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Post by manson88 on Apr 18, 2016 21:48:00 GMT
Oh dear not so good... Let's be kind to ourselves be positive... Tomorrow is another day... X
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Post by manson88 on Apr 17, 2016 20:23:36 GMT
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Post by manson88 on Mar 29, 2016 16:22:45 GMT
Hi Alien I agree with you - this site is really helpful and it is very comforting to find that others have been through the same sort of experiences with so called 'experts' (although we shouldn't have to!). I have decided that I have no hope of getting a proper assessment via the NHS and feel that the only option left to me is to seek a private one. I feel really disappointed about this, as I support the NHS as an organisation. It has some excellent clinicians who do a fantastic job in the most difficult circumstances. However, both my assessment appointment and the Psychiatrist's report were very unprofessional. Although my cortisol levels are through the roof already, after having to fight for my ESA benefits by taking my claim to tribunal (which I won), I have decided to make an official complaint about this. I think that just because we are using a 'free' health care system, it should not mean that we have to accept poor care or be fobbed off/ignored. Finding a way to afford a private consultation is not going to be easy, but in the scheme of things, I think that it is well worth the cost to be properly assessed. It's all about being treated like a human being - feeling heard, not being patronised and having my past medical history properly looked at. If a private doctor had written the medical report I received, they would go out of business very quickly (in fact, I doubt they would even be able to get a job in the private sector writing garbage like that). Apart from the many obvious errors in respect of my medical history, background and presentation, it was also full of ambiguity and, in parts, unintelligible due to poor syntax, grammar and lack of punctuation. I am not being pedantic - this letter was intended to form part of my medical notes. Accurate detail and clarity of communication is of the utmost importance in a document like that. Grrrrr..... still seething when I think about it .....maybe I do hang on to anger after all. However - this is a pretty big deal for me. I tried contacting my GP surgery to see if I could get an appointment to ask for a referral for a private ADHD assessment and the receptionist told me the earliest appointment would be 4 April! I've managed to get a telephone appointment sooner. Here's hoping I can make a request like that without having to go in personally. Every step is sooooo slooooooooow....impatient, moi?? I just wanna say here, take a break.. You could do some other things.. Go for counselling.. This is and has been a corner stone of my survival of the last 4 years... Working with a counsellor you can reduce your issues. They will help you look at things in a different way and work through the feelings. I would also suggest that you do some investigation work yourself. Like try and find out through patients support when the psychiatrist move.. Even have a chat with patients support of your experience of your service.. Remember that they are always looking for ways to improve the service. Also your experience could lead to a better service or they could talk on your behalf. They serve a period of time in each field of psychiatry and move on. Try find out when the next rotation is. Through a friend or some who may work there.. Then hit your gp for a second opinion.. Don't give as it's taking a step back.. Don't give in to it they don't want people like us seeking questions to answers.. There's good gate keepers to the service and then when you have put pressure on the gate keeper you will get success.. Hope this helps Manson88
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Post by manson88 on Mar 25, 2016 22:14:00 GMT
clubby Lol... Don't we hate looseing the train of thought...
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Post by manson88 on Mar 25, 2016 19:31:36 GMT
Flu turned into nasty cough and I had to get antibiotics as it was getting so bad. Now I have a cold but at least my energy levels are up. Probably payback time for the stress of moving house. Just another thing to get in the way of aspirations. I've been reading lots of posts lately and my head is all over the shop with thoughts about adhd management. 1 How do we switch the brain off 2 How do we switch the brain on 3 How do we reset the brain that goes into emotional meltdown 1 How do we organise a complex world 2 How do we get lists under control 3 How do we plan 4 How do we prioritise 1 How do we wake ourselves out of LaLaLand 2 How do we stop a hyperfocus 3 How do we control our impulsive intuition 4 How do we escape from procrastination 1 How do we control our involuntary movements 2 How do we stop being rigidly frozen to the spot 1 How do we make relationships with people who keep de-railing our efforts 2 How do we get professionals to listen to us, to hear our perspective 3 How can our voice as adults be heard - instead of being treated as failed children 4 How can we show everyone the way forward so that ADHD children are not forever caught up in the vicious cycle that "normal" society perpetuates .......................... etc etc Love your energy here clubby!!
