermandan on Jun 9, 2015 10:32:39 GMT
lol thanks gemstone... we'll see... eventually
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Post by computermandan on Jun 29, 2015 10:00:30 GMT
well I gathered enough braincells to both remember to bring my report to work and to find a minute to call Maudsley to check if anything is happening... I'm not 100% sure but I think the fact a different assessment was suggested somehow got missed by the staff in charge of booking etc.
it happens.
anyway I think that we're on track - I managed to point of to the receptionist that a "neuropsychological assesment" was suggested followed by what I guess would be a follow up summary type thing some time afterwards I was told an email will be sent to the person needed to book these things and I would probably get a letter or a call regarding an appointment.
back to waiting...
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ana
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Post by ana on Aug 17, 2015 12:51:01 GMT
Just read through this thread - you've been waiting for an assessment for two years?!
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Post by computermandan on Sept 7, 2015 12:57:21 GMT
Hi ana - i did have an assessment in march but there was not enough evidence in childhood symptoms for a there and then diagnosis. which although frustrating makes sense. I am supposed to be getting news of further assesments to try and understand my issues and possibly lead to a diagnosis... but its gone quiet. I've spoken with the reception and cleared up some confusion (see last post june-sih) I haven't heard since and remembered to look back here just now to see if I can summon the willpower to chase it up again. this happens all the time with me so I'm at least partly to blame I guess I didn't realise it had been so long though. it's hard work.
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Post by contrarymary on Sept 7, 2015 17:49:21 GMT
hello computermandan good to see you i finally got to the top of the SLAM waiting list too, but it looks as tho i'm havig my assessments in reverse order from you. currently halfway through asd, waiting for second half of the assessment. been told it will be followed by recommendation for adhd assessment & some further assessment of cognition but no details or appts yet. saw my gp to ask for referral in october 2013...
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Post by computermandan on Sept 8, 2015 11:58:28 GMT
Hi contrarymary yep looking back we're on a similar timescale. can't help thinking that funding has been cut somewhere (as in everywhere) so nothing's happening at the other end... in the mean time I think I might start sellotaping myself together to stop me from falling apart. lol I can only laugh to prevent disaster!
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Post by computermandan on Sept 10, 2015 17:22:38 GMT
summoned previously mentioned willpower to call to chase... got told "neuro" is a busy department "short staffed" and they sent an email to the person responsible to arrange... I said that it would be nice just to know if I am waiting for an appointment or not as I haven't got a clue whats going on really. To which the response again was that an email had been sent... I know its one of them things but just now to top it off I was rushed into an unexpected meeting at work - turned out to be a preventative intervention notice or something like that... key points - I'm always late, I'm always distracted by my phone, I never have my timesheet up to date, I never finish tasks, I never remember to let people know I'm not finishing their task yet... in summary. grooooooooooooooooooooooooooooaaaaaaaaaaaaaaaaaaan. I need a pint. I know it won't help. Can I give up now please I've had enough
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Post by contrarymary on Sept 10, 2015 19:12:29 GMT
computermandan so you are struggling with many of the symptoms of adhd but without the label, or treatment. not fair all i can say is..... bums
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Post by computermandan on Sept 15, 2015 9:38:16 GMT
bums indeed lol. well still no progress... and starting early to make sure Im on time is killing me... 2 days in and I forgot to set my alarm and luckily made it thanks to wife waking up. never mind the fact that I'm staying 3+ hours later to finish stuff that's still not getting done during the day beginning to think some ppl are right... maybe I am a lazy arse and just looking for excuses
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Deleted
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Post by Deleted on Sept 15, 2015 11:45:58 GMT
Come on, Dan, keep trying. We all understand how hard it is, please don't give up on yourself.
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Post by computermandan on Sept 22, 2015 9:07:30 GMT
thanks still stumbling along. having a better week. Have discovered a new alarm app for my work phone called "Walk Up" the free version is limited but that's turning out to be a good thing... the only alarm tone available is "Man Screaming" and it's literally that. you can set it so you have to walk 10, 20, or 30 paces to get it to stop - there is no other way to snooze etc etc. scared the life out of my OH the first time (admittedly I forgot to mention it) but I'm actually getting up in the mornings now. I think that's a victory.
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