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Post by manson88 on Mar 25, 2016 19:25:13 GMT
I wanna say that I have been through similar experience as you...
I had to make a complaint about a psychiatrist whom didn't get everything I had..
I have a learning disability,dyslexia I had the mental health problems anxiety and depression.. Which can be found common in Adhd inattention..
Had a dx in 82 of mild Cybele paulsly.. Probably dx now days as dysprixia.
The psychiatrist had diagnosed me with boarder line adhd inattention.
I wasn't satisfied like you with his decision. So I made a compliment to management.. It went to the top and finished there with a reply more covering their own backs.
Anyhow wasn't satisfied with that tried getting diagnosis out of trust and that didn't work. Cause they said that there was service with in the trust so they wouldn't send me..
So a passage of time went by maybe 6mths or so hassled the gp a bit more.. He then said that the psychiatrist whom had screened me had left so he referred me back there.
The new psychiatrist said it was unfair what the previous psychiatrist had done all the evidence was suggesting that I had adhd inattention. Was going to treat me..
Getting the dx and the treatment is only the start. The rest is finding a away forward, new organisation skills, routines, and being easy with yourself and accepting it.
Hope this helps..
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Post by manson88 on Mar 23, 2016 23:31:33 GMT
Time to share.. I moved home after 17 year's to mums house.
It has not been easy. She has OCD, I'd love to be organised like it and have the confidence to go with it would be great..
We have fallen out over simple things like a pile of letters not sorted out or put away..tidey wardrobes, shelves, garage, car, to much time on phone or laptop... Things have actually got easier.
Though in saying that, Im free to come and go all I want. She seldom asks were I was, who was with or what time that was to come in at etc..
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Post by manson88 on Mar 10, 2016 17:54:40 GMT
Hi I've been on atomoxetine now for four weeks goin from 18mg to 60mg.i was originally on 90 concert class but was told thT wasn't working so I've been put on these.Thoughout the 4 was I've been feeling really sick and have been getting hot/cold sweats which isn't nice but I'm trying stick it out until my review nxt wk.My question is does Atomoxetine stopped diazepam from working as I do suffer from anxiety and I am only on a low dose of diazepam 2mg twice daily which I personally feel isn't enough for my anxiety and have been taking a couple more than prescribed but they don't seem to be working all??Ive searched for the answer to my question-Does atomoxetine stop diazepam from working and have no luck in getting an answer.If anyone knows I'd really appreciate it if they would let me know,thanx? Just remember that you have added a new medication it's going to take time to settle down.. Strattera more harsh than concerta.. Concerta more subtle and gentle. Where as strattera is more in your face, you will know there's something going you will warm and irritability.. By a word of caution when you are on strattera it would not take too much for you to have an altercation with someone so be careful...
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Post by manson88 on Mar 9, 2016 14:53:14 GMT
Hello Diary, I'm back! Time to update on the ongoing saga with my new GP Practice. . . I thought I'd posted about my appointment with a second Dr, but was probably a rant/vent (!?) anyway, he made me feel like a troublemaking mental hypochondriac and a couple of days later I had a call from the practice asking me to make an appointment for a MH Review. I asked for another different Dr. That appointment was this morning and I was dreading it. . .he started off by asking if I was being seen by the MH Team (no) and did I have any repeat prescriptions for antidepressants and I told him that I'd been refusing to take them over the past few years. . .and all the usual questions about my mood. . . and they still haven't got my notes. . .SO. . because he seemed quite nice. . I decided to tell him that the main thing that was bothering me was that I was only diagnosed with ADHD last year and was only a little way into treatment when I moved and I'm getting no help and support for it and I'm not fully titrated and did he know how long the waiting list normally is? He didn't look at me like I was deluded, said he'd try to chase up my referral and find out what the waiting time might be. He looked at my consultant's letter and said 'you're on quite a low dose of concerta' and I explained how I didn't think I was on the right dose yet, which is why I'm so frustrated that I'm not seeing a specialist to sort it out. He just wrote me a prescription for 54mg and said I should try that and let him know if I'm getting any bad side effects!!! WTF!!! How easy was that? and I didn't know that GPs were allowed to change dosages. . I don't really care. So yesterday I was all ready to change GPs or make a complaint and today I find an understanding GP Class result.. Love your patience.. You have had to ruff ride changing Dr seems like the this Dr has over rode the system.. Result though all the same!! Whoop Whoop!!
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Post by manson88 on Mar 7, 2016 0:26:05 GMT
You don't have to disclose that you have a disability unless it effects the nature of the business directly! From personal experience, You should contact the disability officer in the job centre for a chat and explain how and what has happened. Manson88 I know, but this was one of the first places I applied to. I just thought I could do with some extra assessment test time / interview accommodations. I haven't disclosed anywhere else since. That is why, they are basically afraid to employ someone who has various disabilities. I'm going for a job next month and it's the last thing I will be telling them. Not until Im filling in the medical questionnaire and I'm sure I'm starting. It's also a good reason why you should be looking for advocacy from the disability support officer at your local jobs centre. It's the disability support officer's job to negotiate with the employer for a reasonable adjustment for a entry crtiea. That is what they are getting paid to do. They are the people who are employed by DWP to try and keep people who have disabilities in work to avoid situation like this. They could've approached the employer and said that we have a client who is capable doing the job though he needs extra time under the reasonable adjustment act of 2010.. Cause what the issue is there's people who have conditions that impair their lives and refrain them from working full time. Their not sick enough for DLA but full time work is too much also. Well all of us should have them tortured when we are going for a job to make things fair.. Manson88.
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Post by manson88 on Mar 6, 2016 21:02:08 GMT
You don't have to disclose that you have a disability unless it effects the nature of the business directly!
From personal experience, You should contact the disability officer in the job centre for a chat and explain how and what has happened.
Manson88
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Post by manson88 on Feb 27, 2016 16:45:38 GMT
I can only share from my experience,
I have social anxiety disorder and general anxiety disorder. I'm on 300mg of pregabalin.
Like you I was on strattera up to 60mg. It made me depressed. So I came off it and started concerta.
I actually preferred the feeling of being on strattera though it stopped working.
I take it you are on anxiety medication..
I had similar experience starting strattera. I talked myself out of it. As someone said how bad do want a break from your symptoms? Truthfully..it smoothes the attention and reduces your anxiety when you're on it.
You will have a clearer head and notice some things running smoothly more on the ball and sleep better!! Though you need to work on reinforcement of routine.
Like for me I'm a white van man. I have to make sure I write each delivery down and look at the clip board after& before each delivery.
Yes I know it's that simple. If I don't I'd try and remember each Job as I go along. Or try and remember them in two's. If I don't look at the clip board I'd miss one out and would cause a lot of anxiety. Cause I would have to drive back round to do that job.
I feel your anxiety is around the chemical that your putting in to your body. I had trouble getting over it also. You wouldn't have the medication if you didn't have the symptoms!!
I actually like the feeling I get from concerta when I take no breakfast and just black coffee.
It's not an anxiety were your afraid of a situation happening or where you are afraid of offending someone.
It just feels like a real strong coffee and can feel like as if you are free wheeling, I actually feel as if I'm floating along flying it's actually funny real giddy like as well..
Concerta takes about 1.5hrs to spike in you, some days you feel it some days you don't it's subtle and smooth.
I would personally prefer to try the instant ritlain though the psychiatrist won't let me.
I will leave you with this, getting a dx is everything, getting treatment is a bonus.
The hard work is getting there. Cause you have tried so hard to get this far. Try the medication see if it works and if it doesn't ask for something different you are in control..
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Post by manson88 on Feb 26, 2016 11:47:56 GMT
clubbyThere's nothing like getting distracted lol
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Post by manson88 on Feb 25, 2016 23:00:07 GMT
Hi manson88 These are the songs of my childhood. I know the words inside out an upside down Paddy McGinty's goat Delanay's Donkey O'Raffertey's motor car THANKS FOR SHARING xxxx I have done my time at the lorry driving and now I'm a white van man.. Not a great job for someone who has various mh conditions.. I don't have any favourite type of music even though I'm a 90s child. You would be surprised what you would listen to in the early hours of the morning when there's nothing else on the radio.. You find at certain times of the day listening to radio shows.. Though when ever a certain song comes on you always had a wee sing along! Driving can be stressful, long days, late nights, early starts. When a song came on you have to have a sing along there's no else about!! It can really lift your mood every time.. As someone pointed out to me, you listen to crap! Lol
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Post by manson88 on Feb 17, 2016 17:47:54 GMT
Keep smiling lol
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Post by manson88 on Feb 17, 2016 17:45:45 GMT
Just smile,
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Post by manson88 on Feb 17, 2016 17:35:10 GMT
Love it..
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Post by manson88 on Feb 17, 2016 17:26:16 GMT
Just a suggestion, I have picked through are you diagnosed with anything?
In case I haven't seen it yet, are you on the sick?
You could probably as citizen advice for representative at the interview if you have no union rep...
Just a few thoughts, I have been in similar condition..
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Post by manson88 on Feb 15, 2016 20:20:10 GMT
I would suggest you ask for a appointment with the practice management.
There's been to many issues going on with them Dr. Maybe a chat with the management may shake them up a bit.
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Post by manson88 on Feb 12, 2016 22:44:46 GMT
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Post by manson88 on Feb 8, 2016 19:39:51 GMT
Hey, Manson. I've been catching up on threads I've missed. Sorry to hear you've had such a rough time of it, lately. I can't possibly go back and catch up on everything I've missed, so it would be lovely to have a chat/pm sometime. Kx Do, its good to talk..
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Post by manson88 on Feb 8, 2016 18:26:45 GMT
Just before Christmas I personally commented on a thread someone else had started. Someone came in behind me and tore stripes of me.
I do have social anxiety and general anxiety, it had an impact on me at the time. As well me going through marriage separation it didn't help.
I have lost interest in the forum cause of this. I think cm did weigh in and made comments on the actions of others were unreasonable .
Due to the situation I have now decided to be careful what I say. So much for a free space for us to be ourselves . To me it seems to be a place where people come to put their tupins worth.. and yes I have done so myself in the past.
Though cause of my anxiety I'm always careful of what I say..
We can all see the things people get, we never see the things that people have..
I just like to urge folks who come on hear, just have a thought before you press the send button...
Manson88
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Post by manson88 on Feb 8, 2016 17:32:11 GMT
Nice to see all the senior members coming in to say hello! petra
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Post by manson88 on Feb 6, 2016 13:58:56 GMT
contrarymary has a habit of taking baking nice cakes though the only issue is that she takes all the stuff out that we are not allowed lol... Coffee and cake is away to a man's heart!!
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Post by manson88 on Feb 5, 2016 23:31:15 GMT
I love the sound of your scarf clubby my free range knitting is generally to learn a pattern then to almost immediately adapt it - different needle sizes/type of wool/tweak on the original design. i love knitting hats. they're all pretty simple still, but i've now made dozens and no two have been exactly the same. i learned a hat pattern, and knitted that a few ways with different wools & needle sizes. then i learned another hat, and did the same. then another. nowadays i think first about colours & colour blends, often combining wools together. then i choose needles to fit the wool - or not to fit the wool if i want a different effect. and only then decide the pattern, almost as i go along. sometimes i'll find something hasn't worked, or has come out differently from what i'd expected. generally i just keep going, maybe making a mental note to tweak or change something in the next hat. other times i'll start looking for new ideas, new techniques or styles until i find a pattern or combo i'd like to learn. then once i've got the hang of it i'll be off piste again, combining styles or techniques ... contrarymary What about cakes are you still baking? Lol.. Cakes much nicer!!
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Post by manson88 on Feb 5, 2016 17:59:46 GMT
Im just left a 17 year relationship..
All I can say is that you need frequent heart to hearts. Not pillow talk not but sit down at the kitchen table and talk properly.
It's difficult to get someone to talk who doesn't want to talk. I was in a position were I was happy to go to marriage counselling but the other half said no.
I would also suggest that if you go for counselling for yourself which you probably need. I would suggest you bring her a along also so she can hear and understand.
After being were I have been, my next relationship will be different.
Maybe I will meet someone who can understand has had experience of mental health. I would really like to meet someone who cares about me and wants to move forward also accepts how it is.
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Post by manson88 on Feb 5, 2016 17:21:37 GMT
hi adhdude
after 2.5 years of trying everything i can short of meds, here's what's been most helpful...
exercise is really good - rebalances brain chemistry, dissipates antsy feeling & disrupts hyperfocus. from walking round the block, running, cycling, exercise bike - something. it really helps to recentre. meditation is amazing. i failed utterly with "mindfulness" - esp mindfulness for adhd! - but have been practicing meditation for just over a year now and found it amazing, revolutionary and v v v helpful. i use wildmind which has pay-what-you-can monthly online meditation courses covering a variety of things eg mindfulness of breathing / body, developing self-compassion etc learn a repetitive activity that is creative and can become automatic. i've found knitting - it calms, focuses, engages antsy bit of brain and boosts concentration on other stuff. now have best EVER concentration on lectures/meetings/films/conversations while knitting. the ultimate fiddle toy, and i make Lots of useful stuff! get a good sleep pattern, keep coming back to it when it slips rather than giving up. it's the foundation for just about everything else and so worth it. look at diet - food & drink habits/patterns. some stuff always makes me worse - generally sugar & caffeine, and too much alcohol. some stuff will help focus, other stuff distract. it seems to vary from person to person. get some routines going. start simple, be as strict as you can and build on them. whether it's best bedtime, or morning routine, or night-before routine, or "before-i-leave-the-house - it all helps. don't catastrophise - everything falls apart sometimes, just start again. talk out loud to yourself - it's a great way of noticing what you're doing and the messages you are sending yourself. sometimes that alone can be enough to break hyperfocus or antsyness. that's all Love this blog contrarymary.. Routine builds security..
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Post by manson88 on Jan 30, 2016 10:52:22 GMT
Hi shapes (not run into you before) I know all this, but you expressed it really well, thank you for taking the time. My failure to make and maintain friendships/relationships was my main motivator to get a diagnosis. I've already spent years developing systems to organise the practical things in my life, so they're not so important to me as they are to some. I've calmed down a bit now. I'm my own worst enemy. It's a sad thing to think that the only people I can talk to are online (invisible friends) Trouble is that I find the majority of people a bit boring and I don't want to be friends with them. vagueandrandom stop being so hard on yourself please ...
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Post by manson88 on Jan 19, 2016 23:51:54 GMT
You would like think that there would be a reasonable adjustment for this I'd be asking the disability officer.
Cause with holding information in your head with your said issues it can't be fair?
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Post by manson88 on Jan 19, 2016 23:44:27 GMT
vagueandrandom When someone has purpose everything else follows! Hope you get sorted quickly.!
